Adrienne

Hi MaryO, everyone. To share good news I am finally getting a recliner and a laptop. I hope to keep my swelling down that restricts my internet usage so so much. So I can help. I am totally housebound and just now giving up my apartment to live with my mom. i was alone for 1 1/2 years and that's about all I can take. I am having adrenal crises just from havign teeth [cushings! grr] pulled and have gained 60 lbs in water. I have a good doctor after firing my last one and Dr. Ludlam is my excellent endo on call. I am lucky but doing worse than ever for tapering.

Point is i cant go out attend meetings or do anything and i never have been able to. But i can help online as i used to if i can keep the swelling under control with the laptop and recliner. I dont cant even sleep in a bed i sleep in a couch and i cant roll over or sit up easily do am REALLY looking forward to my chair. Maybe I can do so much more again as i used to, so far back nobody remembers but i used to have so much to give so much to help with.

Its hard being the only cushie so sick from just steroids and still on so much so many. Theres a new diagnoses coming out just now that ive always had which is an extreme resistance to and sensitivty to steroids. Steroid Withdrawal Syndrome is what theyre calling it. I crash like anyone else... as if i had a tumor. I mostly have a good attitude still but i am angry and go thru a lot of mental angst because of my decline and been out of work for 6 years still fighting for social security, still fighting to keep my hips from breaking.

I can email and thats about it. I am worried about our MaryO and want to help and some of these on the list I know i can do and more and more until i can really make a difference again well thats my goal. I hope my freedome with a laptop and chair will help. The chair was only 450.00 total and i hope i dont tip it over with my weight but its extra large. We shall see. We said we'd shore it up with boards if need be!

Id love the talk to cushies more on the phone i have free call plan in USA and CANADA 24/7. So as soon as i am more stable... if i am ever out of the wooods so tp speak gosh i miss giving back. All i can do is take from my mom and friends i have nothing to give at the moment but i think of you all with so much love and compassion.

And MaryO, that nephrectomy was hard for me to recovr from and i was 17 at the time. So please take it easy and it and know it will take time for the muscles to work again and the sensation to come back. You're not alone!

My doctor is a self ascribed ENDO GEEK and it is possible she could help further our cause. I will keep it in mind...

Im working so hard to come back and get better. Im not giving up though so nobody else better either ya hear

This question always gets me too. And the answer is always changing depending on the resource.

You know, the new Patricia Cornwell books talks about pit tumors. Its obvious, my mom and sister say [as I have yet to read it] that theyre speaking of csuhings. But never ONCE is that word used. I find that a lot. The news sources speak of cushings as the underlying condition, without ever NAMING it cushings. Annoying!

My mom just bought some stamps. Theyre cool!

Women are buying this book? Argh. Its as bad as adrenal fatigue almost. You guys read that book??? I didnt bother because research shows normal adrenal glands dont get worn out from stress. I dunno whata you think?

MaryO, are we gonna have Valentines stuff this year? Like to buy some for my honey [blushes]

These are great. Thanks Simone! How are you?

I love raising money thru this easy site...it adds up!

Hopefully! HE HE

Shauna, you said to contact you about an attorney???

http://jcem.endojournals.org/misc/ifora.shtml

Okay, so its a link. Look at it. Tell me what do you think? They accept papers of research on all forms of endocrinology but is it only from doctors? Hey, who wants to chip in for a lab? We coudl kidnap Dr. F. and make him do ground breaking research for us.

Any takers?

baaa.gif

Ah ha ha ha ha!

http://jcem.endojournals.org/misc/ifora.shtml

Okay, so its a link. Look at it. Tell me what do you think? They accept papers of research on all forms of endocrinology but is it only from doctors? Hey, who wants to chip in for a lab? We coudl kidnap Dr. F. and make him do ground breaking research for us.

Any takers?

baaa.gif

Ah ha ha ha ha!

THANKS terry this is the first documentaed info on inhaled origin of exogenous cushings that i've seen. im saving in my research pile! did you post in steroid board? [guess i should go look lol...]

You guys rule. I got a virus from someone here; poor person i wont name them i alerted them i hope they erased it in time. I did not open it as my virus scanner came back with a worm. STILL, it messed some stuff up but i reloaded windows.

I have gotten soooo much junk mail that i cant block it all at whatareader so now i use sweetiepetey2002@yahoo.com. I havent changed it tho, im waiting to transfer my addys oops there i go yakking away lol.

What about that form letter or brochure so we can send them out to friends? I will have a much greater chance of garnering support if we have printed material. Is this something we can do only when we get more money? If so, let me know k?

Great job on the paypal link it works great!

Gold with light blue (cushie blue) writing? Hmm...

Best to you Shauna. Thats the spirit!

Well Bonnie I agree. Because the my horrible diarrhea, I am forced to drink pedialyte, gatorade and lots and lots of bottled water.

When I am REALLY nauseous as I often am, I may have a half a can of ginger ale. Thats about it! I sed to drink colas but lets face it is that really smart with the big D goin' on? Not for me!