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monarchmomx2

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Posts posted by monarchmomx2

  1. welcome! as Melly said, a Cushing's diagnosis takes many many labs, unfortuntately there is not a single test that can diagnose or rule it out. It is common for Cushies to have low ferritin and Vitamin D, were either of those checked. My endo considers low ferritin to be under 60, which is more conservative than most lab normal ranges. Alot of Cushies do have high glucose as well.

     

    buffalo humps is common with Cushings and PCOS, have you had your testesterone checked?

  2. overdue update!!

     

    8/26/11 - pit surgery --no discreet tumor found but removed diseased-appearing tissue leaving 75% of gland, post-op cortisol crash to near zero, confusing pathology report that Dr F called 'equivocal', day 5 post-op cortisol/ACTH high

     

    possible remission for 1-2 months, by 3rd month Cushings symptoms returning, 3 month post-op pit MRI with suspicious area

     

    January 2012 - retest for reoccurence with Dr F, cleared for second surgery

     

    3/8/12 -- pit surgery #2 -- no discreet tumor found but removed more diseased-appearing tissue leaving 40% of gland, post-op cortisol crash to zero, day 5 post-op cortisol/ACHT high

     

    no remission after surgery, weaned off hydro in 6 weeks without any difficulty

     

    April/May 2012 -- retest for reoccurence with Dr F, cleared for BLA

     

    Summer 2012 -- keto

     

    10/11/12 -- BLA with Dr Fraker at University of Pennsyvania Hospital

  3. midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8, 7.3, 8.9, 2.7, 4.6, 1.9, 2.7, 4.7, 1.2, 3.3, 4.8, 3.3 (>5 suggestive, >7.5 diagnostic)

     

    10 hr ratio -- 7.6, 20, 17 , 2 pending (normal <16)

     

    24 hr UFC -- 68, 90, 117, 119 (normal 10 - 34)

     

    17 ohs -- <4.5, 3.8, 16, 6.8 (normal 2.0 - 6.0)

     

    11 p.m. salivary -- 0.016, <0.010, 0.013, 0.014 (normal <0.010 - 0.090)

     

    dex series -- 0.25 mg/ 7.9; 1 mg/0.5 (normal <1.8); 2mg/2day pending

  4. midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8, 7.3, 8.9, 2.6, 4.6, 1.9 (>5 suggestive, >7.5 diagnostic)

     

    10 hr ratio -- 7.6, 20, 17 (normal <16)

     

    24 hr UFC -- 68, 90, 117, 119 (normal 0-50)

     

    17 ohs -- <4.5, 3.8, 16, pending(normal 2.0-8.0)

  5. Testing done with PCP and local endos Aug - Nov 2010

     

    overnight dexa suppression -- 3.8, 0.9 (normal <1.8)

    midnight serum cortisol ----- 3, 3.9 6.1

    AM/PM cortisol ---------------- 21.1/12.5; 15/9.8; 5.9/21.2 (normal 6.2 - 19.4/2.3-11.9)

    24 hr UFC -- 11, 29, 14 (normal 0-50)

    17 ohcs 13.4, 8.8, 8.5 (normal 2.0-8.0)

     

    March 1, 2011 -- appt with Dr F.

    Based on labs of 3-1-11 Dr F ruled out PCOS, Hashimoto's and Growth-hormone deficiency

     

     

    Low ferritin -- 19, low vitamin D -- 29, high glucose -- 103 (at home - fasting)

     

    midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8 (>5 suggestive, >7.5 diagnostic)

     

    10 hr ratio -- 7.6, 20 (normal <16)

     

    24 hr UFC -- pending (normal 0-50)

     

    17 ohs -- pending (normal 2.0-8.0)

     

    salivas -- pending

  6. Testing done with PCP and local endos Aug - Nov 2010

     

    overnight dexa suppression -- 3.8, 0.9 (normal <1.8)

    midnight serum cortisol ----- 3, 3.9 6.1

    AM/PM cortisol ---------------- 21.1/12.5; 15/9.8; 5.9/21.2 (normal 6.2 - 19.4/2.3-11.9)

    24 hr UFC -- 11, 29, 14 (normal 0-50)

    17 ohcs 13.4, 8.8, 8.5 (normal 2.0-8.0)

     

    March 1, 2011 -- appt with Dr F.

    Based on labs of 3-1-11 Dr F ruled out PCOS, Hashimoto's and Growth-hormone deficiency

     

     

    Low ferritin -- 19, low vitamin D -- 29, high glucose -- 103 (at home - fasting)

     

    midnight serums -- 1.7, 1.3, 1.7, 1.8, 6.6, 4.1, 2.2, 2.0, 1.8 (>5 suggestive, >7.5 diagnostic)

     

    10 hr ratio -- 7.6 (normal <16)

     

    24 hr UFC -- pending (normal 0-50)

     

    17 ohs -- pending (normal 2.0-8.0)

     

    salivas -- pending

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