I wish I would have made this blog before my surgery so that I could have tracked progress. Well it has been 4 weeks and 3 days since my surgery. I can't believe how fast it has went by! I remember right after my surgery I felt like it was never going to get better, and it felt like it was going by so slow. My nose was the worst, my surgeon also fixed my deviated septum "while he was in there" LOL and they packed my nose soooo much right after and then when I got home it was horrible At the adv
I can't believe how long it has been since I last checked in. That's probably because I don't have anything to say. Life is kind of stagnant right now.
My symptoms are all still there, although slightly less prominant now that I am taking it easy and not working. The problem is that now, new things are starting to show up. I have a lump in my breast I am waiting to have checked. I have a black spot in my vision that the optician is concerned about, though she says my eyes look healthy enough. I
What a glorious day here in Upstate NY! It is literally a picture perfect day! The temperatures are rather mild.
Physically, all in all , it's been a good week. I've had more energy. I've been doing that fall baking that I mentioned a few posts back. Made Past Fagioli yesterday and pumpkin gems (boxed) for my nephew's 16th birthday party this evening. I do have a hard time falling asleep, but when I do, I do not hear a thing! I am still very stiff and sore, but you know
YESSSSS! Another long weekend!!!! Not to mention payday! My honey made out well with his procedure and the Dr. thinks it was just a benign polyp! THANK YOU JESUS!!!! He was quite uncomfortable the 1st 24 hrs. but it got better.
Tomorrow Hubbie and son are going to visit colleges. One in Boston and two in Rhode Island. I am not going due to two reasons. The furry kids need to be taken care of and frankly I just can do all that walking, it'll kill my body and then I'll be USEL
Feeling VERY down!!! I just can't seem to shake it. My hips were really killing me today. Today was the second time in one week that I took the elevator at school, which mind you is only two floors! Nasty neck ache, my body and head are just soooo tired. Not to mention the stiffness and feet pain. Taking my hubbie for an out-patient procedure tomorrow for a polyp in his bladder. OOOOHHH! That's going to be painful, but he'll be knocked out. hopefully the pain won't be residual. I'll b
Hope everyone is having a rather healthy day today! Maybe even a great day! The sun is shining with some coud cover. My son and I are off from school today for Yom Kipper, and my daughter has been home since Saturday since she didn't have any classes today either. It's been so nice to have her home. She actually told me the other day that last Sunday, she really was missing me. After the initial shock, that made me feel really good!!! I guess I did o.k. as a mom. We always quest
mass this week AND that Rosary for Peace! I am exhausted from the cleaning and decorating, although I am not finished. The Rosary for peace was absolutely beautiful!!! I felt so peaceful as well. If it wasn't for my faith in God, I would not be able to get through these difficult times! Thank you Jesus and Mary!
The following are my regular health links that I look to for info on my different diagnoses.
The Sjogren's Syndrome Foundation
Antiphospholipid Syndrome Research
And of Course HERE!!!
Cushing's Help and Support
Feeling somewhat energetic today! Not at all like this past week! I promised my husband Gus that this weekend the house would look better. I don't know, this being sick and working is for the birds!!! Doing a heavy duty cleaning is usually the last thing on the list. I am just happy that I can keep up on doing laundry and dinner! I am even going to try and put out my Autumn decorations! I LOVE the fall! Of course Summer comes first!!!! The only thing that I don't like is the fact that
I also have really bad headaches all the time where I don't want to get out of bed? I feel like I just don't want to do anything anymore.....I played sports and stuff like that and now I just don't want too..I wish I knew what was going on with my body....My doctors keep changing the day I go in to talk to them and I don't know why........I know I have a lot to ask but I thought everyone on here could help me understand this and what is going on with me.....Thank you
I am 18 Years old and have cushing's I really don't understand it ?? I mean I have had Cushing's for 11 years and just finding out about it......I would like to know what will happen after it is all over?? I was reading about people with Cushing's can't get pregnant will that stay like that after its all over???My other (?) is can I die from Cushings???
OK, I have been falling behind on blogging so am trying to do at least one update at the end of the month.
Well August has been a mixed bag. The weather in the UK has been up and down but its still nice and warm. We finally made it camping - 1st time - it was brillian. We visited lots of historical places, the campsite was great, very clean and family friendly. camping itself was fun and I have never slept so well and it was good to hear the wildlife especially the owls hooting at night. We
Can anyone tell me how long can someone with panhypopituitarism live? Who is the oldest person with panhypopituitarism? What medications are you taking? Are you taking Growth Hormone? I would love to read the feedback.
Also, for Females, I want to know if you were able to get pregnant? Does the baby/child suffer with panhypopituitarism? Did you breast feed?
Got to my About Me page to read my bio.
It seems I only ever seem to write anything in here when I'm feeling down, so I thought I would write a quick update today while I am feeling relatively upbeat. Life is ok at the minute. Being off work has allowed me to relax a little, and I feel less tired and worn out than before, although I still have my bad days. It is getting to where I can't walk any distance at all without having to rest a while, and they can't blame the fact that this is getting worse on my weight, because I'm not gettin
boy, when insomnia hits, it really hits. it probably doesn't help that I have a brand new shiny laptop (her name is Lynx, and she's a bit of a drama queen. She does, however, play nice with Lyra, my mp3 player, which is a Very Good Thing) that I can set on my nightstand while I lay in bed. but I'm sure even if I didn't have a lappy, I'd be sitting awake. Don't get me wrong, I love sleep. I love sleeping. but when it's hot and I'm having weird dreams and waking up feels terrible, well, why not pu
Well we decided that since there's no reason to 'make' Joey go to bed if he's on a high, that we were just going to let him stay up.. and do whatever (within reason) So, we were up until midnight 2 nights in a row.. no naps.. not even any yawning. And he was still up for hours after that.. with me waking up to tell him " Lay back down and watch the movie, Joey, no toys please, Joey, you're being too loud.. " and I'm not as tired as I thought I was going to be..
Well, here I am making my first entry in the Blog.. it's such a funny word.
I never used to think that I would need one of these things. But as more and more time goes by.. I feel the need for something to get out the frustration that I feel. I could tell some person that I know.. but then I would be judged and I don't need that right now. I've had more judging than a person can take.
I know that's not true.. people have taken so much more of it than I have.. and I commend them for it. So
I don't know how to feel right now. I got two letters in the post on Wednesday. One was a brown envelope from the hospital, the other was a package.
The package turned out to be an announcement that I have won a writing competition and one of my short stories will appear in a book to be published in October. That was fantastic news.
The letter was a request from the hospital to go for a second ultrasound of my ovaries on the 7th August. I went for one a few weeks ago, because they were lookin
Its been a while since I have blogged, I haven't posted much either lately but hopefully will get back into the swing of things. Sorry to anyone who I haven't emailed as much to lately - I just needed a break from it all. I have done alot with my family and it is the first time in a long time that I have wanted to be out and about. The sunshine probably pays a big part. I am feeling more energetic lately and am able to do alot of things that were virtually impossible before. I am playing more wi
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Carrie is doing good today I guess. As good as you can be with cushings.She is watching Dances with Wolves right now.And of course I am sitting her typing away not even sure what you put in a blog.I am listening to music....music from the 40's.I love it.My favorite actress is Ginger Rogers.
I am in pain.My fybromyalgia is realling hurting today and has been a real problem every since Carrie lost control and used me as a punching bag.I have pain in places I didn't know could hurt.And lucky me
It's been a while since I blogged, and a lot has happened since I last did. I went to see a wonderful endo. He was cautious, insisting that Cushing's is rare, and while he does a lot of tests for it, he rarely finds it. Nevertheless, he admits that nothing else explains my illness and there is no point in discussing what else it might be until we are sure it isn't Cushing's. The tests were in May. I'm still waiting for the results... If nothing else, this ordeal is teaching me to be patient.
Claudette is feeling tired and it is hard for her to go to far. From the bathroom to living room is long hike. The drainage has stopped. She had big clots come out from both side of her nose. They looked like slugs. She though her brains were coming out. Her friend Ashley who has been thru a lot from a auto immune disease of her blood was here all week to help out and answer question about meds. She was good to have around to keep Claudette company when she was awake. She also knew how