I hit the jackpot yesterday. I recived a phonecall from the endo's office. The nurse asked if I could come in on short notice since they had an opening and all of my labs were done. I grabbed the chance and so I saw a lady endo today. She started by telling me all of my labs looked good!!
I could feel the tears pushing as soon as she said those words, but somehow I kept it together and told her that the labs might be good but my body isn't. I also told her that some things had happend since she got the referral from my doctor. My PTH is out of range and so is my vitamin D (low) I think she could see that I was upset and she took time to listen. She did tell me that my potassium is low and that is kind of wierd since I am on meds for my BP/edema that withhold potassium. She also told me that my testestorone is normal, but one of the tests that show free serum testestorone was elevated. She also wanted to look into the PTH and low vit D. She did mumble something about malabsorbtion, but she did order alot of tests on my adreanals. So at least she wants to see if whats going on with the blood pressure and pth thing.
I am having the following tests in 14 days (she wants me off all medicine except levaxin):
28-OH Vit D
1,25 (OH) Vit D
Meranefrin and normentanefrin
and a few more electolytes
I think she is looking into Conns, Adrenocortical hyperplasia and maybe even MEN1? Well at least that is what all my research today has me beliving. I hate not knowing and I hate doctors that think they are god. Not that she is the worst of them, but she didn't do a very good job of telling me what she was looking for. Maybe I am difficult, but I still hate not knowing.
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