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KathiK

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Posts posted by KathiK

  1. I wish I could tell these guys that it's nothing new and that I've suspected, even though I'm not a scientist or doctor, that Cushing's could be hereditary.

     

    My mother has it, I have it, and there's a possibility that one of my sons has it. I'd like to have that gene tested in all 3 of us.

     

    Thanks for the info. It's a great piece. I'm going to print it out and put it in my folder.

  2. Hey Mary, How much does it cost to buy them and how much of a profit will there be? I think that should help in determining the cost. $5 sounds pretty good and it's for as worthy a cause as breast cancer or heart disease!

     

    Is it too late to order any for the Monterey meeting? Thanks - Kathi

  3. There was only one discrepancy I found. In the chart they noted how to test for ACTH, early morning. Everyone should have a regular "high" reading in the morning. Some, like myself, tested low in the morning for both ACTH and cortisol. Levels should be measured at or close to midnight to determine a diurnal variation. If cortisol and ACTH show up normal in the morning, that's how the doctor will read it - you wouldn't have Cushing's according to him/her.

  4. I have contacted two of the representatives in our state about 2 months ago. None have responded but I did send the letter out via email. I believe it's better to send the letters out snail mail. I already know one of the congressmen personally as he used to be our neighbor a few years back. I hope that helps to get our foot in the door to declare 4/8 as Cushing's Awareness Day!

     

    I will be sending out letters to all our representatives this week.

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