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About Sylvia3

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  1. Oh perfect! So the type of Cushing's that no doctor wants to diagnose will make you walk into walls.
  2. Wow. I believe that after seeing what my PCP's peers said about her referring me to them for Cushing's.
  3. They posted my blog!!! 772.July 24th, 2008 11:35 pm I have read through all of this and it is a really charged topic. I want to address this to all of you caring doctors struggling to do the right thing. Talk to us! Don?t hesitate and personally, I don?t really care how you bring it up. Here?s the thing, I might cry, it may be uncomfortable for you because I am crying but I can talk and listen and cry at the same time. It?s not that big a deal. Then LISTEN. Really try to get past the judgement that is stuck in your head from the last patient that looked like me who lied to
  4. The gloves are off! I wish I thought to copy my response, I'll keep my eyes out for it. If they post it then I will copy it. It felt really good to respond to that blog. Probably a lot cheaper than therapy too!
  5. Mary, You and Robin are dragging me kicking and screaming into the 21st century! I posted a reply to that blog.
  6. Vision issues are a classic symptom of a pit tumor... it's a start. At least someone is talking about it and even the pitiful amount of tests he is talking about is still twice as much and 3 times as many as any of my local doctors would let me test. It's a tiny step in the right direction.
  7. That is so on the money! Good for her and you and everyone else that spoke up.
  8. It does make me nuts though. I used to be thin and see things like Greatest Loser which is a great inspirational show and think that is wonderful but how does someone gain that much weight to begin with? How do they finally get to the point that enough is enough? Now that I am obese and see the other side of it, I am sure it isn't just a Cushing's thing. There is almost always a reason behind the weight gain but people are so beat down by it all that it is easier to accept that this is your fate than to endure any more critisism or worse, get ignored like you don't matter. You are invisi
  9. Robin, you ROCK! Wanted to add, I'm sure this guy feels a little picked on when all he wanted to do was talk about basic obesity and you have proven and will continue to prove, there is no such thing as basic obesity. There is always an underlying cause. Most people that t gain a 100lbs know it, are mortified by it and know about thinks like excersize and nutrition. They also know that their health is at risk which is why they are in the doctor's office to begin with. Doctors need to stop judging and start helping patients look for real answers.
  10. If there were a drug that could treat Cushing's, I would bet money that more doctor's would suddenly be more open to testing for it since there would be a treatment that they could understand.
  11. Cherri, I forgot about that. Five years would have been the entire time that drug was available! How much weight did she need to lose if she was on it for that long and if she was that overweight, I'm sure there was more going on with her before but at the time, my doctor said that it was know to cause heart problems and I had an EKG every month. I don't think I was on it very long either but still. Scary.
  12. That's frightening! I have tried that diet drug and really wished it was still around when my weight piled on. Wonder how many of us have also tried it?
  13. I love that! You can literally starve to death while remaining obese. Hope doctors read blogs!
  14. ?The doctors say they have found it at a very early stage. They want to monitor it at the moment and not operate. Obviously it?s very serious and they are not unconcerned." Sounds like that same old stuff to me. "Blah Blah Blah it could be serious, let's just wait and see." Until it is!!! Grrrr!
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