Hi-
Thanks for your reply. I see at the bottom of your post that you had a parathyroid problem as well. I am having the same issue. In fact, that's how they found out about my cortisol levels. I had a sestamibi scan done in May that revealed a "probable pituitary adenoma". He sent me for an MRI and also did a bunch of hormone tests. The 24 hr. urine showed my cortisol to be high (150-is that considered high or not too bad?). However, the MRI did not show an adenoma or abnormality. My endo tells me that they are micro adenomas and sometimes you aren't able to see them on an MRI, but the sestamibi scan shows where the "bad cells" are. So he feels that there could be something in there, but it was missed on the MRI. I did read that Dr.'s are using sestamibi scans to look for micro adenomas of the pituitary so I guess it's possible.
The parathyroid problem is strange. My 24 hr. urine calcium is very high. However, my parathyroid and calcium levels are going between the high end of normal and slightly elevated, and the sestamibi scan doesn't show any abnormalities, but I have a parathyroid gland that's down in my chest (?). However, I have osteoperosis and kidney stones, and so the endo sent me off to the surgeon. The surgeon is doing a 4-D scan on the 29th to see if I have an extra gland, or if there is something the other scan missed. Quite frankly, I'd like to find out the results of my Cushing's tests before I jump into parathyroid surgery since Cushing's could be contributing to the osteoperosis and some of the other symptoms.
This is getting a little confusing....