Well yesterday was my first trip to OHSU to meet with Dr. Maria Fiseriu. I really like her she is very nice and seems to know what she is doing.
Anyhow, she said that all signs point to Cushing's but because it is such a rare and nasty disease she wants to re-run some tests on me. Yesterday, all she done was talked to me and done a physical like examination of what this terrible disease has done to me. And she had some lab work done.
Last-night I had to take a pill at 11 and then had to
So it has been six months and a day since my surgery to remove the tumor on my pituitary gland. Those many months before surgery were hell and finalling finding a diagnosis was the greatest thing. I couldn't even trust myself with anything because I was so forgetful. I worked full time still and because I would only sleep like 4 hours at the most at night, I would just come to work. I usually would get to work at like 6am and work the full day in a zombie like state. I was going to the doctor ab
Well.. I haven't been up to posting. My endo winded up diagnosing me with PCOS. She only did one cortisol test and that was morning cortisol, and that came back on the low end of normal as it always does.
Anyhow she said my free testesterone was elevated and that combined with my symptoms were enough for her to diagnose me with PCOS. My gut is telling me this is NOT PCOS. I know I have some of the symtpoms, but my gut won't let go of the Cushings. I know I need to be tested before I can.
Insomnia gets so boring. I keep running out of things to do, especially during the night. I don't want to wake everyone up by moving around the house too much so I pretty much stay in my room. All I do is color, read these posts, IM a couple of my friends, play games on here, etc...
I really never thought that the internet would get to be so boring but it's all I really have to keep me occupied other than of course coloring.
I'm starting to get tired of watching movies all night every n
Well today OHSU is suppose to call me to make the arrangements for me to start seeing them. I'm so excited after all of this time I'm actually getting somewhere with this whole disease. I hope they call before I fall asleep because once I'm asleep, I'm asleep.
Insomnia still isn't very much fun though. But I think I've learned to accept it. Now it's just sort of coming natural to me staying up all night long and then going to bed during the day. I'd still rather it be the other way around, b
It is nice and sunny today, as opposed to the rain yesterday.
Let's see, it's been interesting around here lately. My Aunt is still battling, whatever? She's finally off Antibiotics, and only on pain meds for her flank pain. The specialist (urologist)said she is completely clear of ANY kidney infection or obstruction. My aunt has only ONE kidney. She went into Albany Medical Center (a teaching hospital) yesterday a.m. THANK GOD! Maybe they'll finally find out what i
So, I went back to the doctor today because my ear is hurting really bad and to get the results of my ultrasounds. I found out I have swimmers ear which isn't so bad b/c I thought I had ruptured my eardrum(that is how bad it hurt). Luckily it was just the swimmers ear. He prescribed some ear drops for this so it should clear up soon and I should be able to hear again!
I found out the results of my ultrasounds were an enlarged liver and an enlarged uterus. He is doing bloodwork on my liver
Sorry I didn't finish my entry last night, but I ended up getting sick. Last night I was sitting here typing in the last entry and wham, I got so hot~felt like I was on fire on my insides and then this wave of nausea came over me and my mouth started watering and I knew I was going to be sick. I prayed to the porcelain God for about 30 minutes and it was horrible because the only thing in my belly was a sip of tea I had drank 30 minutes before. I was so tempted to drink some water so I'd have
First off let me introduce myself; I'm Marisa. I have 3 beautiful children, ages 7, 6, & 3. I have two girls and one boy. They are awesome kids and I love them so much. I am also engaged to a wonderful man named Joseph. He is the greatest. He's very sweet and respectful and he treats me and my kids so good. We have a lot of pets right now. I'm not gonna go into detail at the moment because within the last 10 minutes I have started to feel very nauseas so I'm going to try to finish th
It's a beautiful day here in Schodack NY! Sunny and not humid.
Let's see...Our son graduated from HS on Saturday June 23. Unfortunately I had 'something', not sure if it was a stomach flu or just an EXTREME low. The afternoon of the ceremony I had a temp of 104*. Thank GOD, Nick was in the front, so I was able to see him walk across the stage. Our daughter then drove me home and they went out for dinner with my husbands mom, sister and boy friend as well as my parents.
Well here it goes...... please ignore my mistakes -
In Oct 2002 I was admitted into the hospital. I was there for 3 weeks - at that time I was diagnosed with diverticultus. I was 39 years old at the time - I had gained some weight - 20 lbs or so - but I lost almost 30 lbs in 3 weeks - I was 123 lbs when I left the hospital. I'm normally 130 to 140 llbs and did not usually change. I worked out - watched what I ate - I always took care of myself. I was by no means a health freak but I was car
I feel anxious lately I was looking over some previous blood tests and found that I had an elevated level of LH but my FSH didn't seem high. I am wondering if I have pcos or if it is cushing's syndrome or Cushing's disease. I just have no Idea. Bye for now
Well, I did my testing last Thursday. I have taken loads of blood tests during my life, but I have never ever had as much trouble drawing as I did this time. The nurse had 17 vials in front of her and she couldn't find one vein! She tried a few times with no luck and ended up calling in another nurse for help.
The second nurse had no more luck then the first, when she finally struck blood she only got 3 vails. Then after trying the top of my hand, my wrist, my upper and lower arm, the first
Well.. after 10 days off the diuretics, I am retaining enough water to fill my a backyard pool. My feet and lower legs hurt when I walk, making my daily life hell. As if I don't have enough with the fatiuge, back pain and all the other issues. Anyhow - looking on the bright side, there is only 4 days left until I do those tests. I can't wait to do them, just so I can ask how long it will take until they are done. My endo promised me she would call as soon as she got the results. I am only hoping
I can't believe it's been so long. So much has happened. I figured I'd post today since I called in to work due to extreme weakness in my arms and legs. Yesterday I had a VERY difficult time just driving. It's raining and I am just vegging. OK here it goes.
I saw Dr. Ludlam in Seattle the week following Easter. I had some highs out there but he wants more and higher. Dr. L. thought that although I am only 168 lbs ( I am 5'1"), my body is definitely not proportional.
I just got this spark of energy and need to do something....but I'm in charge of the store for the moment so I can't go anywhere to do anything until my Mom gets back.
I had the last day Vacation Bible School this morning. Our church teamed up with the Mingo Bible Church to improve the outcome and cut down on the expenses. The first two days (Tuesday and Wednesday) were in Mingo. I don't know what happened there because I didn't help over there. Yesterday and today's lessons were at ou
I hit the jackpot yesterday. I recived a phonecall from the endo's office. The nurse asked if I could come in on short notice since they had an opening and all of my labs were done. I grabbed the chance and so I saw a lady endo today. She started by telling me all of my labs looked good!!
I could feel the tears pushing as soon as she said those words, but somehow I kept it together and told her that the labs might be good but my body isn't. I also told her that some things had happend since
I just need to get a little off of my mind at the moment. I just finished watching a show on tv. It's one of my favorites. Where the people and doctors don't know what the person has wrong with them and it seems to take years to find out.(mystery diagnosis) The woman had noncongenital adrenal hyperplasia, which has similar symptoms to cushing's it was a good program.. I really hate having to be an advocate for myself sometimes, but nobody else is going to do it right? I need to make
Well I've usually kept a blog (though I don't write in it faithfully) I usually forget the passwords, usernames, and the URL's of those blogs, so I decided that I'd start over new where I can't forget the username, password, or the URL...lol...anyways I usually write in a blog to just let my feelings out, I really don't care if anybody reads this, I just like to write down how I've been feeling and all of that good stuff....well now that I'm done with my introduction....on to what I would normal
Well i couldnt sleep until about 3am again last night. Then woke up at 6am feeling awful with headache, achy muscles and joints, feeling dehydrated and my cold still keeping my sinuses blocked. Drank a pint of water and managed to fall back into a fitful sleep. Eventually managed to drag myself out of bed at about midday, feeling as though i had been awake all night. Head ache was still throbbing and felt generally awful so remained in bed doing nothing, until about 1pm when managed to get into
Hi i am new to this but i think to help maintain my sanity i am going to start a sort of diary on how i am feeling and whats happening with treatment.
Well here goes with the background information:
I am a 22year old girl. I have been very ill for the last 3-4years. It all started with a large hump that appeared on my neck. At the same time it was discovered that i had osteoporosis in one of my arms and inflammatory arthritis. I commenced treatment for the arthritis and started seeing a
July 22, 2008:
These 3 blogs were all hit by my hacker a few weeks ago.
The new Cushing's blog is http://cushingshelp.blogspot.com/
The new Barbados blog is http://beautiful-barbados.blogspot.com/
The new music studio blog is http://oconnor-music.blogspot.com/
I'm hoping by hosting these through Blogger instead of on my own server they won't be vulnerable to hackers anymore.
I spent the last couple days making a new blo