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Posts posted by brnice

  1. Hello,

    I was just diagnosed with cyclic Cushings. Just having a pituitary tumor isn't enough for diagnosis. You will need multiple high lab results. If at first you get low or normal cortisol results, keep testing! My first test was normal and my first endocrinologist congratulated and dismissed me. After I begged for a second test, it was extremely high. At that point, he didn't know what to do, and just blew it off as a fluke. I ended up traveling to an Cushing's expert in California to resume testing. In my case, I only needed to complete 7-10 more tests because the vast majority of them came back very high. But I know from reading posts on this site, however, that it can take longer to get diagnosed. If your first round of tests is low or normal, ask for more tests. If you truly suspect cyclic Cushings, you owe it to yourself to test thoroughly enough to rule it in or out. Best of luck to you!



    Oh, and I forgot to say: You might also want to read about growth hormone deficiency and thyroid problems. Some folks here get diagnosed with these instead of OR in addition to Cushings. Hope this helps!

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