BEGIN:VCALENDAR VERSION:2.0 PRODID:-//InvisionCommunity Events 4.7.23//EN METHOD:PUBLISH CALSCALE:GREGORIAN REFRESH-INTERVAL:PT15M X-PUBLISHED-TTL:PT15M X-WR-CALNAME:Cushie Calendar NAME:Cushie Calendar BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20000326T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20001029T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20170326T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20171029T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20220327T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20221030T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20210328T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20211031T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20200329T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20201025T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20180325T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20181028T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20190331T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20191027T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VTIMEZONE TZID:Europe/London TZURL:http://tzurl.org/zoneinfo/Europe/London X-LIC-LOCATION:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20160327T020000Z RRULE:FREQ=YEARLY;BYMONTH=3;BYDAY=-1SU END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20161030T020000Z RRULE:FREQ=YEARLY;BYMONTH=10;BYDAY=-1SU END:STANDARD END:VTIMEZONE BEGIN:VEVENT SUMMARY:Summit on Adrenal Insufficiency DTSTAMP:20260411T112646Z SEQUENCE:0 UID:1681-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Living with adrenal insufficiency—or caring for someone who does—requires knowledge\, preparation\, and a strong support networ k. This year’s conference is designed to bring together patients\, famil ies\, caregivers\, and medical professionals for a time of learning\, enco uragement\, and connection.\n\n\n\n Through a variety of planned sessions and breakout discussions\, attendees will explore the latest medical advan ces\, practical strategies for daily life\, and ways to advocate for bette r care and understanding.\n\n\n\n Learn more here: https://cushings.invis ionzone.com/topic/57953-summit-on-adrenal-insufficiency/\n\n DTSTART;VALUE=DATE:20260423 DTEND;VALUE=DATE:20260426 END:VEVENT BEGIN:VEVENT SUMMARY:Pituitary Adenoma Education Day DTSTAMP:20260220T151041Z SEQUENCE:0 UID:1680-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n We’re thrilled to invite you to the Mayo Clinic Pituit ary Adenoma Education Day \n\n\n\n Directors: Mayo Clinic Pituitary Staff \n\n Date: February 21st\, 2026\n\n Time: 8am CT\n\n Virtual Location: May o Clinic\, Rochester\n\n Duration: 2.5 Hours\n\n  In collaboration with P ituitary Network Association (PNA)\n\n\n\n Presenters: \n\n\n\n Dr. Jamie Van Gompel – Panelist &\; Co-Host\n\n\n\n Dr. Irina Bancos – Panel ist &\; Co-Host\n\n\n\n Dr. Lucinda Gruber – Panelist\n\n\n\n Dr. Ia n Mark – Panelist\n\n\n\n Dr. Maria Peris Celda – Panelist\n\n\n\n J ustine Herndon – Panelist\n\n\n\n Dr. Jake Eide – Panelist\n\n\n\n Dr. Eric Lehrer – Panelist\n\n\n\n Dr. Dana Erickson – Panelist\n\n\n \n Don’t miss this opportunity to learn from Mayo Clinic specialists.\n\ n\n\n \n\n Click below to join the Pituitary Adenoma Education Day webinar !\n\n https://mc-meet.zoom.us/j/97716708985\n\n\n\n Passcode: \n\n\n\n 90 1591\n\n DTSTART:20260222T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Menopause: new approach to management DTSTAMP:20260218T114827Z SEQUENCE:0 UID:1679-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Menopause: new approach to management\n\n Theodore Friedm an\, MD\, PhD will be giving a GoodHormoneHealth webinar on Menopause\n\n\ n\n Topics to be discussed include:\n\n\n\n \n \n                   What are the symptoms of menopause?\n \n \n \n \n                  How does menopause relate to oth er endocrine conditions\n \n \n \n \n                 H ow is menopause diagnosed?\n \n \n \n \n                 What labs are needed to diagnose and follow menopause?\n \n \n \n \n                 How can lifestyle changes be used to trea t menopause?\n \n \n \n \n                Estrogen-safe or dangerous?\n \n \n \n \n                What are bioi dentical hormones?\n \n \n \n \n                Is there a men opause diet?\n \n \n \n \n                What suppleme nts can be used for menopause?\n \n \n\n\n\n Sunday • February 22• 6 PM PST \n\n\n\n Via Zoom Click here to join the meeting or\n\n\n\n htt ps://us06web.zoom.us/j/4209687343?omn=88599535034 OR\n\n\n\n +16694449171 \,\,4209687343#\n\n\n\n       Meeting ID: 420 968 7343 Passcode: 111 116\n\n\n\n Slides will be available before the webinar and recording afte r the meeting at slides\n\n OR\n\n Join on Facebook Live https://www.fac ebook.com/goodhormonehealth at 6 PM\n\n  \n\n Your phone/computer will b e muted on entry. There will be plenty of time for questions using the ch at button.      \n\n For more information\, email us at mail@goodho rmonehealth.com\n\n DTSTART:20260223T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Pacific Neuroscience Institute Pituitary Symposium DTSTAMP:20251021T070421Z SEQUENCE:0 UID:1678-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n We’re thrilled to invite you to the\n\n Pacific Neurosc ience Institute Pituitary Symposium\n\n taking place on\n\n Saturday\, Nov ember 1\, 2025\,\n\n in Santa Monica\, California.\n\n\n\n In collaboratio n with Pituitary Network Association (PNA)\n\n\n\n This patient-focused co urse is tailored to helping individuals navigate their pituitary health jo urney.\n\n\n\n Participants will delve into pituitary pathology\, learning about common conditions such as adenomas\, acromegaly\, Cushing’s disea se\, and hormone deficiencies\, while exploring various treatment options. \n\n\n\n The course also provides guidance on navigating the healthcare sy stem\, with practical advice on effective communication with healthcare pr oviders\, handling insurance and referrals\, and self-advocacy.\n\n\n\n Th e psychological aspects of living with pituitary disorders are covered\, o ffering strategies to cope with stress\, anxiety\, and depression.\n\n\n\n An interactive Q&\;A session concludes the program\, facilitating enga gement with experts and peers\, sharing experiences\, and accessing valuab le resources.\n\n\n\n By the course’s end\, patients will be equipped wi th the knowledge and confidence needed to manage their pituitary health jo urney effectively.\n\n\n\n Space is limited\, and early registration is en couraged to ensure your participation in this high-value educational event .\n\n\n\n 2025 Neuro-Endocrine Pituitary Conference: For Patients\n\n\n\n We look forward to welcoming you to Santa Monica for an exceptional day of learning and collaboration.\n\n\n\n *Scholarships are available for those who are unable to pay the registration fee. \n\n\n\n Please reach out as soon as possible to jackie@pituitary.org.\n\n DTSTART;VALUE=DATE:20251101 END:VEVENT BEGIN:VEVENT SUMMARY:October is Pituitary Awareness Month DTSTAMP:20251008T160416Z SEQUENCE:0 UID:1677-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Tiny Gland. Big Impact.\n\n The pituitary gland may be sm all—about the size of a pea and weighing less than a gram—but it has a n enormous influence on our health. Known as the “master gland\,” it r egulates hormones that affect nearly every system in the body: growth\, me tabolism\, reproduction\, stress\, and even mood.\n\n\n\n Why Awareness Ma tters\n\n Pituitary disorders—caused by hormonally active or inactive tu mors—can disrupt the delicate balance of the HPA axis\, the system that connects the hypothalamus\, pituitary\, and adrenal glands. When this conn ection breaks down\, it can lead to significant health problems.\n\n If le ft untreated or diagnosed too late\, pituitary disorders can result in:\n\ n * Hormonal and metabolic imbalances\n\n * Weight changes\, fatigue\, or mood disturbances\n\n * Cardiovascular issues such as high blood pressure\ n\n * Neurological effects\, including headaches and vision changes\n\n Th ese symptoms can appear slowly and often mimic more common conditions. Tha t’s why pituitary disease is sometimes called a “hidden illness.”\n\ n\n\n Early Detection Saves Lives\n\n Because pituitary disorders can take years to detect\, awareness is essential. The earlier they’re found\, t he better the outcomes for patients.\n\n\n\n This Pituitary Awareness Mont h\, we urge our community and healthcare partners to stay informed and pro active:\n\n 👩‍⚕️ Primary care providers: Please be alert for the early signs of pituitary disorders. Seemingly minor changes—like unexpla ined fatigue\, weight fluctuations\, or vision problems—can sometimes po int to something more serious. Early testing and referral can make a life- changing difference.\n\n\n\n 💜 Community members: Listen to your body. If you’ve experienced ongoing symptoms that don’t seem to fit\, don’ t be afraid to ask your healthcare provider about hormonal testing.\n\n\n\ n Together for Awareness\n\n Raising awareness helps save lives. By learni ng more about the pituitary gland and the signs of pituitary disease\, we can help ensure that fewer people face delayed diagnoses and long-term com plications.\n\n This October\, let’s stand together for education\, earl y detection\, and hope—for ourselves\, our loved ones\, and our communit y.\n\n\n\n 💜 Learn More &\; Get Support\n\n If you or someone you lo ve is living with or seeking answers about a pituitary disorder such as Cu shing’s disease\, visit Cushings-Help.com.\n\n\n\n At Cushing’s Help\, you’ll find:\n\n * Personal stories from patients and caregivers\n\n * Information on Cushing’s disease and other pituitary conditions\n\n * Li nks to expert medical centers and current research\n\n * Active discussion forums for encouragement and advice\n\n Awareness begins with understandi ng—and understanding begins with you. Join us this October to shine a li ght on pituitary health and help others find the answers they need.\n\n\n\ n Founded by patient advocate Mary O’Connor\, Cushing’s Help provides education\, resources\, and community support for individuals navigating d iagnosis\, treatment\, and life after pituitary surgery.\n\n Together\, we can shine a light on these often-overlooked conditions and bring hope and healing to those who need it most.\n\n  \n\n DTSTART;VALUE=DATE:20251008 RRULE:FREQ=DAILY;INTERVAL=1;UNTIL=20251031T000000 END:VEVENT BEGIN:VEVENT SUMMARY:Addisons Young People Webinar! DTSTAMP:20251007T132906Z SEQUENCE:0 UID:1676-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n \n Growing up\, balancing school\, f riends\, uni plans (and everything in between) can be tough with Addison's or adrenal insufficiency\, so this free online webinar is just for you. J oin to connect with other people your age\, hear from the experts and ask any questions you have.\n \n\n \n  \n \n\n\n\n \n Ages 13-18\n \n\n \n Tuesday 14 October\, 7-8.30pm\n \n\n \n Online (Zoom)\n \n\n \n Reg ister for your free ticket: https://loom.ly/hBNU_0I\n \n\n\n\n \n  \n \n \n \n Come along for more support and to meet others who “get it”!\n \n\n\n\n \n Our second webinar is for parent's and under 12's. Please tak e a look at our event page for more details.\n \n\n DTSTART:20251014T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Dueling Endocrinologists Discussing Hypothyroidism Diagnosis and Treatment: Commonalities and Differences DTSTAMP:20250903T072954Z SEQUENCE:0 UID:1675-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n \n Dr. Friedman will be joined by Brittany Hen derson\, MD\, ECNU for an exciting GoodHormoneHeath Webinar on Dueling A cademic-Based Endocrinologists discussing state-of-the-art hypothyroidism diagnosis and treatment: Commonalities and Differences\n\n  \n\n Each e xpert will discuss the following topics:\n \n \n How is mild hypothyroidi sm diagnosed?\n \n \n Why are full thyroid panels and not just TSH needed ?\n \n \n What is the role of rT3?\n \n \n How to optimally use all type s of thyroid hormone including NDT\n \n \n Why both conventional and alte rnative providers have it wrong?\n \n \n They will briefly discuss the pr oposed ban on desiccated thyroid by the FDA.\n \n\n\n\n Sunday • Septem ber 14• 5 PM PDT/ 8 PM EDT\n\n Via Zoom Click here to join the meeting  or\n\n https://us06web.zoom.us/j/4209687343?omn=87459672811\n\n OR\n\n 1 6694449171\,\,4209687343#\n\n Slides and copy of the paper and the press r elease will be available before the webinar and recording after the meetin g at slides\n\n OR\n\n Join on Facebook Live - https://www.facebook.com /goodhormonehealth at 5 PMPDT/ 8 PM EDT\n\n  \n\n  \n\n Your phone/comp uter will be muted on entry. There will be plenty of time for questions u sing the chat button.  \n\n DTSTART:20250915T000000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: \"Navigating Adrenal Health\" DTSTAMP:20250829T135530Z SEQUENCE:0 UID:1674-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n  \n\n\n\n  \n\n\n\n  \n\n\n\n Join NADF for the first annual virtual conference for patients and caregivers\ , \"Navigating Adrenal Health\". With talks on topics ranging from researc h updates to accessing patient resources to EMS standards and expectations \, participants can prepare for a wealth of information for patients\, car egivers\, and clinicians alike.\n\n \n\n Register today - FREE for all!\n\ n\n\n \n  \n \n\n\n\n \n \n  \n \n\n\n\n  \n\n\n\n CALENDAR OF EVENTS \n\n\n\n \n \n \n \n \n \n \n \n  \n \n \n \n \n THURSDAY\, OCTOBER 2ND\n\n \n\n NADF at 40 Years\n\n Paul Margulies\, M.D.\, F ACP\, FACE\n\n NADF Medical Director\n\n \n\n Adre nal Crisis and EMS: Standards and Expectations\n\n Joshua Stilley\ , M.D.\n\n Emergency Medicine\n\n Chair of the Missouri St ate Advisory Council on EMS\n\n \n\n Recreating Human Adre nal Gland In Dish: Toward Endocrine-Level Reconstruction\n\n Kotar o Sasaki\, M.D.\, Ph.D.\n\n Associate Professor at The University of Pennsylvania\n\n Member\, Institute for Regenerative Medicine\, University of Pennsylvania\n\n \n\n Resources &\; Tips for Navigating Insurance\, Financial\, &\; Legal Issues\n\n Jo anna Fawzy Doran\, Esq.\n\n CEO\, Triage Cancer®\n\n \n\n Imaging adrenal adenomas with [68Ga]Ga-PentixaFor\n\n Liz a Lindenberg\, M.D.\n\n Molecular Imaging Branch\n\n Natio nal Cancer Institute\n\n \n\n My AI Registry and Emerging Trends in Treatment Strategies\n\n Elizabeth A\, Regan\, M.D.\, Ph .D.\n\n Physician-Researcher at National Jewish Health\n\n Principal Investigator\, My AI (Adrenal Insufficiency) Registry\n\n  \n \n \n \n \n \n \n  \n \n \n \n \n FRIDAY\, OCTOBER 3RD\n\n  \n\n Adrenal Insufficiency: An Overview\n\n Smita B. Abraham\, M.D.\n\n Endocrinology\, Diabetes and Metabolism\n\n Montefiore Medical Center\n\n \n\n Emergency Prepa redness: Solu-Cortef Injections for Adrenal Crisis\n\n AJ Connor B SN\, RN\, BME\n\n Addison’s disease patient\n\n NADF Pen nsylvania Support Group Leader\n\n \n\n Everything You Nee d to Know about Adrenal Insufficiency in Youth in 30 Minutes or Less\n\n Mitchell E. Geffner\, M.D.\n\n Professor Emeritus of Pediat rics\n\n Keck School of Medicine of USC\n\n Children’s H ospital Los Angeles\n\n Ron Burkle Chair in the Center for Endocri nology\, Diabetes\, &\; Metabolism\n\n \n\n Cushing’s talk – details forthcoming\n\n \n\n Introduction to C ongenital Adrenal Hyperplasia: Daily and Emergency Treatment\n\n S elma Feldman Witchel\, M.D.\n\n Professor Emerita University of Pi ttsburgh\n\n UPMC Children's Hospital of Pittsburgh\n\n \n \n NADF Resources for patients and caregivers\n\n Vanessa O’Rourke\n\n Community Engagement Manager\n\n NADF\n \n \n \n \n \n \n \n \n\n DTSTART;VALUE=DATE:20251002 DTEND;VALUE=DATE:20251004 END:VEVENT BEGIN:VEVENT SUMMARY:Happy Labor Day! DTSTAMP:20170624T184833Z SEQUENCE:0 UID:1542-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n DTSTART;VALUE=DATE:20230901 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Empowering Patients: Co-Designing Clinical Trials f or Better Outcomes DTSTAMP:20250820T132121Z SEQUENCE:0 UID:1673-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Date &\; Time\n\n Aug 26\, 2025 10:00 AM in Eastern Time (US and Canada)\n\n\n\n Description\n\n Are you familiar with clinica l trial co-design? It’s the process of researchers planning and designin g a clinical trial together with patients\, caregivers\, and other stakeho lders to ensure the study is relevant\, ethical\, and focused on what matt ers most to the people it affects. Earlier this year\, 2156 U.S. patients were surveyed by Rare Patient Voice on their thoughts regarding taking par t in co-design for clinical trials. Join Pam and Mindy as they discuss the importance of empowering patients to get involved.\n\n\n\n Mindy Cameron\ n\n\n\n Family Caregiver and Participant\n\n\n\n  Mindy Cameron is a long -time advocate for patient-centered research in neuromuscular and rare di sease communities. As the President of AdvocacyWorks Consulting\, Mindy he lps non-profit and industry colleagues develop research and clinical trial initiatives that work for all stakeholders\, with a particular focus on the most important participants in clinical research…patients and their caregivers. She has the personal experience to back up her professional expertise\, as she and her son\, who lives with Duchenne muscular dystroph y\, have participated in nearly a dozen research studies and clinical tri als over the past 20 years. Mindy serves as a patient advisor to the Crit ical Path Institute’s Duchenne Regulatory Science Consortium and is a m ember of the American Academy of Pediatrics Muscular Dystrophy Public Hea lth Consortium. She is also an active member of the EveryLife Foundation ’s regulatory and access working groups\, as well as the Rare Disease A dvisory Council for the State of Indiana.She is a frequent speaker on a ra nge of topics relevant to clinical trial design\, including patient data return\, data sharing\, accessibility at clinical trial sites\, patient pr eferences and lived experiences\, and post-approval access and reimbursem ent challenges.\n\n\n\n See More\n\n\n\n Wes Michael\n\n\n\n Founder and P resident\, Rare Patient Voice·RARE Patient Voice\n\n\n\n Wes Michael foun ded Rare Patient Voice in 2013 to give patients and family caregivers the opportunity to voice their opinions through taking part in all types of re search studies. Rare Patient Voice has now recruited for thousands of stud ies and rewarded patients and family caregivers with over $15 million for their participation. Many have been recruited in person by Wes and his tea m at patient events and through a robust referral program with patient adv ocacy and support groups. Rare Patient Voice now covers over 1\,500 rare a nd non-rare diseases and conditions and has expanded from the United State s to Canada\, the United Kingdom\, France\, Germany\, Italy\, Spain\, Aust ralia\, and New Zealand. Before launching Rare Patient Voice\, Wes worked for healthcare market research firm Kantar Health. He previously was a bra nd manager and market research manager at McCormick (the spice company) an d General Mills (working on Wheaties\, Total and Kix cereals). He has a BA from the University of Pennsylvania (with a year at Edinburgh University) and an MBA from the University of Chicago. Wes lives outside Baltimore\, Maryland\, with his wife\, Cathy\, children Julia and Cliff\, grandson Tay lor\, and dog Stanley.\n\n\n\n See More\n\n\n\n Register here: https://us 02web.zoom.us/webinar/register/WN_wtpGaz3JQhazq1TxvUIflw#/registration\n\n DTSTART:20250826T140000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Cortisol Circadian Rhythm: Patterns that are the Gu ide to Cushing’s Disease and Wellness DTSTAMP:20250815T101509Z SEQUENCE:0 UID:1672-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n Join Dr. Friedman for a GoodhormoneHealth Webinar of Cortisol Circadian Rhythm: Under-appreciated patterns that are the guide to Cushing’s disease and wellness\n\n  \n\n Dr. Theodore Friedman will be giving a webinar on Salivary Cortisol Circadian Rhythms \n\n Topics t o be discussed include:\n\n What is the normal Cortisol Circadian Rhythm and What Happens in Cushing’s?\n\n What happens if your Cortisol Circad ian Rhythm is off?\n\n How does Eli Health Salivary Cortisol* work and how it can be used in conjunction with commercial laboratory salivary measure ments?\n\n Why is Dr. Friedman recommending salivary day curves to diagnos e and monitor treatment for Cushings?\n\n How does the Cortisol Circadian Rhythm affect treatment for Cushings?\n\n *Eli Health Salivary Cortisol i s not FDA approved to diagnose any condition\n\n Sunday • August 17• 6 PM PDT \n\n\n\n Via Zoom Click here to join the meeting or\n\n https: //us06web.zoom.us/j/4209687343?omn=86125300710 OR\n\n +13462487799\,\,420 9687343#\n\n Meeting ID: 420 968 7343 Passcode: 111116\n\n\n\n Slides will be available before the webinar and recording after the meeting at slide s\n\n OR\n\n Join on Facebook Live https://www.facebook.com/goodhormonehe alth at 6 PM\n\n  \n\n Your phone/computer will be muted on entry. Ther e will be plenty of time for questions using the chat button.      \ n\n DTSTART:20250818T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Happy Birthday\, Cushings-Help.com! DTSTAMP:20170720T120722Z SEQUENCE:0 UID:1549-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n The first website (http://www.cushings-help.com) first we nt 'live' July 21\, 2000 and the message boards September 30\, 2000. \n \n\n\n  \n\n\n\n \n\n DTSTART;VALUE=DATE:20000721 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Cortisol Summit 2025 DTSTAMP:20250712T070727Z SEQUENCE:0 UID:1671-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n JOIN US for two days of education\, support\, and network ing at this patient conference hosted by CSRF with co-hosts AIU and CNCC.  Enjoy optional social activities including a party Saturday evening to c elebrate CSRF's 30th anniversary in 2025.\n\n\n\n Conference will be held at Barrow Neurological Institute in Phoenix\, AZ\, special thanks for the invitation from Medical Director and Endocrinologist Dr. Kevin Yuen!  \n\ n\n\n Room blocks have been set up at Hampton Inn and Home2Suites/Tru by H ilton and will be sent to you via email immediately after registering.\n\n \n\n Friday 11/7: \n\n\n\n -CNCC Track starts at 10:00am\n\n\n\n -CSRF Tr ack starts at 1:30pm\n\n\n\n -Dinner\, evening activity\n\n\n\n Saturday 1 1/8:\n\n\n\n -CSRF Track starts at 10:00am\n\n\n\n -AIU Track starts at 10 :00am\n\n\n\n -CNCC Track: TBD\n\n\n\n -Lunch\n\n\n\n -CSRF 30th Anniversa ry Celebration for all 7:00-10:00pm\n\n\n\n Register at https://www.zeffy .com/en-US/ticketing/november-7-8-2025-conference\n\n DTSTART;VALUE=DATE:20251107 DTEND;VALUE=DATE:20251109 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Samantha Cohn DTSTAMP:20170621T121649Z SEQUENCE:0 UID:1521-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Juilliard graduate Samantha Cohn\, 34\, crawled out a wi ndow in her 16th-floor apartment at West 71st Street and Broadway and jump ed at 10:10 a.m.\n\n\n\n Cohn\, who was wearing workout clothes\, landed o n the sidewalk on Broadway and nearly hit a neighbor\, Matt ­Kovary.\n\n\ n\n Her mother told investigators she had been diagnosed with Cushing’s syndrome\, police sources said.\n\n\n\n Read more at https://cushingsbios .com/2015/06/20/in-memory-of-samantha-cohn/\n\n DTSTART;VALUE=DATE:20170619 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Hear About Dr. Friedman’s Landmark New Publication on Rt3 Published in PLoS One DTSTAMP:20250611T074806Z SEQUENCE:0 UID:1670-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n Hear about Dr. Friedman’s landmark new publication on rT3 (reverse T3) on his goodhormonehealth patients published in PLoS On e:\n \n \n The citation is Wilson J.B.\, Hoang\, T.D.\, Lee\, M.L.\, Epst ein\, M.\, Friedman\, T.C. (2025) Reverse T3 in patients with hypothyroidi sm on different thyroid hormone replacement. PLoS One 20(6): e0325046. h ttps://doi.org/10.1371/journal. pone.0325046\n \n\n\n\n Dr. Friedman will discuss his findings of this important paper in a prestigious journal.\n\n \n\n He will discuss the following topics:\n\n\n\n \n Why is this paper i mportant\n \n \n How rT3 is made\n \n \n Is rT3 important\n \n \n He wi ll discuss what are normal values\n \n \n He will discuss how thyroid hor mones affect rT3 levels\n \n \n How can you lower rT3\n \n\n\n\n Sunday • June 22• 6 PM PDT\n\n Via Zoom Click here to join the meeting or \n\n https://us06web.zoom.us/j/4209687343?omn=87459672811\n\n OR\n\n 16694 449171\,\,4209687343#\n\n\n\n Slides and copy of the paper and the press r elease will be available before the webinar and recording after the meetin g at slides\n\n OR\n\n Join on Facebook Live - https://www.facebook.com /goodhormonehealth at 6 PM\n\n\n\n For more information go to Dr. Friedma n’s website https://www.goodhormonehealth.com or contact his office a t mail@goodhormonehealth.com.\n\n DTSTART:20250623T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar - Adrenal Insufficiency: Physician and Patient Persp ectives DTSTAMP:20250530T131425Z SEQUENCE:0 UID:1669-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Adrenal insufficiency is still a preventable cause of dea th\, and a diagnosis carries with it considerable implications for the pat ient\, family and caregivers.\n\n\n\n Early diagnosis and prevention of ac ute crisis is key.\n\n\n\n This session will address less well known etiol ogies\, diagnostic tests and novel treatments for prevention of patient mo rbidity and mortality.\n\n\n\n Register at https://zoom.us/webinar/regist er/6617477293325/WN_M9jWNeV0Qw-iVbeWcJRjdQ?fbclid=IwY2xjawKmi11leHRuA2FlbQ IxMABicmlkETFFeUlLNkIyRkZoRXRMd3dZAR6zsPDu64PMblJxKO78FNiANsnEFBcx7JFYYbxs 2D8OyljP726DRM2buFOBKA_aem_3ltT7g1Eye46YmgOTiwKWg#/registration\n\n DTSTART:20250618T133000Z END:VEVENT BEGIN:VEVENT SUMMARY:2025 Neuro-Endocrine Pituitary Conference: For Physicians\, Nurses & Patients DTSTAMP:20250517T083216Z SEQUENCE:0 UID:1668-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n A unique collaboration from Pacific N euroscience Institute\n\n\n\n 8th California Pituitary Conference for Prov iders | 16th Annual Neuroscience Nursing Symposium | Educational Seminar f or Patients\n\n\n\n November 1 - 2\, 2025\, 8 AM - 5 PM\n\n\n\n LA Puglia\ , 1621 Wilshire Blvd\, Santa Monica\, CA 90403\n\n\n\n Course Directors\n\ n\n\n Noa Tal\, MD\n\n\n\n Amy Eisenberg MSN\, ARNP\, CNRN\n\n\n\n This tw o-day course has something for everyone.\n\n\n\n Day 1 focuses on in-depth information for nurses and patients in two separate curated sessions.\n\n \n\n Day 2 geared toward physicians and nurses provides an extensive immer sion in advanced topics led by highly experienced and recognized experts i n their fields.\n\n DTSTART;VALUE=DATE:20251101 DTEND;VALUE=DATE:20251103 END:VEVENT BEGIN:VEVENT SUMMARY:Johns Hopkins Pituitary Patient Education Day DTSTAMP:20250516T080434Z SEQUENCE:0 UID:1667-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n October 25 @ 9:00 am – 1:00 pm\n \n\n\n\n \n T he annual Pituitary Patient Education Day is a free event that features pr esentations from Johns Hopkins pituitary experts.\n \n\n \n To RSVP\, ple ase email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If you RSVP yes but you cannot make it\, please inform us as soon as possible by email\, so that the slot can be offered to someone else.\n \n\n \n List of presentations will be posted when finalized. Top ics covered in previous years include:\n \n\n \n \n Pituitary lesions: acromegaly\, Cushing\, prolactinomas\, non-functioning masses and hypophys itis (Roberto Salvatori\, M.D.)\n \n \n How pituitary tumors can affec t your vision (Amanda Henderson\, M.D.)\n \n \n Medications for pituit ary disease: what you should know (Amir Hamrahian\, M.D.)\n \n \n The nose as the door to the pituitary gland (Masaru Ishii\, M.D.\, Ph.D.)\n \ n \n Surgery for small and large pituitary tumors: images from the John s Hopkins operating room (Gary Gallia\, M.D.\, Ph.D.)\n \n \n Radiatio n: when is it needed and how (Lawrence Kleinberg\, M.D.)\n \n \n\n \n Fr ee\n \n\n \n \n \n \n Chevy Chase Conference Center\n \n \n \n \n 1800 Orleans Street\, Zayed 2117\n\n Baltimore\, Maryland  21287 United States\n \n 410-955-5000\n \n \n\n DTSTART:20251025T130000Z DTEND:20251025T170000Z END:VEVENT BEGIN:VEVENT SUMMARY:GoodHormoneHealth Webinar DTSTAMP:20250313T140454Z SEQUENCE:0 UID:1666-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n YOU’RE INVITED! GoodHormoneHealth Webinar on \"How can Blue Zones and Maimonides’ principles be applied to lead a healthy lif e for patients with endocrine problems?”\n\n \n\n Dr. Theodore Friedman (The Wiz) will start the webinar with an update on compounded GLP-1s (Tir zepatide and Semaglutide)\n\n\n\n \n Topics to be discussed after include :\n \n\n \n \n Who was Maimonides?\n \n \n What are his 14 wisdoms of health that are still relevant? \n \n \n Why is moderation importa nt?\n \n \n Where are the 5 Blue Zones and how were they discovered?\n \n \n What do they have in common?\n \n \n How can their principl es be used to improve your health if you have an Endocrine condition?\n \ n \n\n \n Sunday • March 23• 6 PM PST\n\n Via Zoom Click here to j oin the meeting or\n\n https://us06web.zoom.us/j/4209687343?omn=88689394 577\n\n passcode if needed\, 111116\n\n OR\n\n +16699006833\,\,42096873 43#\,\,\,\,*111116# \n\n Slides and updated information sheet will be av ailable before the webinar and recording after the meeting at slides\n\n OR\n\n Join on Facebook Live - https://www.facebook.com/goodhormonehea lth at 6 PM\n \n\n DTSTART:20250324T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Lunch and Learn\, Los Angeles California DTSTAMP:20250305T104632Z SEQUENCE:0 UID:1665-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Adrenal Insufficiency United’s Lunch &\; Learn Event s are one day mini-conferences located in different cities in the USA. We find great local speakers to lead sessions and give presentations about is sues affecting those with adrenal insufficiency. These one day events will be packed full of opportunities giving attendees more chances to ask ques tions\, share their own experiences and network with fellow members of the community. \n\n\n\n \n \n Los Angeles California\n \n \n\n\n\n \n \ n Where: Glendale Embassy Suites by Hilton: 800 North Central Ave\, Gle ndale\, CA\n \n\n \n When: Saturday May 3rd    9:00 a.m – 4:00 p. m.\n \n\n \n Costs: Early Bird Registration $50 per person (through A pril 1st)\n \n\n \n Parking: Included in early bird registration or $ 12 per vehicle after April 1st\n \n\n \n Speakers Include: Dr. Mimi K im from CHLA\, Anat Benshlomo from Cedars-Sinai\, Dr. Run Yu from UCLA\, B renda Manzanarez a clinical dietician at CHLA\n \n\n \n \n \n S chedule &\; Topics\n \n \n \n\n \n \n \n We are still f inalizing our schedule so some time changes may occur. \n \n\n \n 8:30 a.m. Check in and networking\n \n\n \n 9:00 a.m. – 10 :30 a.m.  Session on Adrenal Insufficiency and Cognition\n \n\n \n 10:45 – 12:00  Session on Stress Dosing\, Pre-Crisis and Crisis\n \n\n \n 12:00 – 1:00 Lunch\n \n\n \n 1: 15 p.m. – 4:00 p.m.      Afternoon Break Out Group Proposed Topics thus far:  \n \n\n \n \n Injection Training\n \n \n Nut rition and adrenal insufficiency\n \n \n A breakout on Congen ital Adrenal Hyperplasia\n \n \n\n \n SIGN UP TO JOIN US! Lo s Angeles\n \n \n \n \n\n DTSTART;VALUE=DATE:20250503 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: The Art of Parenting While Sick DTSTAMP:20250225T120721Z SEQUENCE:0 UID:1664-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Are you a parent with adrenal insufficiency?\n\n\n\n If y ou’ve ever struggled with how to talk to your child about adrenal insuff iciency\, you’re not alone. In this free webinar with Hilary Hodge\, sh e will discuss:\n\n\n\n \n What adrenal insufficiency is and how you mana ge it \n \n \n What an adrenal crisis is and what to do if you have one  \n \n \n Household guidelines that can help you manage your condition\, and more.\n \n\n\n\n Thursday 27 March 2025: 7-8pm (UK Time.  3pm Easter n)\n\n\n\n  Register now \n\n\n\n This webinar is perfect for parents wh o would love to have age-appropriate strategies and scripts in their back pocket for whenever they need to talk about their condition with their chi ld.\n\n\n\n There will be time for a Q&\;A at the end where you can bri ng any questions you may have.\n\n\n\n This webinar is offered by Hilary H odge\, who has adrenal insufficiency herself\, hear more about how to talk to children about adrenal insufficiency and how you manage it\; how to ex plain what an adrenal crisis is and what they should do if you have one\; how to set household guidelines to help you manage your condition\, and mo re.\n\n\n\n Register here: https://www.addisonsdisease.org.uk/Event/the-a rt-of-parenting-while-sick\n\n DTSTART:20250327T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Adrenal Insufficiency United’s Lunch & Learn DTSTAMP:20250201T011228Z SEQUENCE:0 UID:1663-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Adrenal Insufficiency United’s Lunch &\; Learn Event s are one day mini-conferences located in different cities in the USA. We find great local speakers to lead sessions and give presentations about is sues affecting those with adrenal insufficiency. These one day events will be packed full of opportunities giving attendees more chances to ask ques tions\, share their own experiences and network with fellow members of the community. \n\n\n\n Portland Oregon\n\n Where: Portland Oregon: Oregon Health Science University Conference Center: located on the on Waterfront @ 3410 S Bond Ave\, Portland\, OR 97239\n\n\n\n When: Tuesday March 25t h  9:30 a.m – 3:30  p.m.\n\n\n\n Costs: Early Bird Registration $10 per person. Starting March 1st\, registration will be $25 per person. \ n\n\n\n Parking: OHSU offers on-site parking for $18. Carpooling is encou raged.\n\n\n\n Child Care: Since this event is during Spring Break AIU is considering offering child care for pre-school – elementary aged childr en. Please indicate your interest when you sign up. \n\n\n\n Optional Out ing: AIU has secured a limited number of tickets to the Portland Trailbla zers Game on Tuesday night. We’d love for you to join us. Tickets are $1 7 per person.\n\n\n\n Schedule &\; Topics\n\n We are still finalizing o ur schedule so some changes may occur. \n\n\n\n 9:30 a.m. Check in and n etworking\n\n\n\n 10:00 a.m. – 11:30 a.m.  Session on Adrenal Insuffic iency presented by Chris Yedinak\, M.N.\, F.N.P\, D.N.P. \n\n\n\n 11:30 a.m. – 12:30 p.m.  Lunch Provided:\n\n\n\n Take your lunch and join in a conversation with one of our presenters or with a new group of friends! \n\n 12:30 p.m. – 3:30 p.m.      Afternoon Break Out Group Propose d Topic: You’ll be able to attend at least two\, possibly three. \n\n\n \n Jason Dunn RN\, CSRN will provide injection training.\n\n Jason will al so  lead a discussion on managing adrenal insufficiency and how to best advocate for yourself while working with your health care provider. \n\n Learning to identifying pre-crisis and adrenal crisis \n\n Chris will le ad a group for those with secondary and tertiary adrenal insufficiency\n\n Chris will have an additional break out group for an open ended Q &\; A discussion.\n\n A child life specialist from Dorenbecher Children’s Ho spital will discuss strategies and tips to help children process the emoti ons that come with their chronic condition.\n\n A pediatric specialist in endocrinology will discuss issues specific to children with adrenal insuff iciency.\n\n An OHSU clinical trial coordinator will share current clinica l trials and how you can be involved in current and/or future trials.\n\n Sign up to attend at https://form.jotform.com/AIUnited/portland-LL\n\n DTSTART;VALUE=DATE:20250325 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar on How to Stay Alive Without Adrenals (BLA and Addis on’s) DTSTAMP:20250109T095051Z SEQUENCE:0 UID:1662-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n YOU’RE INVITED! GoodHormoneHealth Webinaron How to Stay Alive (and flourish) if have no adrenals (BLA and Addison’s)-in memory of Dr. Friedman’s patients who passed away from adrenal insufficiency \ n\n\n\n Dr. Theodore Friedman (The Wiz) will be giving an updated webinar on how to flourish if you have adrenal insufficiency.\n\n\n\n \n Topics t o be discussed include:\n \n\n \n \n How do you optimally replace adren al hormones?\n \n \n What laboratory tests are needed to monitor repla cement?\n \n \n When and how do you stress dose?\n \n \n What do y ou if you are having surgery?\n \n \n What do you if you are hospitali zed?\n \n \n What about subcut cortisol versus cortisol pumps?\n \n \n There will be an opportunity for patients to share their experience o n Facebook\n \n \n\n \n Sunday • January 19• 6 PM PST\n\n Via Zoom Click here to join the meeting or\n\n https://us02web.zoom.us/j/420968 7343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09\n\n passcode 111116\n\n OR\n\n +16699006833\,\,4209687343#\,\,\,\,*111116#\n\n Slides and updated info rmation sheet will be available before the webinar and recording after the meeting at slides\n\n OR\n\n Join on Facebook Live - https://www.fac ebook.com/goodhormonehealth at 6 PM\n \n\n DTSTART:20250120T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Compounded Tirzepatide vs Semaglutide DTSTAMP:20241104T142011Z SEQUENCE:0 UID:1661-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n YOU’RE INVITED! \n\n \n\n Dr. Theodore Friedm an (The Wiz) will be giving an updated webinar on compounded weight loss medicines.\n\n\n\n \n Topics to be discussed include:\n \n\n \n What is the difference between Tirzepatide and Semaglutide?\n \n\n \n \n Are compounded medications safe?\n \n \n Will they be discontinued?\n \n \n What are the side effects? \n \n \n How do they work with diet and exercise?\n \n \n Why is Dr. Friedman recommending compounded medi cations?\n \n \n How do you work with Dr. Friedman’s office to get t he compounded medications?\n \n \n There will be an opportunity for pa tients to share their experience on Facebook\n \n \n\n \n Sunday • No vember 17• 6 PM PST\n\n Via Zoom Click here to join the meeting or\n\ n https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT 09\n\n passcode 111116\n\n OR\n\n +16699006833\,\,4209687343#\,\,\,\,*1 11116# \n\n Slides will be available before the webinar and recording af ter the meeting at slides\n \n\n DTSTART:20241118T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Unlocking The Cavernous Sinus - Applications Of Advanced Sur gical Anatomy For Management Of Invasive Pituitary Tumors DTSTAMP:20240703T080632Z SEQUENCE:0 UID:1660-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n  \n\n\n\n Presented by:\n\n\n\n Presented By: Dr. Almeid a of Mayo Clinic\n\n\n\n  \n\n\n\n  \n\n\n\n Wednesday July 10\, 2024\n\ n\n\n 10:00 AM – 11:00 AM  EDT\n\n\n\n Learning Objectives: TBD\n\n\n\ n  \n\n\n\n  \n\n\n\n  \n\n\n\n REGISTER NOW\n\n DTSTART:20240710T140000Z END:VEVENT BEGIN:VEVENT SUMMARY:13th Pituitary Patient Education Day DTSTAMP:20240629T165457Z SEQUENCE:0 UID:1659-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n WHEN: SATURDAY NOVEMBER 2ND 2024\n\n\n\n WHERE: The Johns Hopkins Hospital Chevy Chase Conference Center\, Zayed Tower 1800 Orleans St. Baltimore MD 21287.\n\n\n\n The annual Pituitary Patient Education Da y is a free event that features presentations from Johns Hopkins pituitary experts.\n\n\n\n To RSVP\, please email pituitaryday@jhmi.edu. Space is limited. Each person can bring up to one guest. If you RSVP yes but you ca nnot make it\, please inform us as soon as possible by email\, so that the slot can be offered to someone else.\n\n\n\n List of presentations will b e posted when finalized. Topics covered last year include:\n\n\n\n \n Pit uitary lesions: acromegaly\, Cushing\, prolactinomas\, non-functioning mas ses and hypophysitis (Roberto Salvatori\, M.D.)\n \n \n How pituitary tum ors can affect your vision (Amanda Henderson\, M.D.)\n \n \n Medications for pituitary disease: what you should know (Amir Hamrahian\, M.D.)\n \n \ n The nose as the door to the pituitary gland (Masaru Ishii\, M.D.\, Ph.D .)\n \n \n Surgery for small and large pituitary tumors: images from the Johns Hopkins operating room (Gary Gallia\, M.D.\, Ph.D.)\n \n \n Radiati on: when is it needed and how (Lawrence Kleinberg\, M.D.)\n \n\n\n\n \n \ n \n Chevy Chase Conference Center\n \n \n\n \n 1800 Orleans St reet\, Zayed 2117\n\n Baltimore\, Maryland 21287United States\n \n 4 10-955-5000\n \n\n\n\n For updates: \n\n\n\n https://www.hopkinsmedicine. org/neurology_neurosurgery/centers_clinics/pituitary_center/index.html#pit uitaryday\n\n DTSTART:20241102T130000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar! Compounded Weight Loss Medicines DTSTAMP:20240607T072349Z SEQUENCE:0 UID:1658-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n YOU’RE INVITED! \n\n\n\n GoodHormo neHealth Webinar on compounded Semaglutide/Tirzepatide (brand names Ozemp ic and Mounjaro)\n\n for patients with endocrine problems\n\n \n\n Dr. The odore Friedman (The Wiz) will be giving a webinar on compounded weight l oss medicines.\n\n\n\n Topics to be discussed include:\n \n \n Who shou ld go on weight-loss medications?\n \n \n Which weight-loss medicatio ns are available?\n \n \n What are the side effects? \n \n \n How do they work with diet and exercise?\n \n \n Why is Dr. Friedman reco mmending compounded medications?\n \n \n How do you work with Dr. Frie dman’s office to get the compounded medications?\n \n \n There will be an opportunity for patients to share their experience on Facebook\n \n \n Sunday • June 16• 6 PM PDT\n\n Via Zoom Click here to join the m eeting or\n\n https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS 9ITU02V1pEQT09\n\n passcode 111116\n\n OR\n\n +16699006833\,\,4209687343#\ ,\,\,\,*111116# \n\n Slides will be available before the webinar and reco rding after the meeting at slides\n\n OR\n\n Join on Facebook Live - ht tps://www.facebook.com/goodhormonehealth at 6 PM\n\n DTSTART:20240617T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Visual Recovery After Pituitary Surgery DTSTAMP:20240425T122841Z SEQUENCE:0 UID:1657-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n I'm sorry I can't find more info on this - \n\n\n\n \n \n \n \n \n \n Webinar Announcement: Visual Recovery A fter Pituitary Surgery\n \n \n\n \n  \n \n\n \n Presented by:\n\n Dr. James Chandler\n \n\n \n  \ n \n\n \n Friday April 26\, 2024\n\n 9:30 AM – 10:30 AM  PST\n\n Learning Objectives: TBD\n \n\n \n  \n \n \n \n \n \n \n \n REGISTER NOW\n \n \n \n \n\n DTSTART:20240426T133000Z END:VEVENT BEGIN:VEVENT SUMMARY:Virtual Town Hall Meeting on Cushing's Awareness Day DTSTAMP:20240401T230907Z SEQUENCE:0 UID:1656-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n Please join us for a Virtual Town Hal l Meeting on Cushing's Awareness Day!\n\n\n\n  \n\n\n\n Mark your calenda rs for Monday\, April 8\, 2024\, from 7 - 8 pm EST as we shed light on Cus hing's syndrome with two incredible people who are living with this condit ion.\n\n\n\n  \n\n\n\n Gain valuable insights\, hear personal stories\, a nd learn more about Cushing's syndrome from those who understand it firsth and.\n\n\n\n  \n\n\n\n Don't miss this opportunity to connect\, learn and show your support. Register now to secure your spot: https://www.eventbri te.com/.../cushings-awareness-day....\n\n\n\n  \n\n\n\n Let's come togeth er to raise awareness and foster understanding. #CushingsAwareness\n\n DTSTART:20240408T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar ~ Medical Treatment for Cushing’s Disease DTSTAMP:20240321T081844Z SEQUENCE:0 UID:1655-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n YOU’RE INVITED!\n\n Webinar on Dr. Theodore Fr iedman’s\n\n update on medical treatment for Cushing’s disease\n\n  \ n\n In this informative webinar\, Dr. Friedman will discuss\n\n\n\n \n Wh at medicines to use to treat Cushing’s disease\n \n \n Side effects and timing of the medicines\n \n \n The use of ketoconazole for a medication trial before surgery \n \n \n Longer-term treatment for Cushing’s\n \ n \n How to determine when a patient should go to surgery\n \n\n\n\n  \n \n\n\n Sunday • March 31 • 6 PM PDT\n\n\n\n here to join the meeting  or\n\n https://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02 V1pEQT09&\;omn=88672684111\n\n OR\n\n +16699006833\,\,4209687343#\,\,\, \,*111116# US (San Jose)\n\n       OR\n\n Join on Facebook Live htt ps://www.facebook.com/goodhormonehealth\n\n \n\n Slides will be available on the day of the talk here. \n\n There will be plenty of time for ques tions using the chat button. \n\n For more information\, email us at ma il@goodhormonehealth.com\n\n DTSTART:20240401T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Dr. Theodore Friedman Will Be Giving a Brief Update on Growt h Hormone Replacement DTSTAMP:20240115T083329Z SEQUENCE:0 UID:1654-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n\n \n Dr. Theodo re Friedman will be giving a brief update on growth hormone replacement\, then answer your questions about endocrine issues.\n \n\n \n He can not give specific medical advice and this doe s not replace making an appointment\, but he can answer your questions on any endocrine topic including:\n \n\n \n \n Cushing's disease\n \n \n Adrenal insufficiency/Addison's\n \n \n Hypothyroidism/Hashimoto's\n \n \n Graves' Disease\n \n \n Menopa use\n \n \n PCOS\n \n \n Growth hormone deficiency\n \n \n Hypopituitarism\n \n \n For both existing and potential patients.\n\n \n \n\n Sunday • January 21\, 2024  • 6 PM PST\n \n Please join using the links below\n\n https: //www.facebook.com/goodhormonehealth/  or Via Zoom Click to join the m eeting\n\n meeting ID 420 968 7343\, passcode 111116\n\n Slides will be available on the day of the talk here. \n\n \n\n For more information\, email us at mail@goodhormonehea lth.com\n \n \n \n \n \n \n \n \n \n \n \n\n\n\n  \n\n DTSTART:20240122T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Dr. Theodore Friedman (the Wiz) Webinar on Optimal Replaceme nt for Hypopituitarism and Sheehan’s DTSTAMP:20231125T202414Z SEQUENCE:0 UID:1653-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Dr. Theodore Friedman (the Wiz) will be giving a webinar on Optimal replacement for Hypopituitarism and Sheehan’s: Oxytocin\, tes tosterone\, growth hormone\, stimulants and beyond\n\n\n\n Learn what most Endocrinologists don’t know about but will improve your quality of life \n\n\n\n Topics to be discussed include:\n\n\n\n • Oxytocin-the love hor mone\n\n\n\n • Testosterone\, not just for men\n\n\n\n • Stimulants to treat pituitary apathy\n\n\n\n • Growth hormone\, not just for kids\n\n \n\n • Thyroid optimization\n\n\n\n • Cortisol\, the right and wrong w ay to give\n\n\n\n • Learn about the common medicine you should never ta ke if on growth hormone\n\n\n\n Wednesday • December 6th• 6 PM PST\n\n \n\n Via Zoom Click here to join the meeting or\n\n\n\n https://us02web.zo om.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09&\;omn=845215306 46\n\n\n\n OR\n\n\n\n +16699006833\,\,4209687343#\,\,\,\,*111116#\n\n\n\n Slides will be available before the webinar and recording after the meetin g at\n\n\n\n slides or on Dr. Friedman’s YouTube channel\n\n\n\n OR\n\n\ n\n Join on Facebook Live https://www.facebook.com/goodhormonehealth at 6 PM PST\n\n\n\n Meeting ID: 420 968 7343 Passcode: 111116\n\n\n\n Your phon e/computer will be muted on entry. There will be plenty of time for questi ons using the chat button.\n\n\n\n For more information\, email us at mail @goodhormonehealth.com\n\n\n\n \n\n DTSTART;VALUE=DATE:20231206 END:VEVENT BEGIN:VEVENT SUMMARY:Pituitary Tumor Support Group - Michigan DTSTAMP:20230920T202509Z SEQUENCE:0 UID:1652-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Please consider joining us for #Pituitary Tumor Support Group on Saturday October 7th\, 2023 at 9am to discuss Current and Emergi ng Medical Therapies in Pituitary Tumor Treatment by Dr. Mahalakshi Honasa ge\, #Endocrinologist\, and Dr. Jack Rock\, #Neurosurgery.\n \n Virtual and In-Person participation is available.\n \n RSVP to 313-916-1094\n\n DTSTART:20231007T130000Z END:VEVENT BEGIN:VEVENT SUMMARY:Johns Hopkins Pituitary Patient Education Day DTSTAMP:20230902T222159Z SEQUENCE:0 UID:1651-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n October 7 @ 9:00 am – 1:00 pm\n\n The annual Pituit ary Patient Education Day is a free event that features presentations from Johns Hopkins pituitary experts.\n\n\n\n To RSVP\, please email pituitar yday@jhmi.edu. Space is limited. One member per family is encouraged to at tend.\n\n\n\n Presentations\n\n Pituitary lesions: acromegaly\, Cushing\, prolactinomas\, non-functioning masses and hypophysitis (Roberto Salvatori \, M.D.)\n\n How pituitary tumors can affect your vision (Amanda Henderson \, M.D.)\n\n Medications for pituitary disease: what you should know (Amir Hamrahian\, M.D.)\n\n The nose as the door to the pituitary gland (Masaru Ishii\, M.D.\, Ph.D.)\n\n Surgery for small and large pituitary tumors: i mages from the Johns Hopkins operating room (Gary Gallia\, M.D.\, Ph.D.)\n \n Radiation: when is it needed and how (Lawrence Kleinberg\, M.D.)\n\n\n\ n \n\n Chevy Chase Auditorium\n\n 1800 Orleans Street\n\n Baltimore\, Mar yland 21287+ Google Map\n\n\n\n More info at \n\n\n\n\n  \n\n DTSTART:20231007T130000Z END:VEVENT BEGIN:VEVENT SUMMARY:Dr. Theodore Friedman (The Wiz) will giving a webinar on Upd ates on Treating Hypothyroidism DTSTAMP:20230727T182053Z SEQUENCE:0 UID:1650-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Topics to be discussed include:\n\n\n\n New articles sho wing patients prefer desiccated thyroid\n \n \n Moving away from a TSH-ce ntered approach\n \n \n New thyroid hormone preparations\, including Adth yza\n \n \n •Does biotin affect thyroid tests?\n\n •Hypothyroidism d iet?\n \n \n What is the difference between desiccated thyroid and synthe tic thyroid hormones?\n \n \n Is rT3 important?\n \n\n  \n\n\n\n Read mo re at https://cushings.invisionzone.com/topic/57621-webinar-dr-theodore-f riedman-the-wiz-will-giving-a-webinar-on-updates-on-treating-hypothyroidis m/\n\n DTSTART;VALUE=DATE:20230802 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Good Hormone Health Webinar Sunday July 9\, 2023\, 2023. 6 PM PST DTSTAMP:20230626T081341Z SEQUENCE:0 UID:1649-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n YOU’RE INVITED! GoodHormoneHealth Webinar on Oh-Oh-Oh- Ozempic\n\n\n\n \n\n Dr. Theodore Friedman (The Wiz) will giving a webina r on Ozempic and other new weight loss medicines.\n\n\n\n \n\n Topics to b e discussed include:\n\n\n\n Who should go on weight-loss medications?\n\ n Which weight-loss medications are the best?\n\n What are the side effect s? \n\n How do they work with diet and exercise?\n\n How do you get insur ance coverage?\n\n There will be an opportunity for patients to share thei r experience on Facebook\n\n\n\n Sunday • Jul 9\, 2023  • 6 PM PDT\n \n Via Zoom Click here to join the meeting or\nhttps://us02web.zoom.us/j /4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09\n\n OR\n\n +16699006833\, \,4209687343#\,\,\,\,*111116#\n\n\n\n OR\n\n Join on Facebook Live - htt ps://www.facebook.com/goodhormonehealth \n\n\n\n Slides will be available on the day of the talk here. \n\n There will be plenty of time for que stions using the chat button. \n\n For more information\, email us at m ail@goodhormonehealth.com\n\n DTSTART:20230710T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Good Hormone Health Webinar Sunday January 8\, 2023 . 6 PM PST DTSTAMP:20221226T143312Z SEQUENCE:0 UID:1648-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n YOU’RE INVITED! GoodHormoneHealth Webinar on Lifestyle Medicine for Patients with Endocrine Problems With Eddie Ramire z\, MD\n \n\n \n \n\n Dr. Theodore Friedman (The Wiz) will b e joined by Eddie Ramirez\, MD and will discuss the 6 pillars of lifesty le medicine as applied to patients with Endocrine disorders:\n \n\n \n \n Nutrition\n \n \n Exercise\n \n \n Sleep\n \n \n Stress Reduction\n \n \n Good Relationships\n \n \n Avoiding Toxic Substances \n \n \n  \n \n\n \n Dr. Ramirez a medical doc tor\, research scientist\, published author and international speaker.\n \n \n\n \n  \n \n\n \n Dr. Ramirez major research interest has been how food and lifestyle has the ability to prevent and re verse physical and mental disease.\n \n\n \n  \n \n\n \n This has resulted in over 160 research which he has shared in 88 count ries. His work has been featured on NBC's Texoma\, Icelandic National TV a nd the most popular health program in Ecuador. He is the author of Pandemi c Busters and the co-author of the 3rd edition of the textbook of Lifestyl e Medicine with thought leaders of the American College of Lifestyle Medic ine and the book Rethink Food together with Neal Barnard\, Michael Greger\ , Hans Diehl\, Joel Furhman and other lifestyle medicine experts. \n\nSun day • January 8\, 2023  • 6 PM PST\n \n\n \n Via Zoom Click here to join the meeting or\nhttps://us02web.zoom.us/j/4209687343?pwd=a mw4UzJLRDhBRXk1cS9ITU02V1pEQT09\n\n OR\n\n +16699006833\,\,4209687 343#\,\,\,\,*111116#\n\n Slides will be available on the day of the ta lk here. \n \n\n \n \n\n There will be plenty of time for  questions using the chat button. \n \n\n \n \n\n For mor e information\, email us at mail@goodhormonehealth.com\n \n \n DTSTART:20230109T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Overcoming Fatophobia DTSTAMP:20221127T095430Z SEQUENCE:0 UID:1647-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n \"We invite you to join us for our op ening 12 Days of Cortisol Christmas event\, “Overcoming Fatophobia” w ith Dr. Karen Thames.\n\n\n\n Dr. Karen\, a licensed clinical psychologis t and founder of the EPIC Foundation\, has battled Cushing’s disease and is now adrenal insufficient as a result. She has faced the battle of weig ht stigma both professionally and personally. In this interview\, she brav ely shares her story and advice on how to overcome #fatphobia in #chron icillness.\n\n\n\n Adrenal Alternative’s 12 days of Cortisol Christmas i s an event where we give back to the adrenal community during the Holiday Season.\n\n\n\n Throughout the 12 days\, we will be giving away adrenal aw areness merch\, hosting interviews with patients and professionals\, and s haring helpful resources.\n\n\n\n Even though patients must fight the war that is #adrenalinsufficiency\, we want to let you know that you are supp orted by an army of adrenal warriors and you are not alone.\"\n\n\n\n ~Adr enal Alternatives Foundation\n\n\n\n \n\n\n\n  \n\n DTSTART:20221201T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar on Dr. Friedman’s views on the Pituitary Society “Consensus” Guidelines on Cushing’s disease and new Cushing’s med icines DTSTAMP:20220320T202250Z SEQUENCE:0 UID:1646-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Although Dr. Friedman is at the forefront of Cushing’s Disease\, he was not invited to be part of the Pituitary Society Consensus Guidelines on Cushing’s Disease published in Lancet Diabetes and Endocr inology in 2021\, many of his ideas on Cushing’s Disease that he has bee n advocating for years were included in the recent guidelines. In this inf ormative webinar\, Dr. Friedman will discuss\n\n\n\n The use of imaging f or the diagnosis of Cushing’s Disease\n \n \n The need for multiple tes ting to diagnose episodic Cushing’s Disease\n \n \n The importance of U FC and salivary cortisol testing\n \n \n The use of medication trial prio r to surgery\n \n \n The use of ketoconazole for the medication trial and longer-term treatment\n \n \n Dr. Friedman will also discuss new Cushing ’s medications.\n \n\n Sunday • April 3 • 6 PM PST\n\n\n\n Via Zoom Click here to join the meeting orhttps://us02web.zoom.us/j/4209687343?pw d=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09OR+16699006833\,\,4209687343#\,\,\,\,*11 1116#Slides will be available on the day of the talk here. You can also  click to read the consensus guidelines  There will be plenty of time f or questions using the chat button. For more information\, email us at  mail@goodhormonehealth.com\n\n DTSTART:20220404T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Register for Rare Disease Week DTSTAMP:20211206T224329Z SEQUENCE:0 UID:1643-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n \n We are thrilled to invite you to join us and hundreds of others virtually for Rare Disease Week on Capitol Hill from February 22nd to March 2nd\, for a week that can change your li fe. In 2022 advocates will once again have the opportunity to participate in the Points for Advocacy Scavenger Hunt and the EveryLife Foundation wil l award a total of $100\,000 to the top-50 point earners' rare disease no n-profit organization of choice!\n \n\n \n Over the last 11 years\, thousands of rare disease patients\, family members\, frie nds\, and health care providers have joined together to give rare disease patients a voice on Capitol Hill. Meeting virtually during the pandemic ha s not slowed us down but has reenergized many of us on the importance of o ur advocacy work.\n \n\n \n Both of our first times attending Rare Disease Week\, Sarah in 2017 and Sarita in 2021\, sparked o ur passion for advocacy!  We hope that you will join us for Rare Disease Week which brings the community together to learn\, network and advocate.\ n \n \n \n \n \n \n \n \n \n Pl ease reach out to RDLA staff Katelyn Laws at klaws@everylifefoundation.o rg if you have any questions or need more information.\n \n\n \n  \n \n \n \n \n \n\n DTSTART;VALUE=DATE:20211206 END:VEVENT BEGIN:VEVENT SUMMARY:“A Window into Rare” a Rare Disease Day Panel Discussion DTSTAMP:20220225T075246Z SEQUENCE:0 UID:1645-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n Join our Rare Disease Day virtual panel discussi on as BioNews columnists from a variety of our rare communities participat e in a lively conversation with fellow patient advocate Liza Bernstein. Th is window into often overlooked aspects of life with a rare disease will p rovide a variety of patient perspectives.\n\n\n\n Topics will include awar eness and advocacy\, equity\, mental health\, empowerment\, and more. We i nvite everyone to join us for this signature event and look forward to you r participation in the Q and A!\n\n\n\n \n Panelists:\n\n\n Paris Dancy\ , Columnist\, Cushing’s Disease News\n\n Michelle Gonzaba\, Columnist\, Myasthenia Gravis News\n\n Claire Richmond\, Columnist\, Porphyria News\ n\n Sherry Toh\, Columnist\, SMA News Today\n\n\n Hosted by Liza Bernste in\, Patient Advocate &\; Sr. Director Patient &\; Community Engagem ent\n \n\n\n\n Time\n\n \n \n Feb 28\, 2022 02:00 PM in Central Time ( US and Canada)\n \n\n \n Register at https://us06web.zoom.us/webinar/ register/WN_dylme0wBRCyH8TfQ7B6x-w\n \n \n\n DTSTART:20220228T200000Z END:VEVENT BEGIN:VEVENT SUMMARY:Light Up for Rare DTSTAMP:20211229T154658Z SEQUENCE:0 UID:1644-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n The National Organization for Rare Disorders (NORD) ask s Americans to plan ahead to participate in the Light Up for Rare campaig n to raise awareness of rare diseases.\n\n\n\n NORD is the U.S. sponsor f or Rare Disease Day on Feb. 28. The annual awareness day spotlights app roximately 7\,000 rare diseases that affect more than 300 million people w orldwide. More than 25 million Americans and their families are believed t o be affected by rare diseases.\n\n\n\n \n\n Participants are encouraged t o light or decorate their homes in blue\, green\, pink\, and purple at 7 p .m. local time on Feb. 28. (Blue should be used if only one color is possi ble.) NORD suggests using NovaBright to light up a building\, monument\, home\, or neighborhood in these rare disease colors.\n\n\n\n To join the Light Up for Rare campaign\, sign up here. Participants should complete t he applications required by the landmarks they pledge to light up\, which could include historic buildings and homes\, schools and universities\, bu sinesses\, stadiums\, bridges\, and monuments. A downloadable template re quest is available to ask cities and buildings to participate in the init iative.\n\n\n\n \n\n Once requests are approved\, participants should info rm NORD so the organization can track the buildings that will be illuminat ed for Rare Disease Day.\n\n\n\n Light Up for Rare is part of the Global C hain of Lights campaign\, which aims to unite the rare disease community a cross the globe and symbolically break the isolation caused by the COVID-1 9 pandemic.\n\n\n\n \n\n The European Organization for Rare Diseases (EU RORDIS)\, NORD’s counterpart in Europe\, is coordinating the Feb. 28 awa reness day there along with several patient advocacy groups. On leap years \, Rare Disease Day falls on Feb. 29\, the rarest day of the year.\n\n\n\n Download the Light Up for Rare toolkit here. Information on how to illum inate a building can be found here. \n\n\n\n \n\n The general public\, a s well as caregivers\, healthcare professionals\, researchers\, clinicians \, policymakers\, and industry representatives are encouraged to participa te in Rare Disease Day advocacy and events. Other toolkits and resources f or Rare Disease Day are available here.\n\n\n\n After buildings and landm arks are lit up in Rare Disease Day colors\, participants are encouraged t o share photos and videos on social media. Please use the #RareDiseaseDay and #ShowYourStripes hashtags so the efforts can be spotlighted.\n\n\n\n M ore information at https://rarediseases.org/rare-disease-day/rare-disease -day-light-up-for-rare/\n\n DTSTART;VALUE=DATE:20220228 END:VEVENT BEGIN:VEVENT SUMMARY:Happy Birthday\, Dr. Friedman! DTSTAMP:20211117T063315Z SEQUENCE:0 UID:1642-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Happy birthday Dr. Friedman! Thank you for all you do and for the incredible impact you are making in the world! Join us in wishing Dr. Friedman a joyous and healthy year ahead! \n\n DTSTART;VALUE=DATE:20211117 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Stacy Ollenberger DTSTAMP:20170622T210512Z SEQUENCE:0 UID:1534-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n November 4\, 2015\n\n\n\n Stacy had two pituitary surgeri es\, radiation and an adrenalectomy.  She died of an adrenal crisis on No vember 4\, 2015.\n\n\n\n Read more at https://cushingsbios.com/2021/11/04 /in-memory-of-stacy-ollenberger-november-4-2015-2/\n\n DTSTART;VALUE=DATE:20171104 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar on The 20-minute Mini Back Scope Adrenalectomy (MBSA ) DTSTAMP:20211029T113617Z SEQUENCE:0 UID:1641-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Dr. Friedman will host Tobias Carling \, MD\, PhD\, FACS\n\n Surgeon-in-Chief &\; Founder\n\n Carling Adrena l Center\n\n Hospital for Endocrine Surgery\nwww.adrenal.com\n\n Who will talk on:\nThe 20-minute Mini Back Scope Adrenalectomy (MBSA)\n\n\n\n The C arling Adrenal Center is the world's busiest adrenal surgery center\, oper ating on patients from all 50 states and all over the world.\n\n\n\n Dr. C arling is the most experienced adrenal surgeon in the United States\, and by far the world's most knowledgeable surgeon-scientist when it comes to a drenal gland function and disease\, adrenal tumors and cancer\, and all fo rms of adrenal gland surgery. Dr. Carling has more experience with advance d minimally invasive adrenal and endocrine operations than any surgeon in the United States. A fellow of the American College of Surgeons\, Dr. Carl ing is a significant member of both the American Association of Endocrine Surgeons (AAES) and the International Association of Endocrine Surgeons (I AES).\n\n\n\n Dr. Carling spent 17.5 years at Yale University and the Yale University School of Medicine where he served as the Chief of Endocrine S urgery\, Associate Professor of Surgery\, Program Director of the Yale End ocrine Surgery Fellowship and the Founder &\; Director of the Yale Endo crine Neoplasia Laboratory\, a supreme scientific program focused on the m olecular pathogenesis of tumors arising in the adrenal\, thyroid and parat hyroid glands.\n\n\n\n \n\n Dr. Carling moved his world-renowned adrenal s urgery program to Tampa\, Florida in early 2020 to start the Carling Adren al Center. Here\, patients needing adrenal surgery have access to the best practices and best techniques the world has to offer.\n\n\n\n Dr. Carling works closely with Dr. Friedman and will be able to perform a Mini Back Scope Adrenalectomy with a referral from Dr. Friedman.\nSunday • Novem ber 7• 6 PM PST\n\n\n\n \n Via Zoom Click here to join the meeting or\ nhttps://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09 \n\n OR\n\n +16699006833\,\,4209687343#\,\,\,\,*111116#\n\n Slides will be available before the webinar and recording after the meeting at slides\n \n\n\n \n Your phone/computer will be muted on entry. There will be plent y of time for questions using the chat button.\n\n For more information\, email us at mail@goodhormonehealth.com\n\n DTSTART:20211108T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:4th Pituitary Update | Perelman School of Medicine at the Un iversity of Pennsylvania DTSTAMP:20210927T080348Z SEQUENCE:0 UID:1640-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Friday\, October 8\, 2021\n\n\n\n 7:45 am - 4:00 pm\n\n \n\n OVERVIEW\n\n\n\n This conference will present the newest approaches a nd techniques in the diagnosis and treatment of pituitary adenomas\, inclu ding acromegaly and Cushing’s disease. Diagnosis and treatment will be c overed from the interdisciplinary and interprofessional perspective of end ocrinology\, radiology\, neuro-ophthalmology\, neurosurgery\, and radiatio n oncology. Didactic presentations will include case discussions. The conf erence format\, although virtual will provide a significant opportunity fo r interaction with expert faculty. A simulcast of transsphenoidal surgery will occur throughout the conference with real-time discussion and case r eview of the progress on the day of surgery\, post-op management\, surveil lance and follow-up care. Participants will leave with up-to-date\, practi cal information and written resources including: DDAVP stimulation protoc ol for Cushing’s disease localization\, perioperative glucocorticoid and salt-water monitoring protocol\, clinic note templates\, laboratory testi ng panels\, \"Sick Day Rules\" letter for patients with adrenal insufficie ncy.  These materials will have immediate clinical application and help s treamline care of pituitary patients at the office and during hospitalizat ions.\n\n\n\n LEARNING OBJECTIVES – CME\n\n\n\n Upon completion of this conference\, participants should be able to:\n\n\n\n Evaluate a sellar ma ss to determine if it is a pituitary adenoma or other lesion \n \n \n Id entify the value and limits of MRI in evaluating a sellar mass\n \n \n Li st the potential and limits of endoscopic transsphenoidal surgery for pitu itary adenoma\n \n \n Manage\, medically\, a patient following endonasal surgery\n \n \n List the different types of radiation\, including linear accelerator (IMRT\, Cyberknife)\, gamma radiation\, (Gamma Knife) and prot on beam\n \n \n Treat\, medically\, patients who have acromegaly and Cush ing’s disease\n \n \n Apply multidisciplinary\, interprofessional and i nterdisciplinary approach in the management of pituitary disease\n \n\n LE ARNING OBJECTIVES – PATIENTS\n\n\n\n Upon completion of this course pat ients\, families and advocates will be able to:\n \n \n Identify the late st advances in pituitary tumor treatment\n \n \n Demonstrate familiarity with the terminology and technical aspects of pituitary tumor care\n \n \n Demonstrate patient-active behavior in working with the healthcare team to make ongoing treatment decisions\n \n\n WHO SHOULD ATTEND\n\n\n\n This activity has been designed for endocrinologists\, neurosurgeons\, ophthalm ologists\, gynecologists\, general radiologists\, nurse practitioners\, nu rses\, residents and fellows. Additionally\, patients and their caregivers \, family members\, advocates and members of the public who may benefit fr om understanding current innovative approaches to pituitary tumor care are invited.\n\n\n\n \n\n For additional information please contact Hyacen P utmon.\n\n\n\n Register Now\n\n DTSTART:20211008T114500Z END:VEVENT BEGIN:VEVENT SUMMARY:RARE Patient Advocacy Summit DTSTAMP:20210824T232836Z SEQUENCE:0 UID:1639-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Each year\, Global Genes convenes one of the world ’s largest gatherings of rare disease patients\, caregivers\, advocates\ , healthcare professionals\, researchers\, partners and allies.\n\n\n\n Jo in us for a variety of interactive and educational events\, meet-ups\, wor kshops and networking opportunities. Here you’ll have the opportunity to connect and engage with others in the rare disease community\, while expe riencing the sense of community and belonging we’ve missed so much. Gain insights about the latest in rare disease innovations\, best practices fo r advocating on an individual and organizational level\, and actionable st rategies you can implement immediately to accelerate change.\n\n\n\n The 2 021 RARE Patient Advocacy Summit is a virtual event\, happening Monday\, S eptember 27\, 2021 through Wednesday\, September 29\, 2021.\n\n\n\n 2021 R ARE Patient Advocacy Summit virtual registration is now open!\n\n\n\n Regi ster here: https://web.cvent.com/event/289bd182-abf4-49b0-90be-c2320566c2 76/regProcessStep1\n\n\n\n Speakers: https://globalgenes.org/summit-featu red-speakers/\n\n\n\n Interested in becoming a speaker? Fill out the spea ker inquiry form here.\n\n DTSTART;VALUE=DATE:20210927 DTEND;VALUE=DATE:20210930 END:VEVENT BEGIN:VEVENT SUMMARY:Living Rare Living Stronger ~ Nord® Patient and Family Foru m June 26-27Th DTSTAMP:20210616T005708Z SEQUENCE:0 UID:1638-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n More information at \n\n\n\n\n  \n DTSTART;VALUE=DATE:20210626 DTEND;VALUE=DATE:20210628 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Updates on Treating Hypothyroidism DTSTAMP:20210413T134029Z SEQUENCE:0 UID:1637-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Updates on Treating Hypothyroidism\n\ n  \n\n Dr. Theodore Friedman will be giving a webinar on Updates on Trea ting Hypothyroidism.\n\n  \n\n Topics to be discussed include:\n\n\n\n N ew articles showing patients prefer desiccated thyroid\n \n \n New thyroi d hormone preparations\n \n \n Update on desiccated thyroid recalls\n \n \n New article on why TSH is less important than thyroid hormone measurem ents\n \n \n What is the difference between desiccated thyroid and synthe tic thyroid hormones?\n \n \n Is rT3 important?\n \n\n Sunday • Apri l 25• 6 PM PDT\n\n  \n Via Zoom Click here to join the meeting or\nht tps://us02web.zoom.us/j/4209687343?pwd=amw4UzJLRDhBRXk1cS9ITU02V1pEQT09\n\ n OR\n\n +16699006833\,\,4209687343#\,\,\,\,*111116# \n\n Slides will be available before the webinar and recording after the meeting at slides\n\ n  \n       Meeting ID: 420 968 7343 Passcode: 111116\n\n Your phon e/computer will be muted on entry. There will be plenty of time for quest ions using the chat button.    \n\n For more information\, email us a t mail@goodhormonehealth.com\n\n\n\n  \n\n\n\n \n\n                                                                         \n DTSTART:20210426T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Cushing’s Awareness Challenge 2021 DTSTAMP:20210329T111109Z SEQUENCE:0 UID:1636-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n I plan to do the Cushing's Awareness Challenge aga in. A past year info is here:  https://cushieblogger.com/2018/03/11/time- to-sign-up-for-the-cushings-awareness-challenge-2018/\n\n\n\n The original page is getting very slow loading\, so I've moved my own posts to this ne wer blog.\n\n\n\n As always\, anyone who wants to join me can share their blog URL with me and I'll add it to the links on the right side\, so whene ver a new post comes up\, it will show up automatically.\n\n\n\n If the bl ogs are on WordPress\, I try to reblog them all to get even more exposure on the blog\, on Twitter and on Facebook at Cushings Help Organization\, I nc.  If you have photos\, and you give me permission\, I'll add them to t he Pinterest page for Cushing's Help.\n\n\n\n The Cushing’s Awareness Ch allenge is almost upon us again!\n\n\n\n  \n\n\n\n Do you blog? Want to g et started?\n\n\n\n  \n\n\n\n Since April 8 is Cushing’s Awareness Day\ , several people got their heads together to create the Tenth Annual Cushi ng’s Awareness Blogging Challenge.\n\n\n\n  \n\n\n\n All you have to do is blog about something Cushing’s related for the 30 days of April.\n\n \n\n  \n\n\n\n There will also be a logo for your blog to show you’ve p articipated.\n\n\n\n  \n\n\n\n Please let me know the URL to your blog in the comments area of this post\, on the Facebook page\, in one of the Cu shing's Help Facebook Groups\, on the message boards or an email  and I will list it on CushieBloggers (  http://cushie-blogger.blogspot.com/  )\n\n\n\n  \n\n\n\n The more people who participate\, the more the word w ill get out about Cushing’s.\n\n\n\n  \n\n\n\n Suggested topics – or add your own!\n\n\n\n In what ways have Cushing’s made you a better per son?\n \n \n What have you learned about the medical community since you have become sick?\n \n \n If you had one chance to speak to an endocrinol ogist association meeting\, what would you tell them about Cushing’s pat ients?\n \n \n What would you tell the friends and family of another Cush ing’s patient in order to garner more emotional support for your friend? challenge with Cushing’s? How have you overcome challenges? Stuff like that.\n \n \n I have Cushing’s Disease….(personal synopsis)\n \n \n How I found out I have Cushing’s\n \n \n What is Cushing’s Disease/Sy ndrome? (Personal variation\, i.e. adrenal or pituitary or ectopic\, etc.) \n \n \n My challenges with Cushing’s\n \n \n Overcoming challenges wi th Cushing’s (could include any challenges)\n \n \n If I could speak to an endocrinologist organization\, I would tell them….\n \n \n What wou ld I tell others trying to be diagnosed?\n \n \n What would I tell famili es of those who are sick with Cushing’s?\n \n \n Treatments I’ve gone through to try to be cured/treatments I may have to go through to be cure d.\n \n \n What will happen if I’m not cured?\n \n \n I write about my health because…\n \n \n 10 Things I Couldn’t Live Without.\n \n \n My Dream Day.\n \n \n What I learned the hard way\n \n \n Miracle Cure. (Write a news-style article on a miracle cure. What’s the cure? How do y ou get the cure? Be sure to include a disclaimer)\n \n \n Give yourself\, your condition\, or your health focus a mascot. Is it a real person? Fict ional? Mythical being? Describe them. Bonus points if you provide a visual !\n \n \n 5 Challenges &\; 5 Small Victories.\n \n \n The First Time I…\n \n \n Make a word cloud or tree with a list of words that come to mind when you think about your blog\, health\, or interests. Use a thesaur us to make it branch more.\n \n \n How much money have you spent on Cushi ng’s\, or\, How did Cushing’s impact your life financially?\n \n \n W hy do you think Cushing’s may not be as rare as doctors believe?\n \n \n What is your theory about what causes Cushing’s?\n \n \n How has Cush ing’s altered the trajectory of your life? What would you have done? Who would you have been\n \n \n What three things has Cushing’s stolen fro m you? What do you miss the most? What can you do in your Cushing’s life to still achieve any of those goals?\n \n \n What new goals did Cushin g’s bring to you?\n \n \n How do you cope?\n \n \n What do you do to i mprove your quality of life as you fight Cushing’s?\n \n \n How Cushi ng’s affects children and their families\n \n \n Your thoughts…?\n \ n\n  \n\n\n\n \n DTSTART;VALUE=DATE:20210401 DTEND;VALUE=DATE:20210501 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Marie Richardson\, March 2009 DTSTAMP:20210314T191538Z SEQUENCE:0 UID:1635-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n A CORONER has recorded a verdict of accidental death at the inquest held into the death of a 40-year-old Wrexham mother.\n\n\n \n Marie Richardson\, of Bryn Hafod\, died in March at the Maelor Hospital .\n\n\n\n A post mortem examination found that she had died as a result of a haemorrhage involving the pituitary gland\, which plays a key role in t he body's hormonal system.\n\n\n\n The inquest was told a post mortem exam ination had been conducted by Dr Anthony Burdge.\n\n\n\n Giving evidence\, Dr Burdge said that it was probable the bleeding had been caused as a res ult of thinning of the blood and not a trauma such as a fall.\n\n\n\n Cont ributory factors in Mrs Richardson's death had been Cushing's disease\, a very rare condition involving a hormone disorder\, and bronchial pneumonia .\n\n\n\n The court was told by Mrs Richardson's husband\, Andrew\, that h is wife had started to experience ill health\, including swollen legs and constant backache.\n\n\n\n Her mobility was badly affected. Mrs Richardson was admitted to the Maelor Hospital.\n\n\n\n Consultant physician Dr Step hen Stanaway said that as part of the treatment\, Mrs Richardson received a small dose of a blood-thinning drug to help ensure she did not fall vict im to clots.\n\n\n\n She had been given a scan involving the pituitary and there was no evidence of a tumor.\n\n\n\n It transpired the post-mortem h ad found Mrs Richardson did have a tumor\, which had experienced bleeding. \n\n\n\n Dr Stanaway said that Mrs Richardson had not liked the scanning p rocess and moved at one point – it was important for patients to remain still.\n\n\n\n Acting coroner John Gittins asked if Mrs Richardson would h ave been administered with blood thinner if the tumour had been known abou t at the time of treatment.\n\n\n\n Dr Stanaway said it would have to be a balanced decision but he felt that she would have been.\n\n\n\n Legal rep resentatives for Mrs Richardson's family and the NHS Trust were present at the inquest. Dr Stanaway was asked a series of questions about whether an ything further could have been done about Mrs Richardson's treatment while at the Maelor.\n\n\n\n He said that with hindsight the only potential oth er avenue may have been if she had been given steroids.\n\n\n\n But Dr Sta naway stressed he doubted this would have been successful\, emphasizing Mr s Richardson was a very poorly woman and it would be impossible to say tha t administering steroids would have saved her.\n\n\n\n Recording his verdi ct of accidental death Mr Gittins emphasized: \"This is not an indication of responsibility\, blame or judgment.\n\n \"That is not my jurisdiction.\ n\n\n\n My very sincere condolences go to the family.\"\n\n\n\n HOME | Sit emap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki\n DTSTART;VALUE=DATE:20210315 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Celebrate 20 Years-Pituitary Patient Support Group DTSTAMP:20210314T190854Z SEQUENCE:0 UID:1634-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n From board member @sharm\n\n\n\n \n\n\n  \n\n\n\n Please Join Us to Celebrate 20 Years-Pituitary Patient Support Group. Saturday A pril 10\, 2021: 9:00am-11:00am (PST) (Scroll below for Zoom meeting links) \n\n\n\n  \n\n\n\n We invite you to join the conversation with our expert s: Pejman Cohan\, neuro-endocrinologist &\; Daniel Kelly\, neurosurgery . Email me or leave your questions in the chat below. We will answer as ma ny questions as time allows.\n\n\n\n  \n\n\n\n We can't wait to see you o n Zoom!\n\n\n\n  \n\n\n\n Thank you\, Sharmyn McGraw\, patient advocate\, community outreach. pituitarybuddy@hotmail.com\n\n\n\n Meeting ID: 849 63 56 9824\n\n\n\n Passcode: 596170\n\n\n\n Zoom: https:/zoom.us/join\n\n\n\n One tap mobile\n\n\n\n +16699006833\,\,84963569824#\,\,\,\,*596170# US (S an Jose)\n\n\n\n +12532158782\,\,84963569824#\,\,\,\,*596170# US (Tacoma)\ n\n\n\n Dial by your location\n\n\n\n +1 669 900 6833 US (San Jose)\n\n\n\ n +1 253 215 8782 US (Tacoma)\n\n\n\n +1 346 248 7799 US (Houston)\n\n\n\n +1 929 205 6099 US (New York)\n\n\n\n +1 301 715 8592 US (Washington DC)\ n\n\n\n +1 312 626 6799 US (Chicago)\n\n\n\n Meeting ID: 849 6356 9824\n\n \n\n Passcode: 596170\n\n\n\n Find your local number: https://us02web.zoom .us/u/kdgrvRLBP7\n DTSTART:20210410T160000Z END:VEVENT BEGIN:VEVENT SUMMARY:eSummet: Quality of Life of Pituitary Patients March 19-20\, 2021 DTSTAMP:20210303T224812Z SEQUENCE:0 UID:1633-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Register Now! 2nd annual WAPO eSummit March 19 &\; 20\ , 2021\n\n\n\n  \n\n\n\n World Alliance of Pituitary Organizations repres ents the voice of 37 patient advocacies around the globe. This event is al so translated into Español\, there’s something for everyone!\n\n\n\n \n The World Alliance of Pituitary Organizations (‘WAPO’) represents th e voice of 37 patient advocacies around the globe.\n \n\n \n We seek to e mpower and improve the Quality of Life of Pituitary Patients\, by sharing knowledge and inform you about treatment choices.\n \n\n \n By registerin g to the WAPO eSummit 2021\, you will have a unique opportunity to learn a bout the latest medical research\, raise questions and dialogue with inter national experts on the pituitary gland!\n \n\n \n Get involved and regis ter in one of the provided languages.\n \n\n \n We are looking forward to meeting you!\n \n\n\n\n For more information visit the link below.\n\n\n\ n  \n\n\n\n https://web.cvent.com/event/aaf5e35f-793d-49ff-9f4b-138f155db bc2/summary?fbclid=IwAR0-ah0tkUnx7HmBkQlEoIMOEBvQOGxnvz_XP7fC7BDKhEKkuBhgX fVQL04\n\n\n\n  \n\n\n\n  \n DTSTART;VALUE=DATE:20210319 DTEND;VALUE=DATE:20210321 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Liz Raftery\, March 2012 DTSTAMP:20210301T142859Z SEQUENCE:0 UID:1632-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n A Golden Oldie\n\n\n\n We sadly learned that Liz died i n March 2012 at the age of 45. She was an active member of the Cushing ’s Help Message Boards.  She had a photo gallery there.  The photo b elow is from that gallery.\n\n\n\n The image at left is from 2002.\n\n\n\n Liz wrote in her bio:\n\n\n\n Hello\, I’m from Hampton\, just outside L ondon. Same old story – at least 6 years of various illnesses\, includin g four operations for various crap (kidney stones\, gallbladder removal\, and 2 cysts on my coccyx)\n\n\n\n I then went from being very skinny (even after childbirth) to very fat in about a year (from 7.5 stones to 13 ston es). You could roll me down our local hill! I wear maternity clothes as my tum is so disproportionate to my legs &\; arms (size 26 vs size 12!). My face\, chest\, neck and back look like someone’s put padding in\, and my nice red glow brings all sort of compliments about how healthy i look\ , grr! I’ll post some photos later.\n\n\n\n So far\, a left adrenal tumo r has turned up\, but I have abnormally high ACTH (60) with a highish cort isol of about 600. This apparently implies a pituitary source – but the pituitary MRI was clear. I’m waiting on a second one with gadolinium thi s time\, but here in London MRIs take AGES. The wait at our local hospital is currently 10 months.\n\n\n\n In the meantime\, I’m frustrated and fe eling lousy and v tired. I have to work full time (luckily I’m an accoun tant\, not something overly physical) as I’m a single mum to a lovely 8 year old girl who does not deserve all this. The guilt eats me up\, but sh e is thankfully not the outward bound type!\n\n\n\n Walking is a struggle as my legs seem to suddenly buckle on me\, and sitting up without support at say the hairdressers or a restaurant is really difficult. So my (thinni ng) hair’s a mess and I don’t eat out much! I veer about – someone a t work told my boss I couldn’t walk in a straight line! Highly amusing a s I haven’t touched a drop in ages!\n\n\n\n Other symptoms that have dev eloped more recently include interimittently high blood sugar\, intermitte ntly high blood pressure\, have to shave every day\, horrid night and day sweats\, red marks up my arms\, but none on my body\, intermittently rotte n swollen ankles and feet\, recurrently horrid kidney stones\, and of cour se\, an attractive buffalo hump (moo). And the final insult – can’t ge t into any of my shoes any more so shuffle about at work in my oversize ca rpet slippers. Very popular amongst my grey accountant colleagues.\n\n\n\n As so many of the symptoms are intermittent\, the endo says he is convinc ed it is cushing’s\, but cylical\, due to (again) interimittent high blo od cortisol and ACTH\, and non suppression on three low dose dex tests. Th en the first 24 hr ufc came back normal which was very frustrating. I’m not particularly religious but i pray he won’t give up on me as it is a long journey compared to the diagnosis of other equally horrid diseases.\n \n\n\n Feel quite isolated from my mates and lovely mum\, although they ar e trying hard to be supportive – I’m surprised my mood swings haven’ t frightened them all off lately. It’s so difficult to explain how rough it feels to take part in normal activities\, especially when every sympto m is something most people consider they have in everyday life to some deg ree. As well as the physical exhaustion/pain/weakness\, my body image dist resses me enormously. Recurrent kidney stones are pretty painful too (but not as bad as childbirth as a lot of men claim!).\n\n\n\n Hope to be there soon. Great to read all your stories and know that so many of you know ho w it all feels – and have felt it for umpteen years too.\n\n\n\n All the best.\n Liz\n\n\n\n Update April 21\, 2005.\n\n\n\n Following dex/CRH tes t\, which even included a dexamethasone assay to make sure the levels were adequate (took forever to come back from the lab)\, my endo confirmed cus hings. The bad news is I need the IPSS which will be in May. My ACTHs are between 80-100 so it is most likely a pituitary cause despite my adrenals showing a small adenoma – a red herring!\n\n\n\n It’s a very odd feeli ng after waiting so long\, knowing something was very wrong\, but not know ing what\, and thinking i would go on for ever in misery. So to all you gu ys out there feeling like this\, and i know you’re out there(!)\, don’ t give up!!\n\n\n\n Wish me luck …\n\n\n\n Posts in Liz’s memory:\n\n\ n\n Terry: Oh no\, that is terribly sad.\n\n\n\n Jenny: Oh no\, what happe ned\, did he say? 😦\n\n\n\n Beth: omg\, I felt sick reading this. I kne w of her\, but never got to know her. I’m so sorry. 😦\n\n\n\n Regina: How tragic! \n\n\n Liz: This is just so sad !! And yet he reaches out to us in his time of sadness\, please forward to him my deepest sympathies\n \n\n\n Nancy: Oh no!!” This makes my physically ill! I’m fighting tear s.PLEASE get details so we can try to learn about what happened and preven t any other Cushie from loosing their life..  Hugs and prayers to Liz’s family!\n\n\n\n MaryO: He didn’t say – I just responded to his email and we’ll see if he has any more to say.  I hate when Cushies die 😦\ n\n\n\n Sandra: Omg liz was my friend! We used to chat on the phone when I was seriously ill too! Omg I cannot belkieve it! Mary cud u pm his email add pls xxx\n\n\n\n Liz: Me too Mary me too\, just brings everything to a scary place for all of us !!\n\n\n\n Trisha: I am so sorry to hear this. I remember Liz from the boards.\n\n\n\n Sandra: Have just spoken to ciara l izs daughter who said it was a massive heart attack in the end! Her funera l is on thursday! God bless u my friend xxxxx\n\n\n\n Lisa: God bless her family..so sad 😦\n\n\n\n Kim: So sad\n\n\n\n Jennyfer: Oh no no more cu shies down please send my love\n\n\n\n Judy: So sad. Does anyone know how old she was\, I had never figured that out.\n\n\n\n Mary: Oh no! I loved o ur Lizzy girl and have been thinking of her recently. I hadn’t heard fro m her in awhile. So very sad. Please pass along my deepest condolences.\n\ n\n\n Linda: No! Not Liz! No no no\n\n\n\n MaryO: She was 45. On the C-H b oards\, her name was Lizr007\n\n\n\n Shauna: News like this breaks my hea rt over and over again. Mary\, please let him know that her Cushie family mourns her loss deeply.\n\n\n\n Linda: Please do tell Liz’s brother how much she was loved. I can’t believe she is gone….\n\n\n\n Judy: Thanks \, Mary. I sometimes haven’t converted who they were on the boards to th eir real life name. I know who she was. That is so young.\n\n\n\n Adrienne : so sorry\, so sad!!!\n\n\n\n Linda: Please let Liz’s brother know that I adored her. She was one of the first people I met on the Cushings board s many years ago\, and she was one of my “rocks”. She was such a suppo rtive\, loving person with a great sense of humor. I am heartbroken that s he is gone.\n\n\n\n Stephanie: How tragic!! Thoughts and Prayers for her f amily and friends.\n\n\n\n Lisa: Poor Liz. My heart breaks for her family. I remember her struggles Mary: You have my permission to send my condolen ces.\n\n\n\n Grace: This is such sad news! Prayers and hugs for Liz’s fa mily. How sad that we lose even one of us to the complications of this dis ease.\n\n\n\n Sandra:  RIP liz u were such a wonderful person and a dear friend! I’m sure suziQ was waiting for u along with all our other cushie s that have past over! God bless u huni I will miss u! Xx\n\n\n\n Joanne: Im so sorry to hear another precious life taken by this illness\, prayers for her and her family..\n\n\n\n Anne : Oh not Liz!! She was an awesome pe rson! She had such a great spirit. How horribly awful.\n\n\n\n Janelle: So sad.. Please let us know what the complications were.. 😦\n\n\n\n Alici a: So sad. We are losing way too many people to this disease. Praying for her family.\n\n\n\n Robin: Oh\, this breaks my heart. Please tell Liz’s brother we will miss her terribly.\n\n\n\n Heather: I’m so sorry. I love d Liz. Her spirit and sense of humor were amazing. I was actually thinking about her the other day as well. Please feel free to convey my condolence s to her family.\n\n\n\n Melissa: As soon as I saw her name — Liz Raffer ty — I started to cry. Liz was part of our group there on the Cushing’ s- Help message boards. She posted over 2000 times. When you posted her sc reen name\, I could see her avatar in my mind. I am so sad to hear that sh e is not with us\, her family or friends. I am so upset as I wonder why th is has to happened to her\, to us\, to our community. Please send my condo lences along to Liz’ brother\, and make sure they know that she was cari ng and supportive of many as well as loved by many. I will miss her.\n\n\n \n And Mary\, please be sure to tell him she was part of our group\, too. I bet he would want to make a donation to you and Cushing’s-Help if he k new how extensively she participated in our group.\n\n\n\n Hugging all of you a little tighter today.\n\n\n\n — Melissa\, TX\n\n\n\n Beth: Another person with my disease has passed. I didn’t know her personally\, but t he hurt is still there.. As is the fear. RIP Liz R.\n\n\n\n Chanelle: Omg! ! Ugh my head hurts :((\n\n\n\n Sandra: Beth she was a dear friend and suc h a sweet sweet girl! Even at her worst she was cheerful and lovely ! She has left behind her daughter and her mum god bless em x\n\n\n\n Christina: 😦 so sad to hear this\, RIP to her.\n\n\n\n Mary: I loved Liz. She was so funny and upbeat and helpful. RIP old friend.\n\n\n\n Linda: Rest in p eace\, Liz. You were very loved and and I’m thankful to have met you on my Cushings journey.\n\n\n\n Susan: Thanks for posting this\, MaryO. My sy mpathies to Liz’s family for their loss. As a member of this community\, we will miss you.\n\n\n\n missaf: My heart goes out to her family. I’m glad she started to feel better for a little while and got to smile more i n life. Damn Cushing’s.\n\n\n\n Sherry: Not another Cushie:( I am so sa d to hear this news\, Liz was well known on the boards and she will be gre atly missed. I just hate this. My deepest sympathies go out to her family. \n\n\n\n Elizabeth: Deepest sympathy &\; many prayers. This is so heart breaking.\n\n\n\n Dawn: I did not know her\, but her passing has affected me. I am sorry that the world has lost her and I’m sad that it was a res ult of this horrible disease. It always hits close to the heart. My condol ences to her family and friends.\n\n\n\n Ami: I am completely heartbroken. She was a dear. Please include my condolences to her brother. I too would very much like to hear what the cause of death was.\n\n\n\n Kristin: I’ m so upset about this\, all I can say is I’m sorry for her family. Leavi ng a 16 yo without her mommy is so terrible. Somehow the medical community needs to realize how many of our group are not making it needlessly… Pr ayers for her family. Very nice of her brother to let us know.\n\n\n\n Mel anie: OMG! I feel ill. I loved Liz dearly\, she helped me keep my sanity w hen I first arrived on the biards and gave me such great support – we ha d some great laughs together and spoke on the phone for hours at a time. I cannot believe another one of us has gone. This damn disease is so bloody unfair.\n\n\n\n Just read it was a heart attack (Thanks Sandra).  – he artbreaking.\n\n\n\n Gumdrop: So sad to hear this. I pray her family is co mforted.\n\n\n\n Sandra: If I find any more info out I will post\n\n\n\n M ary: She and I had SIADH in common and the continuing electrolyte issues a fterwards\, too. I think when I was hospitalized with it\, she was the onl y other person on the boards who’d experienced it at that time.\n\n\n\n Bernadette: I didn’t know her\, but am so saddened by her much-too-early death. My thoughts and prayers are with her family\, and with all the res t of you who knew her.\n\n\n\n Ami: I know she and I exchanged posts on th e boards. I wish I remembered more about her…\n\n\n\n Shelley: I’m sor ry to hear about her passing. She and her family and loved ones are in my thoughts and prayers.\n\n\n\n Mary: oh no! devastating news. so sorry and saddened to hear. 😦\n\n\n\n Amy: I am so broken hearted. 😦 Liz was o ne of the very first people to make friends with me on the cushings websit e. So sweet and funny\, what a wonderful person she was. I have just cried and cried ever since learning of her passing. She really struggled to get her BLA for a long time. May God rest her soul. She truly was “one of a kind”\n\n\n\n Dacia: Please send my love\, my thoughts and prayers to a ll…\n\n\n\n AuntSha: Condolences to her family…. My prayers and though ts are with them. She certainly has been taken too young and much too soon :-(!!!\n\n\n\n Diane: My beautiful\, funny\, smart dear friend Liz. You c arried me through my journey and held my hand through some of the worst ti mes I can remember. You were my rock\, you were my shoulder. Words cannot express how I feel right now. I am heartbroken. I am so sad. The heavens a re blessed with another beautiful soul. Love to you my dear friend xx\n\n\ n\n The last time we saw each other was when you had your adrenal operatio n. I was so thrilled to finally see you in the flesh after spending months posting to each other here and emailing and chatting on the phone. I met Liz at Cromwell Hospital in London where she was recovering from her adren al operation. I bought her a massive bunch of stocks that filled her hospi tal room with a glorious heady scent and I bought along a few things to pa mper her with. We spent the afternoon chatting non-stop and I remember giv ing her Mum a big hug. Those memories will stay with me and that is how I remember Liz. A happy smile and a big heart.\n\n\n\n Rest in peace lovely lady….\n\n\n\n Your Cushy friend\, always\,\n\n\n\n Diane\n\n\n\n x\n\n\ n\n Ellen: My deepest condolences to her family. This is such a stark remi nder of how cruel this disease is.\n\n\n\n Monica:  Oh Liz. I’ll miss h er\, she was such a good person and gave support to us all even while figh ting her own battle.\n\n\n\n Melly: So tragic! May God welcome Liz and ble ss her family with peace and strength during this horrible time. Such a re minder that each day I breathe is a gift.\n\n\n\n love\,\n\n\n\n melly\n\n \n\n 3v3:  I am new here so I am not familiar with Liz\, but I am so sorr y to read this. Condolences to her friends and family. I was trying to fin d her bio info/old posts and it seemed like she was cured or at least reco vering? 😦\n\n\n\n Judy:  Mine too. It’s just so sad. I pray for the family.\n\n\n\n Beth: Such a tragic loss.. I wish her family and friends s trength and peace. 😦\n\n\n\n Sandra: Have spoken to aLex woore who was also a cushie friend wiv liz and apparantly she had a bla smtime ago but t hey cudnt get her sodium n potassium levels right so whether that had anyt hing to do with it I dnt knw but have left my no wiv ciara and her nan so if they call I will let u all knw! X\n\n\n\n Karen: Please send my condole nces also\, such sad news . This disease is awful\, we are losing so many amazing people to it. Many prayers\,\n\n\n\n Monica: Thinking of Liz tonig ht. I pray for comfort for her family\, especially her 16 year old daughte r. Far too many friends lost to this disease over the years.\n\n\n\n Stanl ey : I’m sorry to hear that.\n\n\n\n Melissa: This makes me cry all over again.\n\n\n\n Mary\, could you offer our services in helping to decipher what could have led to Liz’s death? For example\, we could guide the fa mily on getting copies of her hospital\, doctor\, surgical\, and lab recor ds.\n\n\n\n Susan: I am just devastated by this news. Liz was so kind and caring. So tragic to lose someone so young.\n\n\n\n Rissa: This is so sad. Praying for Liz and her family tonight.\n\n\n\n Ikho: This news makes me so sad. My condolences to her family.\n\n\n\n Lorrie: I am so sorry. My pr ayers go out to her family. 45 years old….such a young woman. God Bless them.\n\n\n\n Amy: I’m still just in shock. Thinking back I can remember that sweet pic she had of her cat playing with something. I never could f igure out what that cat was doing though. LOL This is just surreal to me . . . 😦\n\n\n\n Jenny: Please pass on my condolences\, her family will b e in my prayers. Just so unbelievably sad. 😥\n\n\n\n Jo: cant believe i t.  very sad\, god bless our dear friend Liz.taken far too soon.\n\n\n\n Jenny: The Cushings community has lost yet another dear member. Liz was on ly 45\, please pray for her family and friends. 😦\n\n\n\n Lisa: One of our fellow “cushies” (Cushings patient) sadly passed away.  Liz was a wonderful 45 yr old mother of a 16 yr old and a friend to us that got so many through this. She was an inspiration and someone that kept her chin u p and a smile on her face and ours on our message board. She will be misse d.\n\n\n\n Mary R:  We’ve lost another Cushing’s Warrior from complic ations of this rotten disease. Her name is Liz and leaves behind a 16 yr o ld daughter. This is the 3rd Cushie in 8 months!!! It doesn’t have to be this way! Just because it’s rare\, doesn’t mean that the Dr.s should doubt us and our biochemical/imaging evidence. Please say a prayer for Liz ’s daughter and family.\n\n\n\n PLEASE promise me that if this disease t akes me from my family at a young age\, that you will bring Cushing’s aw areness &\; education to others on my behalf.\n\n\n\n Jen: I remember L iz well and I am so sorry to hear that she has passed. My condolences to h er family.\n\n\n\n Diane: It’s been a day since I found out and I am sti ll numb with shock. There are moments in your life when things happen that change your whole outlook on things. Cushings was that something for me. However with all the difficulties of coping with such a terrible disease I managed to find many special friendships and was given support by such a special group of ladies that I will treasure in my heart forever. Liz was one of those special people. We had a giggle\, we had a moan about the who le NHS process and testing\, we shared some of our most painful moments go ing through this disease. I will miss you so much Liz. Shine a bright ligh t in heaven lovely lady xxx Mary – you certainly have my permission xx T hank you for creating a place where I had an opportunity to meet someone l ike Liz xx\n\n\n\n Amy: I was so very fond of Liz and my heart is still br oken in two. 😦\n\n\n\n Diane:  I’ve just been reading some of Liz’ s old posts on the site…more tears are flowing but with a big smile on m y face. I forgot just how much of a laugh we had despite the fact we were going through hell…I particularly like the fact that alot of people di dn’t understand Liz and my British sense of humour. It just reminded tha t some great bonds were forged during hours of such need and loneliness\, stress and depression\, and a fight to get heard and a struggle to get dia gnosed.\n\n\n\n Jo: do you remember when her endo put her in the priory\, &\; she met Ronnie Wood ? Liz Thought she looked better than he did.I c ant count how many times K didn’t get his dinner because we were too bus y on the phone.Still cant believe it.\n\n\n\n Sally: I am so sad to read t his. Liz\, myself and a few others had said we needed to get together in B ermuda (half way) when we were all finally healthy to celebrate our 40th b irthdays. I don’t know if any of us managed to hit that milestone health y\, I know I didn’t and I know Liz didn’t. I’m heartbroken\, it’s so very sad.\n\n\n\n betseebee: Such devastating news! Liz’s bio was one of the first I read when I joined the boards. I also distinctly remember her kitty avatar and that I could relate to things in her bio\, like being grateful that my daughter was also not an outward bound type\, which made it a little easier to be at home so much. My most heartfelt condolences t o her beautiful daughter\, Ciara\, as well as the rest of her family.\n\n\ n\n Liz\, may you rest in peace\, and dance among the angels.\n\n\n\n Sher ry: My deepest sympaties go out to her family. This disease is awful\, Liz was a wonderful person\, she and I joined around the same time\, I am ver y sad to hear of this disease taking another precoius life. RIP Liz.\n\n\n \n Diane:  That is so funny Jo\, I did not know that. I think Liz would h ave had no problem looking better than Ronnie!! Have you seen his program on SkyArts right now?!! Sally – I am 40 in June and this has just brough t home to me how precious life is and. Not sure I’ll get to Bermuda\, ma ybe Bognor…!! xx\n\n\n\n Sandra: Sally I remember that convo ! I was one of them then\, and yes I made my 40 th prob the healthiest I’m ever goi ng to b now despite battling fibro still! And diane I knw what u mean abou t the british sense of humour! So not only did we laugh about the joke we cracked up with the fall out of being misunderstood (in a goodway) of cour se! Lol …..I thought about her sooo much yesterday and poor ciara bless her! Just stil can’t beleve it x\n\n\n\n Jean: Im soo sorry to hear abt this \;( Really shows how this disease is serious n deadly\, if not treate d properly or from complications from surgery…my condolences to her fami ly n all who knew her.\n\n\n\n Dave: Liz\, we never got to share that coff ee. You were so helpful to me in researching my various problems and I kno w that there are many many friends who don’t come here any more but we w ill all miss you. Sincere sympathies to all your loved ones.\n\n\n\n Sheil a: A tragic loss at such a young age. Sad to know that death happens with Cushing’s when we are in the year of 2012.  Hopefully more doctors wil l take an interest in this little known disease of Cushing’s Syndrome.\n \n\n\n Tanya: 😦 OMG rest in peace Liz. I’ve heard “I wish cancer w ould get cancer and die.” Well ‘I wish cushing’s would get cushing ’s and die.’\n\n\n\n \n  \n \n DTSTART;VALUE=DATE:20210301 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Cushing Syndrome and COVID-19 DTSTAMP:20210227T092458Z SEQUENCE:0 UID:1631-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n About\n\n\n\n Who Should Attend: Individuals with Cushing’s disease and their caregivers.\n\n\n\n When: Thursday\, March 4\, 2021\, 6 PM\, Eastern\n\n\n\n Where: Virtual presentation via Zoom. C lick the Zoom link for the online event or call one of the phone numbers b elow:\n\n\n\n 833-548-0276 (US Toll-free)\n\n 833-548-0282 (US Toll-free)\ n\n 877-853-5257 (US Toll-free)\n\n 888-475-4499 (US Toll-free)\n\n\n\n Wh ether you log on via computer or telephone\, you will be asked for the mee ting ID and password.\n\n\n\n Meeting ID: 969 3392 7432\n\n Passcode: 9455 90\n\n\n\n Attendees will be muted until the end of the presentation\, at which time we will take questions.\n\n\n\n There is no fee for this event. \n\n\n\n Contact Maggie Bobrowitz with any questions: Margaret.Bobrowitz@ DignityHealth.org or (888) 726-9370.\n DTSTART:20210304T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: COVID-19 Vaccines for Endocrine Patient DTSTAMP:20201220T131503Z SEQUENCE:0 UID:1630-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Dr. Theodore Friedman will host a webin ar on COVID-19 Vaccines for Endocrine Patients\n\n\n\n Dr. Friedman will discuss topics including:\n\n\n\n How do the vaccines work?\n \n \n What did the New England Journal of Medicine article say about the Pfizer vacc ine?\n \n \n What are the different vaccine options?\n \n \n What are th e side effects?\n \n \n Who should and shouldn’t get a vaccine?\n \n \n What about Dr. Friedman’s vaccine studies?\n \n\n Sunday • Decembe r 27 • 6 PM PST\n\n Click here on start your meeting or\nhttps://axisc onciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m5085619c25d8a 2417d9316b56fe7830b\n\n  \n\n OR\n\n Join by phone: (855) 797-9485\n\n   \n\n       Meeting Number (Access Code): 177 542 2496 Your phone/c omputer will be muted on entry. \n\n Slides will be available on the day of the talk here \n\n There will be plenty of time for questions using the chat button. Meeting Password: pcos\n\n For more information\, emai l us at mail@goodhormonehealth.com\n DTSTART:20201228T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Pituitary Support Meeting DTSTAMP:20201111T124324Z SEQUENCE:0 UID:1629-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n From message board member @sharm - Sharmyn McGraw:\n\n\n \n Hi All\, I hope you can join us on Zoom this Saturday\, Nov. 14\, 2020 starting at 9:00 a.m. (PST). For those that can't make it\, I will record the meeting and post it later on our Facebook page. I look forward to seei ng you!\n\n\n\n Contact @sharm if you have questions or email her here:   pituitarybuddy@hotmail.com\n\n\n\n DTSTART:20201114T170000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Recurrent Pituitary Adenomas – What are the optio ns? DTSTAMP:20200928T224055Z SEQUENCE:0 UID:1628-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Presented by\n\n\n\n Dr. Magge\, Assist ant Professor of Neurology at Weill Cornell Medical College and an Assista nt Attending Neurologist at New York-Presbyterian Hospital.\n\n\n\n Dr. Ra nakrishna\, Chief of Neurological Surgery at NewYork-Presbyterian Brookly n Methodist Hospital\, Associate Professor of Neurological Surgery at Avi na and Willis Murphy at Weill Cornell Medicine\n\n\n\n Click here to atten d.\n\n\n\n Date: Tuesday\, October 13\, 2020\n\n\n\n Time: 10:00 AM Easte rn Daylight Time\n\n\n\n Learning objectives:\n\n\n\n -           the basic characteristics of the different types of pituitary adenomas\ n\n\n\n -          the potential predictors of recurrence and agg ressiveness in pituitary adenomas\n\n\n\n -          the surgical and radiotherapy options for recurrent pituitary adenomas\n\n\n\n -           the potential medical interventions\, including chemoth erapy\, for recurrent pituitary adenomas\n DTSTART:20201013T140000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Bettye Jean Douglas ~ September 28\, 2016 DTSTAMP:20200926T135020Z SEQUENCE:0 UID:1627-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Bettye passed away due to complications of Cushing’s di sease.  Once she was finally diagnosed\, a decision was made against surg ery and Bettye was put on the cortisol-lowering medication Korlym.  Thoug h she had initially gained weight from Cushing’s disease\, as many patie nts do\, she rapidly lost weight and was admitted into hospice care soon a fter.\n\n\n\n Read more at https://cushingsbios.com/2017/09/28/in-memory- bettye-jean-douglas-september-28-2016/\n DTSTART;VALUE=DATE:20200928 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Expect more from pituitary surgery: difference-make rs for post-operative outcomes DTSTAMP:20200917T190715Z SEQUENCE:0 UID:1626-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n  Presented by\n\n\n\n \n Ahmad Sedaghat\, MD\, PhD -  Associate Professor and Director of the Division of Rhinology\, Allergy an d Anterior Skull Base Surgery in the Department of Otolaryngology - Head a nd Neck Surgery at the University of Cincinnati College of Medicine and UC Health.\n \n  \n\n \n Norberto Andaluz\, MD\, MBA\, FACS - Professo r of Neurosurgery and Otolaryngology/Head and Neck Surgery - Director\, D ivision of Skull Base Surgery University of Cincinnati College of Medici ne and University of Cincinnati Gardner Neuroscience Institute - UC Health \n \n \n  \n \n\n \n Click here to attend\n \n\n \n Date: Wednesd ay\, Sept 23\, 2020\n \n\n \n Time: 3:00 PM  Eastern Daylight Time\n \n \n \n Learning objectives:\n \n\n\n\n 1.  To understand the surgical st eps of endoscopic pituitary surgery\n\n 2.  To understand how the surgica l steps of endoscopic pituitary surgery translate to post-operative outcom es\n\n 3.  To understand surgical factors that can modify post-operative outcomes after endoscopic pituitary surgery\n\n 4.  To understand post-op erative care that can modify post-operative outcomes after endoscopic pitu itary surgery\n DTSTART:20200923T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Happy Holidays! DTSTAMP:20181222T094536Z SEQUENCE:0 UID:1588-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n  \n\n\n\n http://www.oconnormusic.org/holiday/snow.gif\n \n\n  \n\n\n\n \n DTSTART;VALUE=DATE:20181224 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Growth Hormone Deficiency\, PCOS or Cushing’s: Ho w do You Tell Them Apart? DTSTAMP:20200720T074608Z SEQUENCE:0 UID:1625-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n \nDr. Theodore Friedman (The Wiz) will host a webi nar on Growth Hormone Deficiency\, PCOS or Cushing’s: How do You Tell Them Apart?\n\n\n\n Dr. Friedman will discuss topics including:\n\n\n\n S igns and Symptoms of Cushing’s Syndrome\n \n \n Testing for Cushing’s \n \n \n Signs and Symptoms of Growth Hormone Deficiency\n \n \n Testing for Growth Hormone Deficiency\n \n \n Signs and Symptoms of PCOS\n \n \n Testing for PCOS\n \n \n How do you tell them apart?\n \n\n Sunday • August 2 • 6 PM PDT\n\n Click here on start your meeting or\nhttps://a xisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m4eda0c468 071bd2daf33e6189aca3489\n\n OR\n\n Join by phone: (855) 797-9485\n\n       Meeting Number (Access Code): 133 727 0164 Your phone/comput er will be muted on entry.\n\n Slides will be available on the day of the talk here\n\n There will be plenty of time for questions using the chat button. Meeting Password: pcos\n\n For more information\, email us at  mail@goodhormonehealth.com\n DTSTART:20200803T050000Z END:VEVENT BEGIN:VEVENT SUMMARY:Memorial Sloan Kettering 2020 Update on the Treatment of Pit uitary Tumors DTSTAMP:20200720T001647Z SEQUENCE:0 UID:1624-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n This event has been postponed to Dec. 5 \, 2020\n\n\n\n You are Cordially Invited!\n\n\n\n The PNA is pleased to a nnounce our participation in this event!\n\n\n\n Saturday\, December 5\, 2 020\n\n 8:30am – 4:30pm\n\n Zuckerman Research Center\n\n 417 E. 68th St . New York\, NY\n\n Memorial Sloan Kettering Cancer Center\n\n\n\n Target Audience\n\n\n\n This course is intended for endocrinologists\, neurosurge ons\, otolaryngologists\, radiation oncologists\, neurologists\, ophthalmo logists\, neuro-oncologists\, family medicine and internal medicine physic ians\, physicians in training and other allied health professionals who tr eat and manage patients with pituitary diseases. We also invite patients with pituitary disease and their caregivers to attend this educational act ivity and participate in our interactive afternoon breakout sessions. \n\ n\n\n Overall this course aims to improve patient care and outcomes throug h evidence-based discussion of clinical practice guidelines and emerging therapies. Our goal is to assess and update current practices to promote e arlier diagnosis and treatment of pituitary diseases. The multidisciplina ry nature of the course will allow for the dissemination of knowledge acro ss the variety of practitioners caring for pituitary patients\, and for t he patients themselves.\n\n\n\n Pituitary patients will be able to review treatment options\, learn about ongoing clinical trials\, and discuss thei r comprehensive care with providers and other patients. The educational ob jective of this patient session is to provide a forum for pituitary patien ts to discuss treatment options and new therapies with providers and other patients.\n\n\n\n Patients with pituitary disease and their caregivers ar e invited to attend this educational activity FREE of charge. If you are a patient or caregiver interested in attending\, please email cme@mskcc.o rg to register (registration is required in order to attend).\n\n\n\n Med ical Professionals who wish to attend must register online: \nmskcc.org/P ituitaryCourse\n\n\n\n View Course Flyer\n DTSTART;VALUE=DATE:20201205 END:VEVENT BEGIN:VEVENT SUMMARY:2020 Barrow Pituitary Center Patient Education Day October 2 4\, 2020 DTSTAMP:20200719T193712Z SEQUENCE:0 UID:1623-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n The Barrow Pituitary Center is dedicate d to educating patients\, caregivers\, and loved ones by providing informa tion which is current and non-biased. Experts at this conference will addr ess management of the emotional and physical elements of living with pitui tary disorders. We hope attendees will leave empowered to make better-info rmed decisions about their healthcare and achieve their goals for a long a nd fruitful life.\n\n\n\n In Person and Online Registration Options\n\n\n\ n This conference will be offered in person and through live online format with Zoom. We reserve the right to transition to a solely live online for mat as a result of health concerns as we move into the fall. Participants will be notified if this change develops.\n\n\n\n Register here\n DTSTART;VALUE=DATE:20201024 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: The Current \"State-of-the-Art\" in the Treatment o f Pituitary Disease. DTSTAMP:20200716T130718Z SEQUENCE:0 UID:1622-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Presented by\n\n\n\n Georgios A. Zenonos\, MD\n \n Assistant Professor of Neurological Surgery\n\n Associate Director\, C enter for Skull Base Surgery\n\n University of Pittsburgh Medical Center \n \n\n \n 200 Lothrop Street\, Pittsburgh PA\, 15217\n\n Presbyterian H ospital\, Suite B400\n \n\n \n No Registration is Required.  It will be webcast by Microsoft Teams.\n \n\n \n Click here to attend.\n \n\n\n\n   \n\n\n\n \n Date: Friday\, July 17\, 2020\n \n\n \n Time: 10:00 AM Pacif ic Daylight Time\, 1:00 PM Eastern Daylight Time\n \n DTSTART:20200717T170000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: What every Patient needs to know about Recent Advan cements in Pituitary Surgery DTSTAMP:20200617T140407Z SEQUENCE:0 UID:1621-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Presented by Georgios A. Zenonos\, MD\n\n\n Assist ant Professor of Neurological Surgery\n\n Associate Director\, Center for Skull Base Surgery\n\n University of Pittsburgh Medical Center\n\n\n 200 Lothrop Street\, Pittsburgh PA\, 15217\n\n Presbyterian Hospital\, Suite B400\n\n\n Register Now! \n\n\n\n  \n\n\n\n \n\n After registering you will receive a confirmation email containing information about joining the Webinar. \n\n\n\n Date: Wednesday July 1\, 2020\n\n\n Time: 3:00 PM Pac ific Daylight Time\, 6:00 PM Eastern Daylight Time\n DTSTART:20200701T220000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Sherry Carlson ~ May 30\, 2020 DTSTAMP:20200531T113442Z SEQUENCE:0 UID:1620-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n  \n\n\n\n \n\n\n\n Sherry passed away this afternoon\, n aturally and peacefully in her sleep.\n\n\n\n She loved her community and we know how grateful she was to every one of her friends on here for the g enuine love and support she’s received over the years.\n\n\n\n We (her f amily) are processing\, but will share details about her celebration of li fe when we’ve worked it out.\n\n\n\n Sherry's bio:\n\n\n\n I have been v ery ill for many years now\, since 1999 that I know of. But it had always come and gone\, until 2004 when it decided to stay. At first it was a myst ery as to what was wrong. I was seeing a psychiatrist that felt very stron g that what I was dealing with was endocrine related. He mentioned a few t hings that it could be and one was Cushing’s\, so I looked it up on the internet and sure enough I had many of the symptoms of Cushing’s disease \, moon face\, buffalo hump\, weight gain\, big round belly\, red face\, v ery ruddy complexion\, acne\, nausea\, depression\, fatigue\, hirsutism\, depression\, anxiety\, hypertension\, unusual bruising\, and highs and low s of energy.\n\n\n\n I found this support group on the internet at Cushing s-help.com and they helped me find Dr.William Ludlam at OHSU. He told me I had a suddle case of Cushing’s and had a pituitary tumor on the right s ide displacing the pituitary to the left. Although Dr.Ludlam originally sa w tumors on both sides\, I had a pituitary tumor that seemed to be cyclic. When it turned on I had major Cortisol energy\, when it turned off I got very achy\, nausea\, and very tired. In March of 2006 I was officially dia gnosed after 1 long year of testing\, and went on to have my first unsucce ssful Transphenoidal pituitary surgery 3/23/2006 with Dr. Johnny Delashaw at OHSU. I had a second unsuccessful pituitary surgery 10/12/06 and finall y a BLA 11/7/06.\n\n\n\n I am now cured of Cushing’s disease 2 1/2 years out from my BLA and I am still very sick\, I traded Cushing’s disease f or Addison’s disease\, and my body does not like it. Cushing’s did a l ot more damage than ever thought\; I have permanent nerve damage to my low er back\, damage to soft tissues throughout my body\, Diabetes\, High lipi ds\, Fatty liver\, I have no usable veins\, I have permanent port-a-cath i n now so they can access my veins for blood draws and any IV stuff I may n eed in emergency’s. I had my period for 1 year straight so I had a full hysterectomy 8/20/08. I am permanently panhypopituitary now\, no working h ormones any more. I am on all replacement hormones\, except DDAVP. I ended up with a new doctor that gave me a severe case of steroid induced Cushin g’s. I am still dealing with this aftermath\; the details are in my time line. My timeline will update you as to where I am at now. I will try to k eep the timeline updated so you know where I am at as far as getting bette r.\n\n\n\n Please don’t let this scare you\, most people are cured and g o on to live lives as best they can\, and a lot of people are doing very w ell. Towards the end of my Cushing’s I went full blown\, Dr.Ludlam told me this was a progressive disease and in me this was the case.\n\n\n\n So if you believe you have Cushing’s\, get to a specialist that knows Cushi ng’s disease\, don’t waste time on doctors that do not know the diseas e\, it is so worth it in the end to get to the right doctor. This disease is one of the hardest endocrine diseases to diagnose. Cushings_help.com/ f ounder MaryO has been a lifesaver for me and still is\, I have met people from all over the country\, over the years I have made many friends that h ave\, had or are still in the diagnostic phase.\n\n\n\n I live in a small town of around 10\,000 people and I hear all the time\, oh I know so and s o that had or has a pituitary tumor. What I am finding out is there are a lot of people in this town that have this disease\, it is suppose to be ra re\, one in a million\, my next goal is to get my story out and have local people contact me\, then start a support group. Maybe get some accurate n umbers of actual pituitary/brain tumors and find out why this is happening in this small town. It will be a big adventure but if it saved even one l ife it will be worth it. I know of 3 definite pituitary Cushing’s cases so far.\n\n\n\n My Timeline of illness to diagnosis\n\n\n\n 3rd pregnancy 1994 pre-term labor again\, stopped\, gestational diabetes\, son born 3 we eks early and I got toxemia after my son was born\, was told this is very rare. I should have known RARE would be a word I would hear a lot in my fu ture.\n\n\n\n 1995-Left breast discharge\, surgical biopsy done\, lump rem oval of marble size\, this should have signaled a full hormonal work-up\, but didn’t. No cancer.\n\n\n\n 1997-1999 Depression and severe anxiety w ith panic attacks…Diagnosis of Fibromyalgia. Weight 130#\n\n\n\n 1999- F irst occurrence of unknown mystery illness. Hypertension\, fatigue\, flush ing\, swelling of face\, hives\, and much more that lasted several months. Sick on and off with mystery illness. Tumor was turning on and off.\n\n\n \n April 1999-2004-Severe nausea and vomiting\, extreme fatigue\, weight g ain of 50# in about 1 years time\, headaches\, dizziness\, hypertension\, tachycardia\, muscle and bone pain\, malor rash\, other rashes\, IBS\, occ asional unexplained low grade fevers\, anxiety and depression much worse\, increased hirsutism\, almost constant mouth sores\, memory loss\, cogniti ve difficulties\, loss of coordination\, syncope\, excessive energy spurts \, insomnia.\n\n\n\n **Off work for 3 months April-June due to symptoms… Saw PCP\, Gastroenterologist\, Rheumatologist and Cardiologist… diagnosi s Peptic ulcer/Chronis Gastritis and Chronic pain Syndrome and Tachycardia /Hypertension. Abdominal/Pelvic Cat scan done and fatty liver noted. High Cholesterol and Triglycerides discovered.\n\n\n\n Nov-2004 My Psychiatrist was the first to mention Cushing’s or a Pheochromocytoma\; he felt all my symptoms where due to endocrinology. He did not want to see me again un til I was seen at OHSU. I have never seen him again due to insurance chang e. I really need to thank him.\n\n\n\n Dec-2004 10# weight gain in 1 week with severe abdominal distention….another Cat scan done\, lymph nodes ar ound vena cava where enlarged.\n\n\n\n Jan-2005 Went to OHSU for diagnosis ….First saw an endocrinologist that was not experienced with Cushing’s \, she ordered 1 UFC and 2 midnight saliva tests\, and told me to test whe n I felt my worst\; Tests where low so she felt my symptoms where not due to my endocrine system. Boy was she wrong. I needed to test when I felt go od\, or high.\n\n\n\n Feb-2005 Went to the Pituitary Unit at OHSU and saw Dr.Ludlam\, he believed that I had Cushing’s but we needed to prove it. MRI saw adenoma on right side displacing pituitary to the left. He origina lly thought he saw tumors on both sides\, he was right. Lot’s of testing done. Testing did not prove it yet. Dr believes I am Cyclic. It took 1 ye ar for diagnoses from Dr.Ludlam.\n\n\n\n April-2005 Peripheral vision test done by local optometrist\, showed some peripheral loss in left eye.\n\n\ n\n May 2005-Lot’s more Cushing’s testing\, PICC line in all month. Ma jor dizziness\, passed out and fell this month. Diagnosed with Type 2 Diab etes but cannot treat due to extreme highs and lows\, trying to control gl ucose with diet. I have very high and low Cortisol days. I am very cyclic at this point.\n\n\n\n June/July 2005-Three TIA like event’s… left sid ed weakness and numbness. Saw Neurologist that sent me to Neurologist at O HSU. Found three new white matter lesions seen on my brain MRI. Unknown ca use. 5 in all now.\n\n\n\n August 2005-Had to leave my beloved job teachin g Medical Assistants due to symptoms. I had one more TIA like event.\n\n\n \n Sep-2005 Neurologist at OHSU ran several tests and came to the conclusi on that if in fact we could prove Cushing’s\, all of my symptoms where d ue to this disease. I stopped all medications by choice.\n\n\n\n Nov-2005 I went back for extensive testing at OHSU with Dr.Ludlam and sure enough t he numbers started proving my case. Very high midnight serum Cortisol’s among other high tests.\n\n\n\n Jan/Feb 2006-PICC line in and extensive Cu shing’s testing done with CSS in Feb. CSS showed left sided gradient str ongly. Cortisol numbers have proven my case\, finally…. I had a midnight serum Cortisol of 34.1\, the Midnight Salivaries\, Midnight Serum Cortiso l\, UFC’s and CSS all positive for Cushing’s disease.\n\n\n\n March 23 \, 2006 I finally had Pituitary surgery at OHSU\, they found the tumor on the left side bigger than originally though and removed the whole left hal f of my Pituitary gland. I was in the hospital for 6-days due to complicat ions of Diabetes Insipitus and Adrenal Insuffiency.\n\n\n\n April-2006 See n in the ER 3 times. Hospitalized for 4 days again due to complications\, Blood cultures showed infection. I am on very high doses of Hydrocortisone and also taking DDAVP for the Diabetes Insipitus.\n\n\n\n April 2006- I a m finally getting better somewhat…..This has been one heck of a roller c oaster ride. I am now on Hydrocortisone 40/40/30. I am told we won’t kno w if I am cured for 3-6 month’s.\n\n\n\n June 5\, 2006- Off Hydrocortiso ne stimulated my Cortisol to 24 on the ACTH stim test.\n\n\n\n August\, 20 06- Not cured\, testing again!!! I had that gut feeling when I woke from t he first surgery. I just knew…\n\n\n\n October 12\, 2006- Second Pituita ry surgery\, more tumor on right side\, most of my pituitary gland removed . Surgery unsuccessful\, still have Cushing’s disease.\n\n\n\n November 7\, 2006- BLA ...soon to be cured of Cushing's.\n\n\n\n Dec 2006/Jan 2007- Very sick due to another blood infection. Lot’s of adrenal crises due t o infections. 3 blood infections to date.\n\n\n\n November 2008- 2 years o ut from my BLA and I am still very sick\, I traded Cushing’s disease for Addison’s disease\, and my body does not like it. Towards the end of my Cushing’s I went full blown\, Dr.Ludlam told me this was a progressive disease and in me this was the case. Cushing’s did a lot more damage tha n ever thought\; I have permanent nerve damage to my lower back requiring permanent narcotic pain relief through a pain center\, damage to soft tiss ues throughout my body\, diabetes\, high lipids\, fatty liver (NASH)\, Ost eopenia\, I have no usable veins\, they are destroyed due to the high Cort isol\, I have permanent port-a-cath in now so they can access my veins for blood draws and any IV stuff I may need\, I had my period for 1 year stra ight because of lack of appropriate hormones after my surgeries so I had a full hysterectomy 8/20/08. I am permanently panhypopituitary now\, no wor king pituitary hormones any more at all. I must replace all pituitary horm ones\, except DDAVP. Please don’t let this scare you\, most people are c ured and go on to live lives as best they can\, and a lot of people are do ing very well.\n\n\n\n June 21\, 2009-Since writing in November I sat on t he couch in severe AI until around September when I was put with a doctor that has been seeing Cushing’s patients for 38 years\, he put me a on a very high dose of Dexamthasone and Florinef and forgot about me\, he ended up with cancer and is no longer seeing patients. In the meantime\, I got severe steroid induced Cushing’s and have had severe complications from it. I started falling from atrophied muscles and broke both hips\, I ended up in a wheelchair\, which I am happy to say I am out of now\, had to hav e surgery on my left hip to pin it\, it is still not healing\, I am having absorption issues with calcium\, iron\, vitamins\, minerals and meds. So I have to do my DEX by injections. We are now trying to find out why I am having absorption issues. I have a new endo at OHSU Dr.V and he is wonderf ul. He has brought my steroids down to a safe level and did it slow. He re ally seems to know his stuff as far as after care. I do not think he does the diagnosis process for Cushing’s. I would definitely go back to Dr.Lu dlam if I had to go through it again. But I know there are many other grea t Cushing’s experts out there\, this was just my experience. I know I wi ll get better\, but it may be a while. I am still at home handicapped\, ca n barely go to the grocery store and I do not drive as I am on a high dose of Morphine. My goal is to get my pain under a 5 and be able to drive mys elf around. That is a good goal for now. Then on to finding out why my sma ll town has so many tumors and starting a support group. I just need to ge t to a point where I feel I can be a good advocate for Cushing’s and rig ht now I can’t. But that is the goal.\n\n\n\n Nov 16\, 2009\n\n\n\n I am still not well\, I have broken my ankle\, have no idea how\, woke up one morning and it was broken. I am almost down to my 1/2 mg of DEX and am hap py about that. had 2 surgeries in Sep and Oct on both elbows for ulnar ner ve decompression. The first surgery got infected and a week later I had se psis\, which they think I had a small bowel preferation that healed itself . I was ambulanced up to OHSU and was in AI. It was a very rare bowel bact eria running through my blood stream\, I was very sick. I just want to get well\, but for some reason I am going through one thing after another. I am praying that 2010 will be my year of healing and I will have a good qua ility of life then.That is what I am counting on.\n\n\n\n UPDATE January 2 3\, 2016\n\n\n\n 2016: wow has the past few years have been a roller coast er. I don't know dates because I'm having memory issues at 47 years old.\n \n\n\n I have had 5 port-a-caths. I kept getting sepsis and every time the y would take me to surgery and remove my port. Then place another when I w as better. I have no veins that work. So I received IV port fluids 2-3x a week. I just recently had sepsis\, when I get it I have a 50/50 % chance o f survival. They removed my port and did not place another. So no more flu ids which was for Pots. I had labs done through my port every 2 weeks. Now everything stopped. I am producing small amounts of cortisol. After a BLA .\n\n\n\n Intermittently. I am just now starting to feel good for 2 weeks now. I have started the exercise program called T-Tapp. I love it. No jump ing or hard moves. 15 min and that's it. I am a grandma of 2 and one due a ny day.\n\n\n\n So for now I hope I'm on the road to recovery at least the best I can.\n\n\n\n HOME | Sitemap | Abbreviations | Adrenal Crisis! | Gl ossary | Forums | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki\n DTSTART;VALUE=DATE:20200530 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Pituitary Surgery During the COVID-19 Pandemic DTSTAMP:20200505T214856Z SEQUENCE:0 UID:1618-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Presented by\n\n\n\n \nJamie J. Van Gom pel\, M.D.\, B.S.\, Professor in Neurosurgery and Otolaryngology specializ ing in endoscopic/open skull base focusing on Pituitary tumors as well as Epilepsy at the Mayo Clinic in Rochester\, Minnesota\, USA\n\n\n and\n\n Garret W. Choby\, M.D.\, a fellowship-trained rhinologist and endoscopic s kull base surgeon practicing at the Mayo Clinic.\n\n\n Objectives:\n\n\n\ n \n\n -          Understand the additional considerations that are key to performing endonasal surgery during the COVID pandemic\n\n -           Identify the practice changes that are allowing pituit ary surgery to proceed safely\n\n -          Characterize the na sal cavity and nasopharynx as a reservoir for the coronavirus\n\n -           Identify the risk of undergoing pituitary surgery duri ng the Covid -19 pandemic\n\n\n\n \n\n\nRegister Now! \n\n\n\n  \n\n\n\n \n\n After registering you will receive a confirmation email containing i nformation about joining the Webinar. \n\n\n\n\n Date: Monday\, May 11\, 2020\n\n\n Time: 4:00 PM Pacific Daylight Time  - 5:15 PM Pacific Dayligh t Time\n DTSTART:20200512T000000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: The Implications of COVID-19 on Patients with Endoc rine Disorders DTSTAMP:20200505T114701Z SEQUENCE:0 UID:1617-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Presented by\n\n\n\n Nelson M. Oyesiku\ , MD\, PhD\, FACS\n\n Professor of Neurosurgery and Medicine\n\n Vice-Chai rman\, Neurosurgery Residency Program Director\n\n Emory University School of Medicine\n\n\n\n Register Now!\n\n\n\n After registering you will rece ive a confirmation email containing information about joining the Webinar. \n\n\n\n  \n\n\n\n Date: Sunday\, May 10\, 2020\n\n\n\n Time: 11:00 AM Pa cific Daylight Time to 12:15 PM Pacific Daylight Time/ 2:00 PM - 3:15 PM E astern Daylight Time\n DTSTART:20200510T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Dr. Theodore Friedman on \"How to improve quality o f life for those with no adrenals (BLA and Addison’s)\" DTSTAMP:20200504T065248Z SEQUENCE:0 UID:1616-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Dr. Friedman will discuss topics includ ing:\n\n\n\n Who should get an adrenalectomy?\n \n \n How do you optimal ly replace adrenal hormones?\n \n \n What laboratory tests are needed to monitor replacement?\n \n \n When and how do you stress dose?\n \n \n Wh at about subcut cortisol versus cortisol pumps?\n \n \n Patient Melissa w ill lead a Q and A\n \n\n Sunday • May 17 • 6 PM PST\n\n Click here o n start your meeting or\nhttps://axisconciergemeetings.webex.com/axiscon ciergemeetings/j.php?MTID=mb896b9ec88bc4e1163cf4194c55b248f\n\n\n\n OR\n\n Join by phone: (855) 797-9485\n\n\n\n \n       Meeting Number (Acce ss Code): 802 841 537 Your phone/computer will be muted on entry.\n\n Sl ides will be available on the day of the talk here\n\n There will be plen ty of time for questions using the chat button. Meeting Password: addi son\n\n For more information\, email us at mail@goodhormonehealth.com\n DTSTART:20200518T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Dr. Theodore Friedman will host an important webina r on Coronavirus DTSTAMP:20200328T000143Z SEQUENCE:0 UID:1615-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Dr. Theodore Friedman will host an important webin ar on Coronavirus Information for Endocrine Patients\n\n\n\n Many patients have asked Dr. Friedman what do during the Coronavirus Pandemic. He will give candid answers from his view as an Endocrinologist. He will also talk about new telehealth opportunities for his patients.\n\n\n\n Sunday • A pril 5 • 6 PM PST\n\n Click here on start your meeting or\nhttps://axisc onciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m505da5a10afe3 aeea456e162414c17b9\n\n\n\n OR\n\n Join by phone: (855) 797-9485\n\n\n\n M eeting Number (Access Code): 807 657 124\n\n Your phone/computer will be m uted on entry.\n\n Slides will be available on the day of the talk here\n\ n There will be plenty of time for questions using the chat button.\n\n\n\ n Meeting Password: hormones\n\n For more information\, email us at mail@g oodhormonehealth.com\n DTSTART:20200406T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:2020 Barrow Pituitary Center Patient Education Day DTSTAMP:20200209T144730Z SEQUENCE:0 UID:1614-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n The Barrow Pituitary Center is dedicated to educating pat ients\, caregivers\, and loved ones by providing information which is curr ent and non-biased. Experts at this conference will address management of the emotional and physical elements of living with pituitary disorders. We hope attendees will leave empowered to make better informed decisions abo ut their healthcare and achieve their goals for a long and fruitful life.\ n\n\n\n Saturday\, March 14\, 2020\n\n 8:00 a.m. to 4:00 p.m.\n\n $30 per person\n\n\n\n To register call 1 (877) 728-5414 or visit us at https://w ww.barrowneuro.org/outreach/pituitary-center-patient-education-day/\n\n\n\ n For additional information contact Maggie Bobrowitz\, RN\, MBA at (602) 406.7585 or margaret.bobrowitz@ dignityhealth.org\n\n\n\n Agenda\n\n\n\ n  \n\n\n\n 7:00 am\n \n \n Registration &\; Refreshments\n \n \n  \n \n \n 8:00 am\n \n \n Welcome\n \n \n Maggie Bobrowitz\, RN\, MBA\n \n \n 8:05 am\n \n \n 3D Anat omy of The Pituitary Gland\n \n \n Andrew Little\, MD\n \n \n 8:15 am\n \n \n New Medicines on The Horizon\n \n \n Kevin Yuen\, MD\n \n \n 9:00 am\n \n \n Nutrition Impact on Managin g Pituitary Disorders\n \n \n Lee Renda\, RD\n \n \n 9:30 am\ n \n \n Break\n \n \n  \n \n \n 9:45 am\n \n \n Emotional and Mental Health for Pituitary Patients and Their Families\n \n \n Linda Rio\, MA\, MFT\n \n \n 10:45 am\n \n \n F ertility in The Pituitary Patient\n \n \n Ketan Patel\, MD\n \n \n 11:15 am\n \n \n Q &\; A Panel Morning Speakers\n \n \ n  \n \n \n 11:45 am\n \n \n Lunch\n \n \n  \n \n \n 12:45 pm\n \n \n Intimacy and Other Forgotten Fun\n \n \n Dawn Herring\, LMFT\n \n \n 1:30 pm\n \n \n Creating Your Image of Healing\n \n \n Debbie Harbinson\, MHI\, RN\n \n \ n 2:30 pm\n \n \n Break\n \n \n  \n \n \n 2:40 pm\ n \n \n Breakout sessions:\n \n \n  \n \n \n  \n \ n \n LMFT Men’s Group – Telepresence Room\n \n \n Dawn Her ring\, LMFT\n \n \n  \n \n \n Women’s Group – Sonntag Pa vilion\n \n \n Linda Rio\, M.A\, MFT\n \n \n  \n \n \n Caregiver’s Group – Goldman Auditorium\n \n \n Debbie Harbins on\, MHI\, RN\n \n \n 3:40 pm\n \n \n Raffle Drawing – Exhi bitor Table Bingo Game\n \n \n Maggie Bobrowitz\, RN\, MBA\n \n \n 3:45 pm\n \n \n Adjourn\n \n \n  \n \n \n  \n DTSTART;VALUE=DATE:20200314 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Perioperative Care for the Pituitary Patient: Optim izing the Surgical Experience DTSTAMP:20200208T145922Z SEQUENCE:0 UID:1613-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Varun Kshettry\, MD\n\n Director\, A dvanced Endoscopic &\; Microscopic Neurosurgery\n\n Cleveland Clinic Le rner College of Medicine\n\n\n\n Register Now\n\n\n\n After registering yo u will receive a confirmation email with details about joining the webinar .\n\n\n\n  \n\n\n\n Date: Tuesday\, February 18\, 2020 \n\n Time: 10:00 AM - 11:00 AM Pacific Standard Time\, 1:00 PM - 2:00 PM Eastern Standard Time\n\n\n\n Learning Objectives:\n\n\n\n Discuss patient expectations for pituitary surgery and recovery\n\n Discuss best practices to minimize ris k of complications\n\n What questions to ask your medical providers\n\n\n\ n Presenter Bio\n\n\n\n Dr. Varun R. Kshettry\, a neurosurgeon specializin g in skull base and pituitary disorders at the Cleveland Clinic. He is als o the director of the Advanced Endoscopic &\; Microscopic Neurosurgery Laboratory. He is an assistant professor of neurosurgery at Cleveland Clin ic Lerner College of Medicine of Case Western Reserve University. Dr. Kshe ttry received his BA in philosophy at the University of Pennsylvania. He e arned his medical degree from Northwestern University. He completed his re sidency training at the Cleveland Clinic\, during which he performed a res earch fellowship in skull base &\; microsurgical anatomy at Ohio State University. He then performed a clinical fellowship in minimally invasive cranial base &\; pituitary surgery at Thomas Jefferson University under Dr. James Evans. Dr. Kshettry has authored more than 100 peer-reviewed pu blications and book chapters and is an editor for a book entitled Endoscop ic and Keyhole Cranial Base Surgery. He serves as an editor or reviewer fo r multiple neurosurgical journals. He serves on the Value-Based Healthcare Committee for the North American Skull Base Society. He serves as faculty director for the Cleveland Clinic Pituitary Tumor Board and is an investi gator in several multi-center pituitary clinical trials. Dr. Kshettry coll aborates closely with pituitary endocrinologists\, neuro-ophthalmologists\ , otolaryngologists\, pituitary pathologists\, and radiation oncologists f or multi-disciplinary care for patients with pituitary diseases.\n DTSTART:20200218T180000Z DTEND:20200218T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Lori Holt DTSTAMP:20190104T144116Z SEQUENCE:0 UID:1589-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n During the first few days of September 2007\, Lori had su rgery to remove her adrenal gland.\n\n She experienced extreme difficulty post surgery and never recovered.\n\n\n\n Read more at https://cushingsbi os.com/2015/01/06/in-memory-lori-holt/\n DTSTART;VALUE=DATE:20190106 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Malia Kenney DTSTAMP:20200103T142902Z SEQUENCE:0 UID:1612-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Malia died today\, January 4\, 2017 at the age of 40.   She had been dealing with Cushing's Disease for the past 18 years or s o.\n\n\n\n Read more at https://cushingsbios.com/2017/01/04/in-memory-of- malia-kenney-january-4-2017/\n DTSTART;VALUE=DATE:20200104 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Management of Recurrent Pituitary Tumors DTSTAMP:20200103T142212Z SEQUENCE:0 UID:1611-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Wed\, Jan 8\, 2020\, from 4:00 PM - 5:00 PM EST\n\n\n\n P resented by Paul Gardner\, MD Associate Professor of Neurological Surgery Neurosurgical Director\, Center for Cranial Base Surgery Executive Vice Ch airman for Surgical Services University Pittsburgh Medical Center (UPMC)\n \n\n\n Learning Objectives: Upon completion of this webinar\, participants should be able to: Recognize the role for surgery in treating recurrent a denomas Understand the risk and role of radiosurgery for treatment of recu rrent Identify treatment indications for recurrent adenomas.\n\n\n\n Prese nter Bio Paul A. Gardner\, MD\, is an Associate Professor in the Departmen t of Neurological Surgery at the University of Pittsburgh School of Medici ne and Neurosurgical Director of the Center for Cranial Base Surgery as we ll as Executive Vice Chairman for Surgical Services for the Department of Neurological Surgery at the University of Pittsburgh Medical Center (UPMC) .\n\n\n\n Dr. Gardner joined the faculty of the Department of Neurological Surgery at the University of Pittsburgh School of Medicine in 2008 after completing his residency and fellowship training at the University of Pitt sburgh. He completed his undergraduate studies at Florida State University \, majoring in biochemistry\, and received his Medical Degree from the Uni versity of Pittsburgh School of Medicine.\n\n\n\n Dr. Gardner completed a two-year fellowship in endoscopic endonasal pituitary and endoscopic and o pen skull base surgery at the University of Pittsburgh Medical Center. His research has focused on evaluating patient outcomes following these surge ries and more recently on molecular phenotyping of rare tumors. He is reco gnized internationally as a leader in the field of endoscopic endonasal su rgery\, a minimally invasive surgical approach to the skull base. His othe r surgical interests include pituitary tumors\, open cranial base surgery\ , and vascular surgery.\n\n\n\n Register here\n DTSTART:20200108T210000Z DTEND:20200108T220000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Judy Kennedy - December 15\, 2019 DTSTAMP:20191216T002429Z SEQUENCE:0 UID:1610-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Judy died on December 15\, 2019\, after battling lung can cer\, Atrial fibrillation\, and total body weakness.  She was a great war rior for her children.\n\n\n\n More information at https://cushingsbios.c om/2019/12/15/in-memory-judy-kennedy-december-15-2019/\n DTSTART;VALUE=DATE:20191215 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:awareness DTSTAMP:20191209T150634Z SEQUENCE:0 UID:1609-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="NotSoCushie":admin@cushings.invisionzone.com DESCRIPTION:\n On December 12th\, I am speaking at a sold-out event. I a m telling half a funny story and posting it on YouTube. If people want to hear the rest they have to visit my website which is all about Cushing's. Everyday\, I see people with Cushing's that don't know they have it. I wan t to reach these people and the general public to make them aware of our d isease. I need a title for this video and am looking for your suggestions. The story is similar to the Abbott and Costello routine of Who's on first and What's on second. So far\, I thought of: Is it obesity or Cushing's D isease? What would you suggest as an attention getter? When I post this v ideo\, I need your support to view it and go to my website to hear the res t of the story. If you could share the video and ask family and friends to do the same I would appreciate that. Wouldn't it be great if this went vi ral. So many people would learn about Cushings. WE can make this happen if we involve enough people. Lets go for it. Thanks again. Looking forward t o those new titles..   \n DTSTART:20191209T050000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Experimental Treatments for Aggressive Pituitary Tu mors DTSTAMP:20190911T112712Z SEQUENCE:0 UID:1608-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Andrew Lin\, MD\n\n Neuro-Oncologist &\; Neurologist\n\n Memorial Sloak Kettering Cancer Center\n\n  \n\n\ n\n \n\n\n\n \n\n After registering you will receive a confirmation email with details about joining the webinar.\n\n\n\n Contact us at webinar@pit uitary.org with any questions or suggestions.\n\n  \n\n\n\n Date: Septem ber 18\, 2019 \n\n Time: 10:00 AM - 11:00 AM. Pacific Daylight Time\, 1:0 0 PM - 2:00 PM Eastern Daylight Time\n\n\n\n Learning Objectives:\n\n\n\n During the conversation I will be:\n\n 1) Defining aggressive pituitary tu mors.\n\n 2) Reviewing the current treatment options for aggressive pituit ary tumors.\n\n 3) Discussing experimental treatment options including a p hase II trial investigating the activity of the immunotherapies nivolumab and ipilimumab.\n\n\n\n Presenter Biography:\n\n\n\n I am a neuro-oncologi st at Memorial Sloan Kettering Cancer Center (MSK) and a member of the Mul tidisciplinary Pituitary &\; Skull Base Tumor Center. In collaboration with my colleagues in endocrine\, neurosurgery\, and radiation oncology\, I treat patients with aggressive pituitary tumors\, who are resistant to c onventional treatments (i.e. surgery and radiation)\, with chemotherapy. W ith my colleagues at MSK\, I have published several research articles on p ituitary tumors and opened several clinical trials.\n DTSTART:20190918T170000Z DTEND:20190918T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Jessica Lee Pierson\, August 29\, 2018 DTSTAMP:20190814T103811Z SEQUENCE:0 UID:1607-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n Jessica Lee Pierson\, 35\, of Harrisonburg passed aw ay Wednesday\, August 29\, 2018 from complications of Addison’s disease. \n\n\n\n Jess was born in Fredericksburg on June 27\, 1983\, to Janet Pier son and her late husband\, Charles Parke Pierson. Jess attended James Monr oe High School where she was a stellar athlete and honor scholar. After gr aduating from James Madison University\, she spent two years on the missio n field in Peru\, sharing her love for the Lord. Residing in Harrisonburg\ , Jessica excelled at her job as a social worker for Rockingham County and nurtured her clients with compassion\, respect\, and gentleness. She was an active member of Covenant Presbyterian Church\, continually embraced by her family of faith who journeyed with her since her days as a college st udent.\n\n\n\n Jess had a beautiful smile\, and a sweet and simple demeano r that won the hearts of many\, who even now are being inspired by her wit ness of faith. She was utterly devoted to and dearly loved by her close-kn it family.\n\n\n\n Survivors include her mother\, Jan Pierson and husband Frank Graebner\; brothers Daniel Pierson (Anne) and Christopher Pierson (E lissa)\; and sister Emily Moore (Michael). Her signature gift of loving th oughtfulness\, especially in her role as “Tia” to her beloved niece an d nephews\, Mary Claire\, Lukas\, Nicholas\, and Parke\, overflowed throug h her kindheartedness\, unselfishness\, and generosity\, and will never be forgotten.\n\n\n\n Interment will be held at 10 a.m. on Saturday\, Septem ber 1 at Oak Hill Cemetery. A service to celebrate her life will follow at 11 a.m. at Fredericksburg Baptist Church.\n\n\n\n In lieu of flowers\, me morials may be made to Missions Ministry of Covenant Presbyterian Church\, 32 Southgate Court\, Harrisonburg\, VA 22801 or Fredericksburg Baptist Ch urch.\n\n\n\n From https://www.covenantfuneralservice.com/obituary?id=319 105\n DTSTART;VALUE=DATE:20190829 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Update on the Management of Cushing's Disease DTSTAMP:20190814T102616Z SEQUENCE:0 UID:1606-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Nathan T Zwagerman MD\n\n Director o f Pituitary and Skull base surgery\n\n Department of Neurosurgery\n\n Medi cal College of Wisconsin\n\n  \n\n\n\n \n\n\n\n \n\n After registering yo u will receive a confirmation email with details about joining the webinar . \n\n\n\n Date: Wednesday\, August 21\, 2019\n\n\n Time: 10:00 AM - 11:0 0 AM Pacific Daylight Time 1:00 PM - 2:00 PM Eastern Daylight Time\n\n\n\n \n\n Webinar Description:\n\n\n\n Learning Objectives:\n\n\n\n Describe the signs and symptoms of Cushing's Disease\n \n \n Describe the work up for patients with Cushing's Disease\n \n \n Understand the goals\, risks\ , and expected outcomes for treatment\n \n \n Describe alternative treatm ents when surgery is not curative.\n \n\n Presenter Bio:\n\n\n\n Dr. Zwage rman is a Professor of Neurosurgery at the Medical College of Wisconsin. H e did his undergraduate work in psychology at Calvin College in Grand Rapi ds\, Michigan. He earned his medical degree at Wayne State University in D etroit. He did his fellowship in endoscopic and open cranial base surgery\ , and then his residency in neurological surgery at the University of Pitt sburgh Medical Center.\n DTSTART:20190821T170000Z END:VEVENT BEGIN:VEVENT SUMMARY:Ohio State Pituitary Patient Symposium 2019 DTSTAMP:20190731T232442Z SEQUENCE:0 UID:1605-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n  \n\n\n\n **REGISTER NOW!**\n\n\n\n \n Saturday\, Sept 14\, 2019\n \n\n \n 7:30am – 4:00pm\n \n\n \n Please join the Pituitary Network Association and The Ohio State University for a Pituitary Patient Symposium featuring a series of pituitary and hormonal patient education sessions presented by some of the top physicians of pit uitary and hormonal medicine. The symposium faculty will share the most up -to-date information and be available to answer your most pressing questio ns.\n \n\n \n Keynote Speaker: Maria Fleseriu\, MD FACE\n \n\n \n **We a re offering a limited number of registration only scholarships. Register t oday to claim your scholarship!**\n \n\n \n Please email carol@pituitary .org to register!\n \n\n \n *This registration is for the Patient Sympos ium only. The Ohio State University is offering a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu\n\n OSU Pituitary Symposium Agenda\n\n Saturday\, Sept. 14\, 2019\n\n Patie nt and Family Track\n\n Gabbe Conference Room – James L045\n \n\n \n  \n \n\n \n 7:30 AM\n \n \n Registration and Breakfast\n \n \n 8:00 AM\n \n \n Welcoming Remarks and Introductions : The OSU Skull Base and Pituitary Team\n \n \n 8:05 AM\n \n \n Trans-sphenoidal Approach: What to Expect? Post-Operative Complic ations\n \n \n  \n \n \n Richard Carrau\, MD Professor Department of Otolaryngology OSUCCC - James\n \n \n 8:30 AM\n \n \n Radiation Therapy? Difference Between Modalities and Possibl e Risks\n \n \n  \n \n \n Dukagjin M Blakaj\, MD\, PhD \n \n \n  \n \n \n OSUCCC - James\n \n \n 9:0 0 AM\n \n \n What Are The Challenges Our Patients Face\, and How Can We Help?\n \n \n  \n \n \n Kami Perdue\, PA-C\n \n \n  \n \n \n OSUCCC - James\n \n \n 9:30 AM \n \n \n Round Table Q &\; A\n \n \n 9:45 AM\n \n \n Mid-Morning Break and Visit Vendors\n \n \n 10:00 AM\n \n \n Acromegaly: Why it Takes That Long to Diagnose? What are the Options?\n \n \n  \n \n \n Lawrence Kirschner\, MD \, PhD  Professor Division of Endocrinology\, Diabetes\, and Metabolism\n \n \n  \n \n \n OSUCCC - James\n \n \n 10:30 AM\n \n \n Growth Hormone Deficiency: Beyond Growth\n \n \ n  \n \n \n Rohan Henry\, MD Pediatric Endocrinologist\n \n \n  \n \n \n Nationwide Children's Hospital\n \n \n 11:00 AM\n \n \n Hypopituitarism: Pitfalls and Recommend ations\n \n \n  \n \n \n Maria Fleseriu\, MD\, FACE\n \n \n  \n \n \n Oregon Health and Science University - Keynote Speaker\n \n \n 11:30 AM\n \n \n Round Table Q &\; A\n \n \n 11:45 AM\n \n \n Lunch Break and Pati ent's Journey\n \n \n 12:45 PM\n \n \n Pituitary Trivia \n \n \n  \n \n \n Luma Ghalib\, MD Assistant Professo r - Clinical Division of Endocrinology\, Diabetes\, and Metabolism\n \n \n  \n \n \n OSUCCC - James\n \n \n  \n \n \n Brian Lee\, RN OSUCCC - James\n \n \n 1:15 PM\n \n \n Surgical Approach: What to Expect\n \n \n  \n \n \n Daniel Prevedello\, MD Professor and Chair\, Department of Neurolog ical Surgery\n \n \n  \n \n \n OSUCCC - James\n \n \n 1:45 PM\n \n \n Visual Complications of Pituitary/Sella r Lesion? Predictors of Outcome\n \n \n  \n \n \n Abbe Craven\, MD Assistant Professor - Clinical Department of Ophthalmology\n \n \n  \n \n \n OSUCCC - James\n \n \n 2:15 P M\n \n \n Round Table Q &\; A\n \n \n 2:30 PM\n \ n \n Mid-Afternoon Break and Visit Vendors\n \n \n 2:45 PM \n \n \n Recovering from Trans-sphenoidal Surgery\, Challenges f or the Patient and their Families\n \n \n  \n \n \n Tr aci Douglass\, RN\n \n \n  \n \n \n OSUCCC - James\n \n \n 3:15 PM\n \n \n Pituitary Network Association: Cus hing's Disease: Psychological Research and Clinical Implications\n \n \n  \n \n \n Jessica Diller Kovler\, AM\, MA\, PhD\n \n \n  \n \n \n PNA Board Member\n \n \n 3:45 PM\n \n \n Closing Remarks\n \n \n 4: 00 PM\n \n \n Adjourn\n \n DTSTART:20190914T113000Z DTEND:20190914T200000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Approaches for Pituitary Surgery DTSTAMP:20190723T000336Z SEQUENCE:0 UID:1604-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Dr. Theodore Friedman hosts Gautam Mehta\, MD for a fasci nating webinar on Approaches for Pituitary Surgery\n\n\n\n Dr. Mehta is a neurosurgeon specializing in pituitary surgery at the House Clinic in Los Angeles. He was trained by Ian McCutcheon\, MD and Ed Oldfield\, MD\n\ n\n\n Topics to be discussed include:\n\n • How does Dr. Friedman diagno se Cushing’s Disease\n\n • How does Dr. Friedman determine who goes to surgery?\n\n • What type of patients need surgery besides those with Cu shing’s Disease?\n\n • How do the neurosurgeon and the Endocrinologist work together?\n\n • How does the neurosurgeon read pituitary MRIs?\n \n • What types of surgical approaches are used for pituitary surgery?\n \n • How long does surgery take and how long will a patient be in the ho spital?\n\n • What are the risks of pituitary surgery and how can they b e minimized?\n\n\n\n Sunday • August 4 • 6 PM PDT\n\n\n\n Click here t o start your meeting.\n\n\n\n or\nhttps://axisconciergemeetings.webex.com/ axisconciergemeetings/j.php?MTID=ma1d8d5ef99605e305980e2f7cdfdb7bd\n\n OR\ n\n Join by phone: (855) 797-9485\n Meeting Number (Access Code): 807 02 8 597 Your phone/computer will be muted on entry.\n\n Slides will be avai lable on the day of the talk at slides \n\n There will be plenty of time for questions using the chat button. Meeting Password: hormones\n\n For more information\, email us at mail@goodhormonehealth.com\n\n\n\n DTSTART:20190805T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Jenni Moore ~ January 25\, 2016 DTSTAMP:20190702T005638Z SEQUENCE:0 UID:1603-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n\n  \n\n\n\n A young woman struggling with ill hea lth after developing a tumour died from an overdose after “illicit insul in” was brought into the Norfolk and Norwich University Hospital last ye ar\, an inquest heard.\n\n\n\n Jenni Moore passed away at the intensive th erapy unit on January 25\, more than two weeks after sustaining brain dama ge while an inpatient at the hospital.\n\n\n\n The 26-year-old from Halesw orth had been admitted in December with complications from two unsuccessfu l operations to remove a tumour of the pituitary gland.\n\n\n\n A Type 2 d iabetic since 2002\, Miss Moore suffered from emotionally unstable persona lity disorder and an abusive relationship\, before a diagnosis of Cushin g’s disease as a result of the tumour.\n\n\n\n Consultant physician at N NUH Dr Franscesca Swords said Miss Moore had been exhibiting “alarming s ymptoms”.\n\n\n\n “Cushing’s can cause Type 2 diabetes and needs muc h higher levels of insulin for it to work\,” she told Norfolk Coroner’ s Court.\n\n\n\n “She was having incredibly low sugars\, which is consis tent with too much insulin. We had been reducing her dose steadily.\n\n\n\ n “We were giving her a fraction of the insulin she had been taking but her blood sugar was still low. Eventually the realisation came to ward sta ff there was something else at play here.”\n\n\n\n Staff then began to d iscover insulin pens hidden in her room. During an investigation Norfolk P olice interviewed Miss Moore’s partner Derek Soanes\, who admitted he ha d brought her insulin pens at her request. No further action was taken.\n\ n\n\n Sarah Kennard\, a lead health officer with Norfolk and Suffolk NHS F oundation Trust\, said in a statement that during a risk assessment in Mar ch 2014 Miss Moore said she “thought she was insulin resistant” as a r esult of her Cushing’s.\n\n\n\n Assistant coroner for Norfolk Nicholas H olroyd recorded a narrative verdict.\n\n\n\n “Jenni suffered significant and unhappy health conditions for a number of years\,” he said. “Cu shing’s exacerbates the diabetic condition to make the patient yet more vulnerable to sugar or hypoglycemia so higher doses of insulin are needed to correct the situation\, which made her resistant in a sense.\n\n\n\n “There has been evidence insulin was being brought to her in the hospita l she should not have had. I do not believe she intended to take her own l ife. Nothing had occurred to drive her to an extreme act.”\n\n\n\n After the inquest Miss Moore’s brother Joe said: “I loved my sister and so did the rest of my family\, and we miss her every day.”\n\n\n\n From ht tp://www.edp24.co.uk/news/diabetic_died_after_overdose_from_illicit_insuli n_brought_into_norfolk_and_norwich_university_hospital_1_4614300\n DTSTART;VALUE=DATE:20160125 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Ohio State Pituitary Patient Symposium DTSTAMP:20190601T134847Z SEQUENCE:0 UID:1602-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Keynote Speaker: Maria Fleseriu\, MD FACE\n\n\n\n Registr ation Cost: Individual $40    Save $20 and register for 2: $60\n\n\n\n Please email carol@pituitary.org to register!\n\n\n\n \n\n *This registr ation is for the Patient Symposium only. The Ohio State University is offe ring a CME Course separate from our Symposium. For information on the CME course go to ccme.osu.edu\n\n\n\n \n\n  \n\n\n\n OSU Pituitary Symposium Agenda\n\n Saturday\, July 13\, 2019\n\n Patients and Family’s Track\n\ n Gabbe Conference Room – James L045\n\n\n\n \n\n  \n\n\n\n \n 8 :00 AM\n \n \n \n \n Registration and Breakfast\n \n \n \n \n 8:20 AM\n \n \n \n \n Welcoming Remarks and I ntroductions: The OSU Skull Base and Pituitary Team\n \n \n \n   \n \n \n \n Lawrence Kirschner\, MD\, PhD\n \n \n \n  \n \n \n \n OSUCCC - James\n \n \n \n \n 8:30 AM \n \n \n \n \n Hypopituitarism: Pitfalls and Recommendations \n \n \n \n  \n \n \n \n Maria Fleseriu\, MD\, FACE\n \n \n \n  \n \n \n \n Oregon Health and Science Univ ersity\n \n \n \n \n 9:00 AM\n \n \n \n \n Tran s-sphenoidal Approach: What to Expect? Post-Operative Complications\n \ n \n \n  \n \n \n \n Richard Carrau\, MD\n \n \n \ n  \n \n \n \n OSUCCC - James\n \n \n \n \n 9: 30 AM\n \n \n \n \n Acromegaly: Why it Takes That Long to Di agnose? What are the Options?\n \n \n \n  \n \n \n \n Lawrence Kirschner\, MD\, PhD\n \n \n \n  \n \n \n \n OSUCCC - James\n \n \n \n \n 10:00 AM\n \n \n \n \n Round Table Q &\; A\n \n \n \n \n 10:15 AM\n \n \n \n \n Mid-Morning Break\n \n \n \n \n 10:30 AM\ n \n \n \n \n Growth Hormone Deficiency: Journey to Adulthoo d\n \n \n \n  \n \n \n \n Robert Hoffman\n \n \n \n  \n \n \n \n Nationwide Children's Hospital\n \n \n \n \n 11:00 AM\n \n \n \n \n Radiation Therapy? D ifference Between Modalities and Possible Risks\n \n \n \n  \n \n \n \n Dukagjin M Blakaj\, MD\, PhD\n \n \n \n  \n \n \n \n OSUCCC - James\n \n \n \n \n 11:30 AM\n \n \n \n \n Round Table Q &\; A\n \n \n \n \n 11:45 AM\n \n \n \n \n Lunch Break and Patient's Journey\n \n \n \n \n 12:45 AM\n \n \n \n \n Surgical Appr oach: What to Expect\n \n \n \n  \n \n \n \n Daniel P revedello\, MD\n \n \n \n  \n \n \n \n Douglas Hardes ty\, MD\n \n \n \n  \n \n \n \n OSUCCC - James\n \ n \n \n \n 1:15 PM\n \n \n \n \n Visual Complicati ons of Pituitary/Sellar Lesion? Predictors of Outcome\n \n \n \n  \n \n \n \n Abbe Craven\, MD\n \n \n \n  \n \n \n \n OSUCCC - James\n \n \n \n \n 1:45 PM\n \n \ n \n \n Round Table Q &\; A\n \n \n \n \n 2:00 PM \n \n \n \n \n Pituitary Trivia\n \n \n \n  \n \ n \n \n Luma Ghalib\, MD\n \n \n \n  \n \n \n \n Brian Lee\n \n \n \n  \n \n \n \n OSUCCC - James \n \n \n \n \n 2:30 PM\n \n \n \n \n Pituitary Dysfunction: Effect on Mental Health and Family\n \n \n \n  \n \n \n \n William Malarkey\, MD\n \n \n \n  \n \n \ n \n OSUCCC - James\n \n \n \n \n 3:00 PM\n \n \n \n \n Recovering from Trans-sphenoidal Surgery\, Challenges for the Patient and their Families\n \n \n \n  \n \n \n \n Traci Douglass\, RN\n \n \n \n  \n \n \n \n OSUCCC - James\n \n \n \n \n 3:30 PM\n \n \n \n \n Pit uitary Network Association: Cushing's Disease: Psychological Research and Clinical Implications\n \n \n \n  \n \n \n \n Jessica Diller Kovler\, AM\, MA\, PhD \n \n \n \n  \n \n \n \n PNA Board Member\n \n \n \n \n 4:00 PM\n \n \n \n \n Closing Remarks\n \n \n \n \n 4: 15 PM \n \n \n \n \n Adjourn\n \n \n DTSTART;VALUE=DATE:20190713 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Adrenal Insufficiency/Addison's Disease DTSTAMP:20190522T073644Z SEQUENCE:0 UID:1601-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Irina Bancos\, MD\n\n Assistant Prof essor of Medicine\n\n Endocrinology Department\n\n Mayo Clinic\, Rochester \, MN\n\n\n\n Space is limited. Reserve your webinar seat.\n\n\n\n After r egistering you will receive a confirmation email containing information ab out joining the webinar. \n\n\n\n Contact us at webinar@pituitary.org i f you have any questions.\n\n\n\n Date: Tuesday\, May 28\, 2019\n\n\n\n Ti me: 10:00 AM - 11:00 AM Pacific Daylight Time\, 1:00 PM - 2:00 PM Eastern Daylight Time\n\n\n\n Webinar Description\n\n\n\n Learning Objectives:\n\n \n\n To distinguish between primary and secondary adrenal insufficiency\n \n \n To understand the pitfalls of current diagnostic tests to diagnose adrenal insufficiency.\n \n \n To describe physiological replacement the rapy for adrenal insufficiency\n \n \n To distinguish between adrenal ins ufficiency and glucocorticoid withdrawal syndrome.\n \n\n Presenter Bio\n\ n\n\n Dr. Irina Bancos is the Assistant Professor of Medicine and works in the Pituitary-Adrenal-Gonadal subdivision of Endocrinology division at Ma yo Clinic\, Rochester. She also serves as Director of the Endocrine testin g center. Dr. Bancos received her M.D. from the Iuliu Hatieganu Medical Un iversity in Cluj-Napoca\, Romania. She has completed her Internal Medicine Residency at Danbury Hospital in CT and Endocrinology Fellowship at Mayo Clinic\, Rochester. In addition\, Dr. Bancos completed a two year research fellowship (Mayo Foundation Scholarship) at the University of Birmingham\ , United Kingdom where she received training in steroid profiling and adre nal disorders. In 2015 she returned to Mayo Clinic\, where her clinical an d research interests include adrenal and pituitary tumors\, adrenal insuff iciency\, congenital adrenal hyperplasia\, Cushing syndrome\, and mechanis ms of steroid regulation of metabolism. Between 2015 and 2018\, Dr. Bancos was the principal investigator and leader of the Transform the Adrenal Pr actice team at Mayo Clinic. Dr. Bancos has published 77 scientific article s. In addition to clinical practice in the pituitary-adrenal-gonadal clini c\, Dr. Bancos enjoys teaching fellows\, residents and medical students. S he is the principal investigator of several ongoing prospective studies in Cushing syndrome\, adrenal insufficiency\, prolactinoma\, and adrenal tum ors. Dr. Bancos currently holds several grants in the field of steroid reg ulation of aging\, metabolism and body composition.\n DTSTART:20190528T170000Z DTEND:20190528T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:Theodore Friedman Webinar on Treatments for Insomnia DTSTAMP:20190519T202817Z SEQUENCE:0 UID:1600-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Dr. Theodore Friedman hosts Jay Khorsandi\, DDS an d Barbara Burggraaff\, MD from Snore Experts for an important webinar on i nsomnia\n\n\n\n Topics to be discussed include:\n\n • What are the cause s of insomnia?\n\n • How do hormone imbalances lead to insomnia?\n\n • What lifestyle changes can you do to help with insomnia?\n\n • What sup plements are helpful for insomnia?\n\n • What medicines are helpful for insomnia?\n\n\n\n Sunday • June 2nd • 6 PM PST\n\n\n\n \n Click here on start your meeting.or\nhttps://axisconciergemeetings.webex.com/axiscon ciergemeetings/j.php?MTID=m2f7d9547a80ec47e43869517ef006f34\n\n OR\n\n Joi n by phone: (855) 797-9485\n\n\n\n Meeting Number (Access Code): 807 924 444\n\n Meeting Password: hormones\n\n\n\n Your phone/computer will be mu ted on entry. There will be plenty of time for questions using the chat b utton.\n\n\n\n For more information\, email us at mail@goodhormonehealth. com\n DTSTART:20190603T010000Z DTEND:20190603T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Johns Hopkins Pituitary Day DTSTAMP:20190512T134245Z SEQUENCE:0 UID:1599-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n The 11th annual Pituitary Day will take place on October 19\, 2019  Patients living with pituitary disorders can hear lectures fro m our pituitary specialists\, see movies of pituitary surgeries and hear f rom other patients about their experience living with pituitary disease an d undergoing surgery.\n\n\n\n Attendance is free\, and patients can bring one guest.\n\n\n\n Call 410-955-3921 or reserve your spot by email at pitu itaryday@jmhi.edu\n\n\n\n More information at www.hopkinsmedicine.org/neur ology_neurosurgery/centers_clinics/pituitary_center/index.html\n DTSTART;VALUE=DATE:20191019 END:VEVENT BEGIN:VEVENT SUMMARY:Stanford Pituitary Patient Education Day DTSTAMP:20190322T011337Z SEQUENCE:0 UID:1598-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n \n The Stanford Pituitary Center invites patients w ith pituitary disease\, their family and friends to Stanford's Pituitary P atient Education Day! \n \n \n\n \n May 18\, 2019 at the Sheraton Palo Alto Hotel\n625 El Camino Real\nPalo Alto\, CA 94301 \nUSA\n \n\n \n \n Topics and Breakout Sessions:\n \n\n \n Function of the pituitary g land\n \n \n General review of pituitary tumors\n \n \n Endo scopic endonasal surgery for pituitary tumors\n \n \n Quality of li fe after endonasal surgery\n \n \n Radiation therapy for pituitary tumors\n \n \n Cushing's Disease\, prolactinoma\, and acromegaly\n \n \n Hypopituitarism therapy and growth hormone deficiency\n \n \n Speakers:\n \n\n \n Olivia Chu\, NP\, Nurse Practitioner\n \n \n Robert Dodd\, MD\, Associate Professor of Neurosurgery\n \n \ n Juan Fernandez-Miranda\, MD\, Professor of Neurosurgery\n \n \n Andrew Hoffman\, MD\, Professor of Medicine\n \n \n Peter Hwang\, MD\, Professor of Otolaryngology\n \n \n Laurence Katznelson\, MD\ , Professor of Neurosurgery and Medicine\n \n \n Erin Wolff\, NP\, Nurse Practitioner\n \n \n Course Directors:\n \n \n\n\n\n \n \n \n \n \n \n \n \n \n  \n \n\n \n  \n \n\n \n  \n \n \n \n\n \n \n Juan C. Fernandez- Miranda\, MD\, FACS\n\n Professor of Neurosurgery\, and by Courtes y\, of Otolaryngology - Head &\; Neck Surgery\n\n Co-Director\, Stanford Skull Base Surgery Program\n \n \n \n \n \n \n\n \n \n \n \n \n \n \n  \n \n\n \n  \n \n\n \n  \n \n\n \n  \n \n\n \n  \n \n\n \n  \n \n \n \n\n \n \n Laurence Katznelson\, MD\n\n P rofessor of Neurosurgery and of Medicine (Endocrinology)\n\n Medic al Director\, Pituitary Center\n \n \n \n \n \n \n \n \n DTSTART;VALUE=DATE:20190518 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Does Extent of Resection Matter in Pituitary Surger y? DTSTAMP:20190308T150520Z SEQUENCE:0 UID:1597-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Presented By\n\n\n\n Jamie J. Van Gompe l\, MD\, FAANS\n\n Associate Professor in Neurosurgery and Otorhinolaryngo logy\n\n Program Director\, Vice Chair of Education\, Department of Neurol ogic Surgery\n\n Associate Program Director\, Neurosurgical Skull Base Onc ology Fellowship\n\n Program Director\, International Neurosurgery Fellows hip\n\n Mayo Clinic - Rochester\, MN\n\n\n\n and\n\n\n\n Garret W. Choby\, MD\n\n Rhinologist\n\n Endoscopic Skull Base Surgeon\n\n Mayo Clinic - R ochester\, MN\n\n\n\n Register here\n\n\n\n  \n\n\n\n After registering y ou will receive a confirmation email containing information about joining the webinar.\n\n\n\n If you have any questions or suggestions please feel free to contact webinar@pituitary.org\n\n\n\n DATE: Wednesday\, March 13\, 2019\nTIME: 2:00 PM - 3:00 PM Pacific Daylight Time\, 4:00 PM - 5:00 PM C entral Daylight Time\, 5:00 PM - 6:00 PM EDT\n\n\n\n Webinar Description\n \n\n\n Does Extent of Resection Matter in Pituitary Surgery and Postoperat ive Nasal Care\n\n\n\n Presenter Bios\n\n\n\n Jamie J. Van Gompel MD(Honor s)\, BS(Honors) is an Associate professor in neurosurgery and Otolaryngolo gy specializing in endoscopic/open skull base at the Mayo Clinic in Roches ter\, Minnesota\, USA. He completed his undergraduate and medical school t raining at the University of Wisconsin at Madison. He has worked at the NI H as well as completed a Howard Hughes Fellowship studying neuroendocrine tumors. His neurosurgical training was undertaken at the Mayo Clinic and h e went on to complete a complex cranial fellowship under the tutelage of D r. Harry van Loveren at the University of South Florida. Currently\, He is the Education Vice Chair\, Program Director of the Neurosurgery Program a nd Associate Program Director of the Skull Base Oncology program. Further manages a busy skull base oncology and pituitary practice in addition to p erforming research with Active NIH U and R funding. He has authored over 1 50 publications of which over 30 are pertinent to pituitary pathologies an d endoscopic surgery.\n\n\n\n Garret W. Choby\, M.D.\, is a fellowship-tra ined rhinologist and endoscopic skull base surgeon practicing at the Mayo Clinic in Rochester\, MN. He completed his residency training at the Unive rsity of Pittsburgh and his fellowship training at Stanford University. Dr . Choby works closely with his neurosurgical partners to treat a variety o f pituitary and cranial base tumors. His primary research interests includ e improving oncologic and quality of life outcomes for patients undergoing endonasal tumor resection and tailoring individualized treatment for pati ents with chronic rhinosinusitis.\n DTSTART:20190313T220000Z DTEND:20190313T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:Dr. Friedman Webinar: New and Traditional Treatments for Mal e Hypogonadism DTSTAMP:20190130T133743Z SEQUENCE:0 UID:1595-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Dr. Theodore Friedman will be joined by Shira Miller\, MD hosting a webinar on New and Traditional Treatments for Male Hypogonadi sm\n\n\n\n Spouses welcome\n\n\n\n Topics to be discussed include:\n\n\n\n How to Diagnose Male Hypogonadism?\n \n \n Testosterone Replacement\n \ n \n HCG and Clomid Treatment\n \n \n Supplements for Male Hypogonadism\ n \n \n Diets for Male Hypogonadism\n \n\n Sunday • February 10\, 2 019 • 6 PM PST\n\n\n\n \n Click here to join the meeting or\nhttps:// axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m4969cba4 e8f0960a9053f2d03a5e56db\n\n OR\n\n Join by phone: (855) 797-9485\n\n Slid es will be available before the webinar at slides\n\n\n\n \n Meeting Numb er (Access Code): 800 925 805\, Your phone/computer will be muted on ent ry. There will be plenty of time for questions using the chat button. Me eting Password: hormones\n\n For more information\, email us at mail@good hormonehealth.com\n\n\n\n \n \n \n \n \n \n \n \n  \n \n DTSTART:20190211T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Update on the Treatment of Pituitary Diseases: Emerging Ther apies DTSTAMP:20190116T234842Z SEQUENCE:0 UID:1594-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Friday April 12\, 2019\n\n 8:30am – 4:30pm\n\n Zuckerma n Research Center\n\n 417 E. 68th St. New York\, NY\n\n Memorial Sloan Ket tering Cancer Center\n\n\n\n This course is suited for medical professiona ls\, patients\, and caregivers to improve patient care and outcomes throug h evidence-based discussion of clinical practice guidelines and emerging t herapies in order to assess and update current practices to promote earlie r diagnosis and treatment of pituitary diseases. The multidisciplinary nat ure of the course will allow the dissemination of knowledge across the var iety of practitioners caring for pituitary patients\, as well as for patie nts and caregivers.\n\n\n\n After completion of this educational activity\ , participants will be up-to-date on the latest in ongoing care and clinic al management of patients with pituitary conditions. The patient breakout sessions will provide pituitary patients the ability to review treatment o ptions\, learn about ongoing clinical trials\, and discuss their comprehen sive care with providers and other patients.\n\n\n\n Memorial Sloan Ketter ing Cancer Center is providing this course to pituitary patients and careg ivers free of charge. To register to attend\, please email cme@mskcc.org  . (Please note: Registration is required in order to attend.)\n\n\n\n Me dical Professionals who wish to attend must register online: mskcc.org/Pi tuitaryCourse .\n\n\n\n View Course Flyer\n DTSTART:20190412T123000Z DTEND:20190412T203000Z END:VEVENT BEGIN:VEVENT SUMMARY:13th Annual Conference for Adults with Endocrine Disorder DTSTAMP:20190111T135156Z SEQUENCE:0 UID:1593-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n 13th Annual Conference for Adults with Endocrine Disorders \n\n in Partnership with Barrow Neurological Institut e Pituitary Center\n\n\n\n February 28th\, 2019 - March 3rd\, 2019\n\n\n\n Phoenix\, Arizona\n\n\n\n Schedule of Events\n\n Thursday\n\n 5:00 pm - 7 :00 pm Welcome Reception\, Wyndham Garden Phoenix Midtown\n\n\n\n Friday\n \n 9:00 am - 4:00 pm Exhibitors\, Barrow Pituitary Center\n\n 10:00 am - 1 2:00 pm Educational Segments\, Barrow Pituitary Center\n\n 12:00 am - 1:00 pm Lunch (included)\n\n 1:00 pm - 3:00 pm Educational Segments\, Barrow P ituitary Center\n\n 5:00 pm - 8:00 pm Group outing to Scottsdale Waterfron t\n\n Saturday\n\n 10:00 am - 12:00 pm Educational Segments\, Barrow Pitui tary Center\n\n 12:00 am - 1:00 pm Lunch (included)\n\n 1:00 pm - 3:30 pm Educational Segments\, Barrow Pituitary Center\n\n Sunday\n\n 9:00 am - 1: 30 pm Educational Segments\, Wyndham Garden Phoenix Midtown\n\n\n\n ****** ****************************************************\n\n Friday Educationa l Segments at Barrow Pituitary Center\n\n\n\n 10:00 am Managing Cushings: Navigating Through the Maze\, Yuen \n\n or \n\n 10:00 am Managing AGHD: Daily and Beyond\, Knecht\n\n 11:00 am Hypothalamic Obesity: Not Just Calo ries In\, Calories Out\, Connor\n\n 12:00 pm LUNCH (included)\n\n 1:00 pm Me\, Myself and My Adrenal Insufficiency\, Yuen\n\n 2:00 pm Navigating the Medical Maze\, Herring\n\n\n\n Saturday Educational Segments at Barrow Pi tuitary Center\n\n\n\n 10:00 am Beyond AGHD and Cushings: Familial and Gen etic Factors\, Stratakis\n\n 11:00 am Q&\;A\, Stratakis\n\n 12:00 pm LU NCH (included)\n\n 1:00 pm Tools for Coping with my Endocrine Disorder\, J onas\n\n 2:00 pm Finnigan and Friends: A Year in AI Training\, Palmer\n\n 2:30 pm Quality of Life Study\, Cushings\, Edgar &\; Keil\n\n or \n\n 2:30 pm Life is What You Make Of It\, Jones\n\n\n\n Sunday Educational Seg ments at Wyndham Garden Phoenix Midtown\n\n\n\n 9:00 am Preventing Muscle Wasting and Nutrition\, Fine\n\n 10:00 am Nuances of Treating Hypothyroidi sm\, Friedman\n\n 11:00 am Macrilen Stimulation Test for Growth Hormone De ficiency\, Friedman\n\n 11:45 am The New and The Old for Diagnosing Cushin g's Syndrome\, Friedman\n\n 12:30 pm Ask the Wiz\, Friedman\n\n\n\n Locati on\n\n Barrow Neurological Institute at St. Joseph's Hospital and Medical Center\n\n Goldman Auditorium and Sonntag Pavilion\n\n 350 W. Thomas Rd.\n \n Phoenix\, AZ 85013\n\n\n\n Transportation will be provided on Friday an d Saturday between the Wyndham Hotel to Barrow for an hour prior to the se gments and an hour after close of the segments. The hotel is approximately 1/2 mile away from Barrow Pituitary Center if you choose to walk or trave l there on your own.\n\n\n\n Hotel Room Rates and Reservations\n\n Wyndham Garden Phoenix Midtown\n\n 3600 N. 2nd Ave.\n\n Phoenix\, AZ 85013\n\n\n\ n $109 per night + tax. Includes free wifi\, parking and buffet breakfast\ n\n\n\n To make hotel reservations call 602-604-4900 and ask for The MAGIC Foundation guest room block. Refrigerators are first come so be sure to r equest one when making your reservation.\n\n\n\n Airport Transportation\n\ n Transportation is not provided to/from the hotel from the airport. The W yndham is approximately 9 miles from the airport. Preferred airport is Pho enix\, AZ - PHX - Sky Harbor Intl.\n\n\n\n Deadline to Register and book y our hotel is January 28\, 2019\n\n\n\n View the entire PDF Program\n DTSTART;VALUE=DATE:20190228 DTEND;VALUE=DATE:20190304 END:VEVENT BEGIN:VEVENT SUMMARY:Last Day to Register DTSTAMP:20190111T134947Z SEQUENCE:0 UID:1592-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n 13th Annual Conference for Adults with Endocrine Disorders \n\n in Partnership with Barrow Neurological Institut e Pituitary Center\n\n\n\n February 28th\, 2019 - March 3rd\, 2019\n\n\n\n Phoenix\, Arizona\n\n\n\n Schedule of Events\n\n Thursday\n\n 5:00 pm - 7 :00 pm Welcome Reception\, Wyndham Garden Phoenix Midtown\n\n\n\n Friday\n \n 9:00 am - 4:00 pm Exhibitors\, Barrow Pituitary Center\n\n 10:00 am - 1 2:00 pm Educational Segments\, Barrow Pituitary Center\n\n 12:00 am - 1:00 pm Lunch (included)\n\n 1:00 pm - 3:00 pm Educational Segments\, Barrow P ituitary Center\n\n 5:00 pm - 8:00 pm Group outing to Scottsdale Waterfron t\n\n Saturday\n\n 10:00 am - 12:00 pm Educational Segments\, Barrow Pitui tary Center\n\n 12:00 am - 1:00 pm Lunch (included)\n\n 1:00 pm - 3:30 pm Educational Segments\, Barrow Pituitary Center\n\n Sunday\n\n 9:00 am - 1: 30 pm Educational Segments\, Wyndham Garden Phoenix Midtown\n\n\n\n ****** ****************************************************\n\n Friday Educationa l Segments at Barrow Pituitary Center\n\n\n\n 10:00 am Managing Cushings: Navigating Through the Maze\, Yuen \n\n or \n\n 10:00 am Managing AGHD: Daily and Beyond\, Knecht\n\n 11:00 am Hypothalamic Obesity: Not Just Calo ries In\, Calories Out\, Connor\n\n 12:00 pm LUNCH (included)\n\n 1:00 pm Me\, Myself and My Adrenal Insuffiency\, Yuen\n\n 2:00 pm Navigating the M edical Maze\, Herring\n\n\n\n Saturday Educational Segments at Barrow Pitu itary Center\n\n\n\n 10:00 am Beyond AGHD and Cushings: Familial and Genet ic Factors\, Stratakis\n\n 11:00 am Q&\;A\, Stratakis\n\n 12:00 pm LUNC H (included)\n\n 1:00 pm Tools for Coping with my Endocrine Disorder\, Jon as\n\n 2:00 pm Finnigan and Friends: A Year in AI Training\, Palmer\n\n 2: 30 pm Quality of Life Study\, Cushings\, Edgar &\; Keil\n\n or \n\n 2: 30 pm Life is What You Make Of It\, Jones\n\n\n\n Sunday Educational Segme nts at Wyndham Garden Phoenix Midtown\n\n\n\n 9:00 am Preventing Muscle Wa sting and Nutrition\, Fine\n\n 10:00 am Nuances of Treating Hypothyroidism \, Friedman\n\n 11:00 am Macrilen Stimulation Test for Growth Hormone Defi ency\, Friedman\n\n 11:45 am The New and The Old for Diagnosing Cushing's Syndrome\, Friedman\n\n 12:30 pm Ask the Wiz\, Friedman\n\n\n\n Location\n \n Barrow Neurological Institute at St. Joseph's Hospital and Medical Cent er\n\n Goldman Auditorium and Sonntag Pavilion\n\n 350 W. Thomas Rd.\n\n P hoenix\, AZ 85013\n\n\n\n Transportation will be provided on Friday and Sa turday between the Wyndham Hotel to Barrow for an hour prior to the segmen ts and an hour after close of the segments. The hotel is approximately 1/2 mile away from Barrow Pituitary Center if you choose to walk or travel th ere on your own.\n\n\n\n Hotel Room Rates and Reservations\n\n Wyndham Gar den Phoenix Midtown\n\n 3600 N. 2nd Ave.\n\n Phoenix\, AZ 85013\n\n\n\n $1 09 per night + tax. Includes free wifi\, parking and buffet breakfast\n\n\ n\n To make hotel reservations call 602-604-4900 and ask for The MAGIC Fou ndation guest room block. Refrigerators are first come so be sure to reque st one when making your reservation.\n\n\n\n Airport Transportation\n\n Tr ansportation is not provided to/from the hotel from the airport. The Wyndh am is approximately 9 miles from the airport. Preferred airport is Phoenix \, AZ - PHX - Sky Harbor Intl.\n\n\n\n Deadline to Register and book your hotel is January 28\, 2019\n\n\n\n View the entire PDF Program\n DTSTART;VALUE=DATE:20190128 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Jill's Father DTSTAMP:20190104T145843Z SEQUENCE:0 UID:1591-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n January 5\, 2005\n\n\n\n Jill wrote: 'In December 2004 my dad who had addison's for over 30 years had a triple bypass surgery 6 day s before Christmas. The surgery was an amazine success and it was predicte d he would be home before Christmas. Day 2 following surgery the hospital neglected to give him his steriods for his Addison's for 22 hours\, which they were completely aware that he had...'\n\n\n\n Read more at  https:// cushingsbios.com/2016/04/29/in-memory-jills-father-january-5-2005/\n DTSTART;VALUE=DATE:20190105 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar:Treatment Strategies for Prolactinomas DTSTAMP:20190104T144916Z SEQUENCE:0 UID:1590-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by:\n\n\n\n James K. Liu\, MD\n\n Professor of Neurosurgery\n\n Director of Skull Base and Pituitary Surgery\n\n Rutgers University\, New Jersey Medical School\n\n RWJ Barnabas Health\n\n\n\n Aft er registering you will receive a confirmation email with information abou t joining the webinar.\n\n\n\n Register here\n\n  \n\n\n\n Date: January 9\, 2019\n\n\n\n Time: 3:00PM- 4:00 PM Pacific Standard Time\, 6:00 PM - 7 :00 PM Eastern Standard Time\n\n\n\n  \n\n\n\n Learning Objectives:\n\n\n \n To understand the medical therapies for prolactinomas\n \n \n To unde rstand the roles of surgery for prolactinomas\n \n \n To understand the r oles of radiation for prolactinomas\n \n\n \n\n Presenter Bio:\n\n\n\n Dr. James K. Liu is the Director of Cerebrovascular\, Skull Base and Pituitar y Surgery at the Rutgers Neurological Institute of New Jersey\, and Profes sor of Neurological Surgery at Rutgers University\, New Jersey Medical Sch ool. He is board certified by the American Board of Neurological Surgery\, and has a robust pituitary tumor practice at University Hospital and Sain t Barnabas Medical Center.\n\n\n\n Dr. Liu graduated summa cum laude from UCLA with Phi Beta Kappa honors\, and obtained his MD from New York Medica l College with AOA honors. After completing a neurosurgery residency at th e University of Utah in Salt Lake City\, he was awarded the Dandy Clinical Fellowship by the Congress of Neurological Surgeons\, and obtained advanc ed fellowship training in Skull Base\, Cerebrovascular Surgery &\; Neur o-oncology at the Oregon Health &\; Science University in Portland.\n\n \n\n Dr. Liu is renowned for his comprehensive treatment of complex brain tumors and skull base lesions\, including pituitary tumors\, acoustic neur omas\,meningiomas\, craniopharyngiomas\, chordomas\, and jugular foramen t umors. His robust clinical practice encompasses both traditional open and minimally invasive endoscopic endonasal skull base approaches. He also spe cializes in microsurgery of cerebrovascular diseases including aneurysms\, arteriovenous malformations (AVMs)\, cavernous malformations\, and caroti d artery stenosis. He also has expertise in cerebrovascular bypass procedu res for moya moya disease\, carotid artery occlusion\, vertebral artery oc clusion\, complex aneurysms and skull base tumors\, as well as endoscopic- assisted microvascular decompression for trigeminal neuralgia and hemifaci al spasm.\n\n\n\n As one of the most active researchers in his field\, Dr. Liu has published extensively with over 250 peer-reviewed publications an d 25 textbook chapters. He has taught many hands-on cadaver dissection cou rses in skull base surgery and has lectured extensively nationally and int ernationally throughout North America\, Latin America\, Europe\, and Asia. Dr. Liu's research is focused on the development of innovative and novel skull base and endoscopic techniques\, quantitative surgical neuroanatomy\ , microsurgical and microvascular anastomosis skills training\, virtual su rgical simulation\, pituitary tumor biology\, and clinical outcomes after skull base and cerebrovascular surgery.\n\n\n\n Dr. Liu is an active membe r of the American Association of Neurological Surgeons\, Congress of Neuro logical Surgeons\, North American Skull Base Society\, Pituitary Network A ssociation\, The Facial Pain (Trigeminal Neuralgia) Association\, AANS/CNS Cerebrovascular Section\, Tumor Section. He serves on the medical advisor y board of the Acoustic Neuroma Association of New Jersey\, and is the cur rent Secretary-Treasurer of the International Meningioma Society.\n DTSTART:20190109T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:Livestream the Rare Disease Congressional Caucus Briefing De cember 4th DTSTAMP:20181130T221551Z SEQUENCE:0 UID:1587-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n For those who can not make it to Washington\, DC n ext week\, we're pleased to announce a livestream will be available for th e Rare Disease Congressional Caucus briefing.\n\n\n\n Rare Disease Legisla tive Advocates with honorary co-hosts Representatives Leonard Lance (R-N J) and G. K. Butterfield (D-NC) and Senators Orrin Hatch (R-UT) and Amy Kl obuchar (D-MN)\, Co-Chairs of the Rare Disease Congressional Caucus\, invi te you to a lunch briefing:\n\n\n\n The Diagnostic Odyssey\n\n\n\n Tuesday \, December 4\, 2018\, from 12:00 p.m. until 1:00 p.m.\n\n\n\n 121 Cannon House Office Building\n\n\n\n Complimentary lunch included\n\n\n\n Registr ation available on-site\n\n\n\n Register for the event livestream by click ing this link.\n\n\n\n  \n\n\n\n If you have questions about the briefing \, please email Shannon von Felden\, RDLA Program Manager\, at svonfelden @everylifefoundation.org.\n DTSTART:20181204T170000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Surgical Strategies in the Treatment of Pituitary T umors DTSTAMP:20181129T090152Z SEQUENCE:0 UID:1586-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Mario Zuccarello\, MD\n\n Neurosurge on\n\n University of Cincinnati College of Medicine\n\n Department of Neur osurgery\n\n\n\n and\n\n\n\n Jonathan A. Forbes\, MD\n\n Neurosurgeon\n\n University of Cincinnati College of Medicine\n\n Department of Neurosurger y\n\n\n\n \n\n\n\n After registering you will receive a confirmation email containing information about joining the webinar.\n\n\n\n Contact us at  webinar@pituitary.org if you have any questions.\n\n  \n\n\n\n Date: Dec ember 3\, 2018\n\n Time: 3:00PM - 4:00PM Pacific Standard Time 6:00PM - 7: 00PM Eastern Standard Time\n\n\n\n \n\n Learning Objectives:\n\n\n\n To u nderstand the role of surgery in the treatment of pituitary tumors\n \n \n To understand the advantages and disadvantages of different surgical app roaches in the treatment of pituitary tumors\n \n \n To understand the ri sks and benefits associated with different surgical strategies\n \n\n Pres enter Bios:\n\n\n\n Mario Zuccarello\, MD\n\n Neurosurgeon\n\n\n\n Mario Z uccarello\, MD\, is currently a Professor of Neurosurgery in the Departmen t of Neurosurgery at the University of Cincinnati. He was the Frank H. May field Chair for Neurological Surgery and Chairman of the Department of Neu rosurgery from 2009-2017. Dr. Zuccarello is also a member of the Universit y of Cincinnati Gardner Neuroscience Institute and the Greater Cincinnati/ Northern Kentucky Stroke Team.\n\n\n\n Dr. Zuccarello is dedicated to clin ical research in neurovascular disease and the development of new neurosur gical techniques for the treatment of stroke\, cerebral hemorrhage\, vasos pasm\, carotid artery disease\, and moyamoya disease. While Cincinnati has become widely known for its leadership in stroke research\, treatment\, a nd the development of clot-busting drugs\, Dr. Zuccarello has led a quiet revolution in the prevention and treatment of brain hemorrhages\, which ra nk among the most hazardous conditions of the brain.\n\n\n\n Dr. Zuccarell o graduated summa cum laude from the Gymnasium in Catania\, Italy\, in 197 0. He received his medical degree from the University of Padova\, Italy\, in 1976\, and completed his residency in neurosurgery from Padova\, with s umma cum laude honors\, in 1980. He subsequently performed research fellow ships at the University of Iowa and the University of Virginia Medical Cen ter\, Charlottesville\, and a clinical fellowship at the University of Cin cinnati.\n\n\n\n He was inducted into Alpha Omega Alpha\, the national med ical honor society in 2001 and has been named to the Best Doctors in Ameri ca since 2005. In 2013\, he received recognition by members of the Vasospa sm consortium for his dedication and outstanding accomplishments in the fi eld of experimental and clinical research on subarachnoid hemorrhage.\n\n\ n\n Jonathan A. Forbes\, MD\n\n Neurosurgeon\n\n\n\n Dr. Forbes is a fello wship-trained neurosurgeon with expertise and interest in open and minimal ly-invasive approaches for treatment of pathology of the cranial base. He has a long and distinguished history of academic recognition\, commitment to excellence\, and service to our country. As an undergraduate at Grove C ity College\, he was a recipient of the Trustee Scholarship and was named Sportsman of the Year after his senior season of varsity football. Followi ng the events of 9/11\, he enrolled in the Health Professions Scholarship Program with the United States Air Force. In medical school at the Univers ity of Pittsburgh\, he was a recipient of the David Glasser Honors’ Awar d for academic performance. During neurosurgical residency at Vanderbilt U niversity\, he received numerous national accolades—including the AANS S ynthes Craniofacial Award for Research in Neurotrauma as well as the AANS Top Gun Award. His score on the American Board of Neurological Surgery (AB NS) written board examination during his fourth year of residency was reco gnized in the top 3% nationwide.\n\n\n\n After completing his chief year o f neurosurgical residency at Vanderbilt in 2013\, Dr. Forbes went on to fu lfill a 4-year commitment with the U.S. Air Force that included a 6-month deployment to Bagram Air Force Base in Afghanistan. Humanitarian care he p rovided at the Craig Joint Theater Hospital in Bagram has been featured in numerous neurosurgical journals—including Journal of Neurosurgery\, Wor ld Neurosurgery and Neurosurgical Focus—and recognized on a national lev el by the USAF as part of the “Through Airmen’s Eyes” series. After honorable discharge from the military\, he completed a minimally-invasive skull base fellowship at Weill Cornell Medical Center in New York City und er the guidance of Dr. Theodore Schwartz prior to joining the UC Departmen t of Neurosurgery. To date\, Dr. Forbes has contributed to over 40 peer-re viewed publications.\n DTSTART:20181203T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar with Dr. Friedman DTSTAMP:20181124T144309Z SEQUENCE:0 UID:1585-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Dr. Theodore Friedman’s next webinar will be on the Macrilen Stimulation Test for Growth Hormone Deficiency: S unday\,  December 9\, 2018\, 6 PM PST\n\n\n\n Adult growth hormone defici ency occurs in patients with hypopituitarism and can occur in those with a pituitary tumor. A growth hormone stimulation test is needed to make the diagnosis of adult growth hormone deficiency. \n\n\n\n Dr. Theodore Fried man’s next webinar will be on the Macrilen Stimulation Test for Growth H ormone Deficiency: Sunday\,  December 9\, 2018\, 6-7 PM PST.\n\n\n\n He w ill discuss the new Macrilen stimulation test and compare it to the glucag on stimulation. If you may have growth hormone deficiency\, you do not wan t to miss this webinar.\n\n\n\n 6:00 pm  |  Pacific Standard Time\, 9: 00 pm Eastern Standard Time\n\n\n\n Meeting number (access code): 284 045 554\, Meeting password: growth\n\n\n\n \n join the meeting at http s://axisconciergemeetings.webex.com/webappng/sites/axisconciergemeetings/m eeting/info/112079331212153316?MTID=ma5789d4e965d2af1c3ceedc7d92172c7\n \n\n \n Slides will be available before the webinar at https://ww w.dropbox.com/sh/6lk0cmx5ae0bv7t/AADtLykFSioSmiRm6Rf4_tyta?dl=0\n \n \n \n  \n \n \n Join by phone +1-855-797-9485 US Toll free\n \n \n You can join on a website (that will allow you to hear the presen tation and view the slides) or by telephone (that will allow you only to h ear the presentation). There will be time for questions by “chat”  and the video conference will be posted on goodhormonehealth.com a few da ys after. You will be required to mute your phones/computers. \n\n\n\n P lease contact us at mail@goodhormonehealth.com if you have questions.\n DTSTART:20181210T020000Z DTEND:20181210T030000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Pituitary 101 DTSTAMP:20181025T014126Z SEQUENCE:0 UID:1584-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Kevin C.J. Yuen\, MD\n\n Director\, Barrow Pituitary Center\n\n Director\, Barrow Neuroendocrinology Clinic\n\ n Barrow Neurological Institute\n\n Phoenix\, Arizona\n\n\n\n \n\n\n\n Aft er registering you will receive a confirmation email containing informatio n about joining the Webinar.\n\n\n\n Date: November 1\, 2018\n\n Time: 10: 00 AM - 11:00 AM Pacific Daylight Time\n\n\n\n Learning Objectives:\n\n\n\ n To discuss the anatomy of the pituitary gland\n\n To discuss the physiol ogy of pituitary hormone secretion\n\n To discuss what can go wrong and ho w to treat pituitary disorders\n\n\n\n Presenter Bio:\n\n\n\n Kevin C.J. Y uen\, MD\, is a neuroendocrinologist and Medical Director of the Pituitary Program at Barrow Neurological Institute\, specializing in the management of hypothalamic-pituitary disorders. He is double board-certified in Endo crinology and Internal Medicine by the American Board of Internal Medicine \, and General Medical Council in the UK.\n\n\n\n Dr. Yuen’s expertise i ncludes clinical and research interest in the management of pituitary and adrenal disorders\, particularly adults with growth hormone deficiency\, a cromegaly\, hypogonadism\, Cushing’s disease and adrenal insufficiency. He also has a particular interest in neuroendocrine disorders in young adu lt cancer survivors and adults with traumatic brain injury. His research i s devoted to new diagnostics and treatments of pituitary disorders.\n\n\n\ n Dr. Yuen received his medical degree from University of Sheffield\, UK. He completed his residency in Internal Medicine at University of Southampt on\, UK\, clinical and research fellowship in Endocrinology at University of Cambridge\, UK\, and clinical and research instructor at Oregon Health and Science University\, Portland\, OR. Dr. Yuen is active in national and international collaborative studies\, and has published extensively in nu merous peer-reviewed medical journals\, authored several book chapters\, a nd is a frequent guest speaker on various topics related to pituitary diso rders.\n DTSTART:20181101T180000Z DTEND:20181101T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Barrow Pituitary Center Patient Education Day DTSTAMP:20181013T150452Z SEQUENCE:0 UID:1583-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Barrow Neurological Institute\n\n Sonntag Pavilion\n\n St . Joseph’s Hospital and Medical Center\n\n 350 West Thomas Road\, Phoeni x\, AZ 85013\n\n\n\n October 27\, 2018\n\n 8:30 AM to 4:00 PM\n\n\n\n The Barrow Pituitary Center is dedicated to educating patients\, caregivers\, and loved ones by providing information which is current and non-biased. E xperts at this conference will address management of the emotional and phy sical elements of living with pituitary disorders. We hope attendees will leave empowered to make better-informed decisions about their healthcare a nd achieve their goals for a long and fruitful life.\n\n\n\n Event Flyer  or to register\, visit the Barrow Website\n\n\n\n For more information co ntact Maggie Bobrowitz\, RN\, MBA\, at (602) 406-7585 or Margaret.Bobrowi tz@DignityHealth.org.\n DTSTART:20181027T040000Z END:VEVENT BEGIN:VEVENT SUMMARY:2nd Annual Weill Cornell Pituitary Symposium: Pituitary Diso rders Across the Age Spectrum CME DTSTAMP:20181013T145224Z SEQUENCE:0 UID:1582-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Friday\, October 19 at 8:00am to 4:00pm\n\n\n\n Belfer Re search Building\, 3rd Floor\n\n\n\n 413 East 69th St.\, New York\, NY 1002 1\n\n\n\n This course is a comprehensive overview and discussion of the ev aluation\; management\; and medical\, surgical\, and radiation treatments of the pituitary tumor. The conference will comprise lectures\, case-based talks\, and Q&\;A panel sessions.\n\n\n\n The pituitary gland plays an enormously important role in human development\, the maintenance of vario us essential physiologic functions\, and aging and senescence. Hence\, the health of the pituitary gland is critical at all stages of human life. Fo r this reason\, there are a variety of pituitary disorders that can have a profound impact on multiple organ systems at different ages. General prac titioners and even specialists in endocrinology may not be fully aware of the widespread impact of the pituitary gland in health and disease\; the f unction of this course is to educate and inform a general medical audience on pituitary disease.\n\n\n\n For more information visit their website  or contact Tatiana Soto at tas2041@med.cornell.edu or 212-746-0403.\n DTSTART:20181019T120000Z DTEND:20181019T200000Z END:VEVENT BEGIN:VEVENT SUMMARY:Birthday of the Message Boards DTSTAMP:20180930T095030Z SEQUENCE:0 UID:1581-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Today  is the birthday\, or anniversary\, of the boards starting September 30\, 2000 (The rest of the site started earlier that ye ar in July 21\, 2000)\n\n\n\n  \n\n\n\n \n\n\n  \n DTSTART;VALUE=DATE:20180930 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Theodore Friedman Webinar on Nuances of Diagnosing and Treat ing Hypothyroidism DTSTAMP:20180719T135913Z SEQUENCE:0 UID:1580-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n \n TOPICS TO BE DISCUSSED INCLUDE:\n \n\n \n   \n \n\n \n \n HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM?\n \n \n \n \n WHAT DOES IT MEAN TO HAVE H ASHIMOTO’S?\n \n \n \n \n WHICH THYROID MEDICINE IS THE BE ST?\n \n \n \n \n WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES?\n \n \n \n \n WHAT A BOUT TAKING ONLY T3?\n \n \n \n \n IS RT3 IMPORTANT?\n \n \n \n \n IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM?\n \n \n \n  \n \n\n \n SUNDAY • JULY 29TH • 6 PM PST\n \n\ n \n  \n \n\n \n Click here to join the meeting or\nhttps://axis conciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee26 83a5022761e3e5945087\n\n OR\n\n Join by phone: (855) 797-9485\n\n Me eting Number (Access Code): 287 970 949\, Meeting Password: hormone\n \ n\n \n Your phone/computer will be muted on entry. There will be plent y of time for questions using the chat button.\n\n For more information\ , email us at mail@goodhormonehealth.com.\n \n \n DTSTART:20180730T020000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Cushing’s Disease: Recent Advances in Medical The rapy DTSTAMP:20180711T073241Z SEQUENCE:0 UID:1579-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Eliza Geer\, MD\n\n Medical director \, Multidisciplinary Pituitary &\; Skull Base Tumor Center\n\n Associat e Attending\, Endocrine Service\n\n Memorial Sloan Kettering Cancer Center \n\n\n\n \n\n\n\n After registering you will receive a confirmation email with details about joining the webinar.\n\n\n\n Contact us at webinar@pit uitary.org with any questions or suggestions.\n\n\n\n \n\n Date: Wednesda y\, July 18\, 2018\n\n Time: 10:00 AM - 11:00 AM Pacific Daylight Time 1:0 0 PM - 2:00 PM Eastern Daylight Time\n\n\n\n Webinar Description:\n\n\n\n Learning Objectives:\n\n\n\n Review Cushing’s disease treatment guidelin es\n\n\n\n Evaluate currently available medical therapies for Cushing’s disease\n\n\n\n Discuss new therapies in clinical trials\n\n\n\n Presenter Bio:\n\n\n\n Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Dir ector of Memorial Sloan Kettering’s Multidisciplinary Pituitary &\; S kull Base Tumor Center\, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medica l treatment for people with pituitary and skull base tumors\, including pr olactinomas\, growth-hormone secreting adenomas (acromegaly)\, and Cushing ’s disease. Their overall goal is to improve and advance the care of peo ple with these conditions.\n\n\n\n Dr. Geer’s research interests focus o n achieving a better understanding of how and why pituitary tumors develop \, and characterizing long-term outcomes in patients with Cushing’s dise ase. She has conducted a number of studies investigating body composition\ , adipose tissue regulation\, and appetite in patients with Cushing’s di sease\, and she is involved in clinical trials investigating new medical t herapies for patients with Cushing’s and acromegaly.\n\n\n\n Dr. Geer co mpleted her internship and residency at the NewYork-Presbyterian Hospital/ Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center\, after which s he was a member of the faculty for ten years. She is currently an associat e professor of medicine and an active member of the Endocrine Society\, th e Pituitary Society\, the Pituitary Network Association and the American A ssociation of Clinical Endocrinologists.\n DTSTART:20180718T170000Z DTEND:20180718T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Kassey Whiterock DTSTAMP:20170621T122034Z SEQUENCE:0 UID:1523-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Kassey passed away on June 30\, 2016. Her sister said she died in her sleep. She was in the hospital due to a crisis on June 21st.\ n\n\n\n Kassey was only 20 years old.\n\n\n\n Read more at https://cushin gsbios.com/2016/07/07/in-memory-of-kassey-whiterock-june-30-2016/\n DTSTART;VALUE=DATE:20180630 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Happy 4th of July! DTSTAMP:20170623T132103Z SEQUENCE:0 UID:1538-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Happy 4th of July!\n\n\n\n DTSTART;VALUE=DATE:20180704 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Kalyn Allen\, June 28\, 2017 DTSTAMP:20180627T233034Z SEQUENCE:0 UID:1578-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Kayln was only 41 when she died on June 28\, 2017.  She had recently had pituitary surgery.\n\n\n\n Read more at https://cushings bios.com/2017/06/28/in-memory-kayln-allen-june-28-2017/\n DTSTART;VALUE=DATE:20180628 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Kate Myers DTSTAMP:20180622T125105Z SEQUENCE:0 UID:1577-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Kate (Fairley on the Cushing’s Help message boards)  w as only 46 when she died on June 23\, 2014. \n\n\n\n Read more at https: //cushingsbios.com/2015/06/23/1623/\n DTSTART;VALUE=DATE:20180623 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Dr. Theodore Friedman Webinar June 24 DTSTAMP:20180618T013813Z SEQUENCE:0 UID:1576-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Are Sleep Apnea and Snoring the causes of your Weight Gai n and Fatigue?\n\n\n\n Dr. Theodore Friedman hosts Jay Khorsandi\, DDS fro m Snore Experts for a fascinating webinar on the relationship between Slee p Apnea\, Snoring\, Weight Gain and Daytime Fatigue.\n\n\n\n \n Topics to be discussed include:\n\n • Why does poor sleep lead to weight gain an d fatigue?\n\n • Why are home sleep monitors better than in lab monitor s?\n\n • What are the treatments for Sleep Apnea and Snoring?\n\n • Will the treatments lead to weight loss and more energy?\n\n • Dr. Frie dman will also add some comments about the endocrine effects of poor sleep .\n\n Sunday • June 24th • 6 PM PST\n \n\n \n Click to start webinar at\nhttps://axisconciergemeetings.webex.com/axisconcierg…/j.php…\n\n OR\n\n Join by phone: (855) 797-9485\n \n\n \n Meeting Number (Access C ode): 287 844 283 Your phone/computer will be muted on entry. There will b e plenty of time for questions using the chat button.\n \n\n \n Meeting P assword: dreams\n\n For more information\, email Dr. Friedman at mail@goo dhormonehealth.com\n \n DTSTART:20180624T220000Z DTEND:20180624T230000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Diana Crosley DTSTAMP:20180613T141326Z SEQUENCE:0 UID:1575-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Diana Lynn Alexander Crosley\, age 58\, of Sidney\, passe d away peacefully on Wednesday\, June 18\, 2014\, at 10:10 p.m. at her res idence surrounded by her loving family. \n\n\n\n Read more at https://cu shingsbios.com/2015/06/18/in-memory-diana-crosley-2/\n DTSTART;VALUE=DATE:20180618 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory ~ Sarah Fraik DTSTAMP:20180613T140811Z SEQUENCE:0 UID:1574-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Sarah had recently had surgery to remove a tumor from her pituitary gland in the hopes of treating her Cushing’s Disease.  She d ied on June 13\, 2011 after a brief illness at the age of 28.\n\n\n\n Read more at https://cushingsbios.com/2013/09/14/sarah-fraik/\n DTSTART;VALUE=DATE:20180613 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Thomas F. Zachman DTSTAMP:20170621T122155Z SEQUENCE:0 UID:1524-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Thomas “Tommy” F. Zachman\, of Windsor\, formerly of Toledo\, Ohio\, died suddenly and unexpectedly at University Hospital in D enver on June 3\, 2010\, complications of Cushing’s Syndrome.\n\n\n\n Re ad more at https://cushingsbios.com/2015/06/03/in-memory-thomas-f-zachman -1950-2010-2/\n DTSTART;VALUE=DATE:20170603 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Oxytocin and Hypopituitarism: A Missing Forgotten H ormone? DTSTAMP:20180526T133650Z SEQUENCE:0 UID:1573-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Thursday May 31\, 2018 1:00 PM - 2:00 PM EDT\n\nPresented by\n\n\n\n Yuval Eisenberg\, MD\n\n Assistant Professor of Medicine\n\n U niversity of Illinois\, at Chicago (UIC)\n\n Division of Endocrinology\, D iabetes and Metabolism\n\n\n\n Webinar Description\n\n\n\n Learning Object ives:\n\n\n\n 1) Review the functions of oxytocin in humans\n\n 2) Describ e areas of active research on oxytocin effects\n\n 3) Review the relevant oxytocin and hypopituitarism literature\n\n\n\n Presenter Bio\n\n\n\n Dr. Yuval Eisenberg is an endocrinologist at the University of Illinois\, at C hicago (UIC). Dr. Eisenberg studied Medicine at Rush Medical College in Ch icago and then did his internship\, residency and fellowship at the Univer sity of Illinois at Chicago. He is certified in Internal Medicine and Endo crinology.\n\n\n\n Dr. Yuval Eisenberg strives to connect with his patient s and provide top quality medical care. He believes strongly that a good p atient/doctor relationship is the backbone for successful medical practice . His goal with each visit is to listen\, inquire\, and educate and to ass ist you with making important medical decisions. Although his main focus i s General Endocrinology\, Dr. Eisenberg has a specialized interest in pitu itary and adrenal disorders. Dr. Eisenberg's research interest in in the h ormone oxytocin and how it might affect patients with pituitary hormone de ficiencies (hypopituitarism).\n\n\n\n Register at https://register.gotowe binar.com/register/8391851366080015362?utm_source=newsletter_271&\;utm_ medium=email&\;utm_campaign=webinar-announcement-webinar-oxytocin-and-h ypopituitarism-a-missing-forgotten-hormone\n DTSTART:20180531T170000Z DTEND:20180531T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:Tenth Annual Johns Hopkins Pituitary Patient Day DTSTAMP:20180518T135150Z SEQUENCE:0 UID:1572-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Join us on Saturday\, October 13\, 2018\n\n\n\n 10th Annu al Johns Hopkins Pituitary Patient Day\n\n Saturday\, October 13\, 2018\,  9:00 a.m. to 3:00 p.m.\n\n\n\n Location:\n\n Johns Hopkins Mt. Washingto n Conference Center\n\n 5801 Smith Avenue\n\n Baltimore\, MD 21209\nmap an d directions\n\n\n\n Attendance and parking are free\, but seating is limi ted. Reserve your space now: Please R.S.V.P. by email (preferred) to P ituitaryDay@jhmi.edu  or by calling 410-670-7259.\n\n\n\n Agenda\n\n\n\ n 9:00 - 9:25 a.m.: Registration\n\n\n\n 9:25 - 9:30 a.m.: Welcome and ack nowledgments (Roberto Salvatori\, M.D.)\n\n\n\n 9:30 - 10:00 a.m.: Sympt oms of Pituitary Tumors: Acromegaly\, Cushing\, and Non-Functioning Masses  (Roberto Salvatori\, M.D.)\n\n\n\n 10:00 - 10:30 a.m.: Effects of Pitui tary Tumors on Vision (Amanda Henderson\, M.D.)\n\n\n\n 10:30 - 11:00 a.m .: A Patient's Story (to be announced) \n\n\n\n 11:00 - 11:30 a.m.: Th e Nose: the Door to Access the Pituitary Gland (Murray Ramanathan\, M.D.) \n\n\n\n 11:30 a.m. - 12:00 p.m.: Surgery for Pituitary Tumors: Images fr om the Operating Room (Gary Gallia\, M.D.\, Ph.D.)\n\n\n\n 12:00 - 12:30 p.m.: Radiation Therapy for Cushing\, Acromegaly and Non-Functioning Tum ors: When Needed\, A Good Option (Kristin Redmond\, M.D.)\n\n\n\n 12:30 - 1:25 p.m.: Lunch\n\n\n\n 1:30 - 3:00 p.m. Round Table Discussions:\n\n\n \n Acromegaly\n \n \n Cushing Disease\n \n \n Non-Functioning Adenomas\ n \n \n Craniopharyngiomas and Rathke's Cysts\n \n\n  \n\n\n\n \n \n \n DTSTART:20181013T130000Z DTEND:20181013T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Happy Mother's Day! DTSTAMP:20180512T165255Z SEQUENCE:0 UID:1571-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n DTSTART;VALUE=DATE:20180513 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Melinda Smith DTSTAMP:20180508T150525Z SEQUENCE:0 UID:1570-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Sadly\, we lost another Cushing’s patient on Friday\, M ay 9\, 2014.  Melinda was a member of the Cushing’s Help message boar ds since Jun 24\,  2007.\n\n\n\n She was only 25 and left behind a young son and many loving family members.\n\n\n\n Read more at https://cushing sbios.com/2015/05/09/in-memory-of-melinda-smith-1988-2014/\n DTSTART;VALUE=DATE:20180509 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Gregory J. Bart Jr. DTSTAMP:20180508T150339Z SEQUENCE:0 UID:1569-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n He died of a presumed heart attack.\n\n\n\n September 19\ , 2015 he said 'I was diagnosed hypertensive way back when I was 20. The c ondition remained for years\, and became more acute with my cushings pit t umor. I still have high blood pressure\, partially teated with three meds. I'll have to consult my doc and see if this may also be an issue.'\n\n\n\ n More information at https://cushingsbios.com/2016/05/08/in-memory-grego ry-j-bart-jr-may-7-2016/\n DTSTART;VALUE=DATE:20180507 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Preserving Function in Pituitary Surgery DTSTAMP:20180502T133427Z SEQUENCE:0 UID:1568-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented By\n\n\n\n Daniel Prevedello\, MD\n\n\n\n Profe ssor\, Department of Neurological Surgery\n\n Director\, Minimally Invasiv e Cranial Surgery Program\n\n Co-Director\, Comprehensive Skull Base Cente r at The James\n\n Director\, Pituitary Surgery Program\n\n The Wexner Med ical Center at The Ohio State University\n\n\n\n \n\n\n\n After registerin g you will receive a confirmation email with details about joining the web inar.\n\n\n\n Contact us at webinar@pituitary.org with any questions or suggestions.\n\n\n\n Date: May 8\, 2018\n\n\n\n Time: 3:00 - 4:00 PM Pacif ic Daylight Time\, 6:00 - 7:00 PM Eastern Daylight Time\n\n\n\n Webinar In formation:\n\n\n\n Learning Objectives:\n\n\n\n Understand the importance of gland function preservation during pituitary surgery.\n \n \n Underst and the importance of preserving nose function related to the approach.\n \n \n Understand the importance of team work in pituitary surgery\n \n\n Presenter Bio\n\n\n\n Dr. Prevedello is a professor in the Department of N eurological Surgery\, and the director for the Minimally Invasive Cranial Surgery Program. He is one of only a few neurosurgeons in the world who ha ve performed more than 1\,000 Endoscopic Endonasal Approach (EEA) cases. E EA is a minimally invasive surgery technique that gives surgeons access to the base of the skull\, intracranial cavity and top of the spine by opera ting through the nose and paranasal sinuses. Dr. Prevedello was rated in t he top 10 percent of physicians in the nation for patient satisfaction in 2016 and 2017.\n\n\n\n Dr. Prevedello’s current research focus is on dev eloping minimally invasive approaches to the brain and skull base that wil l result in the best surgical tumor resection possible with the least amou nt of disruption to normal tissue. Finding a patient treatment option that reduces the amount of long-term consequences for patients and their famil ies is always his top priority.\n\n\n\n Dr. Prevedello's medical journey b egan in Brazil\, where he attended medical school and finished his residen cy in 2005. He completed fellowships in neuroendocrine and pituitary surge ry at the University of Virginia\, and another in skull base and cerebrova scular surgery at the University of Pittsburgh.\n DTSTART:20180508T220000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Patti DTSTAMP:20180501T125717Z SEQUENCE:0 UID:1567-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n May 2\, 2002\n\n\n\n From the Message Boards: ” I loved her\, she was a great friend. She died of adrenal cortical carcinoma.”\ n\n\n\n Read more at https://cushingsbios.com/2015/05/02/in-memory-patti/ \n DTSTART;VALUE=DATE:20180502 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Kathryn McBride ‘Bridie’ Miller DTSTAMP:20180501T125502Z SEQUENCE:0 UID:1566-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n In Memory: Kathryn McBride ‘Bridie’ Miller\n\n\n\n Mu rdered May 1\, 2007\n\n\n\n 'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly\, it has definite ly been a godsend to cushies everywhere. The reason I am writing tonight i s I have just received devastating information about a dear friend of mine \, and a woman some of you may have met during testing. Her name is Kathry n Miller and she is a patient of Dr. Ludlam\, that is how she and I met. S he was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'\n\n\n\n Read more at https://cus hingsbios.com/2015/05/01/in-memory-kathryn-mcbride-bridie-miller/\n DTSTART;VALUE=DATE:20180501 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Natalie ~ April 21\, 2008 DTSTAMP:20180421T125934Z SEQUENCE:0 UID:1565-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n MaryO Note: Natalie had a BLA in March\, 2008. She died April 21\, 2008.\n\n\n\n \nIn Memoriam\n\n\n\n Natalie Fay\n\n\n\n Monday\ , April 21\, 2008\n\n\n\n \n\n\n 2001 Cushing's Lunch. From\n\n left: Joe (Natalie's husband)\, Natalie and Linda\n\n\n\n Natalie Fay (Natalie65)\, died April 21\, 2008. She was only 42 and had recently had a BLA. I first\ n\n met Natalie at a local lunch in November of 2001 and have seen her sev al times\n\n since then.\n\n\n\n Natalie started the original \"Dammit Dol ls\" that circulated\n\n around the country until people refused to pass t hem along anymore.\n\n\n\n \n\n\n Dammit Doll.\n\n\n\n Natalie also made c ounted cross-stitch\n\n Cushing's Awareness Pins:\n\n\n\n \n\n\n Natalie's bio... http://www.cushings-help.com/natalies_story.htm\n\n\n\n \n\n\n Som e recent past\n\n posts.\n\n\n\n \n February 10\, 2008\n \n\n \n going t o UVA I am going for my first visit with Dr. Hanks at\n\n UVA on the 20th . I will also see Dr. Vance that day. I haven't seen her before\n\n eithe r. I am planning on having bilateral adrenal surgery in March. I am a\n\n little nervous about this\, but it is going to be a positive thing I hope . I\n\n would love to hear from anyone who has had this done so that I wi ll have an idea\n\n of what to expect. after surgery.\n \n\n \n Thanks! Natalie\n \n\n\n\n \n March 18\, 2008\n \n\n \n surgery update Hey every one!\n \n\n \n I'm back! It has been a\n\n very slow week and I'm just s atrting to feel like moving around again. I had BLA\n\n on the 10th and c ame home on friday. My parents have taken my boys (3 &\; 6)\n\n home t o Va. I have missed them so much this week\, but I think it was the right\ n\n thing to do. I don't know how I would have done it without them. I am still very\n\n sore and tired at times\, but I'm coming along. Sorry thi s has taken so long to\n\n get out to you guys\, I thought things were ta ken care of but I was wrong. Oh\n\n Well! I'm doing good and I'll keep in touch. Thanks for all of your thoughts and\n\n prayers.\n \n\n \n Natal ie\n \n\n\n\n Message Board Signature:\n\n\n\n \n pit surgery 1990\n\n t raditional 30 days\n\n radiation 1990\n\n pit surgery 1995\n\n sterotac tic radiation surgery 1995\n\n 2004\n\n still have remaining tumor\n\n cortisol levels still off balance\n\n BLA March 10\,\n\n 2008\n \n\n\n\n Tributes and Memories on the message boards...\n\n\n\n \n \n\n \n Our f irst local DC area Cushie lunch November 17\, 2001 with Linda\, Jayne\, me and Natalie - all in Cushe Colors [Photographer: Robin]\n \n\n\n\n \n \n \n \n Our first local DC area Cushie lunch November 17\, 2001 with Jayne\ , Linda\, Natalie\, MaryO and Dianne [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our first local DC area Cushie lunch November 17\, 2001 with Jayn e\, Linda\, Natalie\, MaryO and Dianne [Photographer: TomO]\n \n\n\n\n \n \n\n \n Our second local DC area Cushie lunch February 9\, 2002 all the families [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our second local DC area Cushie lunch February 9\, 2002 with Jayne\, Marcia\, Heather\, Natal ie and MaryO [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our second loca l DC area Cushie lunch February 9\, 2002 with Jayne\, Marcia\, Heather\, N atalie and MaryO [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our second local DC area Cushie lunch February 9\, 2002 with Jayne\, Marcia\, Heather \, Natalie and MaryO. LynneInVa made the roses for us from candles. [Photo grapher: Robin]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lunc h May 4\, 2002 with lots of us! [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lunch May 4\, 2002 with lots of us! [Pho tographer: Robin]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lu nch May 4\, 2002 with lots of us! [Photographer: Robin]\n \n\n\n\n \n \n\ n \n Our next local DC area Cushie lunch May 4\, 2002 with lots of us! [P hotographer: Robin]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lunch May 4\, 2002 with Pat\, MaryO\, Ruth\, Natalie\, Susan\, Jayne [Phot ographer: TomO]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lunc h May 4\, 2002 with Pat\, MaryO\, Ruth\, Natalie\, Susan\, Jayne [Photogra pher: Robin]\n \n\n\n\n \n \n\n \n Our next local DC area Cushie lunch M ay 4\, 2002 with Joe\, Jed and Catherine [Photographer: Robin]\n \n\n\n\n \n \n\n \n Our three families: Tom and MaryO\, Natalie and Joe\, Robin a nd Jayne...and kids [Photographer: a waitress]\n \n\n\n\n \n \n\n \n Our three families: Tom and MaryO\, Natalie and Joe\, Robin and Jayne...and k ids [Photographer: a waitress]\n \n\n\n\n \n \n\n \n TomO being silly\, stealing Catherine's nose. [Photographer: Robin]\n \n\n\n\n http://www.wri ghtfuneralhome.org/index.cfm\n\n\n\n Natalie Grissom Fay\n\n (June 11\, 19 65 - April 21\, 2008)\n\n\n\n \nGuest\n\n Book | Sign\n\n Guest Book\n\n\n \n Courtland\, Virginia– Natalie Grissom Fay\, 42\, passed away April 21 \, 2008 at St. Mary’s Hospital in Leonardtown\, Md. She was born in Pete rsburg\, Va\, a daughter of Edward Scott and Nan Lucy Grissom and was a 19 83 graduate of Southampton High School. Natalie actively supported several Cushing Support Groups\, and was a member of the Patuxent Presbyterian Ch urch. Surviving in addition to her parents is her husband\, Joseph P. Fay\ ; two sons\, Joseph Edward (Jed) Fay and Nathan Lee Fay all of Hollywood\, Md.\; one sister\, Annette G. Stephenson of Courtland\, Va.\; two nephews \, Scott and Vance Stephenson\; and her father-in-law\, Edward K. Fay and wife\, Sunee\, of Deltona\, Fl. The funeral will be conducted at 2 pm Frid ay at Wright Funeral Home with the Rev. Edmund Ellis officiating. Burial w ill follow in Riverside Cemetery. The family will receive friends from 7 t o 9 pm Thursday at the home of Edward and Nan Grissom\, 16046 Wakefield Ro ad\, Courtland\, and suggest that in lieu of flowers\, memorials may be ma de to Cushings Help\, c/o Mary O’Connor.\n DTSTART;VALUE=DATE:20180421 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Cushing's Awareness Day DTSTAMP:20180408T224429Z SEQUENCE:0 UID:1564-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Today\, April 8th\, is Cushing’s Awareness Day. Please wear your Cushing’s ribbons\, t-shirts\, awareness bracelets or Cushin g’s colors (blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a discussion going with anyone who will listen.\n\n\n\n And don’t just raise awareness on April 8.  Any day is a good day to raise awareness.\n DTSTART;VALUE=DATE:20180408 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Surgical Management of Cushing's Disease DTSTAMP:20180406T015922Z SEQUENCE:0 UID:1563-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented By:\n\n\n\n Russell Lonser\, MD\, FAANS\n\n Pro fessor and Chair\n\n Department of Neurological Surgery\n\n Ohio State Uni versity Wexner Medical Center\n\n\n\n \n\n After registering you will rece ive a confirmation email with details about joining the webinar.\n\n\n\n C ontact us at webinar@pituitary.org with any questions or suggestions.\n\ n\n\n Date: April 10\, 2018\n\n Time: 10:00 AM-11:00 AM Pacific Daylight T ime\, 1:00 PM - 2:00 PM Eastern Daylight Time\n\n\n\n Learning Objectives: \n\n\n\n To define clinical features of Cushing’s disease.\n \n \n To describe management paradigms for Cushing’s disease.\n \n \n To underst and the evaluation of Cushing’s disease patients.\n \n\n Presenter Bio:\ n\n\n\n Russell R. Lonser graduated with a B.A. in economics from Andrews University in 1990 and received his M.D. from Loma Linda University in 199 4. He completed his neurosurgical training at the University of Utah in 20 01. During his residency\, he performed a 2-year research fellowship under the mentorship of Edward H. Oldfield\, M.D.\, in the Surgical Neurology B ranch at the National Institutes of Health (NIH). Upon completion of his r esidency\, he joined the staff of the Surgical Neurology Branch at the NIH . He was Chief of the Surgical Neurology Branch at NIH before becoming Pro fessor and Chair of the Department of Neurological Surgery at Ohio State U niversity in 2012. He holds the Dardinger Family Chair in Neurosurgical On cology.\n\n\n\n Dr. Lonser’s research interests include development of d rug delivery paradigms for the central nervous system pathology\, as well as investigation of tumor pathogenesis and biology. Specifically\, his sci entific efforts are directed toward studying convective delivery and neopl asia pathogenesis/propagation in familial tumor suppressor syndromes\, inc luding von Hippel-Lindau disease. His clinical and surgical interests are centered on the treatment of brain\, temporal bone and spinal cord tumors. He is an author on over 300 scientific and clinical publications. He rece ived the Tumor Young Investigator Award from the American Association of N eurological Surgeons/Congress of Neurological Surgeons Section on Tumors i n 2001 and Mahaley Clinical Research Award from the American Association o f Neurological Surgeons/Congress of Neurological Surgeons Section on Tumor s in 2013. He was the 2017 American Association of Neurological Surgeons/C ongress of Neurological Surgeons Section on Tumors Bittner Lecturer. He is a co-inventor on a patent for methods for convection-enhanced delivery of therapeutic agents.\n\n\n\n His contributions to organized neurosurgery i nclude membership on the Executive Committee of the Congress of Neurologic al Surgeons. He was the Treasurer of the Congress of Neurological Surgeons and is President of the Congress of Neurological Surgeons. He also served on the Executive Committee for the American Association of Neurological S urgeons/Congress of Neurological Surgeons Section on Tumors. He has served on a number national committees for organizations involved in neurosurgic al research. He is head of the Research Subcommittee in Head\, Neck and Sp ine Injury Committee for the National Football League. He has been activel y involved in the mentoring and training of over 40 neurosurgical fellows. He is on the Editorial Boards for NEUROSURGERY\, World Neurosurgery and J ournal of Neurosurgery. He is an Academic Editor for PLoS One and Science Reports. He is Consulting Editor for Neurosurgery Clinics of North America .\n\n\n\n Dr. Lonser is married to Carolyn. They have 3 daughters\, Hannah (born 2001)\, Sarah (2004) and Alicia (2007).\n DTSTART:20180410T170000Z DTEND:20180410T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Shianne Lombard-Treman DTSTAMP:20180402T012717Z SEQUENCE:0 UID:1562-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n  \n\n\n\n \n\n\n\n Shianne was a Cushing's Survivor who had just published a book\, Be Your Own Doctor\n\n\n\n \n \n \n\n \n   \n \n\n \n After 17 years as a personal trainer\, I ran into health probl ems of my own\, eventually having a name put to it…“Cushing’s Synd rome\,” a rare adrenal disease. Tumors were growing on my adrenal glands over-producing Cortisol\, your stress hormone.\n \n\n \n With 24/7 false fight-or-flight stress signals\, the body goes haywire\, producing horrif ic side effects such as weight gain around the midsection and back of neck \, diabetes and blood sugar deregulation\, inflammation\, muscle deteriora tion\, frail bones\, hair loss\, poor immunity\, infertility\, moonface\, buffalo hump\, extreme fatigue\, brain fog\, confusion\, severe anxiety/de pression and chemical imbalances.\n \n\n \n Being constantly diagnosed as “healthy” caused me to be told\, when I was finally diagnosed correct ly\, that I had maybe five years to live. Misdiagnosis can be a killer.… It is now my personal mission and obligation to help those suffering from any chronic illness that steals your joy\, and bring awareness to Endocri ne Disorders. From my journey through Cushing’s to Addison’s to reco very—from triathlete to barely being able to dress myself and finally to recovering into a stronger person I never knew I was.\n \n\n\n\n Her obit uary can be read here.\n\n\n\n  \n\n\n\n https://youtu.be/5qXYrm6OqYk\n\ n\n\n  \n\n\n\n Shianne F. Lombard-Treman\n\n May 03\, 1977 - March 28\, 2018\n DTSTART;VALUE=DATE:20180328 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Alena Renea Weeks Greenhill\, March 30\, 2007 DTSTAMP:20180330T124551Z SEQUENCE:0 UID:1561-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n It may not have been adrenal crisis\, but it may have\, a s Renea\, after her BLA\, didn't need replacement. She hadn't taken hydro for some year(s)\, and yet her cortisol was always '0'. The doctors would just scratch their heads.\n\n\n\n Renea was 31.\n\n\n\n Read more at http s://cushingsbios.com/2015/03/30/in-memory-alena-renea-weeks-greenhill/\n DTSTART;VALUE=DATE:20180330 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Sue Koziol (SuziQ) DTSTAMP:20180312T074159Z SEQUENCE:0 UID:1560-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Sue was born in Michigan on August 08\, 1946 and passed away on March 12\, 2006 at the age of 59.\n\n\n\n She was a very special friend to Cushies world-wide. We will remember her always. \n\n\n\n Read more at https://cushingsbios.com/2015/03/12/remembering-sue -koziol-suziq/\n DTSTART;VALUE=DATE:20180312 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Erica Michelle “GaGa” Meno DTSTAMP:20180306T134906Z SEQUENCE:0 UID:1559-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Erica was a fellow Cushing’s Disease survivor. She had been through pituitary surgery\, radiation\, and a BLA in an effort to rec eive her cure.\n\n\n\n Read more at https://cushingsbios.com/2015/03/11/i n-memory-erica-michelle-gaga-meno/\n DTSTART;VALUE=DATE:20180306 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Pituitary Patient Support Group DTSTAMP:20180302T024249Z SEQUENCE:0 UID:1558-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n  \n\n\n\n Pituitary Patient Support Group Saturda y March 24\, 2018\n\n Pejman Cohan\, MD 10:00am - 11:45am\n\n Daniel F. Ke lly\, MD 11:45am - 12:45pm\n\n Lunch 1:00pm - 2:00pm\n\n\n Family and frie nds welcome\n\n Please RSVP to Sharmyn Mcgraw\npituitarybuddy@hotmail.com\ n DTSTART:20180324T180000Z DTEND:20180324T220000Z END:VEVENT BEGIN:VEVENT SUMMARY:Patient Day 2018 DTSTAMP:20180208T121006Z SEQUENCE:0 UID:1556-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n\n\n Please join us for Patient Day 2018 at Ultragenyx in Novato\, CA on Saturday\, April 7\, 2018\, for a day of live music\, f ood\, games\, refreshments\, and much more!\n\n\n\n  \n\n\n\n A limited n umber of travel scholarships will be available for patients and loved ones that may be joining them to support their participation in Patient Day 20 18. For event details\, travel scholarship information and to register\, p lease click here.\n\n\n\n  \n\n\n\n An email confirmation will be sent t o you upon completion of your registration. Travel scholarship awards will be sent out after February 1\, 2018\, once a decision is made.\n\n\n\n  \n\n\n\n We welcome all families living with any rare disease to join u s in celebrating their strength and courage\, while also recognizing their daily challenges and sacrifices. The interactions between our employees a nd families provide a first-hand education about living with rare disease and further inspires the work we do for patients and families. We would li ke to honor and thank all of the patients who are participating in our cli nical trials\; however\, we also have to follow federal regulations regard ing the avoidance of influencing patients in our studies. So sadly\, we ca nnot have patients who are currently participating in selected Ultragenyx or Audentes studies attend Patient Day 2018.\n\n\n\n  \n\n\n\n If you are a healthcare provider caring for people with rare diseases\, please feel free to forward this invitation to your relevant patients.\n\n\n\n  \n\n\ n\n Please contact us if you have any questions or are unable to access th e registration site.\n\n\n\n  \n\n\n\n Hope to see you there!\n\n\n\n  \ n\n\n\n Patient Day Registration Team\n\n\n\n (415) 695-8001\n\n\n\n Patie ntDay@keyevents.com\n DTSTART;VALUE=DATE:20180407 END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Delays in Diagnosis of Pituitary Tumors DTSTAMP:20171211T220213Z SEQUENCE:0 UID:1555-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Kenneth M. De Los Reyes MD\, MSc\n\n Assistant Professor\n\n Co-director of Skull Base Surgery\n\n Director of Quality Assurance\n\n Department of Neurosurgery\n\n Loma Linda Universit y Medical Center\n\n\n\n Register Now!\n\n\n\n After registering you will receive a confirmation email with details about joining the webinar.\n\n\n \n Contact us at webinar@pituitary.org with any questions or suggestions .\n\n\n\n Date: Wednesday\, December 13\, 2017\n\n Time: 10:00 AM - 11:00 AM Pacific Standard Time 1:00 PM - 2:00 PM Eastern Standard Time\n\n\n\n W ebinar Description\n\n\n\n Learning Objectives:\n\n\n\n Building Patient a nd Medical Provider Awareness\n\n\n\n To build awareness among patients a nd medical providers of early signs and symptoms of pituitary and pituitar y related tumors\n \n \n To understand the consequences of delays in diag nosis of pituitary tumors\n \n \n To outline steps for patients and medic al providers to take to prevent delays in diagnosis of pituitary tumors.\n \n DTSTART:20171213T180000Z DTEND:20171213T190000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar on Saliva Testing with Dr. Friedman DTSTAMP:20171109T135818Z SEQUENCE:0 UID:1554-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Testing your salivary cortisol can now be done on your iP hone with Point of Care (POC) technology.\n\n\n\n Join Dr. Friedman for a webinar informing the Cushing's and Addison's community on the newly avail able Peak Biometric Research Stress Management System that offers a quick\ , private\, and non-invasive way to measure cortisol levels —without the hassle and expense of sending samples to a lab. Dr. Friedman will go over how to order and use the POC salivary cortisol monitor. He will explain t hat the product is not FDA-approved for diagnostic purposes and how to use it with commercial salivary testing. There will be plenty of time for que stions and discussion.\n\n\n\n \n\n Salivary Cortisol @ebinar\n\n Sunday\, November 19\, 2017\n\n 6:00 pm | Pacific Standard Time (San Francisco\, G MT-08:00) | 1 hr\n\n\n\n \n\n Meeting password: cushings\n\n Join the meet ing here\n\n\n\n Join by phone\n\n +1-855-797-9485 US Toll free\n\n\n\n \n \n You can join on a website (that will allow you to hear the presentation and view the slides) or by telephone (that will allow you only to hear th e presentation). There will be time for questions by “chat” and the vi deoconference will be posted on goodhormonehealth.com a few days after. Yo u will be required to mute your phones/computers. Please contact us at mai l@goodhormonehealth.com if you have questions.\n DTSTART:20171119T230000Z DTEND:20171120T000000Z END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Cassandra Dills-Dailey ~ August 29\, 2017 DTSTAMP:20170906T153237Z SEQUENCE:0 UID:1553-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Casey Dailey\, age 38\, was fighting Cushing's disease\, a pituitary gland disorder often caused by a tumor creating excess cortiso l. She had surgery Aug. 23 and went home the next day. Over the following weekend\, she began feeling sick. She vomited\, sometimes with blood. Then \, she couldn't stand or talk\, relatives said. A high fever started Sunda y\, after floodwaters surrounded her home\, and she became unresponsive.\n \n\n\n More info at https://cushingsbios.com/2017/09/06/in-memory-cassand ra-dills-dailey-august-29-2017/\n DTSTART;VALUE=DATE:20170829 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Janice DTSTAMP:20170904T132937Z SEQUENCE:0 UID:1552-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n In Memory of Janice\, who died on this date in 2001\n\n\n \n On the message boards\, Lorrie wrote: Our dear friend\, Janice died thi s past Tuesday\, September 4\, 2001. I received an IM from her best friend Janine\, tonight. Janine had been reading the boards\, as Janice had told her about this site\, and she came upon my name and decided to IM me. I a m grateful that she did. She said that she knew that Janice would want all of us to know that she didn’t just stop posting.\n\n\n\n Read more at h ttps://cushingsbios.com/2015/09/04/in-memory-janice-tuesday-september-4-20 01/\n DTSTART;VALUE=DATE:20170904 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Tonight on TV! DTSTAMP:20170810T212057Z SEQUENCE:0 UID:1550-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n First In Human represents the first time cameras have emb edded in Building 10 and followed first in human patients throughout their entire trial. This unique access is the product of Hoffman’s nearly twe nty years of filmmaking in partnership with the NIH on projects such as Th e Alzheimer’s Project and The Weight of the Nation.\n\n\n\n This episode airs at 9:00 PM eastern\n\n\n\n More information at https://cushieblogg er.com/2017/08/10/nih-discovery-channels-documentary-series-first-in-human /\n DTSTART:20170811T010000Z DTEND:20170811T030000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar: Coping With the Ups and Downs of Pituitary Disorder s DTSTAMP:20170713T133736Z SEQUENCE:0 UID:1548-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Presented by\n\n\n\n Linda M. Rio\, M.A.\, MFT\n\n\n\n \n \n\n\n After registering you will receive a confirmation email with detail s about joining the webinar.\n\n\n\n Contact us at webinar@pituitary.org  with any questions or suggestions.\n\n\n\n DATE:  July 17\, 2017\n\n TI ME:  10:00 AM - 11:00 AM Pacific Daylight Time/1:00 PM - 2:00 PM Eastern Daylight Time\n\n\n\n  \n\n\n\n Webinar Learning Objectives:\n\n\n\n By a ttending this webinar participants will:\n\n\n\n Be able to identify at l east 3 mental health symptoms that are common to those diagnosed with a pi tuitary disorder.\n \n \n Understand basics of “trauma” and its poten tial role in the etiology of some pituitary disorders.\n \n \n Know how t he medical/physiological aspects of pituitary tumors and other pituitary d isorders can interact and affect the mental health of patients.\n \n \n R ecognize the potential impact on the family for those with a member with a pituitary disorder.\n \n \n Learn some positive coping skills for both p ituitary patients and their family members.\n \n\n Presenter Bio:\n\n\n\n Linda has been a Marriage &\; Family Therapist (MFT) for over thirty ye ars. She is also the editor/author of The Hormone Factor in Mental Health: Bridging the Mind-body Gap (2014)\, which includes contributions from som e of the world’s top experts in endocrinology\, medical family therapy\, nutrition\, patient advocacy as well as real accounts from patients and t heir family members. Linda was on the editorial team for Pituitary Disorde rs Diagnosis and Management (2013)\, and co-author with her daughter\, Tar a\, of a book about eating disorders. She has authored dozens of articles for professionals as well as the general public on a variety of topics\, a ppeared on radio and T.V. Linda and her husband\, Lou\, just celebrated th eir 48th anniversary. They have two children and 3 granddaughters who are now in college.\n DTSTART:20170717T170000Z DTEND:20170717T180000Z END:VEVENT BEGIN:VEVENT SUMMARY:Webinar with Dr Friedman (Dr. F) DTSTAMP:20170704T212901Z SEQUENCE:0 UID:1547-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Join Dr. Theodore Friedman for an informative webinar on the endocrine causes of hair loss in women. Dr. Friedman will discuss what hormones to measure if a woman is experiencing hair loss. He will discuss how to optimize hormone replacement to minimize or reverse hair loss. The re will be plenty of time for questions and discussion.\n\n\n\n The times listed above are Eastern Time.  Check the link below for other timezones. \n\n\n\n Read more at https://cushieblogger.com/2017/07/04/webinar-with-dr -friedman-july-16-2017/\n DTSTART:20170717T000000Z DTEND:20170717T010000Z END:VEVENT BEGIN:VEVENT SUMMARY:Happy Thanksgiving! DTSTAMP:20170625T131611Z SEQUENCE:0 UID:1545-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n \n DTSTART;VALUE=DATE:20171123 END:VEVENT BEGIN:VEVENT SUMMARY:Happy Halloween! DTSTAMP:20170624T185115Z SEQUENCE:0 UID:1543-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n DTSTART;VALUE=DATE:20171031 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:MaryO Pituitary Surgery Anniversary DTSTAMP:20170624T185719Z SEQUENCE:0 UID:1544-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Today is the anniversary of MaryO's pituitary surgery at NIH in 1987.  \n\n\n\n Read more at https://cushingsbios.com/2016/11/03/ 29-years-giving-thanks/\n\n\n\n  \n\n\n\n DTSTART;VALUE=DATE:20171103 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Medical History DTSTAMP:20170624T001701Z SEQUENCE:0 UID:1541-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n (1865)  English physician George Redmayne Murray was bor n. He is credited with pioneering the treatment of endocrine diseases\, wh ich include thyroid cancer.\n DTSTART;VALUE=DATE:20170620 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Medical History DTSTAMP:20170623T233300Z SEQUENCE:0 UID:1540-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n (1915) Russian-Jewish neuroscientist Joseph Ransohoff was born. He is known pioneering the use of medical imaging in the diagnosis and treatment of brain tumors.\n DTSTART;VALUE=DATE:20170701 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:Happy National Sunglasses Day! DTSTAMP:20170623T233043Z SEQUENCE:0 UID:1539-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Elton John has over a thousand pairs\, Canadian singer C orey Hart only wears his at night\, and you can tell the good guys from th e bad guys in The Matrix by the shape of theirs. What am I talking about? Sunglasses\, of course! There’s nothing quite as stylish as a pair of sh ades\, so get out your aviators or your wayfarers and start celebrating Na tional Sunglasses Day!Read more at http://www.maryo.co/national-sunglasse s-day/\n DTSTART;VALUE=DATE:20170627 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Millie Niss DTSTAMP:20170622T211117Z SEQUENCE:0 UID:1537-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Millie is the first Cushing’s patient that I know of to have died from complications from Swine Flu.  She was only 36.\n\n\n\n M illie developed a confirmed case of the H1N1 virus. She spent 29 days in t he ICU of Millard Suburban Hospital before dying of complications of the f lu\, compounded by Behcet’s Disease and Cushings Disease.\n\n\n\n Read m ore at https://cushingsbios.com/2013/04/24/in-memory-millie-niss-1973-200 9/\n DTSTART;VALUE=DATE:20171129 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Hermina Dala DTSTAMP:20170622T210925Z SEQUENCE:0 UID:1536-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Hermina had Cushing's Disease. She passed away November 2 9\, 2002.\n DTSTART;VALUE=DATE:20171129 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Erin Lee Rechel Pugh DTSTAMP:20170622T210731Z SEQUENCE:0 UID:1535-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Erin was from Canton\, Ohio and several other Cushies met her at local meetings.\n\n\n\n She was 35 when she died.\n\n\n\n More inf o at http://www.legacy.com/obituaries/ohio/obituary.aspx?n=erin-lee-pugh- rechel&\;pid=176388742&\;\n DTSTART;VALUE=DATE:20171104 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Martha DTSTAMP:20170621T154516Z SEQUENCE:0 UID:1533-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n StaceyH wrote:   Dr. F had wanted to give Martha an IPSS \, but she had a problem with an EKG two weeks ago so the doctor would not release her for surgery. She went for a cardio stress test last week and was to get her results tomorrow. She was feeling “ok” but when I arriv ed home this evening\, I found her in the bathroom. I tried to give her CP R but I really knew it was too late...\n\n\n\n Read more at https://cushi ngsbios.com/2015/10/14/in-memory-martha-october-14-2008/\n DTSTART;VALUE=DATE:20171014 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Bonny Hamm DTSTAMP:20170621T154231Z SEQUENCE:0 UID:1532-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n She was only 45 at the time of her death October 12\, 200 9.  I’ve known far too many Cushies who have died far too young from th is disease.\n\n\n\n Read more at https://cushingsbios.com/2015/10/12/in-m emory-bonny-hamm-october-12-2009/\n DTSTART;VALUE=DATE:20171012 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Barbara “Cookie” Rothenberg DTSTAMP:20170621T132601Z SEQUENCE:0 UID:1531-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n My family and I met Cookie at the UVA Cushings Conference Fall 2002. She was so helpful and caring. She told my father\, sister\, a nd I her “Cushings Story.” She was so\, well\, there is no better word to describe her\, “bubbly.” She was so happy to be there\, teaching\, learning\, and helping with CUSH. She left an impression on my family and I. She had such a great personality. She was one of the very first “Cus hies” I met…and she made me re-think my attitude about being sick. She was going through so much\, yet she had such a wonderful attitude towards it all. She was amazing!\n\n\n\n Read more at https://cushingsbios.com/2 015/10/11/in-memory-barbara-cookie-rothenberg-oct-11-2003/\n DTSTART;VALUE=DATE:20171011 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Alice Baker DTSTAMP:20170621T130428Z SEQUENCE:0 UID:1530-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Thursday\, October 3\, 2002\n\n\n\n Alice died of lung ca ncer and Cushing’s.\n\n\n\n Read more at https://cushingsbios.com/2015/ 10/03/in-memory-of-alice-baker-october-3-2002/\n DTSTART;VALUE=DATE:20171003 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory of Lenise Petersen DTSTAMP:20170621T130324Z SEQUENCE:0 UID:1529-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Lenise passed away Wednesday\, Oct. 2\, 2002 at 23 years old\, just after her surgery.\n\n\n\n Read more at https://cushingsbios.c om/2015/10/02/in-memory-of-lenise-petersen-october-2-2002/\n DTSTART;VALUE=DATE:20171002 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Joanne Swain DTSTAMP:20170621T123358Z SEQUENCE:0 UID:1528-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Joanne was known on the boards as raggettyjoanne.\n\n\n\ n Mario VandDermeij announced the passing of his loving wife of 23 years.  Joanne Swain VanDermeij at the age of 56.  \n\n\n After 2 years and 3 m onths of fighting the system\, Joanne was finally diagnosed March the 14t h\, 2011\, with full blown adrenal Cushing's.\n DTSTART;VALUE=DATE:20170928 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Ryan Tyler Monds DTSTAMP:20170621T123157Z SEQUENCE:0 UID:1527-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Ryan passed away peacefully and is free from illness and pain....Also mourning his loss are aunts\, uncles\, cousins\, many life-lo ng friends and friends through Cushing’s Disease Awareness.\n\n\n\n Read more at https://cushingsbios.com/2016/09/11/in-memory-ryan-tyler-monds-s eptember-4-2016/\n DTSTART;VALUE=DATE:20170904 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT BEGIN:VEVENT SUMMARY:In Memory: Kandace Bankston ‘Kandy’ Kline DTSTAMP:20170621T123013Z SEQUENCE:0 UID:1526-2-3d97b1b7a840b1a17e566453bab6c8f1@cushings.invisionzone.com ORGANIZER;CN="MaryO":admin@cushings.invisionzone.com DESCRIPTION:\n Kandy Klein long-time member of the message boards passe d away September 9\, 2007.\n\n\n\n Read more at https://cushingsbios.com/ 2015/09/09/in-memory-kandace-bankston-kandy-kline-september-9-2007/\n DTSTART;VALUE=DATE:20170909 RRULE:FREQ=YEARLY;INTERVAL=1 END:VEVENT END:VCALENDAR