It's been a pretty good day today. I have been busy changing my bedroom around. Not sure if I should have moved furniture after the accident a couple of days ago but I am feeling OK so it is probably fine. My Nan used to always have an old saying 'Change your room, change your life' - I guess having a re-shuffle will probably feel like something is new in your life, so I have always believed that. I applied for a night shift job to bring in some extra cash and I have an interview next Tuesday. W
8:24amHad a better nights sleep last night, thank god although this morning my cold has hit full force and I feel so rough, I am as grumpy as anything...gggrrrrrr... I just want to veg out and do nothing but I still have packing to do, get Harry's stuff ready for the grandparents and tons of other stuff...gggrrrrr.... I think I should have been a man when I get a cold as I definetly have a man's way of dealing with them, completely and utterly useless and moaning all the time....lol! Well s'pose
It helped. One more little pill. Still swollen and sleepless mostly. I feel like an overused escalator that reverses without notice. How very annoying. Missing my father today. Happy in other ways. Up and down. Odd but I think one has to do with the other. Hmmmm
I think im having a wee adrenal crises. Yeah. so I prescribed myself 1mg prednisone. We shall see if it helps. Hey theres perks not having a dr. right. Right
I keep forgetting to write in here. I feel like shit.Yeah that about sums it up. So, I feel like Im having a crises. Fuzzy headed like soda pop bubbles are bursting in ma brain. Weak. just odd. And my blood sugars check out time after time they're ok. I'm not weaning right now still at 21mgs. My back hurts like holy hell. I mean whoa it hurts All I can say is the pain meds of codeine, hydrocodone make me feel this way. I don't know. Got that rapid pulse feeling too. Feeling a bit better. But
I am now officially on disability and am kind of sad about it. I will miss my collegues and my students. That 4th TIA was the deciding factor. I have been told the diagnosis is Cushing's Syndrome until we have more biochemical evidence for Cushing's Disease. I do have a pituitary tumor. I just hope it will show itself soon, so I can have surgery and get on with my life. Well at least I'll be here for my kids this school year. They need me right now. I feel like I have been absent from my family
I was born as a healthy child in Aug 1966.I had tended to be tired and fat a little from childhood,but not sickly.I think my cushing's had started with memory problem when I was 17.At age 18,I had had a very stiff back and shoulders all the time since then,and I sometimes had been very sleepy in the daytime.At age 19,my BW started to increase little by little..(52kg->55kg)At age 20,I started to felt reading was hard for me and I was in the fog.At age 21,I still enjoyed student life every day.
Hello!I'm FarWind,a Japanese female Cushie,age 38,going on 39.I live in Kanagawa (near Tokyo) in Japan.I was diagnosed Cushing's disease and had pituitary surgery successfully in 1992.But I still cannot stop cortisol replacement and am still tired.I can write only very very..........and very poor English !! LOL.I really want to talk with you more and more,but it's very hard for me to write English sentences all that I want to tell you.So I'll sometimes write my long journey with Cushing's and di
well I got results from my cat scan and shows severe/prominent bone spurring at the site of my fusion c5/6 and c6/7. As posted before my cushing's symptoms began right after my surgery.neurosurgeon said nothing he can do to help go see pain specialist. Well I was thinking that my symptoms all began with this surgery. and have declined in health ever since. I can barely turn my neck and arms and legs are very weak yet emg was normal. I wondered if my cushing's symptoms can be the result of the su
My energy is so limited sometimes....well all the time. I still do things....like I went out last night with my bf and his friends for bf's b-day. it was fun. we had a nice time. today im not good for anything. my house is a mess. i cant seem to get ahead of it. i guess cause i don't choose to spend my spoons on cleaning the house. i hate living with the limitations of what this disease has left me with. more than that, i hate that no one understands. it just looks like i'm lazy.
i have been off anti-depressants for a few months. my psychiatrist said maybe i dont need them and to go ahead and try it without. i'm ok, but then again...not really. i always feel on the verge of tears. i am very anxious about lots of things and worry incessantly. it is hard to enjoy things because of my sadness. Although i dont have much to be sad about. my physical limitations make me sad. i am almost always in pain....my back/neck/shoulder/arm/head. many days i am nauseated. i go
Well I had my social security appeals hearing on July 15. So I think I can finally talk about it now. I first applied oh four years ago. I had to reapply oh two years ago or has it been three? Anyways. So I had been denied on paper four times to get to the hearing. I had appeared twice before the judge: Once, I wasn't prepared and she said get an attorney. Second time, I had moved and lost my atty so then I moved back she said go get an attorney I will reschedule you. So I did. The attorney assu
Just sth I wrote years ago in honor of the site's birthday! So I'm a day late it is heartfelt aye ayeCushie DittyI never made a ditty About this Cushie city That we've helped MaryO to build While feeling so ill The support is in each of us We lean on each other Some more, some less But always we know where to go What is there to say? Too much I am afraid The helplessness is the worst The questioning of self worth Constantly tested by The very people Who have taken an oath To help us in our pain
Today a nice thing happened....A few weeks ago i received a call from my neurosurgeon's office asking if i would be willing to speak to a pituitary tumor pt that was going to be having gamma knife soon. Apparently she was anxious about the procedure...as most would be, right?! I agreed and then received a phone call from her a few days later. We had a very nice conversation and I told her of my experience and passed on a few tips that i could manage to remember.Anyway....I got another call fr
July 18, 2005This should be long because its my first entry but its late and i've already violated one rule during this experiment which is to go to bed early. I just wanted to get started since im behind schedule. I was diagnosed with cushings disease 4 years ago. A tumor in my pituary gland is what they said. It took about 3 month to be diagnosed which is very fortunate for me. I know for many it took months if not years. I hope that is beginning to change. With more media coverage and kn
I am posting this four-part series in one shot here for those who are interested. This is just until I can post my story on the board when MaryO has finished that part of it. Any inaccuracies about cushings are solely my fault; my focus on this piece wasn't cushings so i left a whole lot out.I. ~ IN THE BEGINNNG: I?ve fought against this for so long that now, at the precipice of acceptance, I am reluctant even to write the words that are playing havoc with my mind. Three words, or one if you pre
"Don't give me answers or I would refuseYes is a word for which I have no useI wasn't looking for heaven or hellJust someone to listen to stories I tellWhat is a blessing and what is a dreamCaught between portraits and none's what it seemsWhy is it some would expect there's a changeWhen I feel I'm a part of something I can't seeAnd I feel the sameDon't offer questions or I will retreatFame is a cancer and ego its seedAnd I wasn't looking for heaven or hellJust someone to listen to stories I tell
Live a life less ordinaryLive a life extraordinary with meLive a life less sedentaryLive a life evolutionary with meWell I hate to be a bother,But it's you and there's no other, I do believeYou can call me naive but...I know me very well (at least as far as I can tell)And I know what I needThe night you came into my lifeWell it took the bones of me, took the bones of meYou blew away my storm and strifeAnd shook the bones of me, shook the bones of meBy the way, I do know why you stayed away...I w
Hearing tomorrow. Cross your fingers this is the appeals process. I hate this!My internet broke but i think its fixed finally. My air broke again i wanna cry im so freaking hot!!!
Well I had the MRA done and a MRI. It showed 3 white matter lesions. Could be due to chronic small vessell ishemic changes, or MS. I am still in the workup process for this and of course cushings too.I have missed a lot of work lately and it scares me. I am very dizzy today and have had a bad headache. Vision is blurry also. I should have called the doc but I am afraid to. I go into the hospital on monday for a TEE (scope down my throat) Looking for blood clots in my heart. They better sedate m
I can't beleive I missed chat tonight.My roommate and I rode the METRO to Union Station, ate dinner and rode the METRO back. We felt like we excaped for a while. Today was a hard day, due mainly to the fact my veins keep collapsing. But in the afternoon the doc under the head doc, came by and said that Dr. S thinks I might possible have hyperaldosteronism. She said that the first tests for aldosterone were some what high and with my high BP and and the low postiasumm level all points to this. I
