Admin ~AnnOuncement~ Posted February 21, 2008 Admin Report Share Posted February 21, 2008 Karen (Rooon55), February 21, 2008. Karen's disease started when she was a little girl (7) and she finally got a diagnosis in 2005. She had cycling Cushing's, Thyroid disease, GH deficiency, and Auto immune Alopecia. She believes she is cured after two Pituitary surgeries. A doctor didn't advise Vermont's Karen Nolan (Rooon on the boards) that she might be one of the scant 3.5 per million people diagnosed annually with Cushing's disease - another Cushing's patient did. After reading Nolan's post on an Internet message board, another patient suggested Nolan's lab results and symptoms could indicate pituitary disease and that help might be found more that 3,000 miles away at Oregon Health & Science University. From Karen (rooon55), MedfordNews, May 15, 2006 Read Karen's bio at http://www.cushings-help.com/karenn.htm Listen Live at http://www.blogtalkradio.com/CushingsHelp Call-In to ask questions of add comments: (646) 200-0162 Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted February 21, 2008 Over 2000 Posts Report Share Posted February 21, 2008 Ugggggggggggg Robin. where did you get that Photo??? OMG hey guys... I will be on the pod cast tonight, anyone that has time I would love it if you listen. If you can't catch it tonight maybe you can listen another time. Hugs, Karen Link to comment Share on other sites More sharing options...
fatnsassy Posted February 21, 2008 Report Share Posted February 21, 2008 Hey Karen! I'd love to listen, but I never do. It is a super busy time at my house, and then I forget about it later. I have weeks worth of these to catch up on. I'm sure you will be great on the podcast! Thanks for the times we have talked. I appreciate your help and support! Love ya! Gracie Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted February 21, 2008 Chief Cushie Report Share Posted February 21, 2008 Ugggggggggggg Robin. where did you get that Photo??? OMG hey guys... I will be on the pod cast tonight, anyone that has time I would love it if you listen. If you can't catch it tonight maybe you can listen another time. Hugs, Karen Ummm - Robin doesn't do these, I do. I got the photo from the newspaper article, the only one I had of you. Future interviewees - I need a good picture of you that will be posted around the site, on the boards, and a short bio so there's something to have as a short synopsis. I usually use the avatar but Karen's is her dog and I didn't think that was appropriate! I know it appears that these interviews/podcasts are Robin's but I do the scheduling, switchboard, all the behind-the-scenes stuff. Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted February 21, 2008 Over 2000 Posts Report Share Posted February 21, 2008 Mary sneaky LOL..... you really dug that one up heee heeee. To be honest, I never post my photo, because ... well, i'm not happy with the way I look. Its getting better as the weight comes off, maybe I will be brave in the coming months and post a real photo in my avatar Link to comment Share on other sites More sharing options...
stjfs Posted February 21, 2008 Report Share Posted February 21, 2008 Okay- what time is it on tonight? (central time zone here)... Tammie go Karen!!! Link to comment Share on other sites More sharing options...
Over 2000 Posts ADDflower Posted February 21, 2008 Over 2000 Posts Report Share Posted February 21, 2008 Mary, I swear I don't know how you find the time (and energy!) to do all that you do. You are truly dedicated and wonderful to do all that you do! Karen, I know most of us are not happy with the way we look... but we need to put a face with cushing's disease, and that face needs to be the real us. The way we are because of this disease. ... besides, I've seen you and you are a beautiful sweet darling lady. Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club Llama3234 Posted February 21, 2008 Member of the 1000 Post Club Report Share Posted February 21, 2008 Okay- what time is it on tonight? (central time zone here)... Tammie go Karen!!! 5:30 p.m. CST (unless there is a time change that I'm not aware of). I won't be able to hear the live version, but I can't wait to hear the archived ones. Mary you do soo much to spread the word of Cushing's, it just amazes me. Hugs to you! -Jessica Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted February 21, 2008 Chief Cushie Report Share Posted February 21, 2008 7:30 eastern - all regular chats will be at this time. If there's a doctor or someone who needs a different day / time, we can make an exception for that week but the "official time" is 7:30PM eastern on Thursday nights. Link to comment Share on other sites More sharing options...
Over 2000 Posts casperslove Posted February 22, 2008 Over 2000 Posts Report Share Posted February 22, 2008 I'm finally able to take time to hear it, and I can't "hear" it. Can't figure out what's going on. I registered and have tried to fix all my volume controls and everything. I have no idea what's going on. It has yet to send me a registration email and everything. *sigh* Sorry Karen. I'll try as long as I can... I can hear the previous interviews with Robin, but for some reason the one going on now is not letting me "in." Bummer... Guess I'll have to listen in afterwards. Link to comment Share on other sites More sharing options...
staticnrg Posted February 22, 2008 Report Share Posted February 22, 2008 Kay, it may be your firewall settings. I'll see if I can figure out what may be happening. Others may have some idea, too. Karen, you did great!! I can't wait to hear the rest of the story. Mary, thanks for all the hard work!!! XOXOOX Robin Link to comment Share on other sites More sharing options...
judycolby Posted February 22, 2008 Report Share Posted February 22, 2008 Good job, stay tuned for part II. Judy Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted February 22, 2008 Chief Cushie Report Share Posted February 22, 2008 It's on iTunes now We're getting a pretty full schedule already - booked through March 20, one patient interested in an interview but not yet set up as well as 2 doctors. I think we have a hit on our hands! LOL WTG Karen and Robin!!! Next week JenS will talk to us about BLA and related topics. The upcoming chat schedule can always be found here: http://www.cushings-help.com/guest-speakers.htm Link to comment Share on other sites More sharing options...
Over 2000 Posts casperslove Posted February 22, 2008 Over 2000 Posts Report Share Posted February 22, 2008 I finally got to hear it - after the fact of course. It must be something with the plug-in and firewall settings I have for that application maybe?! I'll have to ask my hubby, he'd know. He has his MBA class tonight, or I would've done it sooner. But Karen, it was nice to finally hear your voice and you did great! Hopefully I'll be able to hear part 2 live! Link to comment Share on other sites More sharing options...
Flojo3 Posted February 22, 2008 Report Share Posted February 22, 2008 Thank you Karen for sharing your story with us. I look forward to your next broadcast. You are an inspiration to those of us looking for answers and a diagnosis. JoAnn Link to comment Share on other sites More sharing options...
Member of the 1000 Post Club teresab Posted February 22, 2008 Member of the 1000 Post Club Report Share Posted February 22, 2008 Karen, I am looking forward to your next installment on blogtalk. Thank you for sharing your story. Teresa Link to comment Share on other sites More sharing options...
Over 2000 Posts rooon55 Posted February 22, 2008 Over 2000 Posts Report Share Posted February 22, 2008 I just got up the nerve to listen to myself and .............heck it wasn't that bad heeheeeee. Thank you Mary O for all you do. Without you this web site we would be lost little souls. Hus, Karen Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted March 20, 2008 Chief Cushie Report Share Posted March 20, 2008 Karen joins us again tonight for part two of her interview. I'm looking forward to hearing the rest of Karen's story! Link to comment Share on other sites More sharing options...
lesley Posted March 20, 2008 Report Share Posted March 20, 2008 Karen- i'm sorry going to miss an interesting chat tonite. I love the blog chats but won't be able to be there tonite...... Jewish Holiday- Purim not that I feel good enough for any celebrating.oh well... lesley Link to comment Share on other sites More sharing options...
Chief Cushie ~MaryO~ Posted March 21, 2008 Chief Cushie Report Share Posted March 21, 2008 Tonight's second chat with Karen (rooon55) is now available on iTunes at http://www.itunes.com/podcast?id=271150820 Enjoy! Link to comment Share on other sites More sharing options...
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