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Guest Bryan Guinn

Mby cusingings? One negative test but so many symptoms

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Guest Bryan Guinn

Hi, im glad i found a board and depending on why you guys think i may join so i can reply and post in other topics ect...I have been having strange issues for many years now and have seen so many doctors and yet all ive been told if that im fat, im 18 now and no matter what i do the symptoms don't go away or i get new ones. Currently i purple/red stretch marks all over my body as if i gave birth 6 times, my face is red and i have acne that never gets better, my checks are puffy and my muscles are always sore, even my bones seem sore at times. My skin is so sensitive and i get sun burn even when i wear sunblock and every time i get a shot( no matter how small the needle) i get a huge unusal bruise that lasts for quite a while. I went to my family doctor with cushings suspicion and although he dident seem to know alot about it he did order a 24 hour urine, they claim that it came back negative for cushings although they would not tell me what the results actually were, i have had a few problems with this lab in the past( they told me i was pre-diabetic and close to getting diebaites and then tested me a few days later and said i was perfectly fine, there mistake) and im not sure what to do next, Even know they only did one test, it came back negative, so should i just forget about cushings and just assume im fat? or should i see an endocrinologist? Any feedback would be great, thank you.

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Hi, im Jenna :) I'm 17, so i know how frustrating it can be to go between doctors WHILE trying to go through school, etc. I just recently had a 24 hour cortisol test come back negative, but i have Many symptoms of cushings, and I'm probably going to push for more testing, if i were you, i would ask for a referral to an endocrinologist, and then have more testing done through them. I'm probably going to push for more testing myself when i go for my followup with my endocrinologist later this month.

 

Good luck to you, I know its frustrating to not have a name for what's going on, just remember that if YOU think something is wrong with your body, something probably IS wrong, after all, no one knows you like you. It took me 4 years and MANY female doctors to get diagnosed with endometriosis. and i was to the point where i almost gave in to the "It can't be that bad, you need to suck it up" crap people were feeding me, and I'm SO glad I didn't, Because even though my endometriosis hasn't improved much, i have justification, and i know it wasn't "all in my head" like i had been told by so many people, doctors included.

 

As for your symptoms, I also get sunburn REALLY easily. And it doesn't seem to want to heal. Weird.

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If you think you might have Cushing's then it is important to rule it out. You need to do many urine tests for cortisol--if you can do four over a two-week period, along with four salivary cortisol tests that would be a good start. As a person who had Cushing's for many years before diagnosis I cannot stress enough how important it is to get an early diagnosis--the more weight you gain the harder it is to lose and the more damage is done to your muscles, bones, eyes, heart, etc. Even many endocrinologists have problems diagnosing Cushing's because they believe it is too rare and they are not up-to-date on the latest testing. Get copies of all your tests (it's your right) and keep pushing for more testing. Good luck and keep us posted.

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Hi-

I'm glad you found this board. Please spend some time and read as much information as possible. This will help in ruling Cushing's in or out. As mentioned you have the right to your own information.

Also note that depending upon the type of insurance you have you may not need a referral to go to another doctor. It is a good idea to check into your policy at this point.

Good luck,

Pat

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