monarchmomx2
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Posts posted by monarchmomx2
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overdue update!!
8/26/11 - pit surgery --no discreet tumor found but removed diseased-appearing tissue leaving 75% of gland, post-op cortisol crash to near zero, confusing pathology report that Dr F called 'equivocal', day 5 post-op cortisol/ACTH high
possible remission for 1-2 months, by 3rd month Cushings symptoms returning, 3 month post-op pit MRI with suspicious area
January 2012 - retest for reoccurence with Dr F, cleared for second surgery
3/8/12 -- pit surgery #2 -- no discreet tumor found but removed more diseased-appearing tissue leaving 40% of gland, post-op cortisol crash to zero, day 5 post-op cortisol/ACHT high
no remission after surgery, weaned off hydro in 6 weeks without any difficulty
April/May 2012 -- retest for reoccurence with Dr F, cleared for BLA
Summer 2012 -- keto
10/11/12 -- BLA with Dr Fraker at University of Pennsyvania Hospital
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Doctors perform brain surgery through the nose
surgery is scheduled Aug 26 at Ohio State University medical center with Dr Daniel Prevedello
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Dr F cleared me for surgery!
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midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8, 7.3, 8.9, 2.7, 4.6, 1.9, 2.7, 4.7, 1.2, 3.3, 4.8, 3.3 (>5 suggestive, >7.5 diagnostic)
10 hr ratio -- 7.6, 20, 17 , 2 pending (normal <16)
24 hr UFC -- 68, 90, 117, 119 (normal 10 - 34)
17 ohs -- <4.5, 3.8, 16, 6.8 (normal 2.0 - 6.0)
11 p.m. salivary -- 0.016, <0.010, 0.013, 0.014 (normal <0.010 - 0.090)
dex series -- 0.25 mg/ 7.9; 1 mg/0.5 (normal <1.8); 2mg/2day pending
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midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8, 7.3, 8.9, 2.6, 4.6, 1.9 (>5 suggestive, >7.5 diagnostic)
10 hr ratio -- 7.6, 20, 17 (normal <16)
24 hr UFC -- 68, 90, 117, 119 (normal 0-50)
17 ohs -- <4.5, 3.8, 16, pending(normal 2.0-8.0)
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midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8, 7.3, 8.9, 2.6 (>5 suggestive, >7.5 diagnostic)
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Testing done with PCP and local endos Aug - Nov 2010
overnight dexa suppression -- 3.8, 0.9 (normal <1.8)
midnight serum cortisol ----- 3, 3.9 6.1
AM/PM cortisol ---------------- 21.1/12.5; 15/9.8; 5.9/21.2 (normal 6.2 - 19.4/2.3-11.9)
24 hr UFC -- 11, 29, 14 (normal 0-50)
17 ohcs 13.4, 8.8, 8.5 (normal 2.0-8.0)
March 1, 2011 -- appt with Dr F.
Based on labs of 3-1-11 Dr F ruled out PCOS, Hashimoto's and Growth-hormone deficiency
Low ferritin -- 19, low vitamin D -- 29, high glucose -- 103 (at home - fasting)
midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8 (>5 suggestive, >7.5 diagnostic)
10 hr ratio -- 7.6, 20 (normal <16)
24 hr UFC -- pending (normal 0-50)
17 ohs -- pending (normal 2.0-8.0)
salivas -- pending
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Testing done with PCP and local endos Aug - Nov 2010
overnight dexa suppression -- 3.8, 0.9 (normal <1.8)
midnight serum cortisol ----- 3, 3.9 6.1
AM/PM cortisol ---------------- 21.1/12.5; 15/9.8; 5.9/21.2 (normal 6.2 - 19.4/2.3-11.9)
24 hr UFC -- 11, 29, 14 (normal 0-50)
17 ohcs 13.4, 8.8, 8.5 (normal 2.0-8.0)
March 1, 2011 -- appt with Dr F.
Based on labs of 3-1-11 Dr F ruled out PCOS, Hashimoto's and Growth-hormone deficiency
Low ferritin -- 19, low vitamin D -- 29, high glucose -- 103 (at home - fasting)
midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8 (>5 suggestive, >7.5 diagnostic)
10 hr ratio -- 7.6 (normal <16)
24 hr UFC -- pending (normal 0-50)
17 ohs -- pending (normal 2.0-8.0)
salivas -- pending
Getting tested for Cushings
in Guest Questions
Posted
welcome! as Melly said, a Cushing's diagnosis takes many many labs, unfortuntately there is not a single test that can diagnose or rule it out. It is common for Cushies to have low ferritin and Vitamin D, were either of those checked. My endo considers low ferritin to be under 60, which is more conservative than most lab normal ranges. Alot of Cushies do have high glucose as well.
buffalo humps is common with Cushings and PCOS, have you had your testesterone checked?