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HopeRising

ChattyCushie
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Everything posted by HopeRising

  1. Oh wow... I feel like this when I'm low. The best way I could describe how I feel on these days is near coma. Getting out of bed is a chore, keeping my eyes open is a chore... Sleep comes easy, and I feel like a need a lot of it... Crazy how some of us can go from one extreme to another, between highs and lows. So sad that it took so long for people to stop calling her lazy, and realize maybe she wasn't a zombee by choice!
  2. EDITED TO ADD: I just read your bio, and the show doesn't even do your journey justice. You are one tough woman. I really hope your daughter, Jordan, is Cushings free.
  3. Oh cool! I wondered about that... So, hi Jackie! Thanks for doing the show! It was another great encouragement for me.
  4. http://health.discovery.com/tv-schedules/s....120601.29206.x "Samantha Edgar has unexplained periods of pain, weight gain, acne, and high blood pressure." It was on Discovery Health tonight at 10pm, it'll be on again at 1am, then again September 27th at 2pm and September 28th at 2am. It's also the later part of the show, so about 1/2 way through. SPOILERS: The child's mother sounds like so many of us, after seeing endo after endo after endo. Being told to restrict diet for her child, even being accused of having Munchhousins (sp?) By Proxy! Finally a Pediatric Endo decides to check for cortisol, even though the syndrome is so "rare". A 24 hour UFC shows a level of 3000! However, he also says the child is "cyclic" cushings because she goes through stages just like many of us. She's normal for a while, and then starts eating like mad and puffing up like a balloon, her eye brows grow together, she complains of aches and pains everywhere, etc. There's no mention of a brain tumor (or even looking for one), in fact they find nodules all over her adrenals and do a BLA. She's perfectly fine now, but I'm wondering if they missed the bigger issue (a pituitary tumor)? Anyway, the episode is totally worth a see! It was the shot in the arm I needed after one very disappointing day.
  5. Wow, Cindy! That is so wonderful! I'll bet it makes you feel like all the trouble you've had with this disease may be somewhat worth it, if you know you may be helping others get better. I'm totally impressed with Dr.McC. I just sent my films to him, and am considering him as a doctor as soon as we're able to go that route. Any man who is willing to give so generously of his time, is worth driving/flying the extra 1000 miles for! I hope things heal up quickly so you can get a shining report out to the great doctor.
  6. So, would someone who is both estrogen/gh deficient, benefit more from estrogen therapy if it helps both?
  7. Wow, how cool is that! My HMD saved my near bursting appendix when I was 11. He said the thing was there for a reason or it wouldn't be there. So, instead of cutting it out, he sucked all the bad stuff out. I haven't had any problems since... TMI here: The stuff that came out was this green, oozie, awful crud.
  8. That is funny! I'd like to have a text book burning party in my front yard... Great news story. I've always wanted to do a marathon. Used to love to run... Dream about running now...
  9. I wanted to make sure I read this right- So, according to that study, someone who has a BMI over 30 (considered obese) has a cut-off for GHD of 4.2 in the arginine/ghrh test. Where it's a cut-off of 11.5 for those who are lean and 8 for those who are overweight (but under 30 in BMI). Is this correct? It doesn't matter that you have other hormone deficiencies, it's all hinges on your BMI?
  10. Ding, Ding! I think we have a winner! Yes, I'll be printing this article for my new endo. (only if the information is needed, of course) Thanks for posting this!
  11. http://content.karger.com/ProdukteDB/produ...ArtikelNr=50015 This is just a small portion of the article. Unfortunetely you have to pay to read the entire article. I'll fish around to see if I can find anything else about this. I haven't seen anything about antipituitary anitbodies before, especially linking to Hashimotos which is an autoimmune disease. This is real interesting... Hmmm... UPDATED: Another good article about anti-pit antibodies, GHD and autoimmune endocrine diesease- http://jcem.endojournals.org/cgi/content/full/jcem;88/2/650 (click for full article)
  12. I am writing a research paper on equine cushings and have found that horse owners are using "Chasteberry" Tea to treat their cushie equines. Of course, there hasn't been any official studies on it, but the results reported by owners are very, very interesting. Here's a link... http://www.alphahorse.com/cushings-disease.html Women who have servere pain during menstration report that Chasteberry actually helps calm things down a bit, too. Interesting... If I find out that I have cushings, I think I'll be trying natural methods first. The surgery and prospect of the cushings coming back, freaks me out.
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