Been busy sorting out Dex tests, 24hr urines...getting it right...thanks Liz!! Nearly sorted out a place for Harry's childcare, have a tour on Tuesday...nearly sorted out what I may be entitled to with bursaries....booked appointment for Hep B injection so I can start my course....writing endless lists for what I need to do over Christmas, presents, food etc and whether we can afford it...in between looking after the little monster and trying to keep fit...Well off to do some washing up, cook a
Still feeling the effects of my head injury yesterday...what was I thinking...shame I didn't do that pre-op, could've evicted the little buggar sooner. I've got a lot of things to do this week, We are finally going to admit defeat and go for broke, so I have to contact the housing association and try and see what our rights are. Can't wait to move away and be nearer my family to be honest - it will so good to make a fresh start too. We have been going through all of our junk trying to declutter
I gave the blog thing a rest for about a month but I am ready to blog again till I'm blue in the face... Its been a bit of a mad week this week and I need to get some writing done. I'll talk more about it later...need to get dinner ready for the mad clan who are pullin gup on the doorstep as I type!!!
Its been a very up and down month or so. I've moved house, resigned and left my job, Harry started a new school, we've just come back from a week in Spain and after having my most recent clinic appointment with my endo, I am not moving forward. Its incredibly disheartening and as I am a person who has to have some sort of focus I am finding it incredibly difficult coming to terms with the fact that I may never be cured. I am running out of options big time. The next step is for me to start HRT a
OK, I have been falling behind on blogging so am trying to do at least one update at the end of the month.
Well August has been a mixed bag. The weather in the UK has been up and down but its still nice and warm. We finally made it camping - 1st time - it was brillian. We visited lots of historical places, the campsite was great, very clean and family friendly. camping itself was fun and I have never slept so well and it was good to hear the wildlife especially the owls hooting at night. We
Its been a very rough week or so. So much seems to be going on in my life that my body is finding it hard to cope with everything right now. I think that is a big factor in why I have been feeling so rough hence the visit to the endo yesterday. Moving house was difficult and a big culture shock although there were major improvements in some areas like being with other people again and not feeling so isolated. Not having any spare money is hard - we still don't go out and I have rented an allotme
Spent today lazing around with Harry. I have been feeling abit off today, cheeks are burning - that horrible cushings sensation you get when you feel like a squirrel with walnuts stuffed in your cheeks...lol! and my limbs feel very tired too. So have and I made a picnic on my bed. We laid out a picnic blanket and brought all his play cups and saucers and teapots and play food in and four of his teddy bears and had a teddy bears picnic - it has been fun and I so love having this time with him. W
Spent most of this morning sorting out things to sell for tomorrows car boot sale (garage or yard sale is the equivelant I guess, not sur eyou have car boot sales in the States, do you?). Anyway, been pricing things up and got a fair bit to sell, hopefully will make a bit of extra cash to pay some more bills off. I am really desperate to get one of the jobs I am being interviewed for, it will mean we can then concentrate on trying to tidy the house up to sell instead of declaring bankruptcy - se
Feeling a bit better today emotionally - my spirits are more up on yesterday. Tackling my ever growing ironing pile but having plenty of breaks in between as I feel so tired still. Its taking me ages but my arms and legs just ache.
Harry and I were mucking around with that Monkey email that Robin posted some time ago - Harry was in a fit of giggles and I can't get him off of it - Thanks Robin!!!
I've decided to wait to see my endo next Thursday. I know I am probably silly but I just hav
Feeling slightly better today, although did wake up at 4am...can't sleep...Now 5:17am and still posting here...what am I like! I know I will regret this later and be thoroughly exhausted...OK, time to get a few winks in before the crew wake up in an hour - can hear moving upstairs, so better get them in quick! zzzzzzzzzzzz
Woke up with Steve singing "Happy Birthday" to me - I'd forgotten it was my birthday as I woke up quite groggy and this stinking sore throat has now developed into a cold, so I am feeling 33 today big time. Harry sang happy birthday to me after I convinced him it was indeed my birthday and not his. He was very adamant it was his birthday and proceeded to give me an imaginary birthday cake to eat and imaginary cards. He got very annoyed when I ate one of the imaginary cards by accident...whoops!
It's been a long time since I have posted here...nearly a year in fact. I have been absent from the site in an attempt to try and move on from Cushings and regain my life. I don't know if that will ever be possible although a year on I feel so much more better, more energy, and more like the old me again. The only trouble is my life is still ruled by my medication and just being a little late means I can feel just how reliant I am on them. I fine that sad. In the past year I have tried my hardes
I have increased my hydrocortisone back up to 15mg (10mg in the morning and 5mg midday) and in two days I have to admit I have more energy. I am not so exhausted, I am still tired but not to the point that I feel I could sleep there and then. I have come to the point where I think I have to stop pushing myself beyond what my body is ready for. I think I need to give it a bit more time before I start to wean again. I am still interested in whether the low thyroid is playing a big part in some of
Yesterday I received an email from my manager confirming that she had received my resignation and that she was saddened to hear our present circumstances. They are waiving my months notice which is good, one less thing to worry aout. It was a very nice email and I am glad to have parted company on good terms. I really enjoyed working there and made some lovely friends, a couple of whom I still keep in contact with. I do feel a sense of relief that this is one area of my life where I can now thin
Well, its been a proactive day in terms of my health and fitness. I started my new healthy eating regime today and did 20 minutes on the strider. It really tired me out. I am 8 weeks post-op tomorrow and I told myself that once my 8 weeks recovery is up, I will attempt to see if I can lose some weight. I am not that optimistic being on 30mg of hydro as it is bound to prevent weight loss, but even if a few pounds come off and I hit a plateau I will be happy. I don't like being this big and the la
Harry starts back at nursery today.I am going to pop down to the employment agencies and see if I can get a temporary night job to raise the extra cash we need. Steve is off with a bad back right now, poor thing...men's illnesses are always a 100 times worse! Still packing...slowly getting there, thought we didn't have much but boy was I wrong.Got a bit emotional last night for no reason other then I had watched some drama on TV. Thinking alot about the last 4 years especially about Harry's prob
Harry and I have had a day of fun painting fishies and making octopusses (didn't get time yesterday!), squids and such. We painted a big sea scene and then pasted some shiny fish and then made some legs and heads for the octo and squid - got very messy and we were both covered in paint but great stress relief! Then onto the life size Octopuss made out of stuffed socks and a hoop covered in foil - managed to make a harness so he can wear it - It was huge - I was never good at home ec. but he love
Ggggrrrr....woke up feeling rough again - what's going on! , OK, so I overslept and hour and took my meds late but still...lol! No, seriously, my stomach probs are still going on and that damn lump in the side of my neck is back again, I'm counting down the days to our move but think the stress is hitting me but I am trying to keep it all inside. The closer it gets, the sadder I get about moving but the happier I get about starting over - its a bit euphoric at times! Well, I better get off m
Firstly I want to send my love to all those that were affected by 9/11, four years ago...What a night I have had - I was sick as a dog, I thought I was going to collapse. Feeling much better this morning, but my breathing was very shallow last night. It has been humid here so it was a case of throwing open all of the windows (scared of Daddy long legs, you see - do you get those in the States - big spider like flying insects...ggggrrrrr...hate them). Ended up being really ill, sitting on my bath