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"Normal"

My 24-hr test results came back 'normal'. I don't know the exact numbers, they just told me it was normal and we'd check again in 4-6 months.   On the one hand I'm glad to not have it, and on the other I'm annoyed because I was hoping for an answer to all my weird issues. Oh well.   ANYWAY good luck and good health to everyone and I wish you all the best!

Alison

Alison

Cycling

Just won a bid on E-bay for a bike. Hopefully will collect it at the weekend and I can start cycling to lose some pounds or build up the muscle. Steve and I have always fancied cycling at the weekends especially in the Summer as the countryside here is gorgeous. I am trying to bid for a bike for Harry as the one he has is too small. This is the first time I have bidded on e-bay - can get very addictive but I am making sure I have cut off points as I don't have alot of cash right now so trying to

diane177432

diane177432

Nursing and other things

I had a telephone discussion with the course leader today and she advised me to withdraw from my nursing course and reapply to the other University once I have my test results through and all is OK. I personally think this is the most sensible course of action although I would have liked a simple transfer, it would be easier this way. I feel very sad about not being able to work with my new friends but I guess life has a different deck of cards for me.   My cheeks are still burning red, I loo

diane177432

diane177432

A new day is dawning

Well, its been a proactive day in terms of my health and fitness. I started my new healthy eating regime today and did 20 minutes on the strider. It really tired me out. I am 8 weeks post-op tomorrow and I told myself that once my 8 weeks recovery is up, I will attempt to see if I can lose some weight. I am not that optimistic being on 30mg of hydro as it is bound to prevent weight loss, but even if a few pounds come off and I hit a plateau I will be happy. I don't like being this big and the la

diane177432

diane177432

A sounding board

I'm not sure what to do with my "BLOG" so I've chosen to use it as a sounding board. If to no one else, myself. I find that sometimes I need to see my thoughts or ideas...to put them in written or visual form in order to make any sense of them. Much of it is really, selfishly, for my own benefit. But I welcome any comments or thoughts that anyone reading this may have. I beleive that we are each on our own journey. What we make of that journey is up to us. We may come across many places,

AutumnOMA

AutumnOMA

Time For A Change

I can't believe how time gets away! It's almost May already and I still haven't read a book my husband got me for Christmas. There just doesn't seem to be enough time to do anything any more. I went to the neurologist this morning. She looked through my file and said, everything has come back normal, so basically, you are a normal person who suffers from migraines. I wish!! Oh well, what did I expect, seriously? On top of that, I feel like I am getting no support from my bosses whatsoever.

saz

saz

First week of wondering....

This time last week was the first time I had ever heard of "Cushing's". Since then I've had two blood tests and peed - a lot - into a bright orange biohazard jug that I got to keep in my refrigerator. Gross.   My symptoms:   Centralized weight gain Striae Depression/Anxiety Small "Buffalo Hump" (i HATE that phrase, by the way) Weird darkening of skin on back of neck Very dry/sensitive skin Cortisol seemed high in blood test (24 hour urine needs to confirm) High trigylcerides Insomnia

Alison

Alison

I have busted my stiches agsain

Hi it Monday night and I hope evryone had a good easter i have buster my stiches again and i have to go back to the doctor tomorrow Ken pretty sure he goinbgt to put me back in But I am facing a very severe depression and i don't want to go living like this pleasepray frome soi that I will get my fight back i have lost it and that scares me   kandy   my appoointment is at ten in the mornindg

Kandy66

Kandy66

Someone believes me!

Wow, I went to the docs on Tuesday evening, and she was so kind. She says I tick all the boxes for an endocrine related illness. She is actually taking me seriously!! I've waited so long for this. Yesterday was an ok day. Very tired, but what's new?? Today, I'm having a problem with words, keep saying random things that don't make any sense. It makes me sound like such an idiot. Oh well, I guess it's better than most of the other symptoms. Anyway, it's almost Easter, yay! So I am going to

saz

saz

Testing over - now feeling rough

Well, I went in for the blood draw on Tuesday and it took 5 attempts to find a vein that would co-operate - came away with all my arm swollen and bruised. It's very sore. yesterday, I was feeling so rough. I think its a combination of starting back on the hydrocortisone and changing insulin. Actrapid ceased production at the end of December and I had enough to see me through to now. I have been switched to Novotrapid which is a shorter acting insulin. I feel very rough. I was incredibly emotiona

diane177432

diane177432

dailyblog

Today has been a better day I did sleepin to two which is highly unlikely thought I have not been able tosleepat night so i sure that why my sleepsch is off Ken goes on nights next week so at least we be onthe samesleep sch I due to go back to the doctor on tuesday and the endoon monday so i hopetohave some answers from the the edo since he switch meback todealing with him and not his pa so he could follow my case more thoughtly hopeful i willhave llost some of myswelling not in face for sure i

Kandy66

Kandy66

Angry and I don't know why

I am having the worst day. I am so angry at everything. My colleague, who is actually very sweet, is in serious danger of getting slapped if she looks at me again, and I want to SCREAM.   This is awful. I don't want to feel like this. I feel like I have lost all control of my emotions.   I have been trying for a week to get an appointment with my doctor, but I still haven't managed to get one. They don't seem to understand that this is important.   WHY WON'T THEY HELP ME????   I thin

saz

saz

itching is a side effect

:ph34r:   Iam looking forward to being supportive tomy friemds I been having so many rebound headaches from the painmeds I not sure how common that is but i have to be careful i got the headaches when they gave me oxygen in the hospital I miss the girls so much that it hurts they have beeen so supportive me for me on the bad days it so hard to have so many highs and lows that i know it hard for anyone to put up with me and it hard i think one of the medication are making me itch so bad i know

Kandy66

Kandy66

Finally able to add aentry

Hi everyone   it monday the tenth and i am finally able to sit at the pc and write this surgery has been very painful the second surgery was so much worst but i am sure it was becasuse my staples busted and my stmach was ripped apart i due to get the stitchesout this week but my healing is going so slowly that I am not sure they are healed and i stil having so much leakage from the iincision unless i lay flat that the only way it dosn't have the leake but the swelling does seem to be improvon

Kandy66

Kandy66

Good Weekend

Ok, so after a couple of throw-myself-off-a-bridge days, my weekend was surprisingly good.   Saturday was the first day in weeks that I've had enough energy to do anything around the house. I got up early, cleaned, tidied, and cleared out my wardrobe. That was a huge job. I have put all the clothes I used to wear before I got ill away in a suitcase, to be brought out when I am back to my old self. It WILL happen.   Then I slept on the sofa for half the day.   On Sunday I slept in late a

saz

saz

Testing time

Currently doing a 4-day Dex test. Started on Friday and will have a blood draw tomorrow (Tuesday) at 9am. Also doing 2 days of 24hr UFC collections. Felt really awful on the 1st day - awoke during the night shaking, couldn't regulate my body temperature, hot and cold extremes, sharp pains in a centralised area of the back of my head, feeling nauseous. Today I am feeling quite energised. I never know how to look at it, is this good, or is this a bad sign. Cushings can be so confusing whether you

diane177432

diane177432

Lost

I am so miserable. I am having another really awful day; tired, weak, fed up, and I've noticed some rather gross stretch marks on my calves Yuck!! On top of this, my bosses have told me I can't reduce my hours at work, so I'm not sure how I am going to cope, and now I've just had the results of my first UFC back, and they are totally normal. I know I'm not the first person in the world this has happened to, and I shouldn't be feeling so sorry for myself, but I just can't take this today. I feel

saz

saz

Feeling miserable

This has been one very long and very miserable day. I got up at the same time I do every day, but managed to take so long getting ready that by the time I left the house, I was running late. I had to power walk the quarter of a mile or whatever the distance is between my house and work, and by the time I got there, I was dead on my feet. I am so tired, my finger joints hurt, my head is killing me, and all I want to do is lie down in a dark room and cry. Will this ever end?   The consultant'

saz

saz

Getting on top of things

Finally managed to pull my finger out and get on top of all the paperwork. Have one thing to do though that for the life of me I cannot remember. Have a inkling about a letter I need to respond to but cannot locate it???? I have decided to give up thinking for a few hours probably do me the World of good!!I am feeling in better spirits today and have a bit more energy. Got a little bit sluggish this afternoon but no where as near as the past 2 days. I think going out for long lengths of time t

Guest

Guest

Not feeling great

I have been getting terrible tension in my head. Feels like someone has put my head in a vice but it doesn't hurt - it is just alot of pressure and numbing. The inside of my left nostril is incredibly sore too. Been getting the shakes a bit - think I am overdoing it a bit. Went into town yesterday as thought I should get out a bit, just to the library, bank and a couple of shops - it killed me. I was so physically exhausted when i got back I thought I was going to collapse. I keep getting worked

Guest

Guest

The longer I wait, the more symptoms I have!

for so many years I had the easiest menstral period on record. 32 day intervals, three days of light flow and then on or two days of spotting, few cramps, .. although I am told my PMS was horrible! When I am in it, I don't really give a darn! Actually, I suffered too, but not as much as those around me.anyway, my regular-as-clock-work period has finally showed a few signs of changing. I missed one period a few months ago, and now I only went 18 days between this time! Not at all as bad as

Guest

Guest

Happy St. Patricks Day!

this morning I woke up after sleeping too much. About 12 hours! Since I went to bed after midnight, and woke up at 11:59, I assume that I am in another phase change, or whatever it is called. I have been getting 6 hours or less per night - quite acceptibly, until last night. I woke up sad, overwhelmed, irritable, sensitive to sound and light, and relieved that I was alone in the house for an hour or so! Time to down some coffee and take my morning pills before confronted with live and vuln

Guest

Guest

Post-op - forgot what it was like

Well, I haven't posted on here in a while. Its been a kind of up and down few months...what's new. Things are starting to level out a bit now. I had surgery on the 28th February. Everything went OK and they think they have got out all of the residual tumour. I am doing a dex test on April 7th and have an MRI scheduled in June and see the Neuro team again in July, all of my appointments are scheduled. I was in hospital a wekk and enjoyed posting a daily report to the boards. It was incredibly bor

Guest

Guest

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