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Everything posted by diane177432

  1. I've been feeling out of sorts for the past week and a half...really, really fed up really and not knowing why. I have been incredibly grumpy and feeling tired and a bit rough - I do worry that the signs of Cushings are starting to surface again but quickly put that thought to the back of my mind and try not to think too hard. My cheeks are so flushed right now and the hump is very prominent - its so frustrating. I seem to be running around like a headless chicken right now too - trying to do so much but not having enough hours in the day and I am so worried about the increased weight gain - i
  2. It's been a bit of a rollercoaster the past few months...getting to grips with juggling everything and the prospect of facing more testing. Work has been great and I am working with a very supportive group of people who have become good friends and have brought some much needed laughter and light relief back into my life. Despite still having loss of vision in my left eye and not feeling 100% I have managed to do the work and got a good appraisal. I was a bit shocked when I was told my cortisol was 600 plus after the news that I was heading for a cure back in May and all seemed to be looki
  3. Thanks Mary - I sure hope some new avenues are sought soon - it would be nice to have a vision of a Cushings free future! Diane x
  4. Its been a while since I posted to my blog and so, so much has happened. I had my radiotherapy and had no real side effects apart from a bit of soreness. I have seen a remarkable improvement in my general health and well being. I have lost 2 stone in weight to date since August last year and I feel great. I am wearing smaller clothes and can actually start shopping in normal stores as I have hit that top end of the clothes size. Fabulous - still a long, long way to go, around 5 stone still to lose but I don;t care - I feel great! I have had so many lovely comments from people and it has booste
  5. Couldn't agree more Jo! Liz has been a fantastic and supportive friend to me too in the last 2 years - one of the reasons why I am glad I found this site.

    Love - Diane xx

  6. End of November/December has been taken up with my radiotherapy treatment - here is the link to a thread I made about my treatment: http://cushings.invisionzone.com/index.php?showtopic=18634 Its now the end of December and a New Year is dawning...I am facing it like I have each previous year and that is with optimism and hope but there is a difference this time - my hope is stronger and I feel good about the year to come. I think it will be filled with new beginnings and new challenges that hopefully won't involve hospital visits and testing but doing normal things, like finding a job,
  7. This will have to be brief as I am just about to take little one to school. Life is so busy right now. We moved to our new apartment a couple of weeks ago and I am loving it there. It is very convenient for everything and it's our own place !! We are starting to make plans again and that is good. I started a part time evening job at a local store four nights a week and fell so good to be back at work and amongst people. The customers are great and I get to have a good laugh and have made some new friends. It is the first time in years that I have felt ready to work and not scared or have
  8. OK, I have been falling behind on blogging so am trying to do at least one update at the end of the month. Well August has been a mixed bag. The weather in the UK has been up and down but its still nice and warm. We finally made it camping - 1st time - it was brillian. We visited lots of historical places, the campsite was great, very clean and family friendly. camping itself was fun and I have never slept so well and it was good to hear the wildlife especially the owls hooting at night. We went to Tintern Abbey, Raglan Castle, Symonds Yat Rock as well as beautiful walks in the Forest of
  9. Its been a while since I have blogged, I haven't posted much either lately but hopefully will get back into the swing of things. Sorry to anyone who I haven't emailed as much to lately - I just needed a break from it all. I have done alot with my family and it is the first time in a long time that I have wanted to be out and about. The sunshine probably pays a big part. I am feeling more energetic lately and am able to do alot of things that were virtually impossible before. I am playing more with Harry and can even manage to try and race him and play football. Even lifting him about isn't put
  10. No, no - I am not saying the hospital is a zoo...although sometimes feels like it...LOL! Harry and I went off to the zoo in the morning yesterday and spent a great day in the sunshine..and boy, was it hot - we saw loads of different animals. The zoo is a rescue centre too so many of the animals we saw were on the verge of extinction. Harry touched a python and got up close with a barn owl, a lizard and a guinea pig - OK not scary, but very cute. He had a good old time on the bouncy castle and playground. The kids are back at school so he had alot of things to himself. Although he did make frie
  11. If you want to act like a big kid and have the time of your life then I highly recommend a water gun...It is a gorgeous hot day today and Harry and I got one each today and have had a blast getting each other soaked in the garden. I remember having bags of fun with an empty washing up bottle when I was a kid - never had these fancy water guns in my day - god I feel, old...think I need to go out and get another soaking !!!!! Its been a hot, hot, hot day today. Harry had his first speech therapy session today and we have come away with an exercise to do this week to get him to use his tong
  12. Yesterday was going to be a great day. I 'thought' I had an appointment with the hospitals eye clinic, so Steve, harry and I drove to Steves work. We were having a good old chat about our holiday, how we were looking forward to the break, the Sun was shining, it was a lovely day...then....CRASH!!!!! someone hit the back of our car....all of our boot was caved in, couldn;t shut it and the light was damaged. Our toe bar went through their radiator...nightmare! All of us went off to the A&E...Harry and I were checked, Steve chose not to and we went away being told we just had bruising, no maj
  13. Thanks Jackie - you'll have to give me some tips!!! Steve and I are going to test run the tent today to see if we can put it up!!! The instructions could be in Japanese for all I understand them but Steve has camped before so I am relying on his knowledge!! I have a 6 berth tent...and that's just for me...LOL! Out on the bike again this weekend. I got a bargain from e-bay as I thought I better get a cheap one just in case I don't get on with cycling - but it has been liberating - I can't cycle huge distances as my legs burn so much but I am weaning right now so that doesn't help - but
  14. Well, it's official - I am a closet camper...I will receive my first tent tomorrow along with all the camping accessories and we will be off on our first camping trip in the coming weeks. I feel I am on the first step and will aspire to a caravan before too long... Steve will be home soon and will be dragging me out for another bike ride. I am becoming a glutton for punishment...please assure me that I am not losing my sanity
  15. I am feeling good...actually went out on my bike yesterday and Steve and I have promised to try and go out each evening. I can tell you, I hurt...soooooo much....my legs were burning and so was my chest and I ache today but boy was it worth it - I felt so good !! I would never have thought I could have ridden a bike a year and a half ago. Steve and I are also planning a camping trip - never been camping in my life! but we have gone and got us a tent and are heading for the Norfolk coast for my birthday - I am so excited - I love the outdoors and haven't had a holiday with Steve and Harry
  16. Came away feeling deflated. Numbers are looking OK. Thyroid is now borderline within range. Oestrogeon is still on the low side. The plan is for me to reduce my hydro to 25mg and if I am OK try to get down to 20mg. I am increasing my thyroxine to 125mcg - see if that helps with weight loss. Need to combat one thing at a time in order to eliminate what is happening, so will have to continue to be patient. If a reccurance occurs then radiotherapy is looking likely. Need to also get used to Novotrapid. Try to get my sugars under control to a good level. Gave blood and urine sample today - am
  17. Woke up with no energy, muscles are just aching so much. My lips feel numb. I head feels heavy. Had continuous headaches last night. I just feel like I need to lie down and sleep today, I just feel drained. My cheeks are burning too. I just don't feel right at all. Is this me getting better....?? I am glad now that I decided to defer my studies. I really don't know how I would have been able to manage them right now. To think that my Doctors recommended I would be fine after 8 weeks. i really do think these timings need to be revised - are they that realistic for recovery - I am not sure?
  18. I received a very welcoming email this morning in response to an email I sent in April concerning a study I took part in back in 2001 when my son was born. It was looking into the genetics of Pre-eclampsia. Since being diagnosed with Cushings, I have always wondered about the link with Cushings and emailed a Doctor on the study to ask if any links had been found. Here is my post: http://cushings.invisionzone.com/index.php?showtopic=16016 I really hope that further research could be made to find a link as I know a few people here have had pre-eclampsia or had hypertension, toxemia etc
  19. Feeling a bit better today emotionally - my spirits are more up on yesterday. Tackling my ever growing ironing pile but having plenty of breaks in between as I feel so tired still. Its taking me ages but my arms and legs just ache. Harry and I were mucking around with that Monkey email that Robin posted some time ago - Harry was in a fit of giggles and I can't get him off of it - Thanks Robin!!! I've decided to wait to see my endo next Thursday. I know I am probably silly but I just have no energy right now and am forcing myself to do simple house chores. To get Harry ready and walk u
  20. I'm feeling Ok today apart from this continuous thirst I keep having. I am drinking so much and my mouth is always dry??? I received Sherry's beautiful bracelets through the post today which was a nice surprise. I bought one for Mum too which I am sure she will love. The weekend was a quite one. I spent yesterday immersed in a James Patterson Book '4th of July' which has been one of those can't put it down books. Nearly finished it. Steve cooked a gorgeous dinner yesterday. Harry now has a character on everquest, so Steve's got him hooked...bad news!! We have noticed that we have
  21. I've woken up with such a bad headache, I feel so rough. It hurts across my forehead and behind my eyes. I'm trying to reduce my hydro by 5mg today as I was on 25mg around this time last time I was in recovery and personally I just feel I am on too much being on 30mg. My endo appointment was supposed to be at 6wks post-op but I am seeing my endo at 9-10weeks post-op. I can't wait that long.... Feeling very disheartened right now and need some serious cheering up. An old friend is visiting this afternoon so hopefully that should do the trick. Taken some lovely photos of Harry with my new c
  22. Its 2:45am and I have been up since 1:15 with a bad tummy. I feel so rough and my head is banging. Just trying to rehydrate myself and I am so tired, I just want to sleep, but the pains are so bad. Took loads of photos on my new camera yesterday. Its my 1st digitial camera and I must admit when you see photos of yourself it gives a different perspective. I was saddened to see what I look like. I don't like how I look at all. I just want to be off of these steroids and free of this disease. My stomache still resembles a large beach ball - it is such an odd shape and look. My cheeks are
  23. Its 7:30am right now and the house is so silent. Mum's doing overtime and was off to work at 6am and Steve and Harry are curled up in bed and it is so quiet, it is blissful. As I said in yesterday's blog, come the evening and all was well again. Steve and I sorted out our differences and it turned out to be a lovely evening. The boys had dinner in the garden as it was a gorgeously warm evening and Mum and I shared a few laughs in the house. Harry's appointment went OK, if a little rushed. He will only have 1 more surgery which is great. The plastic surgeon said that there is a samll ch
  24. It started out a fairly good morning, then Steve got a mood on and made a comment and there we are having a row in the car with Harry telling us to be quiet....not good....I felt so stressed, my head was pounding, I felt dizzy, I felt sick - I am not handling stress that well right now - reacting to situations. I hate it! I don't like arguing in front of Harry but both Steve and I got bees in our bonnets this morning and both went for the jugular. Was left with me not talking to him, dropped him off to work and we didn't say goodbye to eachother. He still hasn't made contact and I am still ste
  25. Finally got Steve's blasted paypal account to work and have ordered a copy today...can't wait to see it Cheryl!!! Much love Diane xx
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