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Getting angsty!

I had my last clinic appointment a week ago on the 18th November. Since then there have been a couple of changes. I increased my thyroxine from 125mcg to 150mcg as my thyroid was showing to be on the low side. It has been consistently OK since starting thyroxine and this is the first time in a long while that it has lowered. I have now switched from dexamethasone to hydrocortisone taking 10mg in the morning and 5mg in the afternoon (with an option 5mg later in the day should I need it, but I hav

diane177432

diane177432

Retainers among other things..

So, Thursday I had retainers put into all my ear piercings that I wouldn't be capable of doing myself.   Ow. Ow. & ow.   It was worse than getting them pierced & I've had most of them like a year or more now. :/   So they're all healed.   ***ing bullshit.   I just want my regular metal junk back in & I'll be all good.   Plastic SUCKS ass.     I went to see Twilight on Friday & I saw it again on Saturday.   Today I'm gonna try to sleep most of the day since we

LyssaFace

LyssaFace

Worst non-morning ever

Woke up, still wanted more sleep. Typical? Quite. Stretch a little bit, and BAM. Leg cramp. Get up fast, pain pain pain & more pain. Finally it stops and I LIMP my way to the bathroom as quick as possible because while trying to stand on it to make the pain stop I happened to feel my nose and realize my nose piercing wasn't there.   REWIND: Last night I took out my regular nose piercing, a stud with a ball on the end and stuck a screw in it instead so it's easier to get in and out Mon

LyssaFace

LyssaFace

Trying to cheer up.

I decided to hang out with one of my friends today for the first time in a little over a week.   I just was getting to the point where sitting at home instead of helping was making things worse.   I was feeling icky because everyday I would shower & then not do my hair or makeup and just sit around and sulk.   Hopefully tonight I cheer up a little bit.   -Lyssa

LyssaFace

LyssaFace

Update with no updates

Hasn't been much to say for the last few days other than that my moods have been all over the place & I've felt pretty crumby.   I'll update later if anything of importance occurs.   P.S. Might have a date this week.   -Lyssa

LyssaFace

LyssaFace

Seesaw

I feel okay today, I'm still very achy & tired but other than that I seem to not be too down today...   Scratch that.   I don't feel down until I think about stuff.   ...   Now I'm down.   Wow that didn't happen fast at all.   God, I need to get help.   -Lyssa

LyssaFace

LyssaFace

What Is "Normal" ?

This is a post I made on the forum & I thought I should add it to my blog. I know I can be long winded, sorry.   I was reading a thread on here where phil1088 was talking about how she doesn't remember what 'normal' feels like. It really got me thinking.     I always assumed I was normal. Aside from my weight problem I felt fairly normal. I knew I had some problems with anxiety and depression and the littlest things could make me snap and start yelling at my mom, or dad and others as we

LyssaFace

LyssaFace

Mayo Clinic, MN

Referral made. Appointment date: Monday, November 24th 2008. 10:00 AM Nervous? Yes.   Relived to be going to someplace good? Yes.   Feeling any better physically or emotionally? Big no.   Let's hope a week and three days flies by fast, shall we?     -Lyssa

LyssaFace

LyssaFace

The Begining

So, I thought I'd start a blog on here today to document what happens in my life with my health issues.   Here's what's already occurred.   Hi, my name is Alyssa but I go by Lys or Lyssa. I'm a seventeen year old female and currently am at 258 lbs, my highest weight yet. About two years ago my mother requested to have my records from doctor and ER visits released to her because school was threatening truancy due to my extensive absences.   FLASHBACK: My absences are due to me having a low

LyssaFace

LyssaFace

Feeling rough...again

I am feeling very much out of sorts today. It seemes that any activity that makes me exert myself lately results in my body temperature rising and then I get upset tummy. I have also had some sinus headaches this morning and a general feeling of internal shakes and feeling rough. I really don;t know what is going on right now. Earlier this morning I had headaches on the right side from my sinus across my head and my right eye started to feel strange. I started to think, oh no not again - is the

diane177432

diane177432

Ups and downs yet again...

I have been feeling off sorts for a couple of weeks now. It was all going swimmingly for a while after starting the HRT. I had more energy and enthusiasm for life and then it all started to ebb off. I am having to take naps every day now. Granted I am up early in the morning but I am still getting very tired. I have lost all motivation and enthusiasm too. Maybe its the change of season, who knows? The HRT finally worked anyway and I had my first period in a very long time and am once again a wom

diane177432

diane177432

What to do now?

Well, I am finally back on site... for some reason I wasn't able to log on.. it has been a very frustrating few months. I am at a lost for what to do next!   My daughter was tested for Cushing's, we did the suppression test, cortisol, etc... nothing. She still looks like she is on pred. They did confirm that she has a goiter and hypothyroidism, which she is being treated for, and she has started growing again! Yea! But, her joints hurt every morning, she walks like she is 80 years old and

MaMaT333

MaMaT333

IS THIS CUSHINGS?

SYMPTOMS UNEXPLAINED WEIGHT GAIN MOON FACE HUMP STRETCH MARKS (BREAST,LOWER STOMACH,NOT ALWAYS DARK) FLUID RETENTION (ANKLES AND FEET) HUGE STOMACH AND BREASTS LOW BACK PAIN SPASMS HANDS ARMS FEET FLANK BACK WRINKLY HANDS AND FEET PURPLE LIKE BRUISES LOWER LEGS BROWN FRECKLES TOP OF FEET RECEEDING HAIR LINE HAIR FACE LEGS STOMACH (SOFT FAIR) BLOOD PRESSURE UP AND DOWN FATIGUE NIGHT LEG JERKS TWITCHING MUSCLES (TIRE VERY EASY) RED SKIN FACE PUBIC HAIR LOSS MISSED PERIODS (

floweroscotland

floweroscotland

so tired of this

i have had cushings for 1 year and im so tired i have gained 35kg i am from australia and was diagnosed 3mths ago just had my last test of the sinus sampling and waiting on results next week.still trying to find tumour.have had all symtoms relating to this awful disease.my endo is the best.will post pics of b4 and after once surgery is booked.please anyone reply if going thru same pain as i am

kouta5m

kouta5m

So Tired

People, I am getting so tired. Its almost that time of the month, on top of all of my regular symptoms its just absolutely wretched. Its not as bad as it used to be, since its actually disappearing, but the hormones get worse nonetheless. I'm so emotional and I've cried twice today for no reason. I hate not feeling in control of even something of as simple as whether I smile or frown. Whether I laugh or cry.   Can someone explain this to me? I really need help understanding how this works. I'm

sickofbeingsick

sickofbeingsick

HRT - It's helping!

I started HRT three weeks ago to replace oestrogeon and I have to say it is making me feel less exhausted than I was. I do still get tired and have to have the odd nap or two or three but now I am physically able to do more which is great! Life is settling down now and I am starting to decorate the house. It was a sense of getting into some sort of routine as it was so weird not working. I am trying to do some research into Nelsons as I am still seriously considering the BLA but want to cover al

diane177432

diane177432

My daughter has Cushings

Hello- My name is Peggy, and my daughter has Cushings. In Feb. she was having a minor surgery done, afterwards the anesthesiologist took the time to come get me from the waiting room to ask if she had ever been tested for Cushings. Bless this man who did not know us from Adam.... He explained someone her age (20) to have high blood pressure without a cause was not normal, she had been tanning but he felt she did not have a normal tanning color, and her round face "moon" shaped. When he said thi

Peggy

Peggy

I should be excited its Friday...

...but for some reason, weekends seem so much harder to watch Grady then during the week. I think I was so used to having the weekend reprieve that by Saturday I am ready for Floyd to help. Now that he works 70 hours a week, I've got Grady 70+ hours a week. But golly I love that little guy. He's developing such a personality!   My headache is so bad today. Like, sick to my stomach bad. I started spotting on the 16th and then my full fledge period started on the 18th. I'm beginning to notice a

sickofbeingsick

sickofbeingsick

What a long day...

...and I have an even longer one awaiting me tomorrow.   Because of the massive amounts of doctors bills I have from trying to get myself diagnosed, to gall bladder surgery, to having my son 9 weeks early, my husband had to get a 2nd job. Since I am not a reliable person to have working right now, he was the one who pulled the short straw. He works 40 hours as a programmer and then around 25 at the local gas station here in town.   I hate seeing him have to do it and miss out on time with ou

sickofbeingsick

sickofbeingsick

Dear SELF

Dear self, Today has been filled with some moments of happiness. Despite all my struggles I am still alive and kicking here. I am lonely. That is always the hardest part. Yes, I am blessed to have hubby, but I am still lonely. I miss my best friend Mikki. But, I have no idea where she went. My other friend, well she obviously does not want to be friends with me anymore because I am too fat, or because she changed religions, or who knows what. Oh well, such is life. I miss Mikki most of all. Her

SleepyTimeTea

SleepyTimeTea

Blah Day

I have a sink full of dishes. I managed to sweep the floor today. But I have felt too weak and down to do much else. Scooped out the cat box and hubby dumped that out in the dumpster.   I have been feeling stranger by the minute lol. I dunno anymore how to describe how I feel, except it is hard sometimes. I am not terribly depressed today, just don't feel up to much. I have been a little lonely and wondering what has happened to a couple of my overseas pen pals from online.   My one friend

SleepyTimeTea

SleepyTimeTea

my storie

Hi   Thanks for the welcome notes!!!   Little more about my story and where I?m at the moment!!   It started about 2 years ago when I wanted to start a family with my Husband. I could end get pregnant so they diagnosed me with over weight and PCOS. about a year a started to kind of get angry with my doctor because there where no progress in helping me. So I went for an sec opinion and got the same results as the first. In January I had a miscarried and that took its toll on me so I was

moonlight

moonlight

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