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cheryl f

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Everything posted by cheryl f

  1. Cushings Understanding Support and Help Org (CUSH) received word this morning from Senator Inhofe's office (OK) that the Resolution making April 8th National Cushing's Syndrome Awareness Day has passed. More information will be posted on the CUSH website (cush.org). A press release will be done as well from the Senators office. This is the third year that Senator Inhofe's office has helped us with this-please send a thank you note to him if at all possible. Cheryl Farrar CUSH VP
  2. And Yea! At least we are going to have a Cushings Awareness Day April 8, 2008!
  3. I think Gumdrop is probably correct. I don't remember the reason that it isn't perpetual, but that's the way it is for now. Sen. Inhofe is going to do the Resolution for us irregardless if another Senator helps by co-signing, but if you want to contact your Senator that would be great. When I tried to contact my Rep at the time, he wasn't interested in it, so I wasn't abale to get his help. He's not there any more... The first year we had the Cushing Awareness, CUSH hosted a conference here in OKC and about 50 people were able to come. It started just as a "let's have a party" ty
  4. Senator Inhofe -Oklahoma is going to do the Resolution for us again this year=2008. I asked last year about having it being perpetual, I don't remember the reason but I don't think they can do it that way. If anyone has any more info about that, I would appreciate it. cheryl f
  5. It's been wonderful hearing ideas of how to further the Cushings Awareness that we all want . And to hear how things were started so many years ago is still amazing to me. You each have been so helpful in getting us to where we are- Sue was thrilled when she found out that the Cushings Awareness Day that so many had worked on would finally be a reality-as we all were. So in keeping with the spirit of what we all are trying to do-bring Awareness to this terrible disease- Senator Inhofe's office is going to prepare the Resolution for us-for Cushings Syndrome Awareness Day April 8,
  6. Thanks Mary(Mertie)... I meant to look that up and plum forgot! Anyone here from Connectiuit? Thanks also to Mr. Dodd! cheryl f PS MaryO-the boards are so cute with the Easter theme....
  7. Thanks for sending that link-it was most helpful as was Tammie's and MaryO's for those of us who are severely computer iliterate. Who is Mr. Dodd I'm wondering tho? Is he another Senator? That's my guess,but I don't know for sure. Last year Sen. Coburn contacted Sen. Inhofe and co-sponsored the resolution. Anyway..we'll have to figure this one out! cheryl
  8. Maryo, I was able to print it from the link that Tammie listed. I think I'm going to include this in the info that I send to the PCP's here in OKC area. It sounds soooo great! Thanks again! cheryl
  9. Thanks Mary.....it didn't come up for me tho because it showed to be a pop up of all things! Anyway, thanks for the info. I'll see if I can figure out how to do it....love c
  10. Hi ya'll... First, the tornados were about 9 miles west of me in OKC, and 3 miles west of my daughter and brother-in-law...we're all ok, but there was some damage where it hit. Mary, how do I get a copy of that stuff? I'm going to go back and look at what has been posted, maybe there is someone who has posted the info.... Thank you for doing that. It sounded good, huh! Anyway, last year I contacted the different newstations and newspaper. Also small towns around OKC, as far away as 60 miles even. I e-mailed some info and faxed other when I could. There are different ways t
  11. My understanding is that it will be only this year again, and to get it each year we have to have someone sponsor it. I'm not sure why it can't be perpetual, but that's my understanding. I'm not sure if it's because it's only a resolution in the US Senate and not in the House as well that makes a difference or not. Maybe if they both present Resolutions and the President signs it, maybe then it can be perpetual. I'm not sure. Wish I had more info. Thanks again for everyone's help. Cheryl
  12. Hi all, It's after work now and I have more time to send info. I received the PR release from Sen. Inhofe's office in a 2nd e-mail. For some reason it has a link to another Cushing's site, and since the release has already been sent, there isn't anything we can do about it. But it's for all of us anyway and we just have to look at it that way. I did ask them if they could remove it however....lol.... So if you'd like me to send you a copy of what I have, I'll be more than happy to send you the forward. Somethings you might do: copy the press release and send it to the p
  13. It's official, the Senate Resolution 127 passed last night making April 8th, 2007 National Cushing's Awareness Day. Let your newsmedia know! PS, and if you can find Sen. Jim Inhofe's e-mail address (I am late for work and don't have it immediately avail) please tell them how much we appreciate their efforts. He's the US Senator for Oklahoma. Thanks, Cheryl Farrar CUSH Vice President
  14. Sen. Inhofe's office contacted me. They are officially working on the Resolution this week (that's the way it was done last year) and will let me know as soon as the Resolution is passed. So it should be passed I'm guessing early next week, late this week. I'll let you know when I hear anything! love, cheryl
  15. I haven't heard anything from Sen. Inhofe's office yet, but they are so great there at helping us. Have your US Senators contact his office to help co-sign the Resolution...have them contact Suzanne in the Washington DC office.
  16. I received an e-mail from U S Senator Inhofe (Oklahoma) office yesterday. His assistant-Suzanne is working on the Resolution now. It would be a great time for each of you to contact your US Senator's office and ask to speak to the assistant who helps with health issues. Ask them to please enlist the support of your Senator for the Resolution making April 8th, 2007, National Cushings Syndrome Awareness Day. You might also send an e-mail to that person and ask thata they forward it to the Senator, ask for a phone call back from the assistant to let them know if they will contact Senator Ihof
  17. Thanks Autumn! I've got a call into the assistant to the Senator who is going to re introduce the Resolution. I hope to hear from her next week....have you thought about coming down to visit this year??? anyway, we can do this....thanks again for all your help! love Cheryl f
  18. Those are some great ideas Jayne! I love your idea of the women's forum information...if i can remember that long, I might try to do one on a Saturday sometime...that's an excellent idea. It just takes us working together to get the word out. e-mail me sometime if you get the chance, my e-mail add is: cheryl1957ann@sbcglobal.net love, cheryl f BTW, I realize that April 8, 2007 is on Easter Sunday, but it doesn't mean that we can't have an awareness in our own communities, like the week before or the week after. Last year the Resolution got passed on the Tuesday before t
  19. Autumn & Judy, Thank you for the support of this awareness day effort! I know that you both have been invaluable in helping in many ways, including last year's awareness day. I asked about a perpetual awareness day, and my understanding is that they don't do that anymore...not sure why, or what the difference is.....maybe someone else can figure that one out...maybe even ask their senator about that. But we can do what we can, and right now this is what we can do.....if it helps just one person, it will be worth it....let's get the word out! 2007 - The Year of the Cure
  20. I contacted Senator Inhofe's (OK) office recently, and he is happy to reintroduce the Cushings Awareness Day Resolution for April 8, 2007. Please contact your US Senator's office and ask them to support this Resolution. I'm not sure when Senator Inhofe will try and contact other senators but if you send a letter soon, and call your senator to let him know your letter is coming, and that Senator Inhofe is going to reintroduce the Resolution, it will truly help. Last year the Resolution was introduced, but to my understanding, only one senator-another from Oklahoma was the only one to
  21. Mary, Thank you so much for these ideas...sometimes we think about doing things and get side tracked for one reason or another. Tonight I found myself very sad and crying and decided to get on the boards to see what was going on....and I found that this first post helped me tremendously. I know what they say is true, that you can find yourself when you loose yourself in service, and that's what this board is, one of the ultimate services to others. Thank you so much for your kindness and the tremendous help that you give others. Love, Cheryl F
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