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Everything posted by JenH

  1. So we still don't know if mine is being caused by hypothyroidism or an ectopic carcinoid tumor. We have to wait and see...

  2. Heard from IA City - here's the complete update: pancreatic insufficiency (heading towards diabetes), tumor markers are elevated (shots should help), and thyroiditis (causing weight gain, fatigue, puffy eyes/face - don't know what's causing it, meds if it gets worse). Summary: active tumors, pancreas, & thyroid problems.

  3. 17 vials of blood taken, 2 weeks to get the lab results back

  4. 2 cortisol blood draws normal. Still waiting on 24 hr urine collection. Have drs puzzled...

  5. Goal: to feel well enough to volunteer 2 to 4 hrs a week.

  6. When did my collar bones disappear??? :)

  7. First appt with endocrinologist at Mayo tomorrow. Hoping to get confirmation and figure out what's going on so I can take this bull by the horns!

  8. Check out the pics I posted in the gallery.

    1. Show previous comments  1 more
    2. JenH


      I see anendocrinologist at Mayo this Friday and then tests next week. I've already been gong to Mayo because I have Carcinoid Cancer (neuroendocrine cancer). So I need to see an endocrinologist anyway.

    3. cjs


      Good luck tomorrow!

    4. JenH
  9. Symptoms: 2006 to prsent = 50 lbs abdominal weight gain, thin arms/legs, buffalo hump, facial swelling, eye bulging, nausea, flushing, diarrhea, insomnia, fatigue, muscle weakness, abdominal pain, menstral cycle stopped, vertigo, mood swings, problem focusing/thinking, acne, etc. I also have carcinoid cancer which overproduce hormones.

    In the process of having it checked out. Pics ...

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