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Blog Comments posted by Shaw

  1. I absolutely agree with you that diet can help tremendously, especially a low starch one when dealing with Cushing's. I was very strict about my diet and thankfully I didn't have a lot of weight to lose after surgery. My pituitary tumour actually hemorrhaged before surgery so I knew before having the surgery that I wouldn't get a cure from it and would need a BLA  so I tweaked my diet a bit more which wasn't difficult, I was in the midst of training for marathons shorty before I was diagnosed and already followed a really healthy diet. I absolutely believe that having good nutrition before and during Cushing's helped my body recover after surgery. I, like many people with Cushing's, are overly sensitive to the idea that a proper diet will fix us as so many doctors initially just say go eat properly and lose weight so I'm glad you clarified that the diet that worked for you is not a cure.  I think that anything that can help even one person with Cushing's feel better is worth talking about and trying. There's actually a diet that Dr. F recommends to people or he used to that might be similar to what worked for you. He calls it 3V3NSSF. Here's the link

    http://www.goodhormonehealth.com/Dr. F.3V3NSSF Diet.pdf


    Take care!

  2. I had a unsuccessful pituitary surgery then a BLA years ago. I think you might have mixed me up with someone else. I don't make dolls, it's a success if I can sew a button back on. I love that you're using nutrition to help you but that's not a cure by any means for someone who is actively producing too much cortisol from a pituitary, adrenal or ectopic tumour. Yes you can mitigate some of the symptoms (sometimes) with diet but it's not a cure and pushing that belief into a support group for a disease that many have tried to heal through diet can be damaging even though it's with best intentions so I just want to make sure others reading this know that diet alone is not a cure for pituitary, adrenal or ectopic Cushing's. It does however, play a huge role in Food-Dependent Cushing's Syndrome.

  3. I still have my gallbladder. The HPA axis is the hypothalamic–pituitary–adrenal axis. It can get a little complicated so you might just want to google it for a better understanding but basically the organs that make that up the HPA axis (hypothalamu,  pituitary gland and adrenal glands) interact and provide feedback which regulate a lot of body processes such as immunity, mood, energy, emotions and most importantly stress response. For example, when someone gets stressed the hypothalmus produces corticotropin-releasing hormone (CRH) which then signals the pituitary gland to produce adrenocorticotropic hormone (ACTH) which then signals the adrenal glands to produce cortisol. Alcohol can trigger the HPA axis and over time, disrupt it which can cause higher cortisol levels. Most of the research out there is based on continuous consumption of alcohol over an extended period of time so you shouldn't t see high cortisol numbers (like Cushing's high) in someone drinking responsibly and abstaining from drinking during testing.



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