First off, I find it necessary to say that I was never one for "blogging". I just didn't get it, and I surely didn't have the time for it. Over the past week I've been reading so many stories and looking at so many pictures from this site - I'm addicted.
I guess it all started when I was in high school (I'm 23 years old now). I've always had a "mysterious" set of symptoms - joint pain, muscle weakness, dry skin, acne, exhaustion, and weight gain. Weight gain... Every single August when I we
Very new to being a "cushie". I went to the dr about 2 months ago to get on some anxiety medicane when he wanted to test my hormonal level. He asked me a series of questions like: Have you gained weight recently ( and I have gained 100 pounds in the past 2 yrs)..do your breast leak ( Im not pregnant and they leak BIG TIME). He tested my hormones and found out that my prolactin level was 90. They then called me and wanted to do an MRI ( EXPENSIVE EVEN WITH INSURANCE). A couple days later I was t
I am a newly diagnosed Cushings syndrome patient. After 18 months of uncontrolled hypertension , my primary doctor referred me to a endocrinlogist. He discovered I had a tumor on my left adrenal gland. I had a unilateral adrenalectomy done on Feb 18th. The remaining adrenal gland is inactive. In the mean time I am on 2 different steroids for hormone replacement. I have a headache daily, some days its tolerable , other days i can not lift my head off the pillow. I have began to be nausea, vomitin
I am 34 and started to have BAD symptoms that took me to a doctor in January of 2007. I told my PCP that I was gaining weight, was fatigued, in pain, no energy, hair falling out, dry skin and felt lousy! She said eat less and exercise more. Here's the problem: I am a personal trainer, competative power lifter and certified nutritionist. I am very active, spend about two hours a day lifting weights and an hour on cardio. I keep track of everything I eat and KNOW that I should not be gaining weigh
It's early days for me on the diagnostic side, I would appreciate it you might look at the photos, I have put them into a progression, starting in 2005 through to 2009. No changes in my eating habits, if anythign I eat better now at 26 than when I was 22!
so I'm sitting here wondering how I got here. After 1 failed pituitary surgery and a half year of losing almost all my cushings weight and getting to be some what normal, I am now back at home from having to quit college again to have surgery. I have gained even more weight then last time, and all I can think about is how long it?s going to take me to get it all off. I would never wish this disease on anyone. It?s now only a matter of time until I can schedule my surgery. Dr.L was suppose to ca
I had a clinic appointment yesterday and everything seems to be going OK so far. My Doctor is pleased with my progress. I have lost 4kgs since my last appointment in November which is encouraging, so to date I have lost 15lbs. Slowly getting there but at least every week the numbers on the scales are going down. I seem to feel more clear headed than past months. Perhaps its because Spring is nearly here andI can get out in the fresh air and do things. The change in weather has certainly lifted m
I've been coming off of Dexamethasone all week. It has not been fun at all. I now understand what lows truly feel like and if it happens post-op, I'm going for the hydro! I never threw up, but I came close. Lots of sleep helped, but when I woke up and did stuff, it came right back, so back to bed I went!
My menstrual cycles are always screwed up. The best they were was right after I had my son, now they're back to normal-weirdness. My cycle this month was 29 days. Last month it was 24
Just an update.
Since I last posted a LOT has happened. I have had my throat surgery, and my foot surgery.
We moved to Canada in 2007 of March. I still have some pain in my lower abdomen and don't have any bleeding at the time. I am scheduled for a endromitrial (spelling) ablation on Jan 30th.
My neck is still sore, but I manage it. I don't have any more of the wired symptoms to speak of, once a a blue moon I feel it. It has been a long journey to get this far. It has been 4 years
so I have done more blood tests and I wait, Friday I have a CT scan to look for tumors in my abdomen. My doc seems to think it will be my kidneys or a ovarian tumor. We will see. I really dont know if I should be happy we found this or sad to be sick. Help
Well i have such mixed feelings right now. this is an answer to all of the problems I have had, an answer to all the people telling me I just eat bad and that everything is just a symtom of everything else. My UFC came back as definativly high the first time. And my doctor called kind of in amazement because I do have Cushings. I find out tommarow what tests are next to figure out why, I guess one thing at a time. WOW I dont know how to take this,
I truly thought that this year would be different!
I finished my shopping before December, and prepared for the month of Christmas! I was hoping that, after several years, I could finally just celebrate the season and not carry my illness throughout the holidays with me.
I was wrong. I HAVE tried to enjoy the holidays, but now I find myself completely exhausted! I am ready to crawl into bed and pull the covers over my head for the next week! This is not me! I just can't find the ene
Hello, everyone! I hope all of you are doing well, and that this Christmas will be a time of peace and thanksgiving...for all of those you love and for the lives that God has blessed you with! I just had to share my latest revelation with you! During my time of depression and illness, there has been one song that has carried me thru...Natalie Grant's "The Real Me". If you get a chance, it's worth a listen! Anyway, God laid it upon my heart that I was supposed to share about my depression and s
Brand new stretch marks yesterday and today. *sigh*
The older stretch marks have been red the past few days, the new ones are purple.
My pulse is pounding in my ears.
The only things that hurt are my knee and my hump.
I can't get these tests in soon enough.
I've been wondering a lot about MDA and how I'm going to do that alone. Does the Rotary House have a financial aid program?
Last night was another one of those nights that I got ravenously hungry after eating well all day. I checked my stretch marks (bright red), and my pulse was pounding in my ears very loudly. I was craving carbs like I was addicted to them, and it was most uncontrollable. I couldn't fall asleep until 5am, and I had gotten up at 7am the day before! I felt so wired, even though my body felt exhausted. I pray that these have been highs and my testing will show it!
Today, out of nowhere I hav
I've decided to keep my blog about Cushing's here rather than where I normally keep it.
Today I am feeling warm and energetic. I had lots of heart-pounding in my head -- is that hypertension? My hump has ached today, and in turn, my neck aches. I didn't get dizzy when standing today that I noticed, but I did have lots of trouble getting up off the floot.
I checked my stretch marks today and they are mean and red, some purple, so started a 24 hour at 8pm. All my salivaries are done,
It's me. Adrienne. I see it's been almost two years since I've posted in here. AMAZING. Wow. How time flies when you're on Methadone and Hydromorphone!!! No really.
I am working again on trying to come back to the online world. I am so lonely without it. It's great to have hooked up with Paula again. I hope we can get to know each other better through emails: I miss having a fellow Cushing's survivor to talk to, and I really miss having ANYONE to talk to. And the people I've met here arent j
I have posted some picture of my striae. Check oout the gallery on my profile page, or in the 'symptoms' gallery. Given the symptoms highlighted in my blog, my urine topic results and these pictures, do you think this could be cushings?
let me know what you think.
Tests came back "normal".
At The Mayo Clinic.
Is it right?
Only things that showed is that I have a vitamin D deficiency & he thinks I have cysts on my ovaries. :/
I'm only seventeen.
I can't fight my parents to pay tons of money to see more doctors.
I give up.
My name is Clarke. (stupid name i know...like superman or something?). Im 21, and I currently live in small city of Norwich in England. Im training to be an adult nurse, and im in a long-term relationship with the girl of my dreams. As you read on you'll understand why.
Im not sure yet whats wrong with my body as im not yet diagnosed with anything, but I think its likely to be a pituitary/adrenal problem. This is my first blog, so i'lll let you know the full story first.
It has now been
It really started years before, but we didn't know what was happening. Small changes were taking place, health problems were occurring and our family doctor made diagnoses with neither treatment nor further testing.
In 2000 we met and it seemed to be love at first sight. I made a move over one thousand miles away to be with him. In 2002 I married a person who was kind and would do anything for anyone. Everything seems to go well for the first couple of years other than a diagnosis of mild os