Jump to content

Register for Rare Disease Week

Cushie Calendar
MaryO
   (0 reviews)

We are thrilled to invite you to join us and hundreds of others virtually for Rare Disease Week on Capitol Hill from February 22nd to March 2nd, for a week that can change your life. In 2022 advocates will once again have the opportunity to participate in the Points for Advocacy Scavenger Hunt and the EveryLife Foundation will award a total of $100,000 to the top-50 point earners' rare disease non-profit organization of choice!

Over the last 11 years, thousands of rare disease patients, family members, friends, and health care providers have joined together to give rare disease patients a voice on Capitol Hill. Meeting virtually during the pandemic has not slowed us down but has reenergized many of us on the importance of our advocacy work.

Both of our first times attending Rare Disease Week, Sarah in 2017 and Sarita in 2021, sparked our passion for advocacy!  We hope that you will join us for Rare Disease Week which brings the community together to learn, network and advocate.

56d52bdd-3152-46d1-87e0-2f6384aa36f2.png

Please reach out to RDLA staff Katelyn Laws at klaws@everylifefoundation.org if you have any questions or need more information.

 

RDLA-Logo-705x506.jpeg


User Feedback

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.

Guest

  • This will not be shown to other users.
  • Add a review...

    ×   Pasted as rich text.   Paste as plain text instead

      Only 75 emoji are allowed.

    ×   Your link has been automatically embedded.   Display as a link instead

    ×   Your previous content has been restored.   Clear editor

    ×   You cannot paste images directly. Upload or insert images from URL.

    Loading...
×
×
  • Create New...