LisaMK

I signed up and noted that there are only 4 or 5 pituitary patients in the database, if you are interested - check it out!

http://www.virtualtrials.com/brain/

I swear my birthmother's whole family has it. And I got mine at puberty just as they described it. I wonder what it would take to get my DNA checked?

http://www.pathguy.com/lectures/adr-test.htm

I've always liked his other stuff, I didn't realize he had information about Cushing's on his website.

Because a single laboratory test seldom establishes the final diagnosis in adrenal disease, you must know what you are doing!

 

 

If you diagnose a disease that is not present, the patient gets lifelong medication, unnecessary surgery, or unnecessary radiation.

 

If you fail to diagnose a disease that is present, the patient is likely to die of a disease that would have responded well to treatment. (Suicide is common among patients with Cushing's syndrome.)

 

If you make the correct diagnosis, the treatment of most of these diseases is very satisfying to physician and patient alike.

 

 

The whole business is very complicated. If your screening tests support your idea that the patient has any endocrine disease, it is usually best to obtain consultation with an endocrinologist.

I emailed Barbara Boxer. A long email too! I hope someone responds.