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Marisa

ChattyCushie
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Blog Comments posted by Marisa

  1. What you say is very true. If I can live with cushings I can live with anything. I just know I need some hydro during and after surgery. I dont want to crash and I know the nurses do not know anything. I'm trying to cover all my bases, and I have to rely on myself and who I 'train' as my patient advocate/s for me. Because being out after surgery is what scares me. I am very sensitive to anesthesia and that is what scares me a lot. But I am thinking positive and hoping to get through this successfully. Thank you for your input. It means a lot to me.

  2. I understand your feeling completely. I am scheduled for surgery Feb 9th, and that day cannot get here soon enough. I have a left adrenal adenoma, the exhaustion is getting so bad I can hardly make it through a week of work, and all I do is sit at a computer. Of course my brain is not working but Im here because I do not have any more time to take off and saving every bit of it for the time off after surgery.

     

    I totally understand about feeling 90 yrs old. I watch other people in their 70's and 80's walking around enjoying life with smiles on their faces and knew something had to be wrong with me. I cant take life like this, its not fair nor is it living.

     

    Keep in trying to get a dx from a doctor, if one dismisses you find another. Keep in searching and finally your work will pay off. I hope mine will. I am feeling so bad today that I can hardly move, or breathe. Cannot go home to lay down and its killing me.

     

    We were all told "you are fat lose weight and you will be fine" its a dumb doctor's way of not listening to us when we tell them what our symptoms are.

     

    Anytime you need to talk I am here for you.

     

    Hang in there, persevere, things will get better. By the way, I'm 52 and have lost 10 yrs of my life to this killer cushings.

     

    Nice to meet you, my name is,

     

    Renata

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