Lisa-A
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Posts posted by Lisa-A
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What about flooding Oprah.com with our need for awareness...I just sent an email with a link to this site...it is a disease that is up her ally, it is rare, a womens issue & we are called fat & crazy....
She would be perfect, it is a longshot but all it takes is the right person reading about what we have been through!
Lisa
P.S. I will see what I can do in NorCal...
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I am still testing but with all of the research & Dr. Ludlams visit I am convinced that I have cushings, so I am going to take that day & make it mine. I also hope that others do not have to endure the abuse & slander that I have lived with for too long. I am angry & fired up and if it is my only accomplishment in life, I am going to somehow make a change about how the mentally ill or precieved mentally ill are treated in our medical system. It is shocking that we have to deal with such contempt. 
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My new great PCP calls it a pit. tumor& so does Dr. Ludlum. But they both refer to my surgery as "brain surgery".
Before that no one would even discuss my tumor, so who knows!!!!
Have a Great day everyone!
I am still testing but with all of the research & Dr. Ludlams visit I am convinced that I have cushings, so I am going to take that day & make it mine. I also hope that others do not have to endure the abuse & slander that I have lived with for too long. I am angry & fired up and if it is my only accomplishment in life, I am going to somehow make a change about how the mentally ill or precieved mentally ill are treated in our medical system. It is shocking that we have to deal with such contempt. 
Family's Despair over Rare Disease
in News Items and Research
Posted
Boy Oh Boy this one scares the H- E DOUBLE TOOTHPICKS out of me, it hits so close to MY home!
Lisa
I think I will wear the Xtra gear this week!