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aautomo884 last won the day on July 28 2020

aautomo884 had the most liked content!

About aautomo884

  • Birthday 11/22/1968

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  • Location
    New Jersey
  • Interests
    Finding out what's wrong with me so I can have my life back!!

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  1. NA reduces potassium, so if your sodium drops then Potassium will rise.
  2. Cyndie M, New Jersey, Pituitary 1-09-2009 Upcoming BLA 4-28-2011. Yea I think there stats of 80% initial success rate is MUCH LOWER then what they fudge the numbers to be...
  3. Thank you posting this: My live enzymes elevate even if I take tylenol more then 2x in a week. That is one of the reasons I could not follow thru with Keto. Some people are so much more sensitive.
  4. Wow hun, that is incredible. Unfortunately for me, I am the eldest of a very old generation. So it's difficult to figure out what my great grandfather died of when it was 1931. Everything was heart failure or consumption on the death certificates. I did learn that my Grandmothers Only sibling died of Kidney failure at 46, and had "Uncontrollable Hypertension" (probably due to hyperparathyroidism) and My Grandmothers 1st cousin died of pancreatic cancer in 1963 at 52yrs old (probably due to an islet tumor in the pancreas). His son, my dads first cousin died of complications from untreated cushings disease in 2009 at 54 yrs old. My Dad has hypercalicemia but haven't caught a high PTH, and frankly he's too old at 75 to have him poked around. Top that off with my Parathyroid tumors, my Pituitary tumors right side, now left...and there you have it folks, MEN 1. My family was NOT prolific what so ever probably due to MEN and prolatinoma's which don't have any real side effects except infertility. Interesting stuff... Jen, I have a small line in the Putnams as well. If I recall, It was a marriage to one in the late 1700s. I'd have to sift through the paperwork to find exactly who it is. I'm so bummed that Ancestry took over FTM and didn't retain the trees.
  5. Very COOL! Ha ha Susan, too bad the neurosurgery failed me the first time. I don't think either Tom and I are going to feel better about it until it's over ya know? I hate the choice that is before me, and I wish there were other "less radiacal" options, but there isn't, so I'm ok with it now. Of course, I'm the one that is suffering day in and day out. Tom on the other hand would rather me stay JUST the way I am. He's pretty scared, and that's SO not like him, it sorta breaks my heart. XO
  6. Hey Deb, we may be related too! who is your ancestor from the Mayflower? I found today that Ancestry is completely different the FTM. You can't find "how your related to a particular person in Ancestry". IN FTM you could find a person, and then it would tell you the relation, IE 4th cousin twice removed, ya know?
  7. So My MIND has just been blown, and now I'm going to blow all of yours! Many of you may not know this, but I have a very rich family history that dates back to the Mayflower. My ancestors are well-known historical figures, and socialites, so I really wanted to complete a family tree for my children and grand children. I spent a great deal of time from 1999-2002 painstakingly researching my entire family tree. There was not a lot of information available online at the time, so most of my energy was spent in Church of Latter Day Saints plowing through thousands of microfilms and ordering census records and newspaper articles. Back then there was software called family tree maker. I bought it, and painstakingly entered all of the information, then saved it onto a floppy disk, and printed a hard copy, which were over 100 pages. When that computer died, I saved it. It is still in my basement to this day. The floppy disk is just plain obsolete. So yesterday Tom and I were discussing my upcoming BLA (which he is terrified about, poor thing). I was at the computer and he was sitting in an adjacent chair. He looked up over my computer and said "now with all the time you have spent in this office researching Cushing?s, pouring over medical data, chatting with friends, and visiting the boards over the years, you never looked up and wondered, am I related?" I looked up and my jaw dropped. I did a quick Google search on Harvey Williams Cushing, and what I saw before my eyes sent chills up my spine. I looked at Tom and said OMG his family is from Hingham Mass. Needless to say I spent most of my morning researching his family tree, and yes, we are related! You could blow me over with a feather! Isn't that something? The neurosurgeon who discovered Cushing?s disease would have a descendant that would be stricken with Cushing?s herself. That's not the only odd thing about this. At the risk of sounding a bit looney, I began having symptoms right around the time that I received the family heirlooms and pieces of furniture that drove me to doing the genealogy in the first place. Weird, oh and when I met Tom, he had a 1988 Ford F250 that he was piecing together, the front fenders were zebra striped cuz he bought a truck from Six Flags Great Adventure safari park that he was using for parts. CREEPY! So I know have a new hobby, inputting my WHOLE family tree onto Ancestry.com. I can't believe how much information is available now, it's absolutely incredible. What I researched today would have taken me weeks in the 90s. Although distant relatives, here is how the good Doctor and I are related (the short version): Matthew Cushing and Nazareth Pitcher arrive in Hingham MA with their 5 children the oldest being Daniel (from my line) and his youngest brother John (Harvey's line) Daniel had Theophilis, who had Abel, who had Jonathan, who had Sarah, who married William C Torrey, who had Sarah who married Albert Farrar, who had Henry, who had Clayton, who had Clayton Jr, who had LIL OL ME! John Cushing had Matthew, who had Josiah, who had David, who had Dr David, who had Dr Erastus, who had Dr Henry Krike, who had Harvey who discovered that LIL OL TUMOR IN MY PITUITARY! So there u have it folks, distant cousins! Isn?t it cool? This is a historical document that states that My Great Grandfather Head Senior Buyer for Bergdorf Goodman, husband of Maud Becker daughter of C A Becker who was the Co founder of what is now known as Chase Manhattan Bank is a direct descendant of Col David Cushing?s of the Massachusetts Militia and a member of the Son?s of the Revolution. This is a Hepplewhite Federal Secretary Desk that has been in my Family since the Late 1700?s. The family members who have owned it are typed on the back of a drawer (you can see Sarah Cushing from the Harvey Cushing line) and my ancestors have carved their names though out the large drawers. This desk was featured in House Beautiful along with some other pieces I have been given in the Estate of Henry Farrar found in the Nov 1911 issue. This is Historical Document declaring that my Father is a member of the General Society of Mayflower Descendants.
  8. Good one, I'd also like to add to that question, if your CBG is high, how does it affect treatment? If you have a BLA, will the hydro build up in your system the same way Total cortisol does causing "cushings symptoms"?
  9. I miss chatting with you. Hope you are doing well.

  10. Very interesting read. Perhaps his open wounds were the cause of diabetes which is also caused by cushings! Hmmmmm!
  11. Can you be Hyperthyroidism and Hypothyroidism at the same time?
  12. Congrats on your dx! The very best wishes for a cure!

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