I received a very welcoming email this morning in response to an email I sent in April concerning a study I took part in back in 2001 when my son was born. It was looking into the genetics of Pre-eclampsia. Since being diagnosed with Cushings, I have always wondered about the link with Cushings and emailed a Doctor on the study to ask if any links had been found. Here is my post:
I really hope that further research could be made
Woke up with no energy, muscles are just aching so much. My lips feel numb. I head feels heavy. Had continuous headaches last night. I just feel like I need to lie down and sleep today, I just feel drained. My cheeks are burning too. I just don't feel right at all. Is this me getting better....??
I am glad now that I decided to defer my studies. I really don't know how I would have been able to manage them right now. To think that my Doctors recommended I would be fine after 8 weeks. i reall
OK, been out down the library this morning to pick up my nursing books and went off to have my Hep B antigen test. Blood flowed freely from the only point in my arm that allows them to take blood!! I don't bother with them looking for a spot now - I just point to where they can get it and then it saves a whole bunch of time faffing around!I spent yesterday moving a whole load of furniture, trying to make space in the house as it was a bit like a furniture shop, dodging bits of furniture to get u
Its 7:30am right now and the house is so silent. Mum's doing overtime and was off to work at 6am and Steve and Harry are curled up in bed and it is so quiet, it is blissful.
As I said in yesterday's blog, come the evening and all was well again. Steve and I sorted out our differences and it turned out to be a lovely evening. The boys had dinner in the garden as it was a gorgeously warm evening and Mum and I shared a few laughs in the house.
Harry's appointment went OK, if a little rushed
Finally decided to pull out my cross trainer and drag out the stepper. I was thinking of selling the cross trainer but having had a go of it this morning I am opting against it. As I am on cholestoral lowering drugs right now and I have had a few things with my heart that I am not happy with it is finally time to start some 'serious' exercising. I have been good in the sense that I am always moving about and I so quite heavy gardening work as our garden is high maintenance and chasing a 4 year o
7:25amSlept well last night, grogginess went in the evening so I felt better by the time Steve got home. His train was delayed big time so he got home over an hour late and he was so tired. I spoke to my Mum last night and we had a good chat which made me feel so much better about our financial connection. She is really living beyond her means and I think she was in denial with it but didn't let anyone else know, so there she was lending me money and lavishing us with gifts and spending money sh
I've been a bit of a strange mood today, feel off sorts, feeling a touch down, tired, and mentally exhausted - I guess its all catching up with me. I've written my resignation letter today. I am sad to have written it but I need to make a fresh start. I can't afford to work in Cambridge. As Steve has started commuting by train, we would have to pay at least ?350 a month in travel costs and that is unacceptable plus childcare costs on top, we just can't do it. I also have Liz's operation on my mi
Firstly I want to send my love to all those that were affected by 9/11, four years ago...What a night I have had - I was sick as a dog, I thought I was going to collapse. Feeling much better this morning, but my breathing was very shallow last night. It has been humid here so it was a case of throwing open all of the windows (scared of Daddy long legs, you see - do you get those in the States - big spider like flying insects...ggggrrrrr...hate them). Ended up being really ill, sitting on my bath
Ggggrrrr....woke up feeling rough again - what's going on! , OK, so I overslept and hour and took my meds late but still...lol! No, seriously, my stomach probs are still going on and that damn lump in the side of my neck is back again, I'm counting down the days to our move but think the stress is hitting me but I am trying to keep it all inside. The closer it gets, the sadder I get about moving but the happier I get about starting over - its a bit euphoric at times! Well, I better get off m
Trying to give myself a boost today. I felt so down in the dumps yesterday evening and I need to kick myself back in line. No negative thoughts!!I wrote down everything I felt last night and will leave it a few days before reading it. After watching this mornings City Hospital with a woman that had Pit surgery for Acromegaly, I started examining my hands and feet. They balloned in size considerably when I got cushings but I never verbally got an answer on what my growth hormone was. I just get t
We were up at 5:30 this mornind and out of the door at 6:30 -just got back, its 3:00pm and I am exhausted. We didn't even sell that much - managed to sell Harry's pram, a few clothes and some videos, not much else - made about ?50 so just have enough for a bit of shopping, pay for my electricity and some petrol. We really can't go on like this. A nice thing happened though, a young lad gave Harry a whole stack of reading books that they couldn't sell - Harry is in his element.Off to cook a sunda
The strain of the last few weeks started to show on Steve last night. I think we have both just had enough. He is so good though, he lets me rant and rave and moan and groan and he doesn't say much - he is very calm but last night the cracks showed. He isn't sleeping too well either, I feel so sad for him. He is my rock and my star and he keeps me sane in my insane little World. Together we have been through so much hell but have still stuck together, I can't name too many people that have had o
Harry and I have had a day of fun painting fishies and making octopusses (didn't get time yesterday!), squids and such. We painted a big sea scene and then pasted some shiny fish and then made some legs and heads for the octo and squid - got very messy and we were both covered in paint but great stress relief! Then onto the life size Octopuss made out of stuffed socks and a hoop covered in foil - managed to make a harness so he can wear it - It was huge - I was never good at home ec. but he love
It was a great start to today - I read Linda's post about Allison finally getting her diagnosis and heading for surgery. I love reading when things finally go right!I've been a busy bee today, still packing...never ending and Harry has been helping today which was quite funny to watch! Getting through tons of washing and housework in preparation. Started to get the jitters a bit though - guess its the thought of going back to Mum's, will it be OK, will we get on, will my marriage survive it...lo
7:47am - Up early again as usual, been up for a while...everyone else is in bed. Last day everyone is home and so I think they're making the most of it. Tomorrow we are all starting on our healthy eating and exercise plans - Steve will be cycling to work again..I have 12 days to try and shift a few pounds and get this back to feeling a lot less stiffer than it is...its a pain in the morning...literally.Its Bank Holiday here in England today in lieu of the 1st...not sure what we're doing to day..
Well, been a while since I blogged. Tons has happened. Was diagnosed with reccurance, saw a registrar in the neurosurgery team, saw my endo, had a confirmed surgery date, had a cancelled surgery due to a cold, waiting for a new surgery date. Tumour has grown, cushings no where near as bad as last time - hoping this 2nd op will be my final...!!Started Uni, having great fun, learning so much in such a short time, made great friends already and feeling like this was the right move - had a couple of
As the days go on right now, I am getting more and more worried that cushings is making a comeback. Little things are happening that ultimately get me thinking...I am getting more and more exhausted and just want to sleep, dark hairs have started to appear in places that I had dark hairs grow with cushings...I have been getting more headaces and the facial plethora is having a field day...my knee keeps giving way and I can't walk that far without getting pain and feelign tired...I seem to have s
Well, I got a letter from the University to say I have an interview for the registered nurse course on Wednesday 7th December at 9:15am. I have posted my thoughts in the forum as there are alot of things going against me right now. I've never been one to shy away from adversity so hopefully all will turn good in the end.I got turned down for the secretarial job though.Here's the link if you can offer me any advice or your thoughts - thanks...http://cushings.invisionzone.com/index.php...topic=142
Its been a bit of a funny old week this week. Christmas seems to be on our doorstep and we haven't got much in the way of preparation yet but as usual money is a contributing factor. I had one of my interviews cancelled next week - I was unable to make it so tried to rearrange it but they have now cancelled. I still have one on Monday though. Need to cover all my bases in the event of not getting on the course. We took Harry to a local school Christmas fair last night. It was at my old primary s
Had a lovely peaceful morning...and a lie in!!!! The house is quiet, its' snowing outside...I have been reading my book and listening to music of my own choice...I haven't had a day like this in, well I can't remember...as much as I love my boys...boy do I love my own time too ! Not sure if they're coming back today or tomorrow...so I am makeing the most of the time I do have left... ! They have not even been gone a day and Steve has called me 3 times already! :wacko:4:20pm - well, I have bee
Well, I haven't posted on here in a while. Its been a kind of up and down few months...what's new. Things are starting to level out a bit now. I had surgery on the 28th February. Everything went OK and they think they have got out all of the residual tumour. I am doing a dex test on April 7th and have an MRI scheduled in June and see the Neuro team again in July, all of my appointments are scheduled. I was in hospital a wekk and enjoyed posting a daily report to the boards. It was incredibly bor
Finally managed to pull my finger out and get on top of all the paperwork. Have one thing to do though that for the life of me I cannot remember. Have a inkling about a letter I need to respond to but cannot locate it???? I have decided to give up thinking for a few hours probably do me the World of good!!I am feeling in better spirits today and have a bit more energy. Got a little bit sluggish this afternoon but no where as near as the past 2 days. I think going out for long lengths of time t
Well, its been a proactive day in terms of my health and fitness. I started my new healthy eating regime today and did 20 minutes on the strider. It really tired me out. I am 8 weeks post-op tomorrow and I told myself that once my 8 weeks recovery is up, I will attempt to see if I can lose some weight. I am not that optimistic being on 30mg of hydro as it is bound to prevent weight loss, but even if a few pounds come off and I hit a plateau I will be happy. I don't like being this big and the la
I've woken up with such a bad headache, I feel so rough. It hurts across my forehead and behind my eyes. I'm trying to reduce my hydro by 5mg today as I was on 25mg around this time last time I was in recovery and personally I just feel I am on too much being on 30mg. My endo appointment was supposed to be at 6wks post-op but I am seeing my endo at 9-10weeks post-op. I can't wait that long....
Feeling very disheartened right now and need some serious cheering up. An old friend is visiting t
Well no reply from the hospital, so I don't think I got the job...nevermind...next one on Tuesday - all practice I guess - but I really do hate interviews, then again who does?!!Still wish I could decide on what I want to do though. I am just torn between making my family more secure with more money coming in to following my dream. I just know that if I don't do it now, I probably never will and the one thing I said when I was ill was that if I ever got better, I would do things that I want to,