My name is Hollie. I am 32 years old, and I have just about had all I can take of all of this. My story is probably like about a million other ones out there, but when it is happening to you, you feel like you are the only person in the world with these problems.
My story started out with my doctor finding that my thyroid was a little enlarged and sending me to an endocrinologist. After some tests they discovered a small nodule on my thyroid. After some further tests they determined that it was ok to leave it alone and put me on synthroid to make sure that it didn?t get any bigger or bother the function of my thyroid. Needless to say that was just the beginning of my ordeal.
At one of my visits with my endo she noticed the bruising on my legs. I had been bruising very easily for the past couple months, but really didn?t think much of it. She started some more digging around and questioning and asked me about my blood pressure and anxiety. I had been on blood pressure medicine for a few months by then, and also Zoloft for anxiety. She decided to do some further blood work, and discovered that my cortisol and acth levels were high. She then had me do a 24 hour urine test which also showed high levels of cortisol. She had me then do a MRI of my adrenals and my pituitary glands which showed absolutely nothing.
So then I guess she decided it was a fluke or something because nothing was done, she just kept me on synthroid and set me up for an appointment 5 months later. Well during that five months things seemed to get a lot worse. My bruising was horrible, my weight was out of control, my face looked like a basketball, I was getting stretch marks on my stomach, and I was growing hair on my chin that was never there before. I had constant headaches, night sweats, a horrible case of dry itchy scalp, and my blood pressure (even on meds) was getting higher.
When I finally got to my next appointment, she sent me for the entire same battery of tests and everything came back the same way. Still no sign of anything on my MRI?s. I then did another test which required me get an 8am cortisol blood draw, take a DEXO pill at 11pm that night, fast, then draw another 8am cortisol. Once again same thing high levels of cortisol and acth.
She keeps saying it looks like cushing?s syndrome, but won?t give me a final diagnosis, and instead of doing anything it just seems like she keeps sending me for the same tests over and over again. I am now to the point where I am fed up. I?m not sure what to do. Should I try and find another doctor (nearest endo 2 ? hours away) do I tell her to fix something ASAP. What do I do? I can?t keep living like this. I am gaining so much weight, and now she tells me that I am hypoglycemic and on the verge of diabetes. I don?t understand why something can?t be done. There has got to be something? Anyone, Advice Please? I need help.