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Everything posted by Rissa

  1. I haven't been on here for awhile and like others said, this site is a godsend Mary! I come back every once in awhile when I'm looking for more answers. Thank you so much for this site. So many people here have offered advice and friendship. I am grateful for it.
  2. I havent been on the boards in awhile, but this site has helped me so much. Donation just sent!
  3. Great questions. I would also like to hear the answer to Alicia's questions about the role of Florinef in a post-pituitary patient who is panhypopituitary still 2 years post-op without functioning adrenals. In a post-pituitary surgery patient with total pituitary removal, for a recurrence, what are the best methods to test for recurrence and what are the benefits/risks of radiation vs. BLA. Thanks again to Dr.F. for volunteering his time. Rissa
  4. I have two questions: 1. Is there any group of experts who work with Cushing's syndrome/disease (including complicated/cyclical patients), working on a consensus statement or guideline to identifying and treating these patients to help the medical community better understand this disease and possibly identify patients sooner. Is there enough published evidence for a guideline to be developed? 2. What is the current role of IPSS in diagnosing Cushing's disease, particularly in cyclical Cushing's patients? Thanks Mary! Rissa
  5. Great to hear Mary!! His web chats with this website were one of the first things that led me on this path. They helped explain so much to me about what might have been happening to me! So glad to see another chat with Dr. F. Rissa
  6. Kate, Here are a couple I found. I'm not sure if these are the ones you were looking for, but maybe they will help! This is a case report of a patient with diabetes and Cushings: http://www.jstage.jst.go.jp/article/intern...45/21/1237/_pdf. http://jcem.endojournals.org/cgi/reprint/88/12/5808. http://eje-online.org/cgi/reprint/153/6/837. Association of subclinical hypercortisolism with type 2 diabetes mellitus: a case-control study in hospitalized patients . Good luck! Rissa P.S. I found this article on post-op rates of remission. I haven't taken a really good look at it. It may not even relate to your case, but thought it may help. http://home.mdconsult.com/das/journal/view...MI&SEQNO=26. You can get a free 30 day trial of mdconsult online! If you can't get it, let me know and I will email it to you!
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