Its 2:45am and I have been up since 1:15 with a bad tummy. I feel so rough and my head is banging. Just trying to rehydrate myself and I am so tired, I just want to sleep, but the pains are so bad.
Took loads of photos on my new camera yesterday. Its my 1st digitial camera and I must admit when you see photos of yourself it gives a different perspective. I was saddened to see what I look like. I don't like how I look at all. I just want to be off of these steroids and free of this disease.
Nothing much happening today. The weather has been awful, bucketing down. The Sun is just starting to come out. Hope its a nice day though as my friend gets married today. My toe has been killing me. My op isn't until November 10th but it is so painful right now, even the slightest knock makes me wince in pain...gggrrrr...be so glad when this toe is sorted out. Can't quite believe I have had to endure these problems for 2 years now. This will be my 4th op to sort it out - ridiculous.
Harry woke with a start this morning, thinking he saw a spider in his bed...I had to make up a story about a spider who wears 8 shoes just to make light of it, fortunately Alfie, my Mums cat came in and saved the day...it put a smile on his face anyway and I think he feels a big boy now...bless.Its early right now, just gone 7:40am. The weeks seem to be flying by, onlya few weeks to Christmas and we are not even prepared, don't think we will be this year until the last minute as money is so tigh
Its 12:48 right now - no news as yet...just been to the Dr's as I was supposed to have my Hep B injection today but the nurse got her days mixed up and it is tomorrow not today - I feel absolutely exhausted having walked up there and back. I just feel rough, heads all over the place, all my limbs are aching and my eyes keeping goign in and out of focus - what the hell is going on...!!Had a call from the Learning Support officer at Uni today to find out if I need any special assistance. I didn't
I had a telephone discussion with the course leader today and she advised me to withdraw from my nursing course and reapply to the other University once I have my test results through and all is OK. I personally think this is the most sensible course of action although I would have liked a simple transfer, it would be easier this way. I feel very sad about not being able to work with my new friends but I guess life has a different deck of cards for me.
My cheeks are still burning red, I loo
Still feeling the effects of my head injury yesterday...what was I thinking...shame I didn't do that pre-op, could've evicted the little buggar sooner. I've got a lot of things to do this week, We are finally going to admit defeat and go for broke, so I have to contact the housing association and try and see what our rights are. Can't wait to move away and be nearer my family to be honest - it will so good to make a fresh start too. We have been going through all of our junk trying to declutter
I've been feeling a bit out of sorts today. I have reduced my insulin because my blood sugars are doing well and I guess that coupled with going on the cross trainer and stepper yesterday and the continued reduction of hydrocortisone has culminated in a feeling of complete and utter exhaustion. I have still been busy round the house doing chores...I get such itchy feet!! Wish I was one of those people that can happily stick their feet up but I still can't sit around too long without feeling bore
Please, please save me from my 'Mr Incredible' hell. Got up this morning and Harry has his costume on again and yes he wasnts to watch the film...this is getting obsessive - I think its heading for the trash can...lol!!Phew...that was a close one - the incredibles have had their come uppance and have been replaced by Cats & Dogs...not that much more educationally challenging but still. I think we need some fresh air - its been raining here so is a bit grim outside however I have now register
Yesterday I had a letter from our council saying our next door neighbours planning proposal for a 2-storey 19 ft extension to the rear of their property has been granted. We have been fighting this application for a year and on their 3rd attempt they have been successful. I am so gutted as it means that building work will take place whilst we are trying to sell our house for the bankruptcy - it could jeopardise our having the equity available to pay of our debts and determine how long our bankru
Just won a bid on E-bay for a bike. Hopefully will collect it at the weekend and I can start cycling to lose some pounds or build up the muscle. Steve and I have always fancied cycling at the weekends especially in the Summer as the countryside here is gorgeous. I am trying to bid for a bike for Harry as the one he has is too small. This is the first time I have bidded on e-bay - can get very addictive but I am making sure I have cut off points as I don't have alot of cash right now so trying to
Spent today lazing around with Harry. I have been feeling abit off today, cheeks are burning - that horrible cushings sensation you get when you feel like a squirrel with walnuts stuffed in your cheeks...lol! and my limbs feel very tired too. So have and I made a picnic on my bed. We laid out a picnic blanket and brought all his play cups and saucers and teapots and play food in and four of his teddy bears and had a teddy bears picnic - it has been fun and I so love having this time with him. W
I have increased my hydrocortisone back up to 15mg (10mg in the morning and 5mg midday) and in two days I have to admit I have more energy. I am not so exhausted, I am still tired but not to the point that I feel I could sleep there and then. I have come to the point where I think I have to stop pushing myself beyond what my body is ready for. I think I need to give it a bit more time before I start to wean again. I am still interested in whether the low thyroid is playing a big part in some of
Well, my last ever boot sale today...phew!! Did it on my own, 6:30am down with the car loaded to bursting point. Smashed our selling record - got chatted up by a 71yr old and made lots of friends in the process - very fun day. Stress free without the clan with me and ended up making twice the money I would if they were with me - typical!! Must be the gemini gift of the gab...glad to see its returning again after all these months of living like a hermit! Sold lots of Harry's baby bits - it was lo
Well, its the mornign after the night before...feeling a little hung over...toasted int he New Year with Steve and a bottle of champagne...we didn;t go anywhere, just stayed at home and watched Jools Holland. Mum and Harry went to bed early. I was proud of myself as this is the first year in 3 years that I have managed to stay up to see the New Year in - I have been too ill all previous years and had no energy to keep awake. Start as I mean to go on.I have got so many goals this year - I won't
Happy Valentines Day everyone! Steve sent me some beautiful flowers, roses, carnations, chrysanth's, lillies - I love gerba's but he couldn't get them - but they are beautiful.Still got a bit of cold left, seeing my GP later today to talk through everything with him. I saw him yesterday as Harry is still unwell and he asked me if anyone else had Cushings in the family. I mentioned I suspected my Mum may have it but she won't go for testing. It was nice, he asked how my nursing course was going.
It's been a pretty good day today. I have been busy changing my bedroom around. Not sure if I should have moved furniture after the accident a couple of days ago but I am feeling OK so it is probably fine. My Nan used to always have an old saying 'Change your room, change your life' - I guess having a re-shuffle will probably feel like something is new in your life, so I have always believed that. I applied for a night shift job to bring in some extra cash and I have an interview next Tuesday. W
Spent most of this morning sorting out things to sell for tomorrows car boot sale (garage or yard sale is the equivelant I guess, not sur eyou have car boot sales in the States, do you?). Anyway, been pricing things up and got a fair bit to sell, hopefully will make a bit of extra cash to pay some more bills off. I am really desperate to get one of the jobs I am being interviewed for, it will mean we can then concentrate on trying to tidy the house up to sell instead of declaring bankruptcy - se
Well, its nearly 8am here, been up for a couple of hours already. Decided to finally get off my bum, go and get my bloods checked (for my diabetic nurse and for the HRT possibility). Also need to see the Doc about various things that are concerning me lately. I have been feeling rough now for a few weeks, probably due to weaning off the hydocortisone and possibly taking the statin for cholestoral. Leg cramps, heart flutters, exhaustion, joint pain, facial plethora, dizzy spells, generally feelin
Well, just come back from all of my 3 appointments and I am shattered. Dietician couldn't tell me much more than I already know. She thinks the steroids are what is suppressing my weight...contradicts what the endo said...other than that she said I am eating OK, diabetes is under control, could only suggest smaller portion sizes and adding fruit...next appointment with the GP, he wants me to stay off the statin for lowering my cholestoral, it probably doesn't agree with me and he agrees that my
Well, I've ordered the boxes, should arrive any day now. Need to start measuring up my furniture. Mum has an old and knacked sofa, so we are using our one. We have some very large reclaimed furniture which I am concerned will not fit, a 7ft pine table with big carver chairs and a 7ft dresser - my Mums house isn't that big! We said the table will take up most of the living room. Our bed is this huge king size reclaimed pine sled bed as well. Not sure if we will be able to fit that in. We have a s
Harry starts back at nursery today.I am going to pop down to the employment agencies and see if I can get a temporary night job to raise the extra cash we need. Steve is off with a bad back right now, poor thing...men's illnesses are always a 100 times worse! Still packing...slowly getting there, thought we didn't have much but boy was I wrong.Got a bit emotional last night for no reason other then I had watched some drama on TV. Thinking alot about the last 4 years especially about Harry's prob
Experienced a few more episodes like a couple of days ago after walking Harry to nursery. My fingers started ballooning up, I felt incredibly light headed and the facial plethora was running riot - oh, and my lips went numb!! What the hell is going on...checked my blood sugars on the good advice of Doctor Christy...lol! and it was within normal range. I think I will give it another week or so with walking Harry to school. It may well be that my body is saying...whoa...exercise, what the bloody h
Thank god its Friday...although lack of money has dictated that I have to do yet another car boot sale on Sunday...gggrrrrrr...just priced up the last of my stuff - hope to make enough for the week and to pay a bit towards the lorry for our move. Steve and I both agreed that we are now desperate to get moving - we are both going stir crazy and need to finally say goodbye to the stress and move on to new and better things...here's hoping. Had a letter through yesterday about my next MRI appointme
Was quite happy yesterday as I checked my bank account had had two tax credits in there for a teax rebate, I am assuming. Not a huge sum but it will pay for the lorry when we move. I have been busy moving boxes today and trying to get some things downstairs. Looks like we have to put the move back a couple of days though as Steve can't get the time off, which is a shame. Harry and I made some dinosaur cookies today. I also got him a couple of books to learn numbers and the alphabet - they are re
Don't know where my energy came from today but I have blitzed my house - feel shattered now. Harry and I have been thinking about Halloween today and we have been making up stories and plays about a Witch - it amazes me just how creative he is at 4 - he loves Halloween - its not really that big over here although as we have Asda here which is part of Walmart they sell some fantastic and cheap Halloween costumes and accessories. We brought some spiders web with these plastic spiders that I keep f