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About afish

  • Birthday 11/05/1985

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    Baton Rouge

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  1. Happy Birthday!!!

  2. Wow this is great news! I was under the impression that the drug available for Cushing's weren't that effective! Hopefully as drug companies become more aware of this disease, better drugs will be developed!
  3. I don't want a doctor to lecture me about my weight. With all this Cushing's stuff going on with me it is utterly impossible for me to lose a single pound. Everytime I got the "lose weight" lecture I cried. Sometimes hard, sometimes just a few tears, but it's humilating for me. I GET IT! I ALWAYS HAVE!! The last thing I really needed was someone else telling me how bad it was. I feel bad enough physically and mentally about it without having to hear it from someone else, especially someone who should be helping me.
  4. goodnight all. I really appreciate you all. I cried about this for the first real time since it was suggested and it was a much needed release. Keep looking for me. I will be a regular around here.
  5. afish

    AnyBody OutThere Yet?

    I'm sorry to hear about your long history with this disease and side effects you have been suffering. I can't say that I can relate completely, but I have had similiar problems. The hardest part about it all for me is how secluded I feel all the time. I feel as if no one understands how this disease really can affect your health and personality for that matter.
  6. I am so happy for you. I'm practically crying right now. I'm 22 and I am still suffering trying to get a diagnosis. It has been so hard for me being in college and not understanding what is happening to me. I can't take any class earlier than noon because I am too weak in the mornings to get out of bed. I have missed so much of my "college experience" due to my problems: watching all my friends get dressed up in cute clothes to go out and have a good time, while I can't even put my pants on because I am gaining weight so fast. I have gone up 3 sizes this year and I'm almost at my wits end with clothes. I'm just keep counting down the days until I get an answer. Please keep me updated on your progress. It would make me feel so much better about my own problems. Good luck with it all! Abbie
  7. Date: July 21 I have been suffering from this for god knows how long. I have gainedd 70 pounds in about 3 years or less and I'm still gaining. My current weight is 199 lbs. The worst part of this experience is the psychological effect on me. Gaining weight like this and having no explanation. I am currently on endocrinologist number 3. He is a pitutary specialist so I am hoping that he can help me, but honestly it is hard to be optimistic at this point. I've completed 3 24-hour urine tests. The first 2 were messed up by the lab (figures) and the 3rd one has come back normal. I have yet to see this endocrinologist again but I have an appointment with him to discuss the results in about a week and a day. I just don't think I'm normal. I have every single symptom of cushing's. How can it not be cushing's? I just want to feel good again. I haven't felt that way in years.
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