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Everything posted by ttiffany20191

  1. I just wanted to say hello. You are in such good hands at the NIH. I too, had surgery there and they saved my life. I hope things are going well for you.
  2. First of all I want to welcome you! I'm sorry you think you maybe dealing with this disease. To answer your question, it is hard to say if you sound like one. You have a couple of the symptoms. The best think I could tell you is to schedule an appointment with an endocrinologist and get them to run some tests on you. Then go from there. If you don't have it..that is good news...but if you do there are people here that will help you through the process. Wishing you the very best of luck!
  3. Frustrating...Cushing's just keeps on giving and giving! :/ I have always believed that people who were sick a long time and severely had damage done that was permanent.
  4. It is very possible! I maintained normal periods throughout Cushing's. not everyone has every single symptom.
  5. Oh yes, I'm almost three years post op and my pain is still not great. I recommend getting her into pain management. They really helped me so much. Has she had surgery yet? A dr explained it to me like this: imagine cortisol being like battery acid running through your veins. Even when the cortisol is gone the damage is done. Cortisol breaks down your muscles and bones. I had really bad bone pain. I feel for your mom. The best thing you can do is what you are doing now? Ask questions..I know it is hard to understand but she is lucky to have you in her life trying to understand and support her.
  6. Hi Vicky! Just wanted to welcome you to the boards. I'm glad you are under the care of an endo,although sometimes they miss cushings,but anyway usually they will do more 24 hour urines,blood work, and midnight salivaries( where you chew a piece of cotton and they measure your cortisol levels) after that they would want to figure out where all of this cortisol is being produced..or by what. The most common source is that you have a tumor on your pituitary. Second is that you have an adrenal adenoma..and lastly but much more rare is having a tumor in the lung or somewhere else in the body. Anywa
  7. Hi Holly! First of all I just wanted to welcome you to the boards. It sounds like your symptoms need to be looked into further. You know your body and if something doesn't feel right then you should listen to it. Maybe you could print off some material ( this site has a lot of great info) and bring up your symptoms. If you don't get anywhere with your pcp, I'd see if you can get into an Endocrinologist. The first steps would be a 24 hour urine. I hope it isn't Cushings but if it is you are in the right place. Feel free to ask questions. When I was first diagnosed I. Knew nothing about Cushings
  8. Love the updated site!

    1. MaryO


      Thanks, Tiffany!

  9. Hi Vicki! welcome. Feel free to message me! Glad you are on the boards, hope u are finding the answers you need! ;)

  10. Too bad they have to be 30 minutes or less. Thanks for keeping us posted Mary!
  11. I remembered seeing this shirt somewhere for sale a long time ago and have searched for months and can't find them anywhere! Where did you order them from? There is just a lack of cushings merchandise out there and I want some!! Lol
  12. Can't wait to hear this interview! I don't listen live but once they have downloaded them to iTunes I get them and have really enjoyed and learned a lot! In fact that reminds me I have one I downloaded I haven't listened to yet so I think I will do that tonight! Glad you do these interviews..I keep telling myself to get over my shyness and do one myself,lol
  13. A good thing with my doctors was to write everything down from your questions to your symptoms..bring them literature on the disease which you can find on this site...I know my mind was so foggy and a mess in the middle of Cushings so it was hard to remember anything! If you need advice or support post away! These people are wonderful!!

  14. Nice to meet you and can't wait to learn more about you!!

  15. Thank you for all of your help and suggestions on my post about figuring out what to do next. i REALLY appreciate it..a lot.Hope you are doing well and I hope your holidays are bright~Hugs

  16. Just wanted to thank you for posting all of those sites on my post. Very helpful Thank you for taking the time to do that. i am looking at them all tonight. Thank you!

  17. http://www.pbs.org/wgbh/pages/frontline/facing-death/?utm_campaign=homepage&utm_medium=bigimage&utm_source=bigimage Just got done watching this on Frontline. It was very hard to watch but poses a lot of good questions. Do your loved ones know what you want in the unfortunate event you end up in this position? Do you think we should be prolonging people's lives? Left me in tears but makes me EXTREMELY grateful for the life god has given me.. I would love to hear what people think..
  18. I like that Nancy. That pic of the typical cushie always got my attention and was me to a tee! oh yah I like that too Mary! Good ideas!!
  19. Wisely put. I would hate to see the boards EVER come to an end.!!
  20. How do I listen to them? Is it over the computer? I don't have speakers. Or can I call in somewhere to listen?!?Sorry I am clueless but have wanted to hear one for a long time
  21. Just stoppin by to show some love! Hope you are having a great weekend ;)

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