I had my last clinic appointment a week ago on the 18th November. Since then there have been a couple of changes. I increased my thyroxine from 125mcg to 150mcg as my thyroid was showing to be on the low side. It has been consistently OK since starting thyroxine and this is the first time in a long while that it has lowered. I have now switched from dexamethasone to hydrocortisone taking 10mg in the morning and 5mg in the afternoon (with an option 5mg later in the day should I need it, but I haven't started taking that yet). The throbbing and burning sensation in my kidney area has not subsided. I mentioned this to my consultant and he said he had never heard a Cushings patient mention this symptom before so was unsure what it was and whether it was related to Cushings. I know from this site that a number of you have mentioned experiencing the same thing so I am certain it is Cushings related and I still believe it is due to adrenal insufficiency. If the hydro doesn;t work he will order an ultrasound of my kidneys.
I did a 24hr UFC and dropped that off a couple of days ago. We'll see what comes up there. I am just a little impatient at the moment. I have been told I can start growth hormone therapy and am awaiting contact from the Endocrine Nurse...I just want to get started. I really believe this is the missing piece of the puzzle for me and will benefit me a great deal. I am also waiting for a referal to a Counsellor. I know these things take time but its hard as I am not working and twiddling my thumbs watching for the post man. I also have an MRI coming up as I have been getting alot of headaches. My consultant thinks alot of it is related to my depression.
Finally had an appointment through and start with my new GPs diabetic clinic. It is when I go on holiday though so I have to reschedule. I have to have a diabetic eye test as haven't had one since being diagnosed 4 years ago!!
I really need to pull my finger out. I have lost all motivation right now. Hubby and I were talking and I have decided to start a certificate in medical secretarial work as I am at home. There are so many jobs at our local hospital but require medical setting experience. I have a strong admin background but think this will benefit me so am enquiring. I am desperate to get back to work but want to start the GH first and get myself a bit fitter so I can last a full day. Its been a struggle just living on one wage, but I think I'll be able to get back to work in February/March time.