There is a lot of research out on cushings. You need to use "Cushings Symdrome" instead of Cushings Disease. John Hopkins I think it is, OHSU in portland OR has great research on this and videos, spine and slull base institute in Pittsburg, Harvord, NIH, NIMH, Mayo, and a number of other sites have resources and information and videos.
The dignosis is not really that hard. THe problem is it is rare. Doctors (most) only want to look for what is easy to find. Meaning if you have cough they ASSUME you have a cold, they do not look for lung cancer, if your tired they ASSUME it is somthing like depression, anemia, or somthing like that, somthing really obvious. They do not think cushings, or cancer or things like the such. THey look at the signs and treat you for want is right in from of them, not the root of the problem. they do not try to get to the root of the problem. An we are like Matilda in the movie, doctors silent quote: "I'm big your small I 'm right your wrong" is what most doctors think or say when we question them. This really makes me mad. However, we can not change it. We have to except it.
I really can not say much here though, becasue me myself, I am learning to treat myself and be my own doctor, as I have decided to stop here. I have tried again and again and get the same answers. Repeating the same thing over and over again is the defintion of insanity(atleast that is what i am told) so all I can say is there is a lot of research out there. THere is new research being done.
Another search you may want to try is to use "SOM230 and Cushings" you will find alot of research here about cushings also. SOM230 is a trial drug in stage 3 last time I heard that is used to treat (not cure) cushings disease. I particpated in this study.
Amanda W
