Our Picks
Top content from across the community, hand-picked by us.
2nd Annual Weill Cornell Pituitary Symposium: Pituitary Disorders Across the Age Spectrum CME
MaryO posted a topic in New England / New York Meetings,
Friday, October 19 at 8:00am to 4:00pm
Belfer Research Building, 3rd Floor
413 East 69th St., New York, NY 10021
This course is a comprehensive overview and discussion of the evaluation; management; and medical, surgical, and radiation treatments of the pituitary tumor. The conference will comprise lectures, case-based talks, and Q&A panel sessions.
The pituitary gland plays an enormously important role in human development, the maintenance of various essential physiologic functions, and aging and senescence. Hence, the health of the pituitary gland is critical at all stages of human life. For this reason, there are a variety of pituitary disorders that can have a profound impact on multiple organ systems at different ages. General practitioners and even specialists in endocrinology may not be fully aware of the widespread impact of the pituitary gland in health and disease; the function of this course is to educate and inform a general medical audience on pituitary disease.
For more information visit their website or contact Tatiana Soto at tas2041@med.cornell.edu or 212-746-0403.
Belfer Research Building, 3rd Floor
413 East 69th St., New York, NY 10021
This course is a comprehensive overview and discussion of the evaluation; management; and medical, surgical, and radiation treatments of the pituitary tumor. The conference will comprise lectures, case-based talks, and Q&A panel sessions.
The pituitary gland plays an enormously important role in human development, the maintenance of various essential physiologic functions, and aging and senescence. Hence, the health of the pituitary gland is critical at all stages of human life. For this reason, there are a variety of pituitary disorders that can have a profound impact on multiple organ systems at different ages. General practitioners and even specialists in endocrinology may not be fully aware of the widespread impact of the pituitary gland in health and disease; the function of this course is to educate and inform a general medical audience on pituitary disease.
For more information visit their website or contact Tatiana Soto at tas2041@med.cornell.edu or 212-746-0403.
- 0 replies
Adrenal Venous Sampling Helps Surgical Decisions in Type of Cushing’s
MaryO posted a topic in News Items and Research,
Cushing’s syndrome patients with tumors on both adrenal glands — which sit on top of the kidneys — could undergo adrenal venous sampling, a procedure where blood samples are taken from both adrenal glands to determine which tumors to remove, researchers suggest.
- 0 replies
Support group meeting, Saturday Oct. 06, 2018
MaryO posted a topic in California Meetings,
If you are unable to attend in person, please join us on our Facebook Live Stream!
- 0 replies
Bilateral Adrenalectomy Negatively Affects Quality of Life in Cushing’s Patients
MaryO posted a topic in News Items and Research,
Bilateral adrenalectomy, in which the adrenal glands are removed, has a bigger negative impact on the quality of life of patients with Cushing’s disease than other treatment options, a recent study suggests.
This may be due to the longer exposure to high levels of cortisol in these patients, which is known to greatly affect their quality of life, the authors hypothesize.
The study, “Bilateral adrenalectomy in Cushing’s disease: Altered long-term quality of life compared to other treatment options,” was published in the journal Annales d’Endocrinologie.
Cushing’s disease is caused by a tumor in the pituitary gland in the brain that secretes large amounts of adrenocorticotropic hormone, which, in turn, stimulates the adrenal glands to produce high levels of cortisol (a glucocorticoid hormone).
This may be due to the longer exposure to high levels of cortisol in these patients, which is known to greatly affect their quality of life, the authors hypothesize.
The study, “Bilateral adrenalectomy in Cushing’s disease: Altered long-term quality of life compared to other treatment options,” was published in the journal Annales d’Endocrinologie.
Cushing’s disease is caused by a tumor in the pituitary gland in the brain that secretes large amounts of adrenocorticotropic hormone, which, in turn, stimulates the adrenal glands to produce high levels of cortisol (a glucocorticoid hormone).
- 0 replies
New Bio Form on the Website
MaryO posted a topic in Announcements,
We have a new form to add your own bio! Try it out here: https://cushingsbios.com/2018/08/28/we-have-a-new-bio-form/
Thank you for submitting your bio - sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed. If you are planning to check the button that reads "Would you like to be considered for an interview? (Yes or No)" please be sure to read the Interview Page for information on how these interviews work.
Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing's patients and has already been asked and answered on the Message Boards. Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.
Please post any questions for which you need answers on the message boards.
HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
Thank you for submitting your bio - sometimes it takes a day or so to get them formatted for the website and listed on the pages where new bios are listed. If you are planning to check the button that reads "Would you like to be considered for an interview? (Yes or No)" please be sure to read the Interview Page for information on how these interviews work.
Please do not ask people to email you answers to your questions. Your question is probably of interest to other Cushing's patients and has already been asked and answered on the Message Boards. Occasionally, people may comment on your bio. To read your bio and any comments, please look here for the date you submitted yours and click on the link.
Please post any questions for which you need answers on the message boards.
HOME | Sitemap | Adrenal Crisis! | Abbreviations | Glossary | Forums | Donate | Bios | Add Your Bio | Add Your Doctor | MemberMap | CushieWiki
- 0 replies
Cushing Syndrome Results in Poor Quality of Life Even After Remission
MaryO posted a topic in News Items and Research,
I think I knew this already but it's still hard to read in print
Functional remission did not occur in most patients with Cushing syndrome who were considered to be in biochemical and clinical remission, according to a study published in Endocrine. This was evidenced by their quality of life, which remained impaired in all domains.
The term “functional remission” is a psychiatric concept that is defined as an “association of clinical remission and a recovery of social, professional, and personal levels of functioning.” In this observational study, investigators sought to determine the specific weight of psychological (anxiety and mood, coping, self-esteem) determinants of quality of life in patients with Cushing syndrome who were considered to be in clinical remission.
The cohort included 63 patients with hypercortisolism currently in remission who completed self-administered questionnaires that included quality of life (WHOQoL-BREF and Cushing QoL), depression, anxiety, self-esteem, body image, and coping scales. At a median of 3 years since remission, participants had a significantly lower quality of life and body satisfaction score compared with the general population and patients with chronic diseases. Of the cohort, 39 patients (61.9%) reported having low or very low self-esteem, while 16 (25.4%) had high or very high self-esteem. Depression and anxiety were seen in nearly half of the patients and they were more depressed than the general population. In addition, 42.9% of patients still needed working arrangements, while 19% had a disability or cessation of work.
Investigators wrote, “This impaired quality of life is strongly correlated to neurocognitive damage, and especially depression, a condition that is frequently confounded with the poor general condition owing to the decreased levels of cortisol. A psychiatric consultation should thus be systematically advised, and [selective serotonin reuptake inhibitor] therapy should be discussed.”
Reference
Vermalle M, Alessandrini M, Graillon T, et al. Lack of functional remission in Cushing's Syndrome [published online July 17, 2018]. Endocrine. doi:10.1007/s12020-018-1664-7
From https://www.endocrinologyadvisor.com/general-endocrinology/functional-remission-quality-of-life-cushings-syndrome/article/788501/
Functional remission did not occur in most patients with Cushing syndrome who were considered to be in biochemical and clinical remission, according to a study published in Endocrine. This was evidenced by their quality of life, which remained impaired in all domains.
The term “functional remission” is a psychiatric concept that is defined as an “association of clinical remission and a recovery of social, professional, and personal levels of functioning.” In this observational study, investigators sought to determine the specific weight of psychological (anxiety and mood, coping, self-esteem) determinants of quality of life in patients with Cushing syndrome who were considered to be in clinical remission.
The cohort included 63 patients with hypercortisolism currently in remission who completed self-administered questionnaires that included quality of life (WHOQoL-BREF and Cushing QoL), depression, anxiety, self-esteem, body image, and coping scales. At a median of 3 years since remission, participants had a significantly lower quality of life and body satisfaction score compared with the general population and patients with chronic diseases. Of the cohort, 39 patients (61.9%) reported having low or very low self-esteem, while 16 (25.4%) had high or very high self-esteem. Depression and anxiety were seen in nearly half of the patients and they were more depressed than the general population. In addition, 42.9% of patients still needed working arrangements, while 19% had a disability or cessation of work.
Investigators wrote, “This impaired quality of life is strongly correlated to neurocognitive damage, and especially depression, a condition that is frequently confounded with the poor general condition owing to the decreased levels of cortisol. A psychiatric consultation should thus be systematically advised, and [selective serotonin reuptake inhibitor] therapy should be discussed.”
Reference
Vermalle M, Alessandrini M, Graillon T, et al. Lack of functional remission in Cushing's Syndrome [published online July 17, 2018]. Endocrine. doi:10.1007/s12020-018-1664-7
From https://www.endocrinologyadvisor.com/general-endocrinology/functional-remission-quality-of-life-cushings-syndrome/article/788501/
- 0 replies
Metyrapone Reduced Urinary-Free Cortisol Levels in Cushing Syndrome
MaryO posted a topic in News Items and Research,
Metyrapone treatments helped patients with Cushing syndrome reach normal, urinary-free cortisol levels in the short-term and also had long-term benefits, according to a study published in Endocrine.
This observational, longitudinal study evaluated the effects of the 11β -hydroxylase inhibitor metyrapone on adult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels were evaluated in 31 patients who were already treated with metyrapone to monitor cortisol normalization and rhythm.
The average length of metyrapone treatment was 9 months, and 6 patients had 24 months of treatment. After 1 month of treatment, the mean urinary-free cortisol was reduced from baseline by 67% and mean late-night salivary cortisol level decreased by 57%.
Analyzing only patients with severe hypercortisolism, after 1 month of treatment, the mean urinary-free cortisol decreased by 86% and the mean late-night salivary cortisol level decreased 80%. After 3 months, normalization of the mean urinary-free cortisol was established in 68% of patients. Mean late-night salivary cortisol levels took longer to decrease, especially in severe and very severe hypercortisolism, which could take 6 months to drop. Treatment was more successful at normalizing cortisol excretion (70%) than cortisol rhythm (37%). Nausea, abdominal pain, and dizziness were the most common adverse events, but no severe adverse event was reported.
Future research is needed to evaluate a larger cohort with randomized dosages and stricter inclusion criteria to evaluate metyrapone's effects on cortisol further.
Study researchers conclude that metyrapone was successful and safe in lowering urinary-free cortisol after just 1 month of treatment and controlling long-term levels in patients with Cushing syndrome.
This study was supported by Novartis.
Reference
Ceccato F, Zilio M, Barbot M, et al. Metyrapone treatment in Cushing's syndrome: a real-life study [published online July 16, 2018]. Endocrine. doi: 10.1007/s12020-018-1675-4
From https://www.endocrinologyadvisor.com/general-endocrinology/metyrapone-cushing-syndrome/article/786716/
This observational, longitudinal study evaluated the effects of the 11β -hydroxylase inhibitor metyrapone on adult patients with Cushing syndrome. Urinary-free cortisol and late-night salivary cortisol levels were evaluated in 31 patients who were already treated with metyrapone to monitor cortisol normalization and rhythm.
The average length of metyrapone treatment was 9 months, and 6 patients had 24 months of treatment. After 1 month of treatment, the mean urinary-free cortisol was reduced from baseline by 67% and mean late-night salivary cortisol level decreased by 57%.
Analyzing only patients with severe hypercortisolism, after 1 month of treatment, the mean urinary-free cortisol decreased by 86% and the mean late-night salivary cortisol level decreased 80%. After 3 months, normalization of the mean urinary-free cortisol was established in 68% of patients. Mean late-night salivary cortisol levels took longer to decrease, especially in severe and very severe hypercortisolism, which could take 6 months to drop. Treatment was more successful at normalizing cortisol excretion (70%) than cortisol rhythm (37%). Nausea, abdominal pain, and dizziness were the most common adverse events, but no severe adverse event was reported.
Future research is needed to evaluate a larger cohort with randomized dosages and stricter inclusion criteria to evaluate metyrapone's effects on cortisol further.
Study researchers conclude that metyrapone was successful and safe in lowering urinary-free cortisol after just 1 month of treatment and controlling long-term levels in patients with Cushing syndrome.
This study was supported by Novartis.
Reference
Ceccato F, Zilio M, Barbot M, et al. Metyrapone treatment in Cushing's syndrome: a real-life study [published online July 16, 2018]. Endocrine. doi: 10.1007/s12020-018-1675-4
From https://www.endocrinologyadvisor.com/general-endocrinology/metyrapone-cushing-syndrome/article/786716/
- 0 replies
Many Thanks!
MaryO posted a topic in Special Days,
Many thanks to everyone who is making a difference and helping Cushing's Help stay afloat for another year!
Your donation helped pay for the message boards, the main website, the Cushie Wiki and several blogs.
Your donation helped pay for the message boards, the main website, the Cushie Wiki and several blogs.
- 0 replies
Break the Ice Game
MaryO posted a topic in Introduce Yourself,
This is something that we're playing on a FaceBook group I'm in. I thought it might be fun to try here as an icebreaker, like an online Tupperware party.
4 of these are true and one is a lie - guess which is the iie and add your own:
My family nearly drowned in a hurricane but a truck pushed our car to safety
I pierced my own ears when I was 14
I was on a special tour of the White House and the First Lady stopped to say hello.
I almost didn’t graduate from college because I was scared to dive into the pool
I spent several years playing piano for a therapy group at St Elizabeths Hospital. John Hinckley was not a part of the group.
4 of these are true and one is a lie - guess which is the iie and add your own:
My family nearly drowned in a hurricane but a truck pushed our car to safety
I pierced my own ears when I was 14
I was on a special tour of the White House and the First Lady stopped to say hello.
I almost didn’t graduate from college because I was scared to dive into the pool
I spent several years playing piano for a therapy group at St Elizabeths Hospital. John Hinckley was not a part of the group.
- 2 replies
Wow! What a Birthday Gift!
MaryO posted a topic in Donations,
I was absolutely blown away this morning when I got this in my messages:
Thanks so much, everyone!
Thanks so much, everyone!
- 0 replies
We're almost 18!
MaryO posted a topic in Special Days,
It's unbelievable but the idea for Cushing's Help and Support arrived 18 years ago last night. That's a long time for anything online.
I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could.
The first website (http://www.cushings-help.com) first went "live" July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I'm making some helpful differences in someone else's life!
The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing's Awareness Day Forum, podcasts, phone support and much more.
Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the "Cushie Helper" program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.
Of course, we now have a Facebook page and 2 groups. Both are secret, so if you want to join, please email or PM me for an invitation.
Other sites in the Cushing's Help "Family"
ADDISON’S DISEASE
Addison’s Help
Addison’s Help (Blog)
Addison’s knol
Cushing’s and Addison’s Documents
Cushing’s Help Message Boards
Cushing’s News Feed This is also found on the right sidebar here.
CUSHING’S DISEASE / SYNDROME
Cushie Blogger, mostly used for Cushing's Awareness Posts and meeting information
Cushie Bloggers (Blog)
Cushie Info
CushieWiki
Cushing’s and Addison’s Documents
Cushing’s and Cancer (Blog)
Cushing’s Bios
Cushing’s Disease/Syndrome Knol
Cushing’s Help
Cushing’s Help and Support
Cushing’s Help Live Interviews
Cushing’s Help Message Boards
Cushing’s Help Organization
Cushing’s Help Podcasts
Cushing’s News Feed
Cushing’s Support
My Cushing’s Bio
FACEBOOK
Cushings Help Organization, Inc
2 Secret Groups. If you want to join, please email or PM me for an invitation.
PINTEREST
Cushings Help Organization, Inc
TUMBLR
Cushings Help Organization, Inc
TWITTER
Cushings Help Organization, Inc
If you're interested in my non-Cushing's stuff (YES! I have a life), please see this list: http://www.maryo.co/other-sites/
Here's to another year of Cushing's Help and Support!
I was talking with my dear friend Alice, who ran a wonderful menopause site called Power Surge, wondering why there weren't many support groups online (OR off!) for Cushing's and I wondered if I could start one myself and we decided that I could.
The first website (http://www.cushings-help.com) first went "live" July 21, 2000 and the message boards September 30, 2000. Hopefully, with these sites, I'm making some helpful differences in someone else's life!
The message boards are very active and we have weekly online text chats, occasional live interviews, local meetings, email newsletters, a clothing exchange, a Cushing's Awareness Day Forum, podcasts, phone support and much more.
Whenever one of the members of the boards gets into NIH, I try to go to visit them there. Other board members participate in the "Cushie Helper" program where they support others with one-on-one support, doctor/hospital visits, transportation issues and more.
Of course, we now have a Facebook page and 2 groups. Both are secret, so if you want to join, please email or PM me for an invitation.
Other sites in the Cushing's Help "Family"
ADDISON’S DISEASE
Addison’s Help
Addison’s Help (Blog)
Addison’s knol
Cushing’s and Addison’s Documents
Cushing’s Help Message Boards
Cushing’s News Feed This is also found on the right sidebar here.
CUSHING’S DISEASE / SYNDROME
Cushie Blogger, mostly used for Cushing's Awareness Posts and meeting information
Cushie Bloggers (Blog)
Cushie Info
CushieWiki
Cushing’s and Addison’s Documents
Cushing’s and Cancer (Blog)
Cushing’s Bios
Cushing’s Disease/Syndrome Knol
Cushing’s Help
Cushing’s Help and Support
Cushing’s Help Live Interviews
Cushing’s Help Message Boards
Cushing’s Help Organization
Cushing’s Help Podcasts
Cushing’s News Feed
Cushing’s Support
My Cushing’s Bio
Cushings Help Organization, Inc
2 Secret Groups. If you want to join, please email or PM me for an invitation.
Cushings Help Organization, Inc
TUMBLR
Cushings Help Organization, Inc
Cushings Help Organization, Inc
If you're interested in my non-Cushing's stuff (YES! I have a life), please see this list: http://www.maryo.co/other-sites/
Here's to another year of Cushing's Help and Support!
- 0 replies
Webinar: Theodore Friedman on Nuances of Diagnosing and Treating Hypothyroidism ~ July 29
MaryO posted a topic in Announcements,
TOPICS TO BE DISCUSSED INCLUDE:
HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM?
WHAT DOES IT MEAN TO HAVE HASHIMOTO’S?
WHICH THYROID MEDICINE IS THE BEST?
WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES?
WHAT ABOUT TAKING ONLY T3?
IS RT3 IMPORTANT?
IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM?
SUNDAY • JULY 29TH • 6 PM PST
Click here to join the meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 970 949, Meeting Password: hormone
Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
For more information, email us at mail@goodhormonehealth.com.
HOW IMPORTANT IS THE TPO ANTIBODY IN THE DIAGNOSIS OF HYPOTHYROIDISM?
WHAT DOES IT MEAN TO HAVE HASHIMOTO’S?
WHICH THYROID MEDICINE IS THE BEST?
WHAT IS THE DIFFERENCE BETWEEN DESICCATED THYROID AND SYNTHETIC THYROID HORMONES?
WHAT ABOUT TAKING ONLY T3?
IS RT3 IMPORTANT?
IS DIET IMPORTANT IN PATIENTS WITH HYPOTHYROIDISM?
SUNDAY • JULY 29TH • 6 PM PST
Click here to join the meeting or
https://axisconciergemeetings.webex.com/axisconciergemeetings/j.php?MTID=m2b7d2348ee2683a5022761e3e5945087
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 970 949, Meeting Password: hormone
Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
For more information, email us at mail@goodhormonehealth.com.
- 0 replies
Webinar: Cushing’s Disease: Recent Advances in Medical Therapy ~ July 18
MaryO posted a topic in Announcements,
Presented by
Eliza Geer, MD
Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center
Associate Attending, Endocrine Service
Memorial Sloan Kettering Cancer Center
After registering you will receive a confirmation email with details about joining the webinar.
Contact us at webinar@pituitary.org with any questions or suggestions.
Date: Wednesday, July 18, 2018
Time: 10:00 AM - 11:00 AM Pacific Daylight Time 1:00 PM - 2:00 PM Eastern Daylight Time
Webinar Description:
Learning Objectives:
Review Cushing’s disease treatment guidelines
Evaluate currently available medical therapies for Cushing’s disease
Discuss new therapies in clinical trials
Presenter Bio:
Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions.
Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.
Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.
Eliza Geer, MD
Medical director, Multidisciplinary Pituitary & Skull Base Tumor Center
Associate Attending, Endocrine Service
Memorial Sloan Kettering Cancer Center
After registering you will receive a confirmation email with details about joining the webinar.
Contact us at webinar@pituitary.org with any questions or suggestions.
Date: Wednesday, July 18, 2018
Time: 10:00 AM - 11:00 AM Pacific Daylight Time 1:00 PM - 2:00 PM Eastern Daylight Time
Webinar Description:
Learning Objectives:
Review Cushing’s disease treatment guidelines
Evaluate currently available medical therapies for Cushing’s disease
Discuss new therapies in clinical trials
Presenter Bio:
Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. Their multidisciplinary pituitary team provides personalized surgical and medical treatment for people with pituitary and skull base tumors, including prolactinomas, growth-hormone secreting adenomas (acromegaly), and Cushing’s disease. Their overall goal is to improve and advance the care of people with these conditions.
Dr. Geer’s research interests focus on achieving a better understanding of how and why pituitary tumors develop, and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and she is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.
Dr. Geer completed her internship and residency at the NewYork-Presbyterian Hospital/Columbia Medical Center. She was a fellow in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center, after which she was a member of the faculty for ten years. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, the Pituitary Network Association and the American Association of Clinical Endocrinologists.
- 0 replies
Is Your Doctor Being Paid to Prescribe Korlym?
MaryO posted a topic in Multiple Doctors,
Top Doctors Receiving Payments From Corcept, makers of Korlym
Totals listed account for all payments from August 2013 to December 2015.
DOCTOR
PAYMENTS
PEJMAN COHAN
Endocrinology, Diabetes & Metabolism
BEVERLY HILLS, CA
$80,916
RICHARD AUCHUS
Endocrinology, Diabetes & Metabolism
ANN ARBOR, MI
$43,500
AMIR HAMRAHIAN
Endocrinology, Diabetes & Metabolism
CLEVELAND, OH
$36,287
ALAN COHEN
Endocrinology, Diabetes & Metabolism
MEMPHIS, TN
$32,714
JAMES FINDLING
Endocrinology, Diabetes & Metabolism
MENOMONEE FALLS, WI
$26,153
TY CARROLL
Endocrinology, Diabetes & Metabolism
MENOMONEE FALLS, WI
$20,779
ANDREAS MORAITIS
Endocrinology, Diabetes & Metabolism
MIAMI BEACH, FL
$19,605
TODD FRIEZE
Endocrinology, Diabetes & Metabolism
BILOXI, MS
$18,333
KIMBERLEY BOURNE
Endocrinology, Diabetes & Metabolism
ORLANDO, FL
$14,057
JAGDEESH ULLAL
Endocrinology, Diabetes & Metabolism
NORFOLK, VA
$12,167
Top Teaching Hospitals Receiving Payments From Corcept, makers of Korlym
Totals listed account for all payments from August 2013 to December 2015.
HOSPITAL
PAYMENTS
HOSPITAL OF THE UNIV OF PENNA
PHILA, PA
$5,000
UNIVERSITY OF LOUISVILLE HOSPITAL
LOUISVILLE, KY
$5,000
UNIV OF MISSOURI HEALTH CARE
COLUMBIA, MO
$3,183
NATIONAL JEWISH HEALTH
DENVER, CO
$2,500
CEDARS-SINAI MEDICAL CENTER
LOS ANGELES, CA
$2,500
TEMPLE UNIVERSITY HOSPITAL
PHILADELPHIA, PA
$2,000
MOUNT SINAI HOSPITAL
NEW YORK, NY
$2,000
ADVOCATE LUTHERAN GENERAL HOSPITAL
PARK RIDGE, IL
$1,700
ALLEGHENY GENERAL HOSPITAL
PITTSBURGH, PA
$1,500
HENRY FORD HOSPITAL
DETROIT, MI
See if your doctor is making money from this drug here:
https://projects.propublica.org/docdollars/company/corcept-therapeutics
$1,500
Totals listed account for all payments from August 2013 to December 2015.
DOCTOR
PAYMENTS
PEJMAN COHAN
Endocrinology, Diabetes & Metabolism
BEVERLY HILLS, CA
$80,916
RICHARD AUCHUS
Endocrinology, Diabetes & Metabolism
ANN ARBOR, MI
$43,500
AMIR HAMRAHIAN
Endocrinology, Diabetes & Metabolism
CLEVELAND, OH
$36,287
ALAN COHEN
Endocrinology, Diabetes & Metabolism
MEMPHIS, TN
$32,714
JAMES FINDLING
Endocrinology, Diabetes & Metabolism
MENOMONEE FALLS, WI
$26,153
TY CARROLL
Endocrinology, Diabetes & Metabolism
MENOMONEE FALLS, WI
$20,779
ANDREAS MORAITIS
Endocrinology, Diabetes & Metabolism
MIAMI BEACH, FL
$19,605
TODD FRIEZE
Endocrinology, Diabetes & Metabolism
BILOXI, MS
$18,333
KIMBERLEY BOURNE
Endocrinology, Diabetes & Metabolism
ORLANDO, FL
$14,057
JAGDEESH ULLAL
Endocrinology, Diabetes & Metabolism
NORFOLK, VA
$12,167
Top Teaching Hospitals Receiving Payments From Corcept, makers of Korlym
Totals listed account for all payments from August 2013 to December 2015.
HOSPITAL
PAYMENTS
HOSPITAL OF THE UNIV OF PENNA
PHILA, PA
$5,000
UNIVERSITY OF LOUISVILLE HOSPITAL
LOUISVILLE, KY
$5,000
UNIV OF MISSOURI HEALTH CARE
COLUMBIA, MO
$3,183
NATIONAL JEWISH HEALTH
DENVER, CO
$2,500
CEDARS-SINAI MEDICAL CENTER
LOS ANGELES, CA
$2,500
TEMPLE UNIVERSITY HOSPITAL
PHILADELPHIA, PA
$2,000
MOUNT SINAI HOSPITAL
NEW YORK, NY
$2,000
ADVOCATE LUTHERAN GENERAL HOSPITAL
PARK RIDGE, IL
$1,700
ALLEGHENY GENERAL HOSPITAL
PITTSBURGH, PA
$1,500
HENRY FORD HOSPITAL
DETROIT, MI
See if your doctor is making money from this drug here:
https://projects.propublica.org/docdollars/company/corcept-therapeutics
$1,500
- 1 reply
Dr. Theodore Friedman Webinar June 24
MaryO posted an event in Cushie Calendar,
Are Sleep Apnea and Snoring the causes of your Weight Gain and Fatigue?
Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue.
Topics to be discussed include:
• Why does poor sleep lead to weight gain and fatigue?
• Why are home sleep monitors better than in lab monitors?
• What are the treatments for Sleep Apnea and Snoring?
• Will the treatments lead to weight loss and more energy?
• Dr. Friedman will also add some comments about the endocrine effects of poor sleep.
Sunday • June 24th • 6 PM PST
Click to start webinar at
https://axisconciergemeetings.webex.com/axisconcierg…/j.php…
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
Meeting Password: dreams
For more information, email Dr. Friedman at mail@goodhormonehealth.com
Dr. Theodore Friedman hosts Jay Khorsandi, DDS from Snore Experts for a fascinating webinar on the relationship between Sleep Apnea, Snoring, Weight Gain and Daytime Fatigue.
Topics to be discussed include:
• Why does poor sleep lead to weight gain and fatigue?
• Why are home sleep monitors better than in lab monitors?
• What are the treatments for Sleep Apnea and Snoring?
• Will the treatments lead to weight loss and more energy?
• Dr. Friedman will also add some comments about the endocrine effects of poor sleep.
Sunday • June 24th • 6 PM PST
Click to start webinar at
https://axisconciergemeetings.webex.com/axisconcierg…/j.php…
OR
Join by phone: (855) 797-9485
Meeting Number (Access Code): 287 844 283 Your phone/computer will be muted on entry. There will be plenty of time for questions using the chat button.
Meeting Password: dreams
For more information, email Dr. Friedman at mail@goodhormonehealth.com
-
- 0 replies
Tenth Annual Johns Hopkins Pituitary Patient Day
MaryO posted a topic in DC Metro Area Meetings,
Join us on Saturday, October 13, 2018
10th Annual Johns Hopkins Pituitary Patient Day
Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.
Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions
Attendance and parking are free, but seating is limited. Reserve your space now: Please R.S.V.P. by email (preferred) to PituitaryDay@jhmi.edu or by calling 410-670-7259.
Agenda
9:00 - 9:25 a.m.: Registration
9:25 - 9:30 a.m.: Welcome and acknowledgments (Roberto Salvatori, M.D.)
9:30 - 10:00 a.m.: Symptoms of Pituitary Tumors: Acromegaly, Cushing, and Non-Functioning Masses (Roberto Salvatori, M.D.)
10:00 - 10:30 a.m.: Effects of Pituitary Tumors on Vision (Amanda Henderson, M.D.)
10:30 - 11:00 a.m.: A Patient's Story (to be announced)
11:00 - 11:30 a.m.: The Nose: the Door to Access the Pituitary Gland (Murray Ramanathan, M.D.)
11:30 a.m. - 12:00 p.m.: Surgery for Pituitary Tumors: Images from the Operating Room (Gary Gallia, M.D., Ph.D.)
12:00 - 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: When Needed, A Good Option (Kristin Redmond, M.D.)
12:30 - 1:25 p.m.: Lunch
1:30 - 3:00 p.m. Round Table Discussions:
Acromegaly
Cushing Disease
Non-Functioning Adenomas
Craniopharyngiomas and Rathke's Cysts
10th Annual Johns Hopkins Pituitary Patient Day
Saturday, October 13, 2018, 9:00 a.m. to 3:00 p.m.
Location:
Johns Hopkins Mt. Washington Conference Center
5801 Smith Avenue
Baltimore, MD 21209
map and directions
Attendance and parking are free, but seating is limited. Reserve your space now: Please R.S.V.P. by email (preferred) to PituitaryDay@jhmi.edu or by calling 410-670-7259.
Agenda
9:00 - 9:25 a.m.: Registration
9:25 - 9:30 a.m.: Welcome and acknowledgments (Roberto Salvatori, M.D.)
9:30 - 10:00 a.m.: Symptoms of Pituitary Tumors: Acromegaly, Cushing, and Non-Functioning Masses (Roberto Salvatori, M.D.)
10:00 - 10:30 a.m.: Effects of Pituitary Tumors on Vision (Amanda Henderson, M.D.)
10:30 - 11:00 a.m.: A Patient's Story (to be announced)
11:00 - 11:30 a.m.: The Nose: the Door to Access the Pituitary Gland (Murray Ramanathan, M.D.)
11:30 a.m. - 12:00 p.m.: Surgery for Pituitary Tumors: Images from the Operating Room (Gary Gallia, M.D., Ph.D.)
12:00 - 12:30 p.m.: Radiation Therapy for Cushing, Acromegaly and Non-Functioning Tumors: When Needed, A Good Option (Kristin Redmond, M.D.)
12:30 - 1:25 p.m.: Lunch
1:30 - 3:00 p.m. Round Table Discussions:
Acromegaly
Cushing Disease
Non-Functioning Adenomas
Craniopharyngiomas and Rathke's Cysts
- 1 reply
new
yessenia posted a topic in Introduce Yourself,
im new to this and really am scared so i thought i would reach out
- 1 reply
Webinar: Preserving Function in Pituitary Surgery
MaryO posted a topic in Announcements,
Presented By
Daniel Prevedello, MD
Professor, Department of Neurological Surgery
Director, Minimally Invasive Cranial Surgery Program
Co-Director, Comprehensive Skull Base Center at The James
Director, Pituitary Surgery Program
The Wexner Medical Center at The Ohio State University
After registering you will receive a confirmation email with details about joining the webinar.
Contact us at webinar@pituitary.org with any questions or suggestions.
Date: May 8, 2018
Time: 3:00 - 4:00 PM Pacific Daylight Time, 6:00 - 7:00 PM Eastern Daylight Time
Webinar Information:
Learning Objectives:
Understand the importance of gland function preservation during pituitary surgery.
Understand the importance of preserving nose function related to the approach.
Understand the importance of team work in pituitary surgery
Presenter Bio
Dr. Prevedello is a professor in the Department of Neurological Surgery, and the director for the Minimally Invasive Cranial Surgery Program. He is one of only a few neurosurgeons in the world who have performed more than 1,000 Endoscopic Endonasal Approach (EEA) cases. EEA is a minimally invasive surgery technique that gives surgeons access to the base of the skull, intracranial cavity and top of the spine by operating through the nose and paranasal sinuses. Dr. Prevedello was rated in the top 10 percent of physicians in the nation for patient satisfaction in 2016 and 2017.
Dr. Prevedello’s current research focus is on developing minimally invasive approaches to the brain and skull base that will result in the best surgical tumor resection possible with the least amount of disruption to normal tissue. Finding a patient treatment option that reduces the amount of long-term consequences for patients and their families is always his top priority.
Dr. Prevedello's medical journey began in Brazil, where he attended medical school and finished his residency in 2005. He completed fellowships in neuroendocrine and pituitary surgery at the University of Virginia, and another in skull base and cerebrovascular surgery at the University of Pittsburgh.
Daniel Prevedello, MD
Professor, Department of Neurological Surgery
Director, Minimally Invasive Cranial Surgery Program
Co-Director, Comprehensive Skull Base Center at The James
Director, Pituitary Surgery Program
The Wexner Medical Center at The Ohio State University
After registering you will receive a confirmation email with details about joining the webinar.
Contact us at webinar@pituitary.org with any questions or suggestions.
Date: May 8, 2018
Time: 3:00 - 4:00 PM Pacific Daylight Time, 6:00 - 7:00 PM Eastern Daylight Time
Webinar Information:
Learning Objectives:
Understand the importance of gland function preservation during pituitary surgery.
Understand the importance of preserving nose function related to the approach.
Understand the importance of team work in pituitary surgery
Presenter Bio
Dr. Prevedello is a professor in the Department of Neurological Surgery, and the director for the Minimally Invasive Cranial Surgery Program. He is one of only a few neurosurgeons in the world who have performed more than 1,000 Endoscopic Endonasal Approach (EEA) cases. EEA is a minimally invasive surgery technique that gives surgeons access to the base of the skull, intracranial cavity and top of the spine by operating through the nose and paranasal sinuses. Dr. Prevedello was rated in the top 10 percent of physicians in the nation for patient satisfaction in 2016 and 2017.
Dr. Prevedello’s current research focus is on developing minimally invasive approaches to the brain and skull base that will result in the best surgical tumor resection possible with the least amount of disruption to normal tissue. Finding a patient treatment option that reduces the amount of long-term consequences for patients and their families is always his top priority.
Dr. Prevedello's medical journey began in Brazil, where he attended medical school and finished his residency in 2005. He completed fellowships in neuroendocrine and pituitary surgery at the University of Virginia, and another in skull base and cerebrovascular surgery at the University of Pittsburgh.
- 0 replies
Person of the Month-May 2018
MaryO posted a topic in Good News / Attitude of Gratitude,
The EPIC Foundation would like to recognize Mary Kelly O’Connor as a pioneer in the Cushing’s community as an advocate and life changer!Mary Kelly O’Connor is definitely someone you should know!
- 0 replies
In Memory: Kathryn McBride ‘Bridie’ Miller
MaryO posted an event in Cushie Calendar,
In Memory: Kathryn McBride ‘Bridie’ Miller
Murdered May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'
Read more at https://cushingsbios.com/2015/05/01/in-memory-kathryn-mcbride-bridie-miller/
Murdered May 1, 2007
'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'
Read more at https://cushingsbios.com/2015/05/01/in-memory-kathryn-mcbride-bridie-miller/
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- 0 replies
Salutations
SarahKM posted a topic in Introduce Yourself,
Hello!
I was diagnosed with Cushing's disease almost two years ago--it was the slow-developing variety and had been impacting me for years without my knowledge. Luckily, as soon as we suspected, all of my tests showed exactly what they were supposed to, and I got my diagnosis quickly. My tumor was removed in June 2016, but my recovery has been painfully slow. My cortisol and ACTH levels continue to be low, and my endocrinologist has not even started backing me off of my Prednisone. I had to quite my job and move back in with my parents for support. After the last test, she said that maybe it would never come back. I am wondering if anyone else has experienced that--a complete surgical CURE, but then no RECOVERY. I am a teacher and just tried to returned to the classroom this semester, but I feel so fatigued I worry I may have to permanently change careers.
Sarah
I was diagnosed with Cushing's disease almost two years ago--it was the slow-developing variety and had been impacting me for years without my knowledge. Luckily, as soon as we suspected, all of my tests showed exactly what they were supposed to, and I got my diagnosis quickly. My tumor was removed in June 2016, but my recovery has been painfully slow. My cortisol and ACTH levels continue to be low, and my endocrinologist has not even started backing me off of my Prednisone. I had to quite my job and move back in with my parents for support. After the last test, she said that maybe it would never come back. I am wondering if anyone else has experienced that--a complete surgical CURE, but then no RECOVERY. I am a teacher and just tried to returned to the classroom this semester, but I feel so fatigued I worry I may have to permanently change careers.
Sarah
- 4 replies