kouta5m

hi amber i completley understand wat ur going thru i am 35 years of age and have been sick 4 the last 16 and half mnths. i was very active going to the gym often and looked after myself i had axactly ur symptoms and more much more i am on ketokonazole since nov 2008 and feel a little better.All doc also told me to stop eating no-one would understand until my hero who is my endo diagnosed me with the cushings disease thay are still trying to locate the actual tumour but have not been successful yet, but they did find a nodule in my lungs and could result in an operation hopefully this is wat we are looking for, if it turns out not to be then they have no choice but to remove both my adrenal glands which i will be happy to do. enough is enough i have sufferd so much and no more suffering i shall take. i hope all goes well with you. good luck . I also have a blog on under kouta5m check it out regards simone from australia

i am now on ketokonozole tablets to stop the weight gain i have been on this for 2 and ahalf mnths i feel a little better as i have only lost 4 kgs i have an app with my endo on tues then 1 more mri scan and ct scan then no choice but to remove adrenal gland then it will officially be over thank god. As i have ran out of tests to actually find the tumour ansd i will let u know what happens. i really feel for u as this is a horrible sickness. as for pics i also am not able to upload aswell for some reason.

hi darl my symtoms are hair loss, no period for 9mths,insomnia. bufffolo hump, acne stretch marks big stomach facial hair blown up face lack of sex drive high blood pressure fatigue weekness of the bones.always red in face u name it i have still trying to spot the tumour i have anther test next thursday.will keep u posted i have gained alot of weight since my last endo visit 4 weeks ago 10kgs all up 40 kg. hope this has helped u take care

i have had cushings for 1 year and im so tired i have gained 35kg i am from australia and was diagnosed 3mths ago just had my last test of the sinus sampling and waiting on results next week.still trying to find tumour.have had all symtoms relating to this awful disease.my endo is the best.will post pics of b4 and after once surgery is booked.please anyone reply if going thru same pain as i am