Carolyn, what are you taking to replace it? My daughter suffered with cushings since 2004 for sure, probably earlier, and wasn't diagnosed until about 5 months ago. She had a large tumor on her left adrenal gland and it was removed 3 weeks ago along with the gland.

Her right gland is still suppressed and she was on prednisone when in the hospital...she's been home for 5 days and she saw the endo today. It was not easy..she is weak and in pain and her incision was left open with a wound vac. The prednisone gives her hot flashes (common) and also causes bloating. I asked the dr. about cortisonacetate(cortef)because a guy I know had a kidney transplant and his adrenal glands removed and he is on cortef and it has no side affects. The doctor explained it was an older drug not used as much today, milder, and he decided to try it. She'll start it tomorrow and we are praying it will help the remaining gland to wake up and start producing cortisol.

Hi Carolyn here, I am on hydrocortisone tables my pituitary does not tell the adrenal to produce cortisol evan thou they can. After the op they tried to stress the pituitary to function and I was only on small amounts. But after 10 months my levels were actually going down and I was getting pretty weak. As soon as I started full replacement I felt sooo much better actually only took a few days of corse I just gradually got stronger and stronger. I do get hot flushes but that would probably be the only side effect I can think of. Thats a small price to pay for such a change in my life. A couple of years ago my outlook was not too bright. Hope you get something to suit your daughter soon. Best of luck