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diane177432

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Everything posted by diane177432

  1. Just won a bid on E-bay for a bike. Hopefully will collect it at the weekend and I can start cycling to lose some pounds or build up the muscle. Steve and I have always fancied cycling at the weekends especially in the Summer as the countryside here is gorgeous. I am trying to bid for a bike for Harry as the one he has is too small. This is the first time I have bidded on e-bay - can get very addictive but I am making sure I have cut off points as I don't have alot of cash right now so trying to grab a bargain! Steve is off today so hopefully after I have sorted a few things out we can go
  2. I had a telephone discussion with the course leader today and she advised me to withdraw from my nursing course and reapply to the other University once I have my test results through and all is OK. I personally think this is the most sensible course of action although I would have liked a simple transfer, it would be easier this way. I feel very sad about not being able to work with my new friends but I guess life has a different deck of cards for me. My cheeks are still burning red, I look very cushingoid today. I feel so tired and a little low. I thought I'd jump on the scales and see
  3. Well, its been a proactive day in terms of my health and fitness. I started my new healthy eating regime today and did 20 minutes on the strider. It really tired me out. I am 8 weeks post-op tomorrow and I told myself that once my 8 weeks recovery is up, I will attempt to see if I can lose some weight. I am not that optimistic being on 30mg of hydro as it is bound to prevent weight loss, but even if a few pounds come off and I hit a plateau I will be happy. I don't like being this big and the last time I was this big was just before my 1st op and I had full-blown cushings then. I am gettin
  4. Well, I went in for the blood draw on Tuesday and it took 5 attempts to find a vein that would co-operate - came away with all my arm swollen and bruised. It's very sore. yesterday, I was feeling so rough. I think its a combination of starting back on the hydrocortisone and changing insulin. Actrapid ceased production at the end of December and I had enough to see me through to now. I have been switched to Novotrapid which is a shorter acting insulin. I feel very rough. I was incredibly emotional yesterday evening. I just wanted to sit down and cry and just get it all out of my system - someti
  5. Currently doing a 4-day Dex test. Started on Friday and will have a blood draw tomorrow (Tuesday) at 9am. Also doing 2 days of 24hr UFC collections. Felt really awful on the 1st day - awoke during the night shaking, couldn't regulate my body temperature, hot and cold extremes, sharp pains in a centralised area of the back of my head, feeling nauseous. Today I am feeling quite energised. I never know how to look at it, is this good, or is this a bad sign. Cushings can be so confusing whether you are pre or post-op. I am going to the hospital with Mum today. She is having an ultrasound as sh
  6. I must admit if on my first diagnosis I had been told a pituitary tumour, I wouldn't have had a clue but a brain tumour is more clear cut. All I know is I want the buggar out...lol!!
  7. I've always been told that I have a 'benign brain tumour' by all of my consultants and my neurosurgeon...?!!
  8. I wish I knew a cure for it...its one of the things I hate the most and I have suffered since I was in my late teens. Thanks for posting this Mary.
  9. diane177432

    blog blog blog

    I'm sorry Christy...I didn't forget you, honest ummmmmm...I just forgot you were redirected...
  10. It's lovely to see another blogger Kandy!! I hope we can give each other all the support we need...you need not feel alone here... Much love Diane xx
  11. diane177432

    blog blog blog

    Hi Jack, Its lovely to see someone else trying out the blogging...me and Adrienne were feeling very alone! You have a very beautiful family...you must be extremely proud. I think its fantastic that you are a stay at home Dad and are obviously providing a very stimulating environment for your children - that's the hardest thing I found, being in recovery, that I had little energy to take Harry out and participate in activities. he is 4yrs old and I just sometimes feel that I am hindering him. As time goes on and I feel better, we are doing more things though. I still haven't got him a place
  12. I wear the white 'Make Poverty History' wrist band. Lot's of charities are using this as a way of promoting their causes - I think it's a fantastic idea. Diane
  13. I wear the white 'Make Poverty History' wrist band. Lot's of charities are using this as a way of promoting their causes - I think it's a fantastic idea. Diane
  14. Hi Mary, I can't praise you enough for this wonderful site and I sing your praises and those of other people on this site to most Doctors that I meet here in the UK. If there is anything I can do here then I will. Hopefully one day some of us UK cushies can meet you all. Until then I'll keep posting and you have certainly given me some other ideas on the list. I always said once I had the op and was cured I wouldn't turn my back on other people suffering and that promise still stands. Love to you all. Diane x
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