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A day in the life...

Entries in this blog

It's a scorcher in the UK!

If you want to act like a big kid and have the time of your life then I highly recommend a water gun...It is a gorgeous hot day today and Harry and I got one each today and have had a blast getting each other soaked in the garden. I remember having bags of fun with an empty washing up bottle when I was a kid - never had these fancy water guns in my day - god I feel, old...think I need to go out and get another soaking !!!!!   Its been a hot, hot, hot day today. Harry had his first speech the

diane177432

diane177432

Results of endo appointment 25/4/08

Day Curve cortisol results:   9:00 322 11:00 321 13:00 327 15:00 284 17:00 261   Triglyceride 33 HDL Colesterol 1.3 LDL 380 Ratio 5 HbA 1C 8.3 Potassium 3.9 (range 3.4-5) Sodium 141 Urea 5.3 Calcium 2.32 TSH 1.2 (range 0.3-5.5) Free 14.1 (range 11.5-22.7) LH 2.7 (range 2.4-8.4) FSH 4.8 Oest 85 (range 21-140)   Prolactin 484 IGF-1 25.7 ACTH 67 Glucose 10.2   The care plan as a result of my appointment with my endocrine consultant of 25th April 2008:

diane177432

diane177432

All The 3's - 33! God I Feel It!

Woke up with Steve singing "Happy Birthday" to me - I'd forgotten it was my birthday as I woke up quite groggy and this stinking sore throat has now developed into a cold, so I am feeling 33 today big time. Harry sang happy birthday to me after I convinced him it was indeed my birthday and not his. He was very adamant it was his birthday and proceeded to give me an imaginary birthday cake to eat and imaginary cards. He got very annoyed when I ate one of the imaginary cards by accident...whoops!

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Zoo and MRI

No, no - I am not saying the hospital is a zoo...although sometimes feels like it...LOL! Harry and I went off to the zoo in the morning yesterday and spent a great day in the sunshine..and boy, was it hot - we saw loads of different animals. The zoo is a rescue centre too so many of the animals we saw were on the verge of extinction. Harry touched a python and got up close with a barn owl, a lizard and a guinea pig - OK not scary, but very cute. He had a good old time on the bouncy castle and pl

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diane177432

Funny sort of week

I've been feeling out of sorts for the past week and a half...really, really fed up really and not knowing why. I have been incredibly grumpy and feeling tired and a bit rough - I do worry that the signs of Cushings are starting to surface again but quickly put that thought to the back of my mind and try not to think too hard. My cheeks are so flushed right now and the hump is very prominent - its so frustrating. I seem to be running around like a headless chicken right now too - trying to do so

diane177432

diane177432

MRI...

I had my MRI yesterday...I really don't like having them done and would gladly have fallen asleep inside the machine had it not been for that bloody noise!!!!I don't know how to feel right now...so much going on in my life that I just feel tired more than anything else....roll on 2006! Every Christmas I say to Steve "Next Year will be out year..." I went to say that again this year and had to stop myself because each year things get worse and all I can do now is live in hope of a reprieve and so

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Guest

Another day

Feeling a bit better today emotionally - my spirits are more up on yesterday. Tackling my ever growing ironing pile but having plenty of breaks in between as I feel so tired still. Its taking me ages but my arms and legs just ache.   Harry and I were mucking around with that Monkey email that Robin posted some time ago - Harry was in a fit of giggles and I can't get him off of it - Thanks Robin!!!   I've decided to wait to see my endo next Thursday. I know I am probably silly but I just hav

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diane177432

A nice reply

Yesterday I received an email from my manager confirming that she had received my resignation and that she was saddened to hear our present circumstances. They are waiving my months notice which is good, one less thing to worry aout. It was a very nice email and I am glad to have parted company on good terms. I really enjoyed working there and made some lovely friends, a couple of whom I still keep in contact with. I do feel a sense of relief that this is one area of my life where I can now thin

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Guest

Park life

Went to the park today - need to start getting out more and walking so ended up going into town and then took Harry to the park. It is a lovely park but notorious for drunks and drug users - when we went down th epark a week ago we overheard a young couple say they had spotted used needles in the public toilet. Harry and I passed a young couple today who were obviously drunk and it was only 10:30am - makes me so angry that Tony Blair wants to increase drinking hours to 24hrs. I love taking Harry

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Feeling rough

God I feel so rough today. I just feel exhausted, so physically exhausted. My cheeks are burning and feel so hard and I just don't look myself, I look ill. I can't even manage a walk to the park right now without feeling exhausted and my fingers swelling up like ballons. It's horrible. I just want to crawl into bed and hide away for a while.

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Things are looking up...

I am feeling good...actually went out on my bike yesterday and Steve and I have promised to try and go out each evening. I can tell you, I hurt...soooooo much....my legs were burning and so was my chest and I ache today but boy was it worth it - I felt so good !! I would never have thought I could have ridden a bike a year and a half ago.   Steve and I are also planning a camping trip - never been camping in my life! but we have gone and got us a tent and are heading for the Norfolk coast fo

diane177432

diane177432

Damn Cold, Don't You Know I'm On My Hols!

8:24amHad a better nights sleep last night, thank god although this morning my cold has hit full force and I feel so rough, I am as grumpy as anything...gggrrrrrr... I just want to veg out and do nothing but I still have packing to do, get Harry's stuff ready for the grandparents and tons of other stuff...gggrrrrr.... I think I should have been a man when I get a cold as I definetly have a man's way of dealing with them, completely and utterly useless and moaning all the time....lol! Well s'pose

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Hung over!

It was the first time in a long, long while that I have been able to drink and boy am I paying for it this morning. Had a few glasses of wine last night and stubled to bed in a drunken stupour - but it felt great!! I have been teetotal for over 3 years now and could not touch a drop which was horrible at Christmas and on special occasions. It was good to just let go again. Feel like alot of normal things are happening now.Went to Mums yesterday and helped to sort out our room. It should look OK

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Guest

Oh what a day!

I went to the house to pick up some more things today. Went through all the post - it's not looking good. If we don't get the bankruptcy sorted out soon then we will have our house repossessed - we have also had a notification that the car will be repossessed. I am not too bothered about the car but we need to get the house sols. I am so upset. We will get in touch with the mortgage company to see if we can sort it all out. I am just getting so tired of all this now...it is really taking its tol

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Guest

Poems...or a try anyway

Just thought I'd start posting my poems here - sometimes when I feel down or fed up or well you know, I usually write poems to get rid of all my stress...one of the ways to de-stress anyway...Time:Time is a healer, or so I am toldBut as time goes by, the more I feel old.Each day that passes seems bleaker then the last,My future seems dim now, so I live in the past.I can?t see the forward; I am forever looking back,Way over my shoulder, ?cause the ahead just seems black.I just want a light, just

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Guest

Testing time

Currently doing a 4-day Dex test. Started on Friday and will have a blood draw tomorrow (Tuesday) at 9am. Also doing 2 days of 24hr UFC collections. Felt really awful on the 1st day - awoke during the night shaking, couldn't regulate my body temperature, hot and cold extremes, sharp pains in a centralised area of the back of my head, feeling nauseous. Today I am feeling quite energised. I never know how to look at it, is this good, or is this a bad sign. Cushings can be so confusing whether you

diane177432

diane177432

Testing over - now feeling rough

Well, I went in for the blood draw on Tuesday and it took 5 attempts to find a vein that would co-operate - came away with all my arm swollen and bruised. It's very sore. yesterday, I was feeling so rough. I think its a combination of starting back on the hydrocortisone and changing insulin. Actrapid ceased production at the end of December and I had enough to see me through to now. I have been switched to Novotrapid which is a shorter acting insulin. I feel very rough. I was incredibly emotiona

diane177432

diane177432

Some people...

Steve called last night to say he should be home today pending the weather...severe snow in his area right now, so hopefully it will clear today and he can come home - I have my MRI tomorrow and was hoping he would come with me. Sounds like he had an eventful time at his families house. His brother ended up apologising for the way he has been acting in the past 3 years. He finally told us he was gay a few months ago. We are so supportive of him and are firm believers that you choose your own pat

Guest

Guest

Update - 1st post-op endo appointment

Came away feeling deflated. Numbers are looking OK. Thyroid is now borderline within range. Oestrogeon is still on the low side. The plan is for me to reduce my hydro to 25mg and if I am OK try to get down to 20mg. I am increasing my thyroxine to 125mcg - see if that helps with weight loss. Need to combat one thing at a time in order to eliminate what is happening, so will have to continue to be patient. If a reccurance occurs then radiotherapy is looking likely. Need to also get used to Novotra

diane177432

diane177432

Still no news...

I know - 2 weeks they said - but I wish I could get an answer. tearing my hair out trying to sort out our old house, the bankruptcy, Harry's childcare, Mum's problems, Steves concerns - I desperately need my own space and I just want to scream....!!! It was breaking point on Sunday and I just wanted to climb into bed and be on my own, but no chance. Monday went by like a flash - Steve did some home cooking with Harry, making the mincemeat for our mince pies and then he is trying to get back into

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Guest

Times'a'changing

Oh what a funny old start to the day its been. Its 1:30pm, we've just been to the local park and kicked a ball around, shot some hoops and walked through the woods, it was nice to get some fresh air although Harry got a bit grumpy towards the end, tiredness I guess. Day started off with a funny start. I decided I didn't want to go to the job, I know, I know, I should have gone but 8 hours a week is hardly going to solve any major problems. Steve and I had a good talk and we have decided to file

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Guest

Starting over...

Haven't posted here for a few days, quite a few things going on. Mum has stayed over for a few days and we have been discussing the move. Will be getting the ball rolling shortly. Just need to start packing and writing to a few people. Need to register with new Docs etc when we move too. Mums house a smaller than ours but I thinks we'll do OK. There is so much to do in the local vicinity and lots of well paid jobs too, so we are seeing this as a very positive step now. I just need to do some ext

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Guest

Home alone!

Well, I am home with Mum - Steve and Harry have headed off down south to my in-laws and I am having a nice break with Mum...we have been complete and utter slobs today - and it is so quiet...very strange...too quiet...but it has been lovely - had two calls already from Steve to let me know they're OK and that he misses me - they've only been gone a few hours!! Apparently Harry has been spoilt rotten and has been given a couple of toys my Mum is just going to love having in the house - Steves you

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Guest

Feeling a bit better today...

I've managed to perk myself up a bit today. Mum and I made up last night and Steve and I have been having a laugh today. Mum took Harry shopping so it gave us some quality time together - sacred these days! Its been a relaxing day so far and each of us has been doing our own things as well as having a laugh together. Want more days like today. I don't feel so sad today, but to be honest I have been up and down for a while even though I have not mentioned much about it on the boards. I seem to ha

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Guest

I just want to climb back in bed...

It started out a fairly good morning, then Steve got a mood on and made a comment and there we are having a row in the car with Harry telling us to be quiet....not good....I felt so stressed, my head was pounding, I felt dizzy, I felt sick - I am not handling stress that well right now - reacting to situations. I hate it! I don't like arguing in front of Harry but both Steve and I got bees in our bonnets this morning and both went for the jugular. Was left with me not talking to him, dropped him

diane177432

diane177432

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