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LisaFriday

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About LisaFriday

  • Rank
    Lisa in Alabama
  • Birthday 07/24/1970

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  • Gender
    Female
  • Location
    Montgomery, Alabama

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  1. Thanks for wanting to be Cushie Buddies...I pray that you are going to learn a lot here. I cannot tell you how much this Board has helped me get through this very difficult year. Take care. Lisa in Alabama

  2. Doesn't Susan seem like the best lady ever! I wish I lived close enough to her to be her "in person" Cushie BFF!

  3. You are one of my favorite people on these boards...so uplifting, supportive and full of wonderful wisdom and advice...thank you!

  4. Happy41: Wonderful advice and fantastic examples that not only my husband, but, my friends and family can relate to and understand. Thank you. As for the back surgeries, well, no trauma initiated it... Just one day my back 'popped' and I was unable to stand up fully erect. It was awful... a huge disc ruptured onto my sciatic nerve. Then, it did it again and again... When my neurosurgeon (for my back) learned of my having been diagnosed with Cushings, he said that the increased amount of steroids (cortisol) running through my body may be the cause of my bone degeneration. I have
  5. Thank you all so much for understanding my predicament and giving such great advice. After reading a few of your responses to my original post, I cried to my husband last night. I am trying to get him to understand that I must go to Camp Cushie on Sunday. Happy 41: you are completely correct. I have had NO testing since my one/two week post op visit in April. I thought I was headed to Seattle and figured I could wait to get ALL the numbers/facts I needed then. NOW, if I do not go, my husband wants me to ask my Dr. friend to do many of the tests that they would be doing in Sea
  6. HAPPY 41 I am so so so sorry that I made it sound like he was doing a clinical trial on Cushings... I did not mean that at all... in fact, he knows nothing about Cushings... I never meant to lead anyone to think that I was in a 'clinical trial'... in fact, this is a research work in progress... This research is something that has just 'fallen into his lap' because so many of his patients have Fibromyalgia. The more he studies, the more he finds a link between the HSV I and FM... So, He just feels that many of my symptoms are similar to people in his study that have HSV I and Fibromy
  7. Well, I was on my way to Seattle to Camp Cushie this coming Sunday, July 11, 2010. Then, if everything went my way, I was having my second pit surgery the following Tues, July 20. When the news got out in my small town here in Alabama that I was having another operation, a dear friend of me and my family (a well-respected surgeon) called me and asked to see me immediately. So, last Thursday I went to his office and he explained that he has been compiling research for the past 7 years. He is convinced that Fibromyalgia is the cause of my Cushings Disease. He never once told me tha
  8. FYI: If you are computer illiterate/insufficient, and if this intimidates you- THEN, Go to the: "Pinned Signature" topic/post. Follow POST #19 (by Susan)...she has step by step directions on exactly how to do this! It took me two times to do it, but, if I can do it, so can you! Good luck... Lisa in Alabama
  9. I also get a strange feeling in my chest. When I am lying down I feel like there is a huge, lead weight lying across my chest. I feel like it is pushing me into the mattress. I have always thought that was when my Cortisol was high. I have a harder time breathing when this happens. I find myself concentrating on this heavy feeling until I make myself change positions. After moving my body the feeling subsides. Hope this helps and that you are healed soon!
  10. I will be 40 this summer... Anyway, I was just DIAGNOSED a couple of weeks ago and you would have thought that I won the lottery! Finally!!! I was right all along, and I knew I could not be getting this fat, exhausted, depressed, hairy, ugly, moley, bruised up, never sleeping, hair falling out, biggest pregnant belly you've ever seen with thin legs....I told everybody I was sick... so, brain surgery on April 7th is the best day ever! Only we can understand this crazy feeling. Our families and friends are great, but, I really am tired of trying to convince them that something is re
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