Fairley

Kate, New Jersey

Pit Surgery #1 - Jan. 2007 (Failed)

Pit Surgery #2 - July 2007 (Total Pit Removal; Failed)

CSF Leak Surgeries - Oct. 2007 (Failed; still have small leak)

Open BLA with 18" incision - Sept. 11, 2008

Gamma Knife Radiosurgery - Oct. 2009

No pit, no adrenals, radiation damage to hypothalamus (cannot regulate body temp.)

Hi all,

I am trying to purchase the LAST LARGE blue band -- it says there is one left -- but then when I try to check out, it says that there is insufficient stock. I would like to buy this for myself as a 40th birthday present. Does anyone know if there is an extra one floating around? I can tell from the thread that no more large blue bands are getting ordered....(and I can't wear a medium)....

Thanks,

Kate

NOT that it would help this family, per se, but my advice would be to SUE SUE SUE SUE SUE -- if only to hold his former doctors responsible for their negligence. If we keep taking a passive approach, then there will NEVER be any accountability to properly test for this disease when the symptoms are right there in front of the noses of so many prior medical professionals!

I am not suggesting anything I don't plan to do myself. If my own lawsuit will force this one single repro-endo practice to more aggresively test (or at least refer out) potential Cushing's patients, then it will save lives. Literally!

See, now I just wish my local country doctors would have googled my symptoms years ago....would have saved me the loss of nearly all of my 30's to Cushing's.....(sigh)

Thanks, ladies, for sharing these articles!

Robin, you are like the article QUEEN!

Can you tell us more about these breath tests? Is this a cortisol test? Is it done at home or in the office? Anyone else heard about this test?

You know, come to think of it, my Maltese does the same thing. He sniffs my breath sometimes. Maybe I will test on those days and see if that yields some results....