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Posts posted by sbr

  1. Hi MCF!


    Sorry for the belated response. Yes, the test done was the overnight dexamethasone suppression test.


    As for lactose intolerance, I think I may have made myself misunderstood here. Fortunately, in spite of all my intolerances, I tolerate milk very well even during my worst times.


    I'll take some other tests in the next days, even 4pm serum cortisol, along with some other hormonal tests. Looks useful. Let's see what comes up.



  2. Thanks MCF and brnice. You've been really helpful. brnice, I really can't think it's something normal to gain weight (and lose) in spurts. That doesn't look to be related to IBS.


    MCF, I'm not editing my lab results. Well, I'm cherry picking the ones that came most out of range, but for the forum. I've been tested even for celiac disease, fructose intolerance, lactose intolerance, essential hypertension, etc. I don't believe those results would really be helpful. But I'll try my best to correct it: one thing I didn't mention was that I was tested with dex, but only for plasma cortisol and ACTH at 8:00 AM. With dex, my cortisol came 0.7 (the lowest) and ACTH below 5, which doc told me was because it was suppressed. Another ACTH some months earlier came 11.9 and cortisol at that morning at 6.2 (the highest and only one within range, both before and after. The other ones were always low).


    I wonder if I was correctly tested. There was no UFC with dex, no salivary cortisol and no plasma cortisol measured in any time other than 8:00AM. Perhaps those would have been really helpful?


    Well, by your comments and literature, looks like not only Cushing's is not to be ruled out but it's also still likely. Doesn't sound like cancer or chronic infection reaction right? And UFC values seem to be pretty high as well, don't they?


    My endo looked helpful, but looks like she quit me. She strongly believed it could be Cushing's at first, so went on with tests. But after MRIs, looks like she quit. She tried to find another reason for my high cortisol. In the end she was considering bariatric surgery, which I don't think will really help. I feel hungry, but due to my food intolerances I end up eating less today than I used to when I was underweight (when I could not gain muscles despite all the workout I was doing. Perhaps because of cortisol already? I was having some bp peaks by that time too, but overall had normal bp), so I can't believe a bariatric surgery will do any good. Perhaps it's time to look for another endo?


    Also, there is a possibility that a microadenoma was missed on MRI, particularly on pituitary. But by my readings, looks like an MRI is not really so necessary, many times it's possible to have a good clue only by blood and urine tests, correct?

  3. That surprises me. I've been on low sodium since the symptoms began but it really has done nothing to make by bp any better. I've had a lab result with low potassium as well (I've done so many lab tests and so many of them came out of range that I decided to post the ones I think are most suitable to this evaluation. Please tell me if that's not desirable). Overall, I notice I get better if I take mineral supplements.


    Anyway, you helped me a lot. Docs think I got SIBO due to mucosa atrophy (obviously I couldn't be celiac as I'm obese now), but IBS treatment with added probiotics are not improving anything anyway. Docs told me to forget cortisol as it would come back to normal as soon as the gut problem was solved, but my UFC value came highest in the last lab test, along with low morning cortisol again. I think I have to go somewhere else.


    It's very likely to be Cushing's right? I'm so afraid of having some sort of cancer or parasite infestation that Cushing's looks like a less pernicious disease. But my emotions shouldn't interfere with any evaluation of course.


    Thank you very much for the help.

  4. Lots of folks with Cushing's have NO striae... Have you tried cutting grains and sugar from your diet for your IBS? If not, I highly recommend you experiment with that. Your endo is confused or just not carefully reading the literature if she does not recognize diurnal reversal as highly diagnostic vs. a.m. lows. Have you read the testing forums in the archives here, and also the symptoms forum discussions? So much collected experience and wisdom in those archives.


    Actually I can't eat grains, fruits, raw vegetables or beans. They are not properly digested and cause me terrible flatulence, diarrhea and abdominal cramps even on external belly muscles. I feel very weak if I eat them. Most of time I eat cooked vegetables and meat which don'tmake me feel bad. I can't really cut sugar. Despite my glucose levels being normal, around 90, I experience some hypoglycemia like states which get better when I eat some candy. Actually I feel very sluggish if I don't eat sugar, but I try to keep it to a minimum. I forgot to add that I also have chronic ilness anemia.


    I've read a lot about Cushing's here. It really looks to fit my description. Mucosa problems make me even more suspicious. But I wonder if some other condition, like SIBO, cancer somewhere in the body, damage to small gut, parasites within an organ might cause all those symptoms and make my adrenals to behave like this.

  5. Reversal of diurnal rhythm is certainly a hallmark of Cushing's. Who is ordering your endocrine testing and what does s/he say about your symptoms, signs and results?

    A local endo is ordering them. Says it's not Cushing's because my morning basal cortisol is low and my striae are not purple. Now I'm being treated for IBS. Treatment alleviated gut problems in the beginning but now causes me pain and constipation.

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