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~Chief Cushie~
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Status Updates posted by MaryO

  1. Prayers and much love to Cushies who have lost their mothers, to friends who have lost their child, to friends who gave their child the amazing gift of adoption and can not celebrate today with their babies, and to our precious friends who have not been able to have a child yet, you are all precious in God’s eyes. May each of you feel His peace this weekend.

  2. And it is a Squamous Cell Carcinoma :(  Mohs Surgery on Monday.  Drat!  Just Nosing Around

  3. Biopsy yesterday - they're thinking it's a squamous cell carcinoma.  Drat! 

  4. There will be a Message Board Upgrade Soon.

    The upgrade is ready to install but the new "skins" aren't ready yet so I'm holding off until they are.

    I'll keep you posted.


  5. Message Board Upgrade Today

    Please let me know if anything is not working properly.  

    1. Adrie


      Guest Board/Please Help! Posted by you May 25th:

      " [[Template forums/front/topics/topic is throwing an error. This theme may be out of date. Run the support tool in the AdminCP to restore the default theme.]] "



  6. In patients with a diagnosis of Cushing disease in whom magnetic resonance imaging (MRI) shows either no abnormalities or nonspecific abnormalities, surgery is preferable to medical treatment...There is a consensus that the first line of treatment for Cushing disease is transsphenoidal surgery to remove the pituitary adenoma causing the disease, with an 80% remission rate following the intervention. However, in the absence of clear evidence of a pituitary adenoma on imaging, there is some controversy regarding the best treatment.

    Read more at https://cushieblog.com/2019/05/25/transsphenoidal-surgery-recommended-for-cushing-disease-with-inconclusive-or-normal-mri/

  7. Comment added to Deborah S, Undiagnosed Bio. I am having the exact same thing (symptoms, test results and Dr. Frustration) and driving myself crazy trying to figure it out. Did you ever get a proper diagnosis?

    Read more at https://cushingsbios.com/2016/03/19/deborah-s-undiagnosed-bio/

  8. In Memory: Kathryn McBride ‘Bridie’ Miller,  Murdered May 1, 2007

    'My name is Caroline and I dont post often but have met a few of you guys and read the board regularly, it has definitely been a godsend to cushies everywhere. The reason I am writing tonight is I have just received devastating information about a dear friend of mine, and a woman some of you may have met during testing. Her name is Kathryn Miller and she is a patient of Dr. Ludlam, that is how she and I met. She was diagnosed with cushings late last fall and had surgery in December and was doing pretty well afterwards...'

    Read more at https://cushingsbios.com/2019/05/01/in-memory-kathryn-mcbride-bridie-miller-2/

  9. Day 15: Cushing’s Awareness Challenge 2019

    So, where did all this blue and yellow come from, anyway?  The answer is so easy and without any thought that it will amaze you.

    Read more at https://cushieblogger.com/2019/04/15/day-15-cushings-awareness-challenge-2019/

  10. After I was finished with the Cushing's long diagnostic process, surgery and several post-op visits to NIH, I was asked to give the scripture reading at my church. The man who preached the sermon that week was the survivor of a horrific accident where he and his family were hit by a van while waiting at an airport.

    Read more at  https://cushieblogger.com/2019/04/14/day-14-cushings-awareness-challenge-2019/

  11. Cushing’s Myths and Facts: It is MY fault that I got Cushing’s…

    Fact: This is a very controversial topic because we don’t like to talk about it. However, many people struggle with this myth.

    Read more at https://cushieblogger.com/2019/04/13/cushings-myths-and-facts-it-is-my-fault-that-i-got-cushings/

  12. Mike asked "steroid induced cushing’s does any one know of a doctor that treats this"

    If you can help Mike, comment here: https://cushieblogger.com/2019/01/30/webinar-new-and-traditional-treatments-for-male-hypogonadism/

  13. As luck would have it, NIH (National Institutes of Health, Bethesda, Maryland) was doing a clinical trial of Cushing's. I live in the same area as NIH so it was not too inconvenient but very scary at first to think of being tested there. At that time I only had a choice of NIH, Mayo Clinic and a place in Quebec to do this then-rare pituitary surgery called a Transsphenoidal Resection.

    Read more at https://cushieblogger.com/2019/04/12/day-12-cushings-awareness-challenge-2019/

  14. So, these are only seven of the many, many symptoms of Cushing's. I had those above – and I often felt like I looked like one of those little bearded dwarves.

    Cushing's affects every part of the body. It’s not like when I had kidney cancer and only the kidney was affected.

    Read more at https://cushieblogger.com/2019/04/09/day-9-cushings-awareness-challenge-2019/

  15. Today, April 8th, is Cushing’s Awareness Day. Please wear your Cushing’s ribbons, t-shirts, awareness bracelets or Cushing’s colors (blue and yellow) and hand out Robin’s wonderful Awareness Cards to get a discussion going with anyone who will listen.

    And don’t just raise awareness on April 8. Any day is a good day to raise awareness.

    Read more at https://cushieblogger.com/2019/04/08/day-8-cushings-awareness-challenge-2019/

  16. It’s Harvey’s Birthday!

    Harvey Cushing (1869-1939) is considered to be the father of modern neurological surgery. In the early part of the 20th century, he developed basic techniques and instruments for operating on the brain and, as a result, founded the discipline as a distinct surgical speciality. Before Cushing began his career, brain tumours were considered to be inoperable, and the mortality rate for any surgical procedure which involved opening the skull was around 90%. Early in his career, Cushing dramatically reduced the mortality rate for neurosurgery to less than 10%, and by the time of his retirement in 1937, he had successfully removed more than 2,000 tumours.

    Read more at https://cushieblogger.com/2019/04/08/happy-birthday-harvey-2/

  17. In 2006, I flew to Chicago, IL for a Cushing's weekend in Rockford.  Someone else drove us to Lake Geneva, Wisconsin for the day.  Too much travel, too Cushie, whatever, I was too tired to stay awake.  I actually had put my head down on the dining room table and fallen asleep but our hostess suggested the sofa instead.  Amazing that I traveled that whole distance – and missed the main event😦

    Read more at https://cushieblogger.com/2019/04/05/day-5-cushings-awareness-challenge-2019/

  18. I have often said, I wish I had cancer instead.  Most people would not understand this sentiment, why in the world would you wish for such a horrible disease?...

    Read more at https://cushieblogger.com/2019/04/04/from-a-past-blogging-challenge-cushings-awareness-challenge-danielle-day-4/

  19. Archived Interview with Jayne, Ectopic Cushing’s Patient

    Mary O’Connor (MaryO) hosted an interview with Jayne, a Cushing’s patient who had pituitary surgeries and a bilateral adrenalectomy before finding the true source of her ectopic Cushing’s.

    Read more at https://cushieblogger.com/2019/04/04/archived-interview-with-jayne-ectopic-cushings-patient/

  20. Day 4: Cushing’s Awareness Challenge 2019

    Give yourself, your condition, or your health focus a mascot. Is it a real person? Fictional? Mythical being? Describe them. Bonus points if you provide a visual!

    Read more at https://cushieblogger.com/2019/04/04/day-4-cushings-awareness-challenge-2019/

  21. From a Past Blogging Challenge: Cushing’s Awareness Challenge – Danielle, Day 3

    One of my least favorite things about my life with chronic illness is having imaging appointments.  Whether it's my yearly brain MRI, or a chest X-ray, the whole process is uncomfortable, and sometimes even painful...

    Read more at https://cushieblogger.com/2019/04/03/from-a-past-blogging-challenge-cushings-awareness-challenge-danielle-day-3/

  22. Interview Archive with Judy, mom to 2 Cushing’s Patients, and her daughter Jess

    Interview with Judy, the mother of two Cushing’s patients, and her daughter, Jess, a high school student with Cushing’s. Robin (staticnrg) hosted.

    Read more at https://cushieblogger.com/2019/04/03/archived-interview-with-judy-mom-to-two-cushings-patients-and-her-daughter-jess/

  23. Day 3: Cushing’s Awareness Challenge 2019

    If you believe you have Cushing's (or any other rare disease), learn what you can about it, connect with other patients, make a timeline of symptoms and photographs. Read, take notes, save all your doctors notes, keep your lab findings, get second/third/ten or more opinions.  Make a calendar showing which days you had what symptoms.  Google calendars are great for this.

    Read more at https://cushieblogger.com/2019/04/03/day-3-cushings-awareness-challenge-2019/

  24. Archived Interview: Symptoms and Diagnosis: Cushing’s Message Board Members

    Robin Smith (staticnrg) hosted as Cushing’s message board members called in to talk about their fight for diagnosis and treatment. Robin opened the show with a brief explanation of what Cushing’s is and what the symptoms are.

    Read more at https://cushieblogger.com/2019/04/02/archived-interview-symptoms-and-diagnosis-cushings-message-board-members/

  25. ...My family doctor and husband think I am lazy, fat and crazy when they ship me off to a mental ward. I know I am physically sick but can’t convince the psychiatrist. He writes in his reports that I am a hypochondriac. My controlling, narcissistic husband tries to gaslight me into believing I am mentally ill. After he admits his affair, I leave him and find out I have Cushing’s Disease with a pituitary tumor and uterine cancer. I have sucessfull surgery to remove the tumor and cancer...

    In the comments area of https://cushieblogger.com/2019/04/02/day-2-cushings-awareness-challenge-2019/

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