I work part time for my local newspaper, and I've been thinking about asking if I could write a story about Cushing's. Problem is that my editor likes to keep things kind of small-townish, and most of the feature stories are about local people who face adversity etc.
But I think if it is a national day this year as it has been for the past two then I could make it sound important enough. If anyone would like to offer suggestions or ideas, or put up their name and stories to be included just let me know. I can send you my email address if you message me.