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A day in the life...

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Happy New Year! 2006!

Well, its the mornign after the night before...feeling a little hung over...toasted int he New Year with Steve and a bottle of champagne...we didn;t go anywhere, just stayed at home and watched Jools Holland. Mum and Harry went to bed early. I was proud of myself as this is the first year in 3 years that I have managed to stay up to see the New Year in - I have been too ill all previous years and had no energy to keep awake. Start as I mean to go on.I have got so many goals this year - I won't

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Had my interview - horray!

I posted this on the boards, but I'll post it here as well...had my nursing interview yesterday and here's how it went...It was a bit of a long one. There were 4 of us being interviewed. The 3 other women were in the 20's and were applying for the full-time course, so I was the only one being interviewed for the flexible course. I felt like a bit of a Mother Hen actually as the others were quite quiet and reluctant to speak up. We went to the main admissions office initially to hand in all of ou

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Guest

Good news about pre-eclampsia link

I received a very welcoming email this morning in response to an email I sent in April concerning a study I took part in back in 2001 when my son was born. It was looking into the genetics of Pre-eclampsia. Since being diagnosed with Cushings, I have always wondered about the link with Cushings and emailed a Doctor on the study to ask if any links had been found. Here is my post:   http://cushings.invisionzone.com/index.php?showtopic=16016   I really hope that further research could be made

diane177432

diane177432

Getting ready...

OK, been out down the library this morning to pick up my nursing books and went off to have my Hep B antigen test. Blood flowed freely from the only point in my arm that allows them to take blood!! I don't bother with them looking for a spot now - I just point to where they can get it and then it saves a whole bunch of time faffing around!I spent yesterday moving a whole load of furniture, trying to make space in the house as it was a bit like a furniture shop, dodging bits of furniture to get u

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Guest

Getting on top of things

Finally managed to pull my finger out and get on top of all the paperwork. Have one thing to do though that for the life of me I cannot remember. Have a inkling about a letter I need to respond to but cannot locate it???? I have decided to give up thinking for a few hours probably do me the World of good!!I am feeling in better spirits today and have a bit more energy. Got a little bit sluggish this afternoon but no where as near as the past 2 days. I think going out for long lengths of time t

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Guest

Getting angsty!

I had my last clinic appointment a week ago on the 18th November. Since then there have been a couple of changes. I increased my thyroxine from 125mcg to 150mcg as my thyroid was showing to be on the low side. It has been consistently OK since starting thyroxine and this is the first time in a long while that it has lowered. I have now switched from dexamethasone to hydrocortisone taking 10mg in the morning and 5mg in the afternoon (with an option 5mg later in the day should I need it, but I hav

diane177432

diane177432

Funny sort of week

I've been feeling out of sorts for the past week and a half...really, really fed up really and not knowing why. I have been incredibly grumpy and feeling tired and a bit rough - I do worry that the signs of Cushings are starting to surface again but quickly put that thought to the back of my mind and try not to think too hard. My cheeks are so flushed right now and the hump is very prominent - its so frustrating. I seem to be running around like a headless chicken right now too - trying to do so

diane177432

diane177432

Friday, 23rd September 2005

Thank god its Friday...although lack of money has dictated that I have to do yet another car boot sale on Sunday...gggrrrrrr...just priced up the last of my stuff - hope to make enough for the week and to pay a bit towards the lorry for our move. Steve and I both agreed that we are now desperate to get moving - we are both going stir crazy and need to finally say goodbye to the stress and move on to new and better things...here's hoping. Had a letter through yesterday about my next MRI appointme

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Feeling very tired with all this...

Right now, I feel absolutely exhausted. I head just aches with all the pressureof thinking too much, my cheeks are burning and I am getting black streaks before my eyes - probably the stress of it all. I wish I didn't have to wait another day to find out for sure if it is a reccurance. Just ben reading up on alot of others stories and articles. For months I guess I have been trying to ignore all of the things happening, putting it down to th eother hormones acting up, the way recovery happens...

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Feeling very alone in all this confusion

Well, I was officially diagnosed with a 2nd reccurrance a week ago and on Monday 8th October 2007 I go into hospital for 5 days as an in-patient for 'investigations'...on my most recent MRI it looks as if the recent pituitary appoplexy episode has caused my residual tumour to collapse into itself and has shrunk. By all intents and purposes after 2 surgeries and radiotherapy I should be heading for a cure but I am not and they are all baffled by it hence the tests. It could still be a pituitary s

diane177432

diane177432

Feeling rough...again

I am feeling very much out of sorts today. It seemes that any activity that makes me exert myself lately results in my body temperature rising and then I get upset tummy. I have also had some sinus headaches this morning and a general feeling of internal shakes and feeling rough. I really don;t know what is going on right now. Earlier this morning I had headaches on the right side from my sinus across my head and my right eye started to feel strange. I started to think, oh no not again - is the

diane177432

diane177432

Feeling rough today

I've been feeling a bit out of sorts today. I have reduced my insulin because my blood sugars are doing well and I guess that coupled with going on the cross trainer and stepper yesterday and the continued reduction of hydrocortisone has culminated in a feeling of complete and utter exhaustion. I have still been busy round the house doing chores...I get such itchy feet!! Wish I was one of those people that can happily stick their feet up but I still can't sit around too long without feeling bore

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Guest

Feeling rough again

Woke up with no energy, muscles are just aching so much. My lips feel numb. I head feels heavy. Had continuous headaches last night. I just feel like I need to lie down and sleep today, I just feel drained. My cheeks are burning too. I just don't feel right at all. Is this me getting better....??   I am glad now that I decided to defer my studies. I really don't know how I would have been able to manage them right now. To think that my Doctors recommended I would be fine after 8 weeks. i reall

diane177432

diane177432

Feeling rough

God I feel so rough today. I just feel exhausted, so physically exhausted. My cheeks are burning and feel so hard and I just don't look myself, I look ill. I can't even manage a walk to the park right now without feeling exhausted and my fingers swelling up like ballons. It's horrible. I just want to crawl into bed and hide away for a while.

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Feeling like a fresh start

Well, I woke up this morning feeling motivated and in need of a fresh start. Big changes have happened in my life and more changes are to come but this time I have a good feeling about it all and not one of dread as I had when I was ill. I am taking small steps to try and improve myself and day by day I am feeling more like 'me' and less like someone with a mass of symptoms. I am going to be 33 on Monday and I want my 33rd year to be one I remember with fond memories, it's not a milestone year b

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Guest

Feeling a bit better today...

I've managed to perk myself up a bit today. Mum and I made up last night and Steve and I have been having a laugh today. Mum took Harry shopping so it gave us some quality time together - sacred these days! Its been a relaxing day so far and each of us has been doing our own things as well as having a laugh together. Want more days like today. I don't feel so sad today, but to be honest I have been up and down for a while even though I have not mentioned much about it on the boards. I seem to ha

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Guest

Diabetic check-up

Today I had an appointment with my diabetic nurse. My cholestoral levels have risen from 5.8 in September to 7...I have to see the doctor tomorrow to discuss meds to reduce it and know I am bound to get a lecture on healthy eating.   My blood sugars are still on the high side, morning one being 9.8-10.6 - I am still on te dex which is not helping. I have put on a stone in weight since September 2007 - again not good. My potassium is low at 3.1. BP is OK at 130/80, thyroid within range, LFT's O

diane177432

diane177432

Dex tests again...

Started the dex test today. Taking 1/2 a tablet twice a day for 3 days...24hr urines on days 2 & 3 and then taking a full tablet four times a day for 2 days with 24hr urines - with bloods in between and after. What joyFelt rough after taking the dex tablet this morning...major headaches, feeling exhausted, cheeks on fire and feel like walnuts are back - squirrel has buried his nuts in my cheeks...Its now 10am and I am feeling a bit better although lips are now going numb (?), head is still f

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Guest

Day of testing...oooh familiar ground!

Well, its nearly 8am here, been up for a couple of hours already. Decided to finally get off my bum, go and get my bloods checked (for my diabetic nurse and for the HRT possibility). Also need to see the Doc about various things that are concerning me lately. I have been feeling rough now for a few weeks, probably due to weaning off the hydocortisone and possibly taking the statin for cholestoral. Leg cramps, heart flutters, exhaustion, joint pain, facial plethora, dizzy spells, generally feelin

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Guest

Day 2

I've been feeling really run down today, my sore throat has gotten worse, so I have been dosing myself up with strepsils and annadin extra, feeling very tired. Harry and Steve gave me my birthday cards early which was lovely, Harry opened both of them for me and gave me a big kiss. Can't believe I am going to be 33 tomorrow. I am not doing anything on my birthday and like most of my previous birthdays it will probably be like any other day, but I don't mind. I think as you get older birthdays ar

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Guest

Damn Cold, Don't You Know I'm On My Hols!

8:24amHad a better nights sleep last night, thank god although this morning my cold has hit full force and I feel so rough, I am as grumpy as anything...gggrrrrrr... I just want to veg out and do nothing but I still have packing to do, get Harry's stuff ready for the grandparents and tons of other stuff...gggrrrrr.... I think I should have been a man when I get a cold as I definetly have a man's way of dealing with them, completely and utterly useless and moaning all the time....lol! Well s'pose

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Guest

Cycling

Just won a bid on E-bay for a bike. Hopefully will collect it at the weekend and I can start cycling to lose some pounds or build up the muscle. Steve and I have always fancied cycling at the weekends especially in the Summer as the countryside here is gorgeous. I am trying to bid for a bike for Harry as the one he has is too small. This is the first time I have bidded on e-bay - can get very addictive but I am making sure I have cut off points as I don't have alot of cash right now so trying to

diane177432

diane177432

Car Crash...what a day!

Yesterday was going to be a great day. I 'thought' I had an appointment with the hospitals eye clinic, so Steve, harry and I drove to Steves work. We were having a good old chat about our holiday, how we were looking forward to the break, the Sun was shining, it was a lovely day...then....CRASH!!!!! someone hit the back of our car....all of our boot was caved in, couldn;t shut it and the light was damaged. Our toe bar went through their radiator...nightmare! All of us went off to the A&E...H

diane177432

diane177432

Can't Sleep...

It's 3am and I can't sleep. Still feeling pretty rough with this cold, but my head seems all over the place. Reminiscent of the old days of cushings insomnia, something I don't really want to experience again, although I know this time it is down to worry, not cortisol. So I am posting on here, always has made me feel better and gives me a chance to rid myself of my worries. I am a little apprehensive about going away in a weeks time. I rarely go away on my own these days as I usually have Harry

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Guest

Camping fever...

Well, it's official - I am a closet camper...I will receive my first tent tomorrow along with all the camping accessories and we will be off on our first camping trip in the coming weeks. I feel I am on the first step and will aspire to a caravan before too long...   Steve will be home soon and will be dragging me out for another bike ride. I am becoming a glutton for punishment...please assure me that I am not losing my sanity

diane177432

diane177432

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