Jump to content
  • entries
    8
  • comment
    1
  • views
    345

About this blog

My Life

Entries in this blog

Surgery Date Set

Earlier this week I went to the doctors again. And I can honestly say that I actually left the doctors office with a smile. I had to meet with both Dr. Fleseriu and then the surgeon.   First I met with Dr. Fleseriu. She informed me that I have Full-Blown Cushing's. Whatever that means I'm not quite sure. She wouldn't give me a script for sleep because she doesn't want me to be on very many medications prior to surgery. She also told me that I will HATE her after surgery along with the rest of

msmith3033

msmith3033

CSS Procedure

Well I'm very proud of myself. I went in and had the CSS Procedure done without being knocked out. I was originally scheduled for an IPSS Procedure but then on Thursday they called and said that they wanted to do the CSS Procedure instead. They didn't say why exactly the change but who cares, at least I'm getting somewhere.   The procedure itself wasn't all that bad. All I really felt was when they put the numbing stuff in my leg (which burned just a little) and then I could feel them moving t

msmith3033

msmith3033

Insomnia Again

Once again I'm a victim of insomnia. Damn it I was really liking sleeping like NORMAL people. You know going to bed one day and waking up the next, but now I'm going to bed one day and waking up the same day. And that's only if I'm able to sleep at all because when this happens I only sleep a little bit and not very restful either.   Since I've been keeping track of my sleeping patterns I've noticed that everyday it's getting later and later before I'm able to fall asleep and the amount of tim

msmith3033

msmith3033

The Worse Cushings Day Yet

Yesterday was probably the worse Cushing's day I've ever experienced so far. It all started out with sleeping a lot. I pretty much spent the entire day asleep.   Once I finally woke up I woke up with a terrible headache (scale 1 to 10 - probably a 9). And my entire body was so sore, I was literally unable to get out of bed. I tried unrepeatable to watch a movie but feel asleep each time. It was just a horrible day in general.   It was so bad that my dad even brought me home dinner and brough

msmith3033

msmith3033

Seclusion

I know that apart of this terrible disease is depression and I've learned to deal with that for the most part. But what am I suppose to do when I feel so secluded from everyone?   In the beginning I was pretty much secluded from my friends and people that wanted to be around me but now I'm just secluded by everyone in general. In the beginning I was secluding myself by choice, well not exactly by choice but I had the opportunity to join in conversation and stuff like that with other human bein

msmith3033

msmith3033

First Trip 2 OHSU

Well yesterday was my first trip to OHSU to meet with Dr. Maria Fiseriu. I really like her she is very nice and seems to know what she is doing.   Anyhow, she said that all signs point to Cushing's but because it is such a rare and nasty disease she wants to re-run some tests on me. Yesterday, all she done was talked to me and done a physical like examination of what this terrible disease has done to me. And she had some lab work done.   Last-night I had to take a pill at 11 and then had to

msmith3033

msmith3033

Boredom

Insomnia gets so boring. I keep running out of things to do, especially during the night. I don't want to wake everyone up by moving around the house too much so I pretty much stay in my room. All I do is color, read these posts, IM a couple of my friends, play games on here, etc...   I really never thought that the internet would get to be so boring but it's all I really have to keep me occupied other than of course coloring.   I'm starting to get tired of watching movies all night every n

msmith3033

msmith3033

When Will I Have An Appointment?

Well today OHSU is suppose to call me to make the arrangements for me to start seeing them. I'm so excited after all of this time I'm actually getting somewhere with this whole disease. I hope they call before I fall asleep because once I'm asleep, I'm asleep.   Insomnia still isn't very much fun though. But I think I've learned to accept it. Now it's just sort of coming natural to me staying up all night long and then going to bed during the day. I'd still rather it be the other way around, b

msmith3033

msmith3033

×
×
  • Create New...