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smcsk8 last won the day on September 17 2010

smcsk8 had the most liked content!

About smcsk8

  • Birthday 03/23/1981

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    Arlington, TX

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  1. Yeah they missed a modifier. It should say something like "of those 17%" or "of those patients" so it was clear which patients the 46% referred to.
  2. I was miserable with Cushing's. I am not sorry I had a bla and do think Cushing's would've eventually killed me. I think most people on this board who end up with a bla do really well. Good doctors matter. And I suspect the cause of death for those subjects in that study is something else. Adrenal crisis can kill you, but you have notice!
  3. Thanks for sharing, Mary. I'm trying to get access to the full article, can't seem to figure it out. Maybe it isn't in PubMed yet? Anyhow, thanks for sharing all the same.
  4. Hi Vicky, Sounds like your neuro is a smart one, and hopefully your endo proves to be as well. There are medications that can raise serum cortisol levels (birth control pills, other oral estrogens are ones that immediately come to mind). You can do some research on these boards to see about medications that interfere with testing. If your tests are positive, you will need to find the source, pituitary or adrenal, and then you will be better equipped to decide what your next step is. Good luck!
  5. Patient Voices: Rare Diseases Cushing's isn't one of the rare diseases mentioned by these patients, but acro is, and I think we can all relate to the experiences these patients have had.
  6. Where's that cortisol meter when I need one? Is it the holidays, traveling, or just life that's leaving me feeling so run down? Adding a bit of extra hydro for the next few days to see if it helps.

  7. Thank you for all of your help and suggestions on my post about figuring out what to do next. i REALLY appreciate it..a lot.Hope you are doing well and I hope your holidays are bright~Hugs

  8. Why is my acne worse post-op? Any ideas on how to treat it?

    1. c12


      I'm not post-op, but the one thing that has worked amazingly for me is Oracea.

  9. Withholding hydro makes me feel like garbage. I hope this is a good thing.

    1. betseebee


      I FEEL your pain!

    2. April81


      Sorry you feel bad, but sounds like a good thing.

  10. Starting to wean today. Down 2.5 mg for the next week and see how it goes.

  11. Giant piece of NJ just came up with the morning phlegm! Oh, post-op life, how I love you.

  12. Finding that 3 doses of hydro instead of 2 makes for a better day.

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