MaryO
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Status Updates posted by MaryO
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Comment added to Sahana (Sahana), Adrenal Bio
How is your daughter doing? I have an adrenal adenoma and am having a right adrenalectomy soon...
https://cushingsbios.com/2018/11/14/sahana-sahana-adrenal-bio/
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Krista shared her helpful doctor, Maria Fleseriu, in her bio. Read about this Oregon doctor at https://cushieblogger.com/2018/11/19/helpful-doctors-oregon/
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Krista is from Eugene, OR She had pituitary surgery in April, 2018. She has also dealt with thyroid cancer. https://cushingsbios.com/2018/11/19/krista-pituitary-bio/
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I'm having to rebuild the Cushing's Member Map from old info and the newer bios that are coming in. Find the new MemberMap here
Add your information - or your doctor's - at https://cushingsbios.com/2018/10/28/we-have-a-new-bio-form/
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I think I'm nearly half done with the rebuild
New entries always welcome!
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Sahana is from Mumbai India Her daughter had many Cushings symptoms starting at 15. She had laparoscopic adrenal surgery and is now 7 months post-op.
Read more at https://cushingsbios.com/2018/11/14/sahana-sahana-adrenal-bio/
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Michelle is from Santa Monica, CA. She is not yet diagnosed with Cushing's but gained 50 pounds with no change in activity or eating. She sent an article on Cyclical Cushing's to her doctor at the Mayo Clinic.
Read more at https://cushingsbios.com/2018/11/10/michelle-michelle-cyclical-cushings-bio/
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New Helpful Doctor added to Alaska
Dr. Ahmed is professional, thorough with his research, thoughtful, and thinks I'm his star Cushing's patient (I'm his only Cushing's patient).
https://cushieblogger.com/2018/11/06/helpful-doctors-alaska/
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Stephanie is from Eielson AFB Alaska. She has had two pituitary surgeries, gamma knife and has taken mifepristone.
Read more at https://cushingsbios.com/2018/11/07/stephanie-m-stephanie-pituitary-bio/
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Cerce is from Rohnert Park, CA. It has been 26 years since her first symptom of excruciating unrelenting back, and neck, jaw, and temple pain. She has been diagnosed with Hashimoto's and is testing for Cushing's now. https://goo.gl/w1EQXT
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These boards were just upgraded. On the surface, everything looks ok.
Please let me know if anything is not working properly. I already removed one item from the sidebar and will try to fix that soon -
In Memory: Barbara “Cookie” RothenbergMy family and I met Cookie at the UVA Cushings Conference Fall 2002. She was so helpful and caring. She told my father, sister, and I her “Cushings Story.” She was so, well, there is no better word to describe her, “bubbly.” She was so happy to be there, teaching, learning, and helping with CUSH. She left an impression on my family and I. She had such a great personality. She was one of the very first “Cushies” I met…and she made me re-think my attitude about being sick. She was going through so much, yet she had such a wonderful attitude towards it all. She was amazing!
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Adrenal Venous Sampling Helps Surgical Decisions in Type of Cushing’sCushing’s syndrome patients with tumors on both adrenal glands — which sit on top of the kidneys — could undergo adrenal venous sampling, a procedure where blood samples are taken from both adrenal glands to determine which tumors to remove, researchers suggest.
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In Memory of Lenise Petersen
Lenise passed away Wednesday, Oct. 2, 2002 at 23 years old, just after her surgery.
Read more at https://cushingsbios.com/2015/10/02/in-memory-of-lenise-petersen-october-2-2002/
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The Boards turn 18 Today!
Today is the birthday, or anniversary, of the boards starting September 30, 2000 (The rest of the site started earlier that year in July 21, 2000)
Find the message boards here: http://cushings.invisionzone.com/
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Kimberley is from New Jersey. She is not yet diagnosed with Cushing's but has many symptoms and a cyst on her pineal gland.
Read her bio at
https://cushingsbios.com/2018/09/29/kimberly-n-bedrock-mama-undiagnosed-bio/ -
In Memory: Joanne SwainJoanne was known on the boards as raggettyjoanne.Mario VandDermeij announced the passing of his loving wife of 23 years. Joanne Swain VanDermeij at the age of 56.After 2 years and 3 months of fighting the system, Joanne was finally diagnosed March the 14th, 2011, with full blown adrenal Cushing's.
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Today we remember Janice who died on this date in 2001.Our dear friend, Janice died this past Tuesday, September 4, 2001. I received an IM from her best friend Janine, tonight. Janine had been reading the boards, as Janice had told her about this site, and she came upon my name and decided to IM me. I am grateful that she did. She said that she knew that Janice would want all of us to know that she didn't just stop posting.
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Steve, Ectopic Bio
Steve was undiagnosed for 12 years. After a pituitary surgery, he turned out to have ectopic Cushing's in his right lung.
Read more at https://cushingsbios.com/2018/08/05/steve-ectopic-bio/
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Night Cortisol Levels for Diagnosing Cushing’s Syndrome Less Accurate in Clinical Practice
In healthy individuals, the levels of cortisol — a steroid hormone secreted by the adrenal glands — go through changes over a 24-hour period, with the lowest levels normally detected at night.
But this circadian rhythm is disrupted in certain diseases such as Cushing’s syndrome, where night cortisol levels can be used as a diagnostic tool.
Among the tests that can be used to detect these levels are late-night serum cortisol (LNSeC) and late-night salivary cortisol (LNSaC) tests. Since it uses saliva samples, LNSaC is more practical and does not require hospitalization, so it is often recommended for the diagnosis of Cushing’s syndrome.
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MEKT1 Could Be a Potential New Therapy for Treating Cushing’s Disease
PPAR-γ agonists — agents that activate PPAR-γ — include the medications rosiglitazone and pioglitazone, both of which are used to treat type 2 diabetes. Some studies have shown that rosiglitazone and pioglitazone have an effect on Pomc suppression, which would lead to lower levels of ACTH and help treat patients with Cushing’s disease.
However, the benefits of PPAR-γ agonists in the treatment of Cushing’s disease are still controversial.
Read more at https://cushieblog.com/2018/08/02/mekt1-could-be-a-potential-new-therapy-for-treating-cushings-disease/
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Danielle had suddenly gained more than 20kg, found herself losing hair, constantly breaking bones and struggling to sleep.
Making matters worse, the young mother became severely depressed and noticed an unusual-looking ‘hump’ on her back.
Read more at https://cushingsbios.com/2018/07/28/danielle-g-pituitary-bio/
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Transsphenoidal Surgery Is Safe and Effective Treatment for Cushing’s Disease
Surgical removal of tumors in the pituitary gland of the brain remains the gold standard for Cushing’s disease treatment.
Transsphenoidal surgery (TSS) usually leads to good remission rates ranging from 68-95%, depending on the location and type of tumor, the neurosurgeon’s expertise, follow-up period, and the definition of remission.
Today, TSS consists of surgery directed through the nose to get to the bottom of the skull, where the pituitary gland is located. The tumor is reached via the nasal cavity with no need for incisions on the face.
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New Testimonial From Melanie C
I remember my first guest post in 2007, was overjoyed to find I wasn't the only medical anomaly lol!
Congratulations to Cushing's Help for coming of age! ?
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New Testimonial From Christina P
I found it [Cushing's Help] 11 years ago quite by accident and it not only changed my life but saved my life! Thank you, Mary Kelly O'Connor!
Read more at https://cushieblogger.com/testimonial/christina-p-5/
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Cushings Help is almost 18!
It's unbelievable but the idea for Cushing's Help and Support arrived 18 years ago tonight.
Read more at https://cushieblogger.com/2018/07/20/were-almost-18/
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