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maddiesmom

ChattyCushie
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maddiesmom last won the day on October 22 2010

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About maddiesmom

  • Rank
    Chatty Cushie
  • Birthday 06/08/1972

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  • Gender
    Female
  • Location
    Illinois
  1. I would really like to ask why so many of us are still feeling so poorly after having a BLA. And I don't mean just a couple of months after a BLA, I mean those of us that have waited it out and still aren't feeling cured. I still have ALL of my Cushing's symptoms and am much worse off since my BLA. I would also like to hear more about the PET scan with cosyntropin to find rest tissue/ residual tissue. Also, are there other ways to look for rest tissue? Thanks!
  2. Hi we have talked in the past...i just saw that you said you had noticed first symptoms after Derpovara shots....Thinkg about it now i had my first symtoms after i got those shots too...i felt so awful they recoomoned i stop getting them. Have you gotten any further in investigating that issue?? Just curious. Never tought of that.

  3. how ru? Do they think you stil have adrenal tissue??

  4. I know in my heart the Depo started all of my symptoms. I was 100% healthy before I started Depo shots. I mean no health problems at all. None. Flash foward 12 years... * Hundreds of tests * Several doctors * Years of feeling sick, thousands of dollars spent, loss of so many things * Unsuccessful pit surgery * 10 months post BLA - AND STILL NOT BETTER. NOT AT ALL!!! It's so strange that this topic came about again today and here is why: I am currently testing for rest tissue or an ectopic source. I changed from hydro to dex for 3 days so we could see if I am making any
  5. Testing for rest tissue Fri and Sat. Switched to Dex yesterday.

    1. peaches

      peaches

      Thinking of you, I hope this will be resolved very soon.

    2. saberlowe
  6. The specialty flex is pretty
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